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Heading down hospice road too…
I’m so sorry to hear about your dad 😢 I’m in a very similar situation with my dad, age 71, Gleason 9 with Mets to bone, lungs, lymph nodes and now a tumor in his bladder. Zytiga worked for him for years, but last January started with more bone Mets and lymph nodes, zytiga restarted and failed. Tried
I’m so sorry to hear about your dad 😢 I’m in a very similar situation with my dad, age 71, Gleason 9 with Mets to bone, lungs, lymph nodes and now a tumor in his bladder. Zytiga worked for him for years, but last January started with more bone Mets and lymph nodes, zytiga restarted and failed. Tried
LJGD
in
Advanced Prostate Cancer
3 months ago
surgical pathology - IDC
Can anyone review pathology? Shows IDC but negative everything else. Doctor is not recommending radiation. Thoughts? Life expectancy? Chance of reoccurrence? TUMOR Histologic Type: Acinar adenocarcinoma, conventional (usual) Histologic Grade: Grade: Grade group 2 (Gleason Score 3 + 4 = 7) Percentage
Can anyone review pathology? Shows IDC but negative everything else. Doctor is not recommending radiation. Thoughts? Life expectancy? Chance of reoccurrence? TUMOR Histologic Type: Acinar adenocarcinoma, conventional (usual) Histologic Grade: Grade: Grade group 2 (Gleason Score 3 + 4 = 7) Percentage
Granolaberry
in
Prostate Cancer Network
3 months ago
Lupus and Radiotherapy
Hi everyone ; I have SLE and APS and take Warfarin ; this has been my situation for around 25 years. I was diagnosed with Prostate cancer around sixteen months ago and have been on Hormone therapy for fourteen months. I was offered Radiotherapy around nine months ago , but due to the possible side
Hi everyone ; I have SLE and APS and take Warfarin ; this has been my situation for around 25 years. I was diagnosed with Prostate cancer around sixteen months ago and have been on Hormone therapy for fourteen months. I was offered Radiotherapy around nine months ago , but due to the possible side
jamesroybuck
in
LUPUS UK
3 months ago
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Hi I’m dory10. I was diagnosed inDec2019 but had it for 27 years. I fall over a lot now I’m having tests to find out why.
I fell down stairs expecting my 3rd child at 37 weeks . She was fine a genius infact but I was left in muscle spasms and so much pain. I was told I was so close to being a paraplegic. I put up with all the little things that went wrong, I was fortunate not to be paraplegic. In 2016 I had a minor car
I fell down stairs expecting my 3rd child at 37 weeks . She was fine a genius infact but I was left in muscle spasms and so much pain. I was told I was so close to being a paraplegic. I put up with all the little things that went wrong, I was fortunate not to be paraplegic. In 2016 I had a minor car
Dory10
in
Fibromyalgia Action UK
4 months ago
Advice on hormonal treatment?
hi all, 10 days post-lap here. Unfortunately ended up losing my left ovary and tube - had 4 endometriomas on it, 1 of which was 8cm, and this was all adhered to my rectum. So the surgeon said it needed to come out. I’m waiting for a post-op appointment but the consultant said the endo will likely come
hi all, 10 days post-lap here. Unfortunately ended up losing my left ovary and tube - had 4 endometriomas on it, 1 of which was 8cm, and this was all adhered to my rectum. So the surgeon said it needed to come out. I’m waiting for a post-op appointment but the consultant said the endo will likely come
Apprentice_Hag
in
Endometriosis UK
3 months ago
Eczema flare up in Spring
Does anyone else suffer an eczema flare up during the change in seasons, particularly at the end of Winter going into Spring? I have had 2 nasty flare ups to my face, neck and shoulders in the last 2 weeks. This has happened to me in the past several times and was wondering if other eczema sufferers
Does anyone else suffer an eczema flare up during the change in seasons, particularly at the end of Winter going into Spring? I have had 2 nasty flare ups to my face, neck and shoulders in the last 2 weeks. This has happened to me in the past several times and was wondering if other eczema sufferers
Teach66
in
MY SKIN
3 months ago
What remains?
