Search
Search
About
Log in
Join
Experiences with
Autoimmune diseases
Posts
Communities
43,568 public posts
Filter results
Novel Drug Made of Gold Nanocrystals Appears Safe in Multiple Sclerosis
Small study suggested benefits for MS patients with chronic optic neuropathy
https://www.medpagetoday.com/meetingcoverage/aan/109777?xid=nl_mpt_DHE_2024-04-22&eun=g588185d0r&utm_source=Sailthru&utm_medium=email&utm_campaign=Daily%20Headlines%20Evening%202024-04-22&utm_term=NL_Daily_DHE_dual-gmail-definition
Small study suggested benefits for MS patients with chronic optic neuropathy
https://www.medpagetoday.com/meetingcoverage/aan/109777?xid=nl_mpt_DHE_2024-04-22&eun=g588185d0r&utm_source=Sailthru&utm_medium=email&utm_campaign=Daily%20Headlines%20Evening%202024-04-22&utm_term=NL_Daily_DHE_dual-gmail-definition
BettysMom
in
My MSAA Community
2 months ago
Multiple Sclerosis Predicted by Autoantibody Signature
A specific autoantibody signature was seen in a subset of people with multiple sclerosis (MS) long before clinical symptoms appeared, blood samples showed.
https://www.medpagetoday.com/neurology/multiplesclerosis/109767?xid=nl_mpt_morningbreak2024-04-22&eun=g588185d0r&utm_source=Sailthru
A specific autoantibody signature was seen in a subset of people with multiple sclerosis (MS) long before clinical symptoms appeared, blood samples showed.
https://www.medpagetoday.com/neurology/multiplesclerosis/109767?xid=nl_mpt_morningbreak2024-04-22&eun=g588185d0r&utm_source=Sailthru
BettysMom
in
My MSAA Community
2 months ago
Survey about patient care
Do you live with vasculitis, lupus, scleroderma or Sjögren's syndrome and are a UK resident? Please participate in the survey : https://ipsos.uk/RAIRDAsurvey2024 The aim of the survey is to provide valuable insights into what is working well and areas of improvement in patients' care. The survey in
Do you live with vasculitis, lupus, scleroderma or Sjögren's syndrome and are a UK resident? Please participate in the survey : https://ipsos.uk/RAIRDAsurvey2024 The aim of the survey is to provide valuable insights into what is working well and areas of improvement in patients' care. The survey in
zoe69
Vasculitis UK
in
Vasculitis UK
2 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Help us develop a new information resource on lupus and the menopause
We're developing new information resources about lupus and the menopause. We want to find out what people want to know about the topic and how they want to learn that information, for example through a booklet, a webinar, or a video. You can tell us your thoughts via our short survey: https://forms.gle
We're developing new information resources about lupus and the menopause. We want to find out what people want to know about the topic and how they want to learn that information, for example through a booklet, a webinar, or a video. You can tell us your thoughts via our short survey: https://forms.gle
Debbie_kinsey
Administrator
in
LUPUS UK
2 months ago
The Flare That Keeps on Giving
I was diagnosed with PMR in August, 2022. I also have multiple sclerosis, autoimmune thyroid disease (Grave’s) and Sjogren’s Disease. With a few ups and downs when I had to temporarily increase the dose before dropping back to just above where I had been before the flare, my taper using DL’s slow 5 week
I was diagnosed with PMR in August, 2022. I also have multiple sclerosis, autoimmune thyroid disease (Grave’s) and Sjogren’s Disease. With a few ups and downs when I had to temporarily increase the dose before dropping back to just above where I had been before the flare, my taper using DL’s slow 5 week
Donna5658
in
PMRGCAuk
2 months ago
Nutrition and Autoimmune Thyroid disease: An expert talk
[i]TONIGHT: Join Nicole Goode, (Sunday 21st April 2024, 7pm) for an informative and engaging online expert talk on nutrition and autoimmune thyroid disease![/i] [i]Book your place via Eventbrite at: [/i] https://www.eventbrite.co.uk/e/nutrition-and-autoimmune-thyroid-disease-talk-by-nicole-goode-registration
[i]TONIGHT: Join Nicole Goode, (Sunday 21st April 2024, 7pm) for an informative and engaging online expert talk on nutrition and autoimmune thyroid disease![/i] [i]Book your place via Eventbrite at: [/i] https://www.eventbrite.co.uk/e/nutrition-and-autoimmune-thyroid-disease-talk-by-nicole-goode-registration
helvella
Thyroid UK
in
Thyroid UK
2 months ago
Lupus rash?
