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Arrhythmogenic right ventricular cardiomyopathy (ARVC)
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Communities
18 public communities
The Endometriosis Foundation
1,107 members
The Endometriosis Foundation (also known as women with endometriosis) is a Charity dedicated to raising awareness, informing and supporting those affected by endometriosis, and right now, we're needed more than ever.
More To Life
1,306 members
THIS IS FOR THOSE WHO ARE CHILDLESS BY CIRCUMSTANCE. TO PROTECT OUR MEMBERS AND KEEP THIS A SAFE SPACE PLEASE DO NOT JOIN THIS COMMUNITY IF YOU ARE ACTIVELY TRYING TO CONCEIVE OR USING ALTERNATIVE FAMILY BUILDING OPTIONS. If you are no longer actively pursuing fertility treatment or alternative family building options our More To Life community set up by Fertility Network UK. The More To Life community is for those who are childless by circumstance, not by choice. You may have tried fertility treatment with no success, or considered other family building options but decided that wasn’t right for you, you may have a partner who doesn’t want to have children, or perhaps you just didn’t find the right person to have a baby with. Whatever your circumstance if you are no longer actively pursuing treatment or alternative family building options our More To Life community is a place where you can receive peer to peer support to find a way to appreciate and enjoy your life without children.
MY SKIN
8,555 members
Welcome to the MY SKIN Community, a peer support community for those experiencing issues with their skin. Join us to share your story and experiences, ask questions, and support others. Connect with others like you today and get real opinions from others who have experienced similar conditions. Anyone needing help or support from a patient organisation can choose from the list of resources in the pinned post in the right hand column on the posts/home page.
Glioblastoma Support
600 members
Welcome to The Brain Tumour Charity Glioblastoma peer support online community for anyone affected by a Glioblastoma diagnosis. You can ask questions, get support from others and share your experiences, at any time of the day or night- you can be totally open. Or you can simply read people’s stories, knowing there are others right there with you. As a charity, we will share useful resources, information and charity news. The Brain Tumour Charity is the world’s leading brain tumour charity and the largest dedicated funder of research into brain tumours globally. Committed to saving and improving lives, we’re moving further, faster to help every single person affected by a brain tumour. We’re set on finding new treatments, offering the highest level of support and driving urgent change. And we’re doing it right now. Because we understand that when you, or someone you love, is diagnosed with a brain tumour – a cure really can’t wait. If there is anything you would like to talk about with our Support team, please contact us at support@thebraintumourcharity.org, or call our Information and Support Line on 0808 800 0004.
Acoustic Neuroma Support
2,701 members
Welcome to The Brain Tumour Charity Acoustic Neuroma peer support online community for those affected by Acoustic Neuroma (Vestibular Schwannoma), a rare but invariably benign brain tumour. You can ask questions, get support from others and share your experiences, at any time of the day or night- you can be totally open. Or you can simple read people’s stories, knowing there are others right there with you. As a charity, we will share useful resources, information and charity news The Brain Tumour Charity is the world’s leading brain tumour charity and the largest dedicated funder of research into brain tumours globally. Committed to saving and improving lives, we’re moving further, faster to help every single person affected by a brain tumour. We’re set on finding new treatments, offering the highest level of support and driving urgent change. And we’re doing it right now. Because we understand that when you, or someone you love, is diagnosed with a brain tumour – a cure really can’t wait. If there is anything you would like to talk about with our Support team, please contact us at support@thebraintumourcharity.org, or call our Information and Support Line on 0808 800 0004.
Meningioma Support
671 members
About Meningioma Support Welcome to The Brain Tumour Charity Meningioma peer support online community for anyone affected by a meningioma diagnosis. You can ask questions, get support from others and share your experiences, at any time of the day or night- you can be totally open. Or you can simply read people’s stories, knowing there are others right there with you. As a charity, we will share useful resources, information and charity news. The Brain Tumour Charity is the world’s leading brain tumour charity and the largest dedicated funder of research into brain tumours globally. Committed to saving and improving lives, we’re moving further, faster to help every single person affected by a brain tumour. We’re set on finding new treatments, offering the highest level of support and driving urgent change. And we’re doing it right now. Because we understand that when you, or someone you love, is diagnosed with a brain tumour – a cure really can’t wait. If there is anything you would like to talk about with our Support team, please contact us at support@thebraintumourcharity.org, or call our Information and Support Line on 0808 800 0004.
