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Dealing with NED in this stage 4 appendix cancer journey
Hello - I’m new to this site and hoping to get information and awareness from others who are on the same journey. I’ve been NED since HIPEC in May 2022 having previously had debulking surgery followed by Folfiri and immunotherapy. I understand there’s a strong prospect I will have a recurrence so I
Hello - I’m new to this site and hoping to get information and awareness from others who are on the same journey. I’ve been NED since HIPEC in May 2022 having previously had debulking surgery followed by Folfiri and immunotherapy. I understand there’s a strong prospect I will have a recurrence so I
Hidden
in
Pseudomyxoma Survivor
8 months ago
Asking for my sister: appendix adenocarcinoma w/KRAS G12V mutation
I am reaching out here because my sister had a very rare adenocarcinoma of the
appendix
. Her
cancer
is mutated with the dreadful KRAS G12V mutation. The
cancer
was found in the distal portion of the now-removed
appendix
during what was first thought to be appendicitis.
I am reaching out here because my sister had a very rare adenocarcinoma of the
appendix
. Her
cancer
is mutated with the dreadful KRAS G12V mutation. The
cancer
was found in the distal portion of the now-removed
appendix
during what was first thought to be appendicitis.
Celestialbeing
in
Pseudomyxoma Survivor
9 months ago
Elahere
After 4+ years of successful treatment with Carboplatin for metastatic ovarian cancer the carbo has stopped working. This week I will start a brand new drug called Elahere that was just given full approval in the U.S. on March 22. I am excited but also scared since one of the serious potential side
After 4+ years of successful treatment with Carboplatin for metastatic ovarian cancer the carbo has stopped working. This week I will start a brand new drug called Elahere that was just given full approval in the U.S. on March 22. I am excited but also scared since one of the serious potential side
Why4300
in
My Ovacome
6 hours ago
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PSA from .08 to 2.1, after 2yrs ADT with zytiga and RT @59 yr
so seems to be back and waiting on PSMA PER SCAN. From what I understand, they usually look for something and do a scavenge RT treatment. Anyone who’s gone through this did you have to go back on ADT because that just sucks.. I had high risk Gleason score 9 anybody deal with this? I’m sure. Let me know
so seems to be back and waiting on PSMA PER SCAN. From what I understand, they usually look for something and do a scavenge RT treatment. Anyone who’s gone through this did you have to go back on ADT because that just sucks.. I had high risk Gleason score 9 anybody deal with this? I’m sure. Let me know
Eieio
in
Advanced Prostate Cancer
11 hours ago
Gingko Biloba - Supplement Advice
Hello everyone, I'm reaching out for advice on using Ginkgo Biloba to combat brain fog. My previous experience with the Amitamin Ginkgo complex yielded promising results in boosting mental clarity. However, I've noticed it contains iodine (150ug), which I'd rather steer clear of. With that in mind
Hello everyone, I'm reaching out for advice on using Ginkgo Biloba to combat brain fog. My previous experience with the Amitamin Ginkgo complex yielded promising results in boosting mental clarity. However, I've noticed it contains iodine (150ug), which I'd rather steer clear of. With that in mind
BookLover2020
in
Thyroid UK
13 hours ago
WHAT SHOULD I AVOID TAKING WITH IBRANCE
I am a Nigerian ,a single lady of 32years ,I was diagnosed of metastatic breast cancer on September 2023 then I redid my biopsy for a second opinion and it was same ,so I underwent 8chemo of Paclitaxel and carboplatin, which was 3weeks regimen from October 2023 to March 2023 ,afterwards a chest CT was
I am a Nigerian ,a single lady of 32years ,I was diagnosed of metastatic breast cancer on September 2023 then I redid my biopsy for a second opinion and it was same ,so I underwent 8chemo of Paclitaxel and carboplatin, which was 3weeks regimen from October 2023 to March 2023 ,afterwards a chest CT was
RuchiM
in
SHARE Metastatic Breast Cancer
16 hours ago
Pulmonary Complications Post Lutetium-177-PSMA-617 Therapy in Metastatic Castration-Resistant Prostate Cancer #Pluvicto
We present the case of a patient with heavily pretreated metastatic castration-resistant prostate cancer (mCRPC) who underwent treatment with lutetium Lu-177 vipivotide tetraxetan (also known as 177Lu-PSMA-617) due to progressive disease despite multiple lines of therapy, including chemotherapy, hormonal