I have suffered many different symptoms for a period approaching 15 years. About 4 years ago my GP said that I had too many symptoms across multiple systems and there was nothing more he could do for me. He referred me to the hospital but I’m still waiting four years down the line. I discussed Lupus
I have suffered many different symptoms for a period approaching 15 years. About 4 years ago my GP said that I had too many symptoms across multiple systems and there was nothing more he could do for me. He referred me to the hospital but I’m still waiting four years down the line. I discussed Lupus
Dontknowwhattodo
in
LUPUS UK
2 months ago
Good news on memory following B12 treatment
Hi, some of the regular posters may remember me posting in absolute despair last autumn about my husband’s cognitive issues and extreme memory loss. I’m now posting an update in case it helps anyone else in his position. In summary he had experienced symptoms over a couple of decades since he was twenty
Hi, some of the regular posters may remember me posting in absolute despair last autumn about my husband’s cognitive issues and extreme memory loss. I’m now posting an update in case it helps anyone else in his position. In summary he had experienced symptoms over a couple of decades since he was twenty
Zmalp
in
Pernicious Anaemia Society
2 months ago
Blood test positive lupus
Recently had bloods done due to a few skin rashes and I looked at the results and some say lupus positive I need more bloods done tomorrow but haven't spoke to the doctor yet but looked online about lupus and a lot of what I'm having seems to all add up to lupus my head is all over the place
Recently had bloods done due to a few skin rashes and I looked at the results and some say lupus positive I need more bloods done tomorrow but haven't spoke to the doctor yet but looked online about lupus and a lot of what I'm having seems to all add up to lupus my head is all over the place
Debz1974
in
LUPUS UK
2 months ago
Parathyroid
I am booked in for a Parathyroidectomy and I just wondered whether my APS, as an autoimmune disease, could have had something to do with parathyroid condition? Thank you.
I am booked in for a Parathyroidectomy and I just wondered whether my APS, as an autoimmune disease, could have had something to do with parathyroid condition? Thank you.
Raschen
in
Hughes Syndrome APS Forum
2 months ago
Blood results help
Hi I have had blood test tsh is one (range 0.4 to 5) and T4 is 14 ( range is 9 to 19). Also had an ultrasound which showed altered echotexture but no enlargement of thyroid. Are these results OK? Have symptoms of underactive thyroid but results all in range. Thanks
Hi I have had blood test tsh is one (range 0.4 to 5) and T4 is 14 ( range is 9 to 19). Also had an ultrasound which showed altered echotexture but no enlargement of thyroid. Are these results OK? Have symptoms of underactive thyroid but results all in range. Thanks
Lolly2564
in
Thyroid UK
2 months ago
Other blood results
I now have more results Serum folate 14.3 (3.1-17.5) Ferritin 138 (13-150) Iron 14 (5-28) B12 280 (200-940) Since they are in the range ‘everything is normal’! The coeliac one was clear so I can now try gluten free for 3 months to see if it makes any changes. But I am still tired, muscle aches
I now have more results Serum folate 14.3 (3.1-17.5) Ferritin 138 (13-150) Iron 14 (5-28) B12 280 (200-940) Since they are in the range ‘everything is normal’! The coeliac one was clear so I can now try gluten free for 3 months to see if it makes any changes. But I am still tired, muscle aches
Purple450
in
Thyroid UK
2 months ago
new member
hi everyone l joined this group today was wondering could l get any advice, am 38 been recently diagnosed with underactive thyroid l am currently on 100mg of Lev tablets but l still feel tired l have put on so much weigh in past few years and didn’t know what was causing it, I have bought the semuglutide
hi everyone l joined this group today was wondering could l get any advice, am 38 been recently diagnosed with underactive thyroid l am currently on 100mg of Lev tablets but l still feel tired l have put on so much weigh in past few years and didn’t know what was causing it, I have bought the semuglutide
Preciouspearl
in
Thyroid UK
2 months ago
Lupus re-diagnosis UCTD
Hello All, so when I last posted I had been to the rheumatologist Prof X and told my bloods were not suggestive of lupus but he did not suggest want condition could be the underlying cause of my symptoms. This morning he chose not to see me, instead I saw a very nice female doctor in clinical research