My husband's PSA count is 3631. He's had every treatment bar Lutetium and immunotherapy and he doesn't have the BRCA gene. Are we at EOL? He, although emaciated, believes that it's not over yet.
My husband's PSA count is 3631. He's had every treatment bar Lutetium and immunotherapy and he doesn't have the BRCA gene. Are we at EOL? He, although emaciated, believes that it's not over yet.
Eala
in
Advanced Prostate Cancer
3 months ago
Pretty in Pink-How Lucky am I?
I am so grateful for 3 close friends from my USA high schoolwho flew 24 hrs to visit me for a few weeks in New Zealand! We joined 50K others at last nights Pink Concert and it was really amazing! I was very anxious about needing to walk long distances because the roads around the large stadium were
I am so grateful for 3 close friends from my USA high schoolwho flew 24 hrs to visit me for a few weeks in New Zealand! We joined 50K others at last nights Pink Concert and it was really amazing! I was very anxious about needing to walk long distances because the roads around the large stadium were
Bettybuckets
in
SHARE Metastatic Breast Cancer
3 months ago
BC Update with GP.
First I rang Macmillan and they thought it very odd my cancer had gone from high to low. So rang my consultants secretary and she was not there, the people in charge said they were not qualified to help. I saw my GP today and like myself had a letter with no details at the top, this matters because
First I rang Macmillan and they thought it very odd my cancer had gone from high to low. So rang my consultants secretary and she was not there, the people in charge said they were not qualified to help. I saw my GP today and like myself had a letter with no details at the top, this matters because
Ern007
in
Lung Conditions Community Forum
6 months ago
Noise in my head
I think I developed Tinnitus as a result of going on blood pressure tablets years ago.A couple of years ago I complained to my GP that my tinnitus was getting louder so I was sent for CT scan on my left ear which is where I thought it was coming from,but the results showed no abnormalities so I was
I think I developed Tinnitus as a result of going on blood pressure tablets years ago.A couple of years ago I complained to my GP that my tinnitus was getting louder so I was sent for CT scan on my left ear which is where I thought it was coming from,but the results showed no abnormalities so I was
Jvb74
in
Tinnitus UK
7 months ago
Loss of voice!
Anybody with asthma + bronchiectasis combo ever suffer with total loss of voice? Ihave the odd croaky days, but it doesn't last long, now I've lost my voice ccompletely.....had loads of hot drinks, nothing working. Tips please!! Thanks.
Anybody with asthma + bronchiectasis combo ever suffer with total loss of voice? Ihave the odd croaky days, but it doesn't last long, now I've lost my voice ccompletely.....had loads of hot drinks, nothing working. Tips please!! Thanks.
Tiggertheterrier
in
Asthma Community Forum
4 months ago
Taste alteration
Hi, Has anyone experienced loss of taste after transplant? My partner says everything tastes absolutely horrendous. Will this come back?!
Hi, Has anyone experienced loss of taste after transplant? My partner says everything tastes absolutely horrendous. Will this come back?!
Gemmax
in
British Liver Trust
3 months ago
No more propafenone!!!! What???
I'm in the U.S., diagnosed PAF ~3 years ago. Have achieved excellent control with propafenone (Rythmol). My pharmacy informed me they cannot refill my prescription, as there is a supply side problem with propafenone. From what I have read, there is a dangerous shortage of propafenone in the U.S and
I'm in the U.S., diagnosed PAF ~3 years ago. Have achieved excellent control with propafenone (Rythmol). My pharmacy informed me they cannot refill my prescription, as there is a supply side problem with propafenone. From what I have read, there is a dangerous shortage of propafenone in the U.S and
frazeej
in
AF Association
7 months ago
Haemorrhagic colitis
Has anyone else been diagnosed with Haemorrhagic colitis, or heard about haemorrhagic colitis. This was diagnosed following a colonoscopy where they found 3 sites x 3cms and treated it with argon cautherisation under general anaesthetic (although they keep telling me it was not ga). I also have endometriosis
Has anyone else been diagnosed with Haemorrhagic colitis, or heard about haemorrhagic colitis. This was diagnosed following a colonoscopy where they found 3 sites x 3cms and treated it with argon cautherisation under general anaesthetic (although they keep telling me it was not ga). I also have endometriosis
Anastasia17
in
Crohn's and Colitis Support
11 months ago
recommendations for The Christie ?
