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Esophageal spasms, gastric spasms
Anyone else who gets these or similar gastric pains this with Lupus or other autoimmune conditions? I am doing ok on my new Enbrel prescription but this is the symptom that continues to come and go. It's hard to eat and at times quite painful. It used to keep me up at night, although the Enbrel and basic
Anyone else who gets these or similar gastric pains this with Lupus or other autoimmune conditions? I am doing ok on my new Enbrel prescription but this is the symptom that continues to come and go. It's hard to eat and at times quite painful. It used to keep me up at night, although the Enbrel and basic
SoooManyQuestions
in
LUPUS UK
10 months ago
Iron: Not Just a Passive Bystander in AITD (repeat)
A new paper discussing that very common issue - iron. I've only glanced at it so please comment freely. [i]
Iron: Not Just a Passive Bystander in AITD
[/i] [i]by Michał Szklarz[/i] [i]Katarzyna Gontarz-Nowak[/i] [i]Wojciech Matuszewski[/i] [i]Elżbieta Bandurska-Stankiewicz[/i] [i]Clinic
A new paper discussing that very common issue - iron. I've only glanced at it so please comment freely. [i]
Iron: Not Just a Passive Bystander in AITD
[/i] [i]by Michał Szklarz[/i] [i]Katarzyna Gontarz-Nowak[/i] [i]Wojciech Matuszewski[/i] [i]Elżbieta Bandurska-Stankiewicz[/i] [i]Clinic
helvella
Thyroid UK
in
Thyroid UK
10 months ago
Global Genes Rare Advocacy Summit 2023
Hi all I will be representing, for my second year, Autoimmune Registry, in San Diego, California USA. 19-21 September 2023. If anyone in USA might be attending DM me and I'd love to meet. here are the links to Global Genes Rare Advocacy Summit https://globalgenes.org/event/rare-advocacy-summit/ and
Hi all I will be representing, for my second year, Autoimmune Registry, in San Diego, California USA. 19-21 September 2023. If anyone in USA might be attending DM me and I'd love to meet. here are the links to Global Genes Rare Advocacy Summit https://globalgenes.org/event/rare-advocacy-summit/ and
Rexz
in
Pernicious Anaemia Society
10 months ago
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multiple autoimmune
me too, I want to actually see an autoimmune specialist, I want to understand why my body is attacking itself, I want to be cured not just treated for my symptoms. I am just getting more and more exhausted and I would like to understand the interaction of my 27 medications on my body and on my immune
me too, I want to actually see an autoimmune specialist, I want to understand why my body is attacking itself, I want to be cured not just treated for my symptoms. I am just getting more and more exhausted and I would like to understand the interaction of my 27 medications on my body and on my immune
Filicatlasy
in
LUPUS UK
10 months ago
Best Arthur description I’ve read!
Found this on the South Wales Police Facebook page, of all places. Describes our illness so well… #HumansOfSWP | 💬 "I suffer with rheumatoid arthritis (RA), which is an autoimmune and inflammatory disease. In basic terms it means my immune system attacks healthy cells in my body by mistake, causing
Found this on the South Wales Police Facebook page, of all places. Describes our illness so well… #HumansOfSWP | 💬 "I suffer with rheumatoid arthritis (RA), which is an autoimmune and inflammatory disease. In basic terms it means my immune system attacks healthy cells in my body by mistake, causing
Llanberisman
in
NRAS
10 months ago
Advice on below range TSH, low ferritin, poor absorption and current dosage
Dear all, I posted some very odd results 3 months ago and have retested on your advice, twice...two months apart, with similar results. Testing using protocol advised by the group.I am still on 125 levo (eutirox) and 10ml T3 Liotir (liquid). Based in Italy. I also had symptoms of low B12 including
Dear all, I posted some very odd results 3 months ago and have retested on your advice, twice...two months apart, with similar results. Testing using protocol advised by the group.I am still on 125 levo (eutirox) and 10ml T3 Liotir (liquid). Based in Italy. I also had symptoms of low B12 including
Sandytango
in
Thyroid UK
10 months ago
Urine test
I have several
autoimmune
diseases
and suspect this to be Lupus with Lupus Nephritis. I'm trying to ease my mind on bladder cancer. A pic will be attached showing the blood from a week ago. It is not like that now.