Hello All, so when I last posted I had been to the rheumatologist Prof X and told my bloods were not suggestive of lupus but he did not suggest want condition could be the underlying cause of my symptoms. This morning he chose not to see me, instead I saw a very nice female doctor in clinical research
KeepingUpBeat
in
LUPUS UK
2 months ago
Study: Depression is largely prevalent, but undiagnosed in SLEResearchers in Pakistan surveyed 40 people with SLE using PHQ-9 scale
Depression is highly prevalent among people with systemic lupus erythematosus (SLE), but often goes undiagnosed, according to a single center study in Pakistan. The “treatment of depression is a vital component in the management of these patients and should be offered where appropriate,” the researchers
Depression is highly prevalent among people with systemic lupus erythematosus (SLE), but often goes undiagnosed, according to a single center study in Pakistan. The “treatment of depression is a vital component in the management of these patients and should be offered where appropriate,” the researchers
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 months ago
T3 when to take it
have been put on a T3 trial by a private doctor who specialises in thyroid conditions, just wondered what time of day morning and evening is best to take it, as have been told to take it twice a day. Been on thyroid medication for over 70 years. For a underactive thyroid. As members say the thyroid
have been put on a T3 trial by a private doctor who specialises in thyroid conditions, just wondered what time of day morning and evening is best to take it, as have been told to take it twice a day. Been on thyroid medication for over 70 years. For a underactive thyroid. As members say the thyroid
elwins
in
Thyroid UK
2 months ago
Mental health support for patients with rheumatic diseases - just published
https://www.phpc.cam.ac.uk/pcu/experts-call-for-urgent-mental-health-support-for-people-living-with-long-term-
autoimmune
-
diseases
/ And here's the paper: https://academic.oup.com/rheumatology/advance-article/doi/10.1093/rheumatology/kead369/7226503
https://www.phpc.cam.ac.uk/pcu/experts-call-for-urgent-mental-health-support-for-people-living-with-long-term-
autoimmune
-
diseases
/ And here's the paper: https://academic.oup.com/rheumatology/advance-article/doi/10.1093/rheumatology/kead369/7226503
zoe69
Vasculitis UK
in
Vasculitis UK
11 months ago
Could thyroid be causing the issues ?
I have enclosed my daughters ( age 22 ) last thyroid result panel. Her TSH in June last year was over 6 then swung down to under 2 in September but is on the rise again. Her T3/ T4 are always just above minimum. Her father has Hashimoto’s as did her Grandfather and so does her male cousin. Grandad unfortunately
I have enclosed my daughters ( age 22 ) last thyroid result panel. Her TSH in June last year was over 6 then swung down to under 2 in September but is on the rise again. Her T3/ T4 are always just above minimum. Her father has Hashimoto’s as did her Grandfather and so does her male cousin. Grandad unfortunately
BigMamma17
in
Thyroid UK
2 months ago
ACID REFLUX-ARTHRITIS
I rarely get time to read or comment on posts here ...but this morning I have and have been struck by the number of us who suffer from Acid Reflux ... Is this a chicken/egg situation ? do we get acid reflux as another sideline to Arthritis or is it caused by medication ? those of us with reflux issues
I rarely get time to read or comment on posts here ...but this morning I have and have been struck by the number of us who suffer from Acid Reflux ... Is this a chicken/egg situation ? do we get acid reflux as another sideline to Arthritis or is it caused by medication ? those of us with reflux issues
RUSTY750
in
NRAS
2 months ago
Underactive thyroid
Hi, my thyroid levels have been up and down recently. I've been on 125mcg and felt fine until the GP decided, after a blood test, to lower the dose. The dosage I need isn't available so I'm now on 100mcg for 5 days and then 112mcg for 2 days. Is this an ok thing to do? Thanks.
Hi, my thyroid levels have been up and down recently. I've been on 125mcg and felt fine until the GP decided, after a blood test, to lower the dose. The dosage I need isn't available so I'm now on 100mcg for 5 days and then 112mcg for 2 days. Is this an ok thing to do? Thanks.
Hidden
in
Thyroid UK
2 months ago
1
...
8
9
10
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
5819 results
British Liver Trust
4473 results
Advanced Prostate Cancer
4381 results
View top 10 communities
Sort by
Most Relevant
Newest