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AF and MAD
anyone else have AF and MAD (mitral annular disjunction) . It was picked up during cardiac MRI. The displacement is 5mm, mild mitral valve prolapse and regurgitation. Neither my cardiologist or EP have said anything about it apart from put me on another very long waiting list to see a more specialist
anyone else have AF and MAD (mitral annular disjunction) . It was picked up during cardiac MRI. The displacement is 5mm, mild mitral valve prolapse and regurgitation. Neither my cardiologist or EP have said anything about it apart from put me on another very long waiting list to see a more specialist
LoveRowing
in
Atrial Fibrillation Support
9 days ago
MELD and UKELD score
Hello everyone, I have Autoimmune hepatitis and have progressed to cirrhosis. I have a MELD score of 23 but i’m not sure how to get my UKELD score. I googled a calculator for UKELD score but it took me to a MELD calculator. My hepatologist is seeing me in 3 minths and I just want to find out where I
Hello everyone, I have Autoimmune hepatitis and have progressed to cirrhosis. I have a MELD score of 23 but i’m not sure how to get my UKELD score. I googled a calculator for UKELD score but it took me to a MELD calculator. My hepatologist is seeing me in 3 minths and I just want to find out where I
Trish02
in
British Liver Trust
3 months ago
The whites of your eyes?
Sorry to bother but these last several days the whites of my eyes are grayish and bloodshot when I wake. Not yellow though. They get better as the day goes on but its curious to me and slightly worrisome. Will be weeks before I can see my liver dr. Has anyone else had this? Is it a common side effect
Sorry to bother but these last several days the whites of my eyes are grayish and bloodshot when I wake. Not yellow though. They get better as the day goes on but its curious to me and slightly worrisome. Will be weeks before I can see my liver dr. Has anyone else had this? Is it a common side effect
CuriousFish
in
British Liver Trust
3 months ago
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UPDATE on my dad. A story of hope.❤️ #advancedPC
Hi my dad was diagnosed with advanced prostate cancer in Oct 2021. With Mets to spine, lungs, liver. He is 85. His PSA was 5000. (Today 28 months later his PSA is 0.031 and still dropping) He was told at the time he had 2 months to live. He had spinal surgery the morning after being diagnosed because
Hi my dad was diagnosed with advanced prostate cancer in Oct 2021. With Mets to spine, lungs, liver. He is 85. His PSA was 5000. (Today 28 months later his PSA is 0.031 and still dropping) He was told at the time he had 2 months to live. He had spinal surgery the morning after being diagnosed because
YC22
in
Advanced Prostate Cancer
3 months ago
Mr Basil Charles
I was diagnosed with mestatic prostate cancer, PSA 29.1Spread to lymph node & bones in rib and spine My treatment plan 4 Abiraterone tablets 250gm & 1 Prednisone daily With a hormonal injection and bone strengthening drip quarterly After 2 years PSA dropped to 0.06 now it's 10.2 Lutetium 177 was
I was diagnosed with mestatic prostate cancer, PSA 29.1Spread to lymph node & bones in rib and spine My treatment plan 4 Abiraterone tablets 250gm & 1 Prednisone daily With a hormonal injection and bone strengthening drip quarterly After 2 years PSA dropped to 0.06 now it's 10.2 Lutetium 177 was
154Eleventh
in
Advanced Prostate Cancer
3 months ago
Portable air purifier for outdoor exercise with allergic asthma
It is the peak of spring allergy season here, as well as other great stuff like air pollution. So I just wanted to share the results of today's testing of my wearable air purifier for asthma. I am lucky to have wooded hills out of my door, so I do not have to scare people while walking there. The device
It is the peak of spring allergy season here, as well as other great stuff like air pollution. So I just wanted to share the results of today's testing of my wearable air purifier for asthma. I am lucky to have wooded hills out of my door, so I do not have to scare people while walking there. The device
runcyclexcski
in
Asthma Community Forum
15 days ago
BlueRock Therapeutics phase I clinical trial for Parkinson’s disease
“We are on the leading edge in the research for new treatment options for Parkinson’s disease as bemdaneprocel, the most clinically advanced pluripotent stem derived cell therapy candidate to date for this disease, continues to show positive trends,” said Christian Rommel, Member of the Executive Committee
“We are on the leading edge in the research for new treatment options for Parkinson’s disease as bemdaneprocel, the most clinically advanced pluripotent stem derived cell therapy candidate to date for this disease, continues to show positive trends,” said Christian Rommel, Member of the Executive Committee
Farooqji
in
Cure Parkinson's
3 months ago
Heart Pain
I wonder if somebody can assist with a question. I'm a 46 year old with a minor mitral valve prolapse. Possible sinus nerve damage on the lower ventricle but minor. I'm not on medication. There is no known 'major' issue or treatment plan suggested by cardiologist. I am very fit with low heart beat. Have
I wonder if somebody can assist with a question. I'm a 46 year old with a minor mitral valve prolapse. Possible sinus nerve damage on the lower ventricle but minor. I'm not on medication. There is no known 'major' issue or treatment plan suggested by cardiologist. I am very fit with low heart beat. Have
MathewHerbert
in
Atrial Fibrillation Support
16 days ago
Hi, why would my diastolic Blood Pressure be of recent dropping and fast pulse ,4 hrs after NDT meds please?