I have several
autoimmune
diseases
and suspect this to be Lupus with Lupus Nephritis. I'm trying to ease my mind on bladder cancer. A pic will be attached showing the blood from a week ago. It is not like that now.
ICE187
in
Kidney Disease
11 months ago
lupus itching
Hi I have recently been diagnosed with Lupus SLE I have been prescribed Hydroxychloroquine 200mg twice a day . I have become very sensitive to sunlight and my skin is so itchy . I can’t stop scratching and I also have a rash on my arms . I find I bruise more easily now to . Has anyone else experienced
Hi I have recently been diagnosed with Lupus SLE I have been prescribed Hydroxychloroquine 200mg twice a day . I have become very sensitive to sunlight and my skin is so itchy . I can’t stop scratching and I also have a rash on my arms . I find I bruise more easily now to . Has anyone else experienced
Cheeselove
in
LUPUS UK
10 months ago
Newly diagnosed with fibromyalgia.
As from my heading I now have fibromyalgia. I had a diagnosis of rheumatoid arthritis for 12 years,had a second opinion recently to find that my symptoms are fibromyalgia instead. This was somewhat a shock but have to cope. Was a member of HealthUnlocked for R A so am glad to find, I hope, similar for
As from my heading I now have fibromyalgia. I had a diagnosis of rheumatoid arthritis for 12 years,had a second opinion recently to find that my symptoms are fibromyalgia instead. This was somewhat a shock but have to cope. Was a member of HealthUnlocked for R A so am glad to find, I hope, similar for
Bhasvic64
in
Fibromyalgia Action UK
10 months ago
Various B12D/PA resources
Admin Edit: This is not an official PAS post but it does contain many resources that may be of use to members and has been pinned for that reason ___________________________________________________________________ Hi all, I had some time to spare today and thought I would write a post with a list of
Admin Edit: This is not an official PAS post but it does contain many resources that may be of use to members and has been pinned for that reason ___________________________________________________________________ Hi all, I had some time to spare today and thought I would write a post with a list of
jade_s
in
Pernicious Anaemia Society
10 months ago
PIP Application form (Typing replies)
A little about me.I have been diagnosed with :- Lupus Rheumatoid Arthritis Fibromyalgia Underactive thyroid Hyperparathyrodism Carpal tunnel syndrome Osteoarthritis Depression Lower back spinal fusion Constant huge fatigue and brain fog I am planning on applying for PIP for the first time and
A little about me.I have been diagnosed with :- Lupus Rheumatoid Arthritis Fibromyalgia Underactive thyroid Hyperparathyrodism Carpal tunnel syndrome Osteoarthritis Depression Lower back spinal fusion Constant huge fatigue and brain fog I am planning on applying for PIP for the first time and
SLEepyhead123
in
NRAS
10 months ago
sleepy but vindicated
We're ruling out
autoimmune
diseases
but we're leaning there.
We're ruling out
autoimmune
diseases
but we're leaning there.
