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PIP
Hi all what is any are your experiences of claiming PIP I have just started a new claim but so t feel hopeful. I am also in the process of giving up work now with fibromyalgia and arthritis xx
Hi all what is any are your experiences of claiming PIP I have just started a new claim but so t feel hopeful. I am also in the process of giving up work now with fibromyalgia and arthritis xx
WWFboys22
in
Fibromyalgia Action UK
3 years ago
Issues
I've got UAT , OSTIO ARTHRITIS AND FIBROMYALGIA does anyone else have these together I find it really difficult to know which problem is causing issues for me as alot of issues overlap I find this incredibly frustrating anyone got any ideas help please
I've got UAT , OSTIO ARTHRITIS AND FIBROMYALGIA does anyone else have these together I find it really difficult to know which problem is causing issues for me as alot of issues overlap I find this incredibly frustrating anyone got any ideas help please
PENNYODELL29
in
Thyroid UK
3 years ago
Is fibromyalgia a disability?
I’m having issues with universal credit are saying I’m not disabled with fibromyalgia and osteoarthritis in my hip and need a replacement. Had a heart attack and several other diagnoses. Causing me so much stress.
I’m having issues with universal credit are saying I’m not disabled with fibromyalgia and osteoarthritis in my hip and need a replacement. Had a heart attack and several other diagnoses. Causing me so much stress.
michl14
in
Fibromyalgia Action UK
3 years ago
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Had anyone had the Covid antibody test?
Saw a webinar in which it was suggested that a fairly small study showed people taking tocilizumab, mycophenelate, predisilone or methatrixate might only be covered 35-55% for the Covid vaccine. I am taking three of these. It recommended an antibody test - it was the SARS COVID anti spike test I think
Saw a webinar in which it was suggested that a fairly small study showed people taking tocilizumab, mycophenelate, predisilone or methatrixate might only be covered 35-55% for the Covid vaccine. I am taking three of these. It recommended an antibody test - it was the SARS COVID anti spike test I think
christine2715
in
PMRGCAuk
3 years ago
Autoimmune system and nerve pain
Hi there, I’m new to this forum only due to intense googling the last 13.5 weeks and stumbled across PMR + temporal
arteritis
. Apologies in advance for the long winded post.
Hi there, I’m new to this forum only due to intense googling the last 13.5 weeks and stumbled across PMR + temporal
arteritis
. Apologies in advance for the long winded post.
Mill1234
in
PMRGCAuk
3 years ago
Tendons - calcium
Hi I was wondering if anyone had calcium in their shoulder tendons?? If so what helped it?? An ultrasound found I had this condition plus osteoarthritis. I’m really struggling with this condition it is extremely painful to move arm and can’t sleep on that arm. I’ve had surgery 12 years on that shoulder
Hi I was wondering if anyone had calcium in their shoulder tendons?? If so what helped it?? An ultrasound found I had this condition plus osteoarthritis. I’m really struggling with this condition it is extremely painful to move arm and can’t sleep on that arm. I’ve had surgery 12 years on that shoulder
Maggie153
in
PMRGCAuk
3 years ago
Is there any support I can find in Punjabi?
My mum's main language is Punjabi and I would like to see if there is any support for her with her arthritis. She is in pain daily and has helped in terms of medication and some physiotherapy but her condition seems to be getting worse. I think she could really benefit from knowing there are other people
My mum's main language is Punjabi and I would like to see if there is any support for her with her arthritis. She is in pain daily and has helped in terms of medication and some physiotherapy but her condition seems to be getting worse. I think she could really benefit from knowing there are other people
hira123
in
NRAS
3 years ago
Reminder to new MTX users - your sensitivity to the sun is likely to be increased.
The weather has been so awful that I had forgotten that I had read about this side-effect. Yesterday, I enjoyed a lovely, lazy day watching the bees buzzing around the dandelion flowers in my knee height grass (we're doing No May May) and basking in the weird warmth of the shining orb. I now resemble
The weather has been so awful that I had forgotten that I had read about this side-effect. Yesterday, I enjoyed a lovely, lazy day watching the bees buzzing around the dandelion flowers in my knee height grass (we're doing No May May) and basking in the weird warmth of the shining orb. I now resemble
Hidden
in
PMRGCAuk
3 years ago
Carrie Ann Inaba "Sjogren's syndrome, lupus, fibromyalgia, rheumatoid arthritis, "and I have the markers for antiphospholipid syndrome"
(You may need to sign up for a free patient account, I find their emails to be VERY informative) https://www.medpagetoday.com/blogs/celebritydiagnosis/92417
(You may need to sign up for a free patient account, I find their emails to be VERY informative) https://www.medpagetoday.com/blogs/celebritydiagnosis/92417
Piscesdreamer
in
Hughes Syndrome APS Forum
3 years ago
Which way to go when its difficult to get someone to discuss anxieties about proposed treatment?
I have been on prednisolone since May last years, starting at 60mg and slowly reducing to today 6mg as I developed giant cell
arteritis
. It is proposed to move me from the steriods to Azathioprine in order to help my kidneys, as I also have chronic kidney disease besides CLL.
I have been on prednisolone since May last years, starting at 60mg and slowly reducing to today 6mg as I developed giant cell
arteritis
. It is proposed to move me from the steriods to Azathioprine in order to help my kidneys, as I also have chronic kidney disease besides CLL.
sandyandtweed
in
CLL Support
3 years ago
Temporal Biopsy Update
Just to give an update on the progress made since initial diagnosis of Temporal
Arteritis
by GP three weeks ago.