hi everyone , I haven’t posted for a while as I have been taking part in a clinical trial which has now finished . Can anyone recommend an oncologist specialising in Ovarian Cancer at The Christie ? I’m looking for another trial if possible and I can travel to The Christie . I just want to wish everyone
hi everyone , I haven’t posted for a while as I have been taking part in a clinical trial which has now finished . Can anyone recommend an oncologist specialising in Ovarian Cancer at The Christie ? I’m looking for another trial if possible and I can travel to The Christie . I just want to wish everyone
Lookingahead
in
My Ovacome
3 months ago
Shingrix vaccine for immunosuppressed people aged 50+
I thought I would just post this from the gov.uk website because I have just a bit of struggle convincing our surgery that I was eligible, so maybe other people haven't been invited either. The full list is on chrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/https://assets.publishing.service.gov.uk
I thought I would just post this from the gov.uk website because I have just a bit of struggle convincing our surgery that I was eligible, so maybe other people haven't been invited either. The full list is on chrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/https://assets.publishing.service.gov.uk
Sharitone
in
PMRGCAuk
7 months ago
Medtronic receives FDA clearance for OsteoCool™ 2.0 bone tumor ablation system - Mar 1, 2024
[i]This should be a new option and welcomed news for PCa patients with bone mets. Here is the Medtronic news release:[/i] * * *
Medtronic receives FDA clearance for OsteoCool™ 2.0 bone tumor ablation system
Doubled probe count enables multi-level spine tumor ablations for increased flexibility
[i]This should be a new option and welcomed news for PCa patients with bone mets. Here is the Medtronic news release:[/i] * * *
Medtronic receives FDA clearance for OsteoCool™ 2.0 bone tumor ablation system
Doubled probe count enables multi-level spine tumor ablations for increased flexibility
cujoe
in
Fight Prostate Cancer
3 months ago
hip replacement & taking Flecainide 150mg x 2
Hi everyone - I have been on Flecainide 150mg twice daily for nearly a year now (increased from 100mg x 2) and thus far the A.F episodes (17 in 2022) have ceased. My problem now is I am facing the prospect of hip replacement surgery & wonder if anyone else has experienced this and did they have to stop
Hi everyone - I have been on Flecainide 150mg twice daily for nearly a year now (increased from 100mg x 2) and thus far the A.F episodes (17 in 2022) have ceased. My problem now is I am facing the prospect of hip replacement surgery & wonder if anyone else has experienced this and did they have to stop
Fib36
in
AF Association
7 months ago
Breast Cancer
I'm 85year old male who was diagnosed with breast cancer stage 3, June 2023, I also have Heart disease and Afib. We decided to put off surgery and go on Tamoxifen for now. But I keep wondering if I should have surgery, I should see the the consultant in May
I'm 85year old male who was diagnosed with breast cancer stage 3, June 2023, I also have Heart disease and Afib. We decided to put off surgery and go on Tamoxifen for now. But I keep wondering if I should have surgery, I should see the the consultant in May
Redier
in
Male Breast Cancer
3 months ago
Awaiting hospital appt
Hi I've had a letter through the post saying I have a small AN and now awaiting specialist appointment at Salford. I've had symptoms of tinnitus my referral to ENT was my ask not GPs and I was surprised when the ENT consultant offered me an MRI to put my mind at ease. I was expecting it to come back
Hi I've had a letter through the post saying I have a small AN and now awaiting specialist appointment at Salford. I've had symptoms of tinnitus my referral to ENT was my ask not GPs and I was surprised when the ENT consultant offered me an MRI to put my mind at ease. I was expecting it to come back
Ranikhan
in
Acoustic Neuroma Support
7 months ago
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