Sleepybear987
in
British Heart Foundation
10 months ago
what type of folate to take with b12 injections
Hi I was diagnosed with Pernicious Anaemia in 2017 and am on 8 weekly injections now. I also SI usually once a week. I still have lots of symptoms and still suffering with Iron Deficiency Anaemia which I can't seem to get better from. I have been neglecting to take folate and am wondering which
Hi I was diagnosed with Pernicious Anaemia in 2017 and am on 8 weekly injections now. I also SI usually once a week. I still have lots of symptoms and still suffering with Iron Deficiency Anaemia which I can't seem to get better from. I have been neglecting to take folate and am wondering which
Cn13
in
Pernicious Anaemia Society
10 months ago
cruise insurance
Hi, can anyone recommend cruise insurance companies who cater for Lupus, and related autoimmune disorders please. Many thanks Sandy 😊
Hi, can anyone recommend cruise insurance companies who cater for Lupus, and related autoimmune disorders please. Many thanks Sandy 😊
frog
in
LUPUS UK
10 months ago
levothyroxine
I was diagnosed underactive thyroid in February. Only symptom I had was unexplained weight gain. Since starting on levothyroxine I have had chronic joint pain and am unable to exercise . All other blood tests came back normal . Is there an alternative to levothyroxine as my body can’t tolerate it?I
I was diagnosed underactive thyroid in February. Only symptom I had was unexplained weight gain. Since starting on levothyroxine I have had chronic joint pain and am unable to exercise . All other blood tests came back normal . Is there an alternative to levothyroxine as my body can’t tolerate it?I
ScriptMaz
in
Thyroid UK
10 months ago
High thyroid antibodies and fertility treatment
Hi, I hope everyone is OK. I've tested positive for very high thyroid antibodies and Dr at fertility clinic said this can be a cause of miscarriage and I have had 2 already following IVF treatment. I've had an underactive thyroid diagnosis since 2012 and been on levothyroxine since. When I first started
Hi, I hope everyone is OK. I've tested positive for very high thyroid antibodies and Dr at fertility clinic said this can be a cause of miscarriage and I have had 2 already following IVF treatment. I've had an underactive thyroid diagnosis since 2012 and been on levothyroxine since. When I first started
Citizenerased83
in
Thyroid UK
10 months ago
contrast dye
Hi, I have Sjogren’s and osteoporosis among other things. I’m due to have a CT scan on my lungs with contrast dye. I suffer with many allergies and wondered if anyone on here has had an adverse reaction to this iodine based dye? Many thanks 😊
Hi, I have Sjogren’s and osteoporosis among other things. I’m due to have a CT scan on my lungs with contrast dye. I suffer with many allergies and wondered if anyone on here has had an adverse reaction to this iodine based dye? Many thanks 😊
Barbs52
in
LUPUS UK
10 months ago
Endocrinologist recommendations in/near West Sussex for Addison's / adrenals
Can anybody recommend an endocrinologist in West Sussex or nearby please who knows about adrenals and Addison's? It comes as no surprise to me, but a private blood screen has just shown very low cortisol levels and a couple of other bits, that suggest an adrenal problem, possibly Addison's. I've not
Can anybody recommend an endocrinologist in West Sussex or nearby please who knows about adrenals and Addison's? It comes as no surprise to me, but a private blood screen has just shown very low cortisol levels and a couple of other bits, that suggest an adrenal problem, possibly Addison's. I've not
JumpJiving
in
Thyroid UK
6 months ago
Help us update our "Lupus and the Skin" booklet
Help us update our “Lupus and the Skin” information booklet to ensure it meets the needs of all people with lupus by telling us what you think about our current booklet. You can read our article on what we’re doing here: http://www.lupusuk.org.uk/help-us-update-our-lupus-and.../ Or jump straight into
Help us update our “Lupus and the Skin” information booklet to ensure it meets the needs of all people with lupus by telling us what you think about our current booklet. You can read our article on what we’re doing here: http://www.lupusuk.org.uk/help-us-update-our-lupus-and.../ Or jump straight into
Debbie_kinsey
Administrator
in
LUPUS UK
10 months ago
Am I going mad?
Hi! I've had so much helpful information from this forum and made copious notes over the last few weeks, I was determined I could get by without asking for help, but no. I'm so upset, after what I've decided is my last visit to the GP as I'm fed up of being fobbed off and coming out like a gibbering
Hi! I've had so much helpful information from this forum and made copious notes over the last few weeks, I was determined I could get by without asking for help, but no. I'm so upset, after what I've decided is my last visit to the GP as I'm fed up of being fobbed off and coming out like a gibbering
Sleepysparrow
in
Thyroid UK
10 months ago
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