The Brain Tumour Charity
451 members
Welcome to The Brain Tumour Charity peer support online community for anyone affected by a brain tumour diagnosis. You can ask questions, get support from others and share your experiences, at any time of the day or night- you can be totally open. Or you can simply read people’s stories, knowing there are others right there with you. As a charity, we will share useful resources, information and charity news. The Brain Tumour Charity is the world’s leading brain tumour charity and the largest dedicated funder of research into brain tumours globally. Committed to saving and improving lives, we’re moving further, faster to help every single person affected by a brain tumour. We’re set on finding new treatments, offering the highest level of support and driving urgent change. And we’re doing it right now. Because we understand that when you, or someone you love, is diagnosed with a brain tumour – a cure really can’t wait. If there is anything you would like to talk about with our Support team, please contact us at support@thebraintumourcharity.org, or call our Information and Support Line on 0808 800 0004.
Diabetes Research & Wellness Foundation
6,479 members
The Diabetes Research and Wellness Foundation (DRWF) is a registered charity, established in 1998 to raise public awareness to the condition and its associated complications, treatment, avoidance and relief and to provide support to people living with diabetes. Whilst funding vital diabetes research to establish the causes; develop improved management and treatment options; and ultimately find a cure, we aim to ensure that people have access to the right information and support to develop a proactive self-care approach to successful self-management, to ensure that they are ’staying well until a cure is found....’
HealthWeb Navigator
226 members
The goal of this community is to help patients to find the best resources about the health care. At HealthWeb Navigator, we evaluate healthcare websites, allowing users to see which resources provide consumer-friendly and up-to-date information. Health care has become complicated. Many patients are spending more of their own money to cover medical costs and less time receiving the care they need. Consumers are turning to the internet for diagnosis and learning more about health conditions. Major challenges include understanding medical costs and conditions, finding the right doctor or hospital, and accessing the latest research.
Anxiety Support
53,227 members
Anxiety Support helps people with general anxiety and anxiety from health related reasons. Facilitated by Malecare, one of the world's leading patient support nonprofit organizations. Our group provides a sense of belonging with others in similar situations and to be able to chat and learn with a community of like minds. Members here have a wide range of different experiences and backgrounds. Anyone needing in-person or immediate help or support from a patient organization can choose from the list of resources in the pinned post in the right hand column on the posts/home page.
Non Hodgkin's Lymphoma Friends
1,777 members
Patient Empowerment Network (PEN) is honored to offer a peer-support community for those living with Non-Hodgkin's Lymphoma, their families and their loved ones. Connect with patients like you and share your experiences. Discuss treatment, recovery, diagnoses, and help other patients through their journey. PEN is a nonprofit (501(c)(3) Public Charity) based in the US that works to help you gain confidence and strength to get yourself the best care and most personalized treatment. We are here to help you stand up and advocate for yourself and become informed so that you can make the right decisions for you. Giving medical advice or promoting alternative treatment that is not proven by clinical trials and approved by regulatory agencies is prohibited. Your participation should be respectful, honest and in the spirit of supporting and learning from others
Pelvic Pain Support Network
19,473 members
This community is run by the Pelvic Pain Support Network, a registered charity. The community forum exists to support those who wish to share and learn from others who have abdominal and/or pelvic pain and to provide peer support in managing the pain. It is moderated by trustees and members of the charity who are volunteers with personal experience of pelvic pain. Pelvic pain can be caused by many conditions affecting the pelvis such as adenomyosis, adhesions, endometriosis, painful periods, bladder pain, pelvic nerve damage, pudendal neuralgia, irritable bowel syndrome. One or more of these may be present or the person may not have a diagnosis. Pain that exists for 6 months or more, either intermittently or constant, is a condition in its own right. This community forum exists to support those who have had pain in the abdomen/pelvis for 6 months or longer with or without a diagnosis.
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