Hello Everyone, I have been on 1 3/8 grain NDT and less to 1 1/4 grain NDT (pressure of Consultant) for over a year. Feeling jittery and shaky over the last month, barely able to stand, achy muscles after eating. I have over the last week spread the dose from twice a day to three times a day, but
Hello Everyone, I have been on 1 3/8 grain NDT and less to 1 1/4 grain NDT (pressure of Consultant) for over a year. Feeling jittery and shaky over the last month, barely able to stand, achy muscles after eating. I have over the last week spread the dose from twice a day to three times a day, but
Gillybean1
in
Thyroid UK
3 months ago
cannot lose weight - hashimoto’s
hi everyone! hashimoto’s thyroiditus was diagnosed privately in August 2022 and now nhs is treating me with 75mg levothyroxine (teva brand) and things are improving. Goitre reducing and t3,t4,TSH all in normal range now. On b12 supplement for deficiency, was tested for all major vitamins, coeliac,
hi everyone! hashimoto’s thyroiditus was diagnosed privately in August 2022 and now nhs is treating me with 75mg levothyroxine (teva brand) and things are improving. Goitre reducing and t3,t4,TSH all in normal range now. On b12 supplement for deficiency, was tested for all major vitamins, coeliac,
08ambo1
in
Thyroid UK
1 year ago
confused?
Just want to say that although I am confused I am also thankful with the results I received following an US. Making this short I have been diagnosed with Cryptogenic cirrhosis following abnormal bloods and Fibroscan. As per NICE guidelines I have bloods taken every 6 months and US. I have also had
Just want to say that although I am confused I am also thankful with the results I received following an US. Making this short I have been diagnosed with Cryptogenic cirrhosis following abnormal bloods and Fibroscan. As per NICE guidelines I have bloods taken every 6 months and US. I have also had
0range5520
in
British Liver Trust
3 months ago
Updating my husband's journey, hoping it helps others - any words of encouragement are welcome, but please only positive comments
The first part is in my profile. It makes me feel vulnerable to share, but we have benefited enormously from reading others' stories, so I'm sharing. UPDATE: 8/18/21 PSA =0.45 9/6/21 last dose Orgovyx 9/7/21 First Eligard 3 month shot 9/17/21 PSA =0.78 10/18/21 PSA =1.28 Nov not tested 12
The first part is in my profile. It makes me feel vulnerable to share, but we have benefited enormously from reading others' stories, so I'm sharing. UPDATE: 8/18/21 PSA =0.45 9/6/21 last dose Orgovyx 9/7/21 First Eligard 3 month shot 9/17/21 PSA =0.78 10/18/21 PSA =1.28 Nov not tested 12
SuppWife
in
Advanced Prostate Cancer
3 months ago
WORRIED ABOUT REOCCURRENCE???
Worried....
Stopped IMRT 1 year ago and stopped adt (4 mos) 9 months ago...
9/23/23 Blood Test PSA .1 --- PSA FREE undetectable and Testosterone was 98
3/4/24 Blood Test PSA .2 ----Psa Free Undetectable and Testosterone not in yet.
I am concerned about the increase
Worried....
Stopped IMRT 1 year ago and stopped adt (4 mos) 9 months ago...
