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Sjogrens - eye pain/migraine
I'm getting severe headaches that are around my eyes. I wake up with my head & eyes killing me. Is this just dry eyes? My light sensitivity is off the charts. Has anyone else expierenced this? Is this a Sjogren symptom?
I'm getting severe headaches that are around my eyes. I wake up with my head & eyes killing me. Is this just dry eyes? My light sensitivity is off the charts. Has anyone else expierenced this? Is this a Sjogren symptom?
Texgirl
in
NRAS
6 months ago
JFK - Kennedy and B12
Given the current coverage of the anniversary of the death of President Kennedy, it seems not unreasonable to post about his health issues - specifically the possibility of Pernicious Anaemia. This is a paragraph from near the end of the article. Not intended as anything other than an interesting footnote
Given the current coverage of the anniversary of the death of President Kennedy, it seems not unreasonable to post about his health issues - specifically the possibility of Pernicious Anaemia. This is a paragraph from near the end of the article. Not intended as anything other than an interesting footnote
helvella
in
Pernicious Anaemia Society
6 months ago
Does anyone have IBS and Rheumatoid arthritis
Bit of a struggle dealing with both and Gerd
Bit of a struggle dealing with both and Gerd
welsh12
in
IBS Network
6 months ago
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Next Oxfordshire Lupus Group meeting - 6th December 2pm!
Following a successful first meeting for the Oxfordshire Lupus Group, we are thrilled to announced our next virtual meeting, which will be the 6th December at 2pm. This is a fantastic opportunity to meet others with lupus and associated conditions, friends and family also welcome to join! If you would
Following a successful first meeting for the Oxfordshire Lupus Group, we are thrilled to announced our next virtual meeting, which will be the 6th December at 2pm. This is a fantastic opportunity to meet others with lupus and associated conditions, friends and family also welcome to join! If you would
michaellasmith
Administrator
in
LUPUS UK
6 months ago
Updates to the EULAR guidelines on managing lupus
The European Alliance of Associations for Rheumatology (EULAR) have updated their guidelines on how doctors should manage lupus. You can find out about how these guidelines are used in the UK, and how they've been updated, on our website here: https://lupusuk.org.uk/updates-to-the-eular-guidelines-on-managing-lupus
The European Alliance of Associations for Rheumatology (EULAR) have updated their guidelines on how doctors should manage lupus. You can find out about how these guidelines are used in the UK, and how they've been updated, on our website here: https://lupusuk.org.uk/updates-to-the-eular-guidelines-on-managing-lupus
Debbie_kinsey
Administrator
in
LUPUS UK
6 months ago
In a sexual relstionship with someone who has Lupus type SLE.
How do i maintain a healthy sexual relationship with someone who has Lupus. At times frustrated how do i treat person. Feel like have to be careful delicate with him. I cannot be in control and neither can he. Treating him very delicately intimacy problems sometimes communication barrier. Anyone advice
How do i maintain a healthy sexual relationship with someone who has Lupus. At times frustrated how do i treat person. Feel like have to be careful delicate with him. I cannot be in control and neither can he. Treating him very delicately intimacy problems sometimes communication barrier. Anyone advice
Tameeka723
in
LUPUS UK
6 months ago
transplant and rheumatoid arthritis
partner was listed then delisted as condition improved , now diagnosed with Rheumatoid Arthritis and of course off he goes a googling and finds some random site in the US that says you cannot have a transplant with autoimmune disease such as RA. Of course we hope he never needs a transplant but we need
partner was listed then delisted as condition improved , now diagnosed with Rheumatoid Arthritis and of course off he goes a googling and finds some random site in the US that says you cannot have a transplant with autoimmune disease such as RA. Of course we hope he never needs a transplant but we need
Rshc
in
British Liver Trust
6 months ago
Advice re testing
I had some bloods 6 weeks ago TSH - 4.5 (0.2-4) T4 - 13 (10-20) This prompted my GP to do further bloods this week: B12 - 218ng/l (211-911) IgA - normal Ferritin - 48ug/l (10-322) TPCa - <28 iu/ml (<100) Folate - 4.4ug/l (5.4-24) I have a strong family history of
autoimmune
diseases
- lupus
I had some bloods 6 weeks ago TSH - 4.5 (0.2-4) T4 - 13 (10-20) This prompted my GP to do further bloods this week: B12 - 218ng/l (211-911) IgA - normal Ferritin - 48ug/l (10-322) TPCa - <28 iu/ml (<100) Folate - 4.4ug/l (5.4-24) I have a strong family history of
autoimmune
diseases
- lupus
KRex
in
Pernicious Anaemia Society
4 months ago
New To Group
Hello! My name is AR57 & I became a "Pensioner" this September just gone!! :) I have had Rheumatoid Arthritis since 2001 & I had been stable with it for a good few years until quite recently, but it has now started to give a few wobbles again!! :( It will be good to talk with others who may have similar
Hello! My name is AR57 & I became a "Pensioner" this September just gone!! :) I have had Rheumatoid Arthritis since 2001 & I had been stable with it for a good few years until quite recently, but it has now started to give a few wobbles again!! :( It will be good to talk with others who may have similar
Ghost87
in
NRAS
6 months ago
Musselburgh Coffee and Chat meeting - 2nd December!