We present the case of a patient with heavily pretreated metastatic castration-resistant prostate cancer (mCRPC) who underwent treatment with lutetium Lu-177 vipivotide tetraxetan (also known as 177Lu-PSMA-617) due to progressive disease despite multiple lines of therapy, including chemotherapy, hormonal
God_Loves_Me
in
Advanced Prostate Cancer
1 day ago
A question about radiation resistance
Last week a post was made about Decipher showing high radiation resistance. My decipher showed the same. Quick question. If you have had SBRT and it hasn't deliver a “killing dose” to tumor, is brachytherapy a follow up option? My PSA showed rise after SBRT, (from 8.6 to 12) Ro and Mo attributed
Last week a post was made about Decipher showing high radiation resistance. My decipher showed the same. Quick question. If you have had SBRT and it hasn't deliver a “killing dose” to tumor, is brachytherapy a follow up option? My PSA showed rise after SBRT, (from 8.6 to 12) Ro and Mo attributed
Chasbearcat999
in
Prostate Cancer Network
2 days ago
1 year on - no PSA but tumor has "progressed"
Hi all I am writing on behalf of my dad, who is not as tech literate as I am. He was diagnosed with adenocarcinoma of the prostate (suspicious nodule in the left peripheral zone) back in June 2023 following an initial MRI, biopsy and PSA test (results from those tests are below). He was advised to
Hi all I am writing on behalf of my dad, who is not as tech literate as I am. He was diagnosed with adenocarcinoma of the prostate (suspicious nodule in the left peripheral zone) back in June 2023 following an initial MRI, biopsy and PSA test (results from those tests are below). He was advised to
Zudukk
in
Prostate Cancer Network
2 days ago
Ovacome clinical update day 18 May 2024 London
Hello All You are warmly invited to join us for our annual clinical update day on Saturday 18 May from 9:30am to 4:30pm. This event is for anyone affected by ovarian cancer including family and friends and is being held at the Ovacome office in London. The day will be a combination of talks from clinicians
Hello All You are warmly invited to join us for our annual clinical update day on Saturday 18 May from 9:30am to 4:30pm. This event is for anyone affected by ovarian cancer including family and friends and is being held at the Ovacome office in London. The day will be a combination of talks from clinicians
OvacomeSupport
My Ovacome Team
in
My Ovacome
2 days ago
Pacific Northwest
Hi! We’re beginning to research facilities for second opinions, next step guidance to supplement what we’re learning from our local doctor. My husband is BRCA2 positive, had a prostatectomy, salvage radiation and now his PSA is starting to creep back up. I know it’s too early to take additional treatment
Hi! We’re beginning to research facilities for second opinions, next step guidance to supplement what we’re learning from our local doctor. My husband is BRCA2 positive, had a prostatectomy, salvage radiation and now his PSA is starting to creep back up. I know it’s too early to take additional treatment
Silverlings
in
Advanced Prostate Cancer
2 days ago
stage 4 Gleason 8/9
I lake low volume Metastatic PCA. Found in 4 lymph nodes / couple spots on pelvic bones . I m on 1m mgs Abby 5 mgs Pred, had a shot of Fermigon and start Lupron next week , Radiation starting end of month . let me know if any suggestions other than a positive attitude? Right now I exercise regularly
I lake low volume Metastatic PCA. Found in 4 lymph nodes / couple spots on pelvic bones . I m on 1m mgs Abby 5 mgs Pred, had a shot of Fermigon and start Lupron next week , Radiation starting end of month . let me know if any suggestions other than a positive attitude? Right now I exercise regularly
Pjford
in
Advanced Prostate Cancer
2 days ago
Be Interviewed and Help Everyone with your story
Based on the outstanding response to yesterday's video with Don (the retired Canadian Mountie), I will be happy to record more interviews with the guys in our prostate cancer community. Your experience could help others navigate their paths and provide invaluable insights into the everyday realities
Based on the outstanding response to yesterday's video with Don (the retired Canadian Mountie), I will be happy to record more interviews with the guys in our prostate cancer community. Your experience could help others navigate their paths and provide invaluable insights into the everyday realities
Darryl
Partner
in
Prostate Cancer Network
2 days ago
Neuroendocrine Prostate cancer (NEPC) questions.