9/23/23 Blood Test PSA .1 --- PSA FREE undetectable and Testosterone was 98
3/4/24 Blood Test PSA .2 ----Psa Free Undetectable and Testosterone not in yet.
I am concerned about the increase
JWS13
in
Advanced Prostate Cancer
3 months ago
4 years post EBRT (44) PSA 0.1 Up from undetectable.
MO thinks it will go up hopefully slowly. Recheck psa in 3 months. Dumb question maybe. Stage 4?
MO thinks it will go up hopefully slowly. Recheck psa in 3 months. Dumb question maybe. Stage 4?
Chasu
in
Advanced Prostate Cancer
3 months ago
Pet Scan = "disease not detected"
Ok folks, has anyone come across something like this?...early 2018, PSA in the 50's, biopsy came back negative, a few months later PSA in the 60's, again, another biopsy and a negative finding, 3rd time in the 80's with yet another negative biopsy, then nuclear imaging and bam...stage 4 metastatic, this
Ok folks, has anyone come across something like this?...early 2018, PSA in the 50's, biopsy came back negative, a few months later PSA in the 60's, again, another biopsy and a negative finding, 3rd time in the 80's with yet another negative biopsy, then nuclear imaging and bam...stage 4 metastatic, this
GreyDragon55
in
Advanced Prostate Cancer
3 months ago
Adrenal Insufficiency or GCA or both?
I have looked at the FAQs but cannot readily find an answer so here goes.By way of quick update I restarted pred about 3 months at 10mg because my PMR symptoms came back. I have been tapering at 1mg every 5 weeks using Dorset Lady's slow taper (thank you again). I am shortly to reduce from 7mg to 6.5mg
I have looked at the FAQs but cannot readily find an answer so here goes.By way of quick update I restarted pred about 3 months at 10mg because my PMR symptoms came back. I have been tapering at 1mg every 5 weeks using Dorset Lady's slow taper (thank you again). I am shortly to reduce from 7mg to 6.5mg
SudsSuds
in
PMRGCAuk
3 months ago
The Queen is here!
Hi all, it's been a while but I'm still going strong 😁 I didn't look back to see what was up the last time I was here. I am still not on dialysis and I've had my fistula for several months now. It's become so thick and strong. I think it's doing well. I've tried not to worry every day about having to
Hi all, it's been a while but I'm still going strong 😁 I didn't look back to see what was up the last time I was here. I am still not on dialysis and I've had my fistula for several months now. It's become so thick and strong. I think it's doing well. I've tried not to worry every day about having to
HipHopQueen
in
Kidney Dialysis
3 months ago
Some good news at last.
Some good news at last. Saw EP for 6 week follow up, 2 weeks ago, reduced Bisoprolol to 1.25mg but continue with heart failure meds and booked echocardiogram which I had yesterday. Sonographer was lovely, very chatty, I had my previous report from Late January 24 with me, Ejection Fraction 28%, severe
Some good news at last. Saw EP for 6 week follow up, 2 weeks ago, reduced Bisoprolol to 1.25mg but continue with heart failure meds and booked echocardiogram which I had yesterday. Sonographer was lovely, very chatty, I had my previous report from Late January 24 with me, Ejection Fraction 28%, severe
AmandaLouise77
in
Atrial Fibrillation Support
23 days ago
CKD diagnosis
hi there first post. Concerned about my kidney function/possible CKD. I am a nurse and regularly keep track of my urine but have noted protein and haematuria +++ on each test strip for atleast 12 months now. (I know I know I put it off!) I have now had kidney function and HBA1c bloods along with a load
hi there first post. Concerned about my kidney function/possible CKD. I am a nurse and regularly keep track of my urine but have noted protein and haematuria +++ on each test strip for atleast 12 months now. (I know I know I put it off!) I have now had kidney function and HBA1c bloods along with a load
Hannahbanana217
in
Early CKD Support
3 months ago
Hard copy blood results
I requested hard copies of a number of recent blood tests from the GP surgery and have received the following message this morning. Please find the enclosed results as requested. This can be accessed via the link sent to your email. To reduce our impact on the environment, we no longer provide paper
I requested hard copies of a number of recent blood tests from the GP surgery and have received the following message this morning. Please find the enclosed results as requested. This can be accessed via the link sent to your email. To reduce our impact on the environment, we no longer provide paper
SpringerMom
in
Thyroid UK
3 months ago
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