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Waiting on Diagnosis
I have recently been to Rheumatology after being referred by my GP following a positive ANA result. I have now been recalled for more blood tests including Haemochromatosis due to high transferrin saturation. My Cons thought I maybe 'borderline' Lupus and I am a bit confused. My symptoms have included
I have recently been to Rheumatology after being referred by my GP following a positive ANA result. I have now been recalled for more blood tests including Haemochromatosis due to high transferrin saturation. My Cons thought I maybe 'borderline' Lupus and I am a bit confused. My symptoms have included
mctag44
in
LUPUS UK
10 years ago
What does it all mean?
Hi lovely peeps I'm new to this journey and after some pointers into what's going on??? Doctor is clueless / his words...., Tsh 6.4 Ferritin 25 No thyroid antibodies Weak positive ana Folate 21.8 B12 987 On armor 2 grains - and symtpoms have gotten better (usual symtoms) but still have Tiredness
Hi lovely peeps I'm new to this journey and after some pointers into what's going on??? Doctor is clueless / his words...., Tsh 6.4 Ferritin 25 No thyroid antibodies Weak positive ana Folate 21.8 B12 987 On armor 2 grains - and symtpoms have gotten better (usual symtoms) but still have Tiredness
Natalie286
in
Thyroid UK
10 years ago
Will I be put on meds for discoid lupus?
Hi everyone. Can anyone tell me what will happen now that I have been diagnosed with discoid lupus? I have a lot of mild symptoms of SLE but my ANA test was negative. I was given Elocon cream and told to return to dermy in 6-8 weeks. I wasn't given anything for my other symptoms though. Feeling confused
Hi everyone. Can anyone tell me what will happen now that I have been diagnosed with discoid lupus? I have a lot of mild symptoms of SLE but my ANA test was negative. I was given Elocon cream and told to return to dermy in 6-8 weeks. I wasn't given anything for my other symptoms though. Feeling confused
rad123
in
LUPUS UK
10 years ago
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newly diagnosed with no support
Hi everyone. I was diagnosed with discoid lupus 2 days ago. I have had symptoms of SLE for around 2 years but never put the symptoms together even though my Dad had SLE!! I had biopsies on a facial lesion and when I went to see the dermy for my results I was seen by his reg. She told me it was lupus
Hi everyone. I was diagnosed with discoid lupus 2 days ago. I have had symptoms of SLE for around 2 years but never put the symptoms together even though my Dad had SLE!! I had biopsies on a facial lesion and when I went to see the dermy for my results I was seen by his reg. She told me it was lupus
rad123
in
LUpus Patients Understanding and Support
10 years ago
Confussed
Yesterday went to rheumatologist to get test results. He had said when I went in before, he was pretty sure it was RA. After getting tests back RF is negative but ANA positive, now I don't know if RA or Lupus. ANA can be positive in RA too I guess. Started me on PLAQUENIL 200mg 2 times per day.
Yesterday went to rheumatologist to get test results. He had said when I went in before, he was pretty sure it was RA. After getting tests back RF is negative but ANA positive, now I don't know if RA or Lupus. ANA can be positive in RA too I guess. Started me on PLAQUENIL 200mg 2 times per day.
jetttsd
in
NRAS
10 years ago
LUPUS RASH?
Hi everyone, I have many Lupus signs, though diagnosed with CFS/ME and Fibro. I have rashing over the front of my neck. It is at its worst the more poorly days, but pretty much there to some degree all the time. Had odd occasions when it is faintly over brow of nose. My ana test comes back as 'normal
Hi everyone, I have many Lupus signs, though diagnosed with CFS/ME and Fibro. I have rashing over the front of my neck. It is at its worst the more poorly days, but pretty much there to some degree all the time. Had odd occasions when it is faintly over brow of nose. My ana test comes back as 'normal
jellynpain
in
LUPUS UK
10 years ago
Are sticky blood and APS the same thing?
As I am trying to understand this condition and looking to getting tests done, I want to understand the terms. Is sticky blood the same thing as APS? Is low vitamin D a common symptom? I guess mine is very low. Strange as I have a pretty nice tan ;>) I guess I will list other symptoms I have: Extreme
As I am trying to understand this condition and looking to getting tests done, I want to understand the terms. Is sticky blood the same thing as APS? Is low vitamin D a common symptom? I guess mine is very low. Strange as I have a pretty nice tan ;>) I guess I will list other symptoms I have: Extreme
iskihard
in
Hughes Syndrome APS Forum
10 years ago
UCTD, Joint Pain, Plaquenil
I'm a 31 y/o female. I woke up one morning back in April 2013 with achy hands and didn't understand why they felt so achy. I just lived with it until July. It wasn't horrible, just annoying, and it came and went--sometimes made worse by chopping veggies or cleaning--sometimes those activities were
I'm a 31 y/o female. I woke up one morning back in April 2013 with achy hands and didn't understand why they felt so achy. I just lived with it until July. It wasn't horrible, just annoying, and it came and went--sometimes made worse by chopping veggies or cleaning--sometimes those activities were
hperkins26
in
LUPUS UK
10 years ago
ANA Blood test & swollen glands & neck stiffness
Hey all! I'm currently waiting on my ANA blood test results, they were done on Sept 23rd and they still aren't back. I ring the GP almost everyday, nothing. They keep promising to ring me up and say what's is happening, but they keep delaying & delaying. I was told they'd call today, needless to say
Hey all! I'm currently waiting on my ANA blood test results, they were done on Sept 23rd and they still aren't back. I ring the GP almost everyday, nothing. They keep promising to ring me up and say what's is happening, but they keep delaying & delaying. I was told they'd call today, needless to say
kittyIM
in
LUPUS UK
10 years ago
A quick question
I have been diagonisrd with conective tissue disease and fibro ( positive ana speckled, positive anti RNP and DsDna). I am on plaquenil 200 mg per day and lyrica 150 mg per day My question is i have noticed a rash on my cheaks and nose after being in the sun for short periods then it seems to lighten
I have been diagonisrd with conective tissue disease and fibro ( positive ana speckled, positive anti RNP and DsDna). I am on plaquenil 200 mg per day and lyrica 150 mg per day My question is i have noticed a rash on my cheaks and nose after being in the sun for short periods then it seems to lighten
Hopey
in
LUpus Patients Understanding and Support
10 years ago
Opinions Please!!!
Hi :) I need everyones opinions & input but first let me fill you in on my family medical history with autoimmune disease as well as my own. Family History: Twin Sister: Eczema, Raynauds (Not severe), Erythema Nodosum Grandfather: Protein C deficiency & Factor 5 Leiden Mutation "Sticky Blood" (Blood
Hi :