Just to give an update on the progress made since initial diagnosis of Temporal
Arteritis
by GP three weeks ago.
anniekins1
in
PMRGCAuk
3 years ago
Final stages of tapering
New to this forum! I am an otherwise healthy 67 year old male (apart from some osteoarthritis), who has experienced GCA and PMR over the past two years. During the GCA phase, my prednisone dose was 55 mg/d. I have been tapering down fairly successfully, until recently. I am now at 2 mg/d, but experiencing
New to this forum! I am an otherwise healthy 67 year old male (apart from some osteoarthritis), who has experienced GCA and PMR over the past two years. During the GCA phase, my prednisone dose was 55 mg/d. I have been tapering down fairly successfully, until recently. I am now at 2 mg/d, but experiencing
Marinescience
in
PMRGCAuk
3 years ago
Rheumatoid arthritis
Hi I'm looking to know can I take lansoprazole as I normally did with me starting Methotrexate injection last week I wasn't sure
Hi I'm looking to know can I take lansoprazole as I normally did with me starting Methotrexate injection last week I wasn't sure
Eva9
in
NRAS
3 years ago
Butterfingers! Feeling frustrated and poor.
I am dyspraxic, which means that I have always been extremely clumsy and have terrible executive functioning. With advancing age, my dyspraxia has also meant that I have also experienced increasing aphasia - I can often see/hear the word in my brain, it just doesn't make it to my mouth. Since being on
I am dyspraxic, which means that I have always been extremely clumsy and have terrible executive functioning. With advancing age, my dyspraxia has also meant that I have also experienced increasing aphasia - I can often see/hear the word in my brain, it just doesn't make it to my mouth. Since being on
Hidden
in
PMRGCAuk
3 years ago
Should I see the doctor?
I've recently had a blood test as I've be diagnosed with rheumatoid arthritis. I'm on medication for that but I have pain in my ankles that the medication doesn't seem to be helping. The blood test checked many things including my thyroid levels: TSH. 1.3. 0.27 - 4.20 T4 Total 67.9 66-181 FT4 11.6
I've recently had a blood test as I've be diagnosed with rheumatoid arthritis. I'm on medication for that but I have pain in my ankles that the medication doesn't seem to be helping. The blood test checked many things including my thyroid levels: TSH. 1.3. 0.27 - 4.20 T4 Total 67.9 66-181 FT4 11.6
HermitageGardens
in
Thyroid UK
3 years ago
Experiencing sleep difficulties? Try cutting out caffeine (coffee, tea, chocolate, cola ...)
https://www.arthritis.org/health-wellness/treatment/treatment-plan/disease-management/food-and-drug-interactions I was looking at the possible interactions of drugs used for rheumatoid arthritis, and noticed that caffeine is contra-indicated with prednisone (and presumably prednisolone). I know that
https://www.arthritis.org/health-wellness/treatment/treatment-plan/disease-management/food-and-drug-interactions I was looking at the possible interactions of drugs used for rheumatoid arthritis, and noticed that caffeine is contra-indicated with prednisone (and presumably prednisolone). I know that
Hidden
in
PMRGCAuk
3 years ago
Take part in a research project in chronic pain and employment
I am a doctoral researcher at Heriot-Watt University. I am looking to understand the employment experiences of people living with chronic pain -associated or not to other conditions (eg. fibromyalgia, arthritis, neuropathies) in Scotland. Please, see my attached flyer. Get in touch directly. Thanks in
I am a doctoral researcher at Heriot-Watt University. I am looking to understand the employment experiences of people living with chronic pain -associated or not to other conditions (eg. fibromyalgia, arthritis, neuropathies) in Scotland. Please, see my attached flyer. Get in touch directly. Thanks in
chronicpainSTEM
Researcher
in
Pain Concern
3 years ago
GCA/PMR
https://www.bbc.co.uk/programmes/articles/5qMFMJMZW5cZfRfBfwdcFqP/what-is-giant-cell-
arteritis
-and-how-can-i-recognise-it
https://www.bbc.co.uk/programmes/articles/5qMFMJMZW5cZfRfBfwdcFqP/what-is-giant-cell-
arteritis
-and-how-can-i-recognise-it
Liby57
in
PMRGCAuk
3 years ago
Expected duration on pred for PMR and CGA patients
[i]"Treatment Patterns, Disease Burden, and Outcomes in Patients with Giant Cell
Arteritis
and Polymyalgia Rheumatica: A Real-World, Electronic Health Record-Based Study of Patients in Clinical Practice"[/i] Or Claire Barnard's summary of the study?
[i]"Treatment Patterns, Disease Burden, and Outcomes in Patients with Giant Cell
Arteritis
and Polymyalgia Rheumatica: A Real-World, Electronic Health Record-Based Study of Patients in Clinical Practice"[/i] Or Claire Barnard's summary of the study?
Joydeck
in
PMRGCAuk
3 years ago
Carrie Ann Inaba "Sjogren's syndrome, lupus, fibromyalgia, rheumatoid arthritis, "and I have the markers for antiphospholipid syndrome' "
https://www.medpagetoday.com/blogs/celebritydiagnosis/92417
https://www.medpagetoday.com/blogs/celebritydiagnosis/92417
Piscesdreamer
in
LUPUS UK
3 years ago
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