I’ve had some very concerning symptoms lately so I started looking up more about NEPC. I have some of the listed symptoms. I’ve been under enormous stress lately, caring for my mom who’s in her 90s. The stress may have cause my cancer to mutate. Last year I remember reading something on this site
I’ve had some very concerning symptoms lately so I started looking up more about NEPC. I have some of the listed symptoms. I’ve been under enormous stress lately, caring for my mom who’s in her 90s. The stress may have cause my cancer to mutate. Last year I remember reading something on this site
GeorgeGlass
in
Advanced Prostate Cancer
2 days ago
Making a Case for Intermittent ADT in Metastatic Hormone Sensitive Prostate Cancer
FPC'ers, Many times, we hear people claim that you should only stop ADT if you can't tolerate it any longer, and that it will not slow castrate resistance; that it increases risk for stroke, and heart attack; that it will likely take years for your testosterone to recover; that it increases mortality
FPC'ers, Many times, we hear people claim that you should only stop ADT if you can't tolerate it any longer, and that it will not slow castrate resistance; that it increases risk for stroke, and heart attack; that it will likely take years for your testosterone to recover; that it increases mortality
NPfisherman
in
Fight Prostate Cancer
2 days ago
Any guidance appreciated!
Hi everyone, My Dad (77) diagnosed in January w/ stage 4 PC, mets to L5 spine. PET scan showed no other spots elsewhere. PSA was 19 at time of diagnosis, Gleason 10. BRCA negative. PSA is now at 0.2 since starting hormone therapy. Feeling good, no pain. Still works (owns his own company). Started
Hi everyone, My Dad (77) diagnosed in January w/ stage 4 PC, mets to L5 spine. PET scan showed no other spots elsewhere. PSA was 19 at time of diagnosis, Gleason 10. BRCA negative. PSA is now at 0.2 since starting hormone therapy. Feeling good, no pain. Still works (owns his own company). Started
LDC2024
in
Advanced Prostate Cancer
2 days ago
In the UK Olaparib only seems to be available for those testing positive for BRCA. Is this a cost issue that it is not widely available?
Beej59• A few seconds ago•0 Replies My partner has advanced PC with tumours in ribs, spine and iliac. He has been stable on Zoladex for 8 years but this may now be changing. We insisted on a BRCA test which has come back negative but from what I understand Olaparib is only being made available
Beej59• A few seconds ago•0 Replies My partner has advanced PC with tumours in ribs, spine and iliac. He has been stable on Zoladex for 8 years but this may now be changing. We insisted on a BRCA test which has come back negative but from what I understand Olaparib is only being made available
Beej59
in
Prostate Cancer Network
3 days ago
In the UK Olaparib only seems to be available for those testing positive for BRCA. Is this a cost issue that it is not widely available?
My partner has advanced PC with tumours in ribs, spine and iliac. He has been stable on Zoladex for 8 years but this may now be changing. We insisted on a BRCA test which has come back negative but from what I understand Olaparib is only being made available to patients in the UK for those who test
My partner has advanced PC with tumours in ribs, spine and iliac. He has been stable on Zoladex for 8 years but this may now be changing. We insisted on a BRCA test which has come back negative but from what I understand Olaparib is only being made available to patients in the UK for those who test
Beej59
in
Advanced Prostate Cancer
3 days ago
treatment for rectal bleeding/hemorrhoids?
It’s now May 2024 and I’ve had a total of two colonoscopies and one sigmoidoscopy since 2020 and they have found the following: hypertrophic anal papillae(basically a benign fibrous polyp that many gi doctors regard as a skin tag), internal hemorrhoids and one external friable hemorrhoid, small divericula
It’s now May 2024 and I’ve had a total of two colonoscopies and one sigmoidoscopy since 2020 and they have found the following: hypertrophic anal papillae(basically a benign fibrous polyp that many gi doctors regard as a skin tag), internal hemorrhoids and one external friable hemorrhoid, small divericula
digar
in
Colon Cancer Connected
3 days ago
Record more interviews with the guys in our prostate cancer community.
Based on the outstanding response to yesterday's video with Don (the retired Canadian Mountie), I will be happy to record more interviews with the guys in our prostate cancer community. Your experience could help others navigate their paths and provide invaluable insights into the everyday realities
Based on the outstanding response to yesterday's video with Don (the retired Canadian Mountie), I will be happy to record more interviews with the guys in our prostate cancer community. Your experience could help others navigate their paths and provide invaluable insights into the everyday realities
Darryl
Partner
in
Advanced Prostate Cancer
3 days ago
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