Join the Musselburgh Lupus Group for our next Coffee and Chat meeting on Saturday 2nd December, from 10am until 12pm. Meeting at Brunton Hall Bistro, Brunton Hall, Ladywell Way, Musselburgh, EH21 6AF. This is a great way to connect with others affected by lupus, learn more about lupus and share your
Join the Musselburgh Lupus Group for our next Coffee and Chat meeting on Saturday 2nd December, from 10am until 12pm. Meeting at Brunton Hall Bistro, Brunton Hall, Ladywell Way, Musselburgh, EH21 6AF. This is a great way to connect with others affected by lupus, learn more about lupus and share your
michaellasmith
Administrator
in
LUPUS UK
6 months ago
Gabapentin for lupus pain
Hi, does anyone take gabapentin for lupus pain? Wanting some advice on how or if this has helped you, thank you.
Hi, does anyone take gabapentin for lupus pain? Wanting some advice on how or if this has helped you, thank you.
BonnyB
in
LUPUS UK
6 months ago
Help understanding my blood test results.
Hi M54 Have been diagnosed with underactive thyroid for about 4 years now. Symptoms were fatigue, insomnia, depression,feeling cold all the time.However lately have been experiencing memory and concentration problems. Have an appointment with an Endo on the 30th of this month what should I raise with
Hi M54 Have been diagnosed with underactive thyroid for about 4 years now. Symptoms were fatigue, insomnia, depression,feeling cold all the time.However lately have been experiencing memory and concentration problems. Have an appointment with an Endo on the 30th of this month what should I raise with
gerrycrilley1
in
Thyroid UK
6 months ago
NASH & yellow diarrhea
Hi, I was diagnosed with NASH about 2 years ago.. I lost around 4 stone and my diet was a lot better, liver enzymes were in normal range. I then started on leflunomide for my rheumatoid arthritis around a month ago, and my ALT shot up to 100. I've been stopped the drug for about 2 weeks now but since
Hi, I was diagnosed with NASH about 2 years ago.. I lost around 4 stone and my diet was a lot better, liver enzymes were in normal range. I then started on leflunomide for my rheumatoid arthritis around a month ago, and my ALT shot up to 100. I've been stopped the drug for about 2 weeks now but since
Natbat87
in
British Liver Trust
6 months ago
Atypical Pernicious Anaemia
Hi All, If you have any spare time...I found some interesting articles when I searched online for "atypical pernicious anaemia".
Hi All, If you have any spare time...I found some interesting articles when I searched online for "atypical pernicious anaemia".
Sleepybunny
in
Pernicious Anaemia Society
6 months ago
Rheaumatiod athritis
Diagnosed with rheaumatiod arthritis last March, still don't know much about it as I have had a lot going on, wondering if rheaumatiod arthritis ever goes into remission
Diagnosed with rheaumatiod arthritis last March, still don't know much about it as I have had a lot going on, wondering if rheaumatiod arthritis ever goes into remission
Alice70
in
NRAS
6 months ago
cardiac thyroidology in the Uk?
Hello everyone I am new here. I am a super complex patient with couple of cardiac conditions incl. POTS dysautonomia and when i was living abroad was given T3 in small doses that helped me a bit as they said i had an underactive thyroid and a genetic tyoe of anaemia. I am in the Uk now an ddo not have
Hello everyone I am new here. I am a super complex patient with couple of cardiac conditions incl. POTS dysautonomia and when i was living abroad was given T3 in small doses that helped me a bit as they said i had an underactive thyroid and a genetic tyoe of anaemia. I am in the Uk now an ddo not have
Potsiegal
in
Thyroid UK
6 months ago
Flu and Covid vaccine
I was diagnosed with lupus in March this year. I dont know if I should take the flu and covid vaccine. I am scared it will make my lupus worse. Has anyone here take the vaccine?
I was diagnosed with lupus in March this year. I dont know if I should take the flu and covid vaccine. I am scared it will make my lupus worse. Has anyone here take the vaccine?
kali9
in
LUPUS UK
6 months ago
change of meds
Been having a bad year. Ive been unwell since July and was eventually hospitalised with double pneumonia in September. My rheumatologist treated me for a lupus flare as I had been in a similar situation years previous when first diagnosed with lupus. The dose of steroids did the trick and I was sent
Been having a bad year. Ive been unwell since July and was eventually hospitalised with double pneumonia in September. My rheumatologist treated me for a lupus flare as I had been in a similar situation years previous when first diagnosed with lupus. The dose of steroids did the trick and I was sent
mitty
in
LUPUS UK
6 months ago
Ferritin levels
I have collected my blood test results and am looking for information before my g.p. follow up appointment tomorrow.I am under the impression that ferritin levels should be "optimum" in order for my B12 injections to work for pernicious anaemia. Although I've been told all of my blood results are "normal
I have collected my blood test results and am looking for information before my g.p. follow up appointment tomorrow.I am under the impression that ferritin levels should be "optimum" in order for my B12 injections to work for pernicious anaemia. Although I've been told all of my blood results are "normal
Suesue246
in
Pernicious Anaemia Society
6 months ago
New PAS blog posts
Hi, I noticed that there were recent blog posts on PAS (Pernicious Anaemia Society) website. From 8th Nov 2023 is "The Patient Experience in Diagnosis and Treatment of Autoimmune Gastritis and Pernicious Anaemia" https://pernicious-anaemia-society.org/blog/the-patient-experience-in-diagnosis-and-treatment-of-autoimmune-gastritis-and-pernicious-anaemia
Hi, I noticed that there were recent blog posts on PAS (Pernicious Anaemia Society) website. From 8th Nov 2023 is "The Patient Experience in Diagnosis and Treatment of Autoimmune Gastritis and Pernicious Anaemia" https://pernicious-anaemia-society.org/blog/the-patient-experience-in-diagnosis-and-treatment-of-autoimmune-gastritis-and-pernicious-anaemia
Sleepybunny
in
Pernicious Anaemia Society
6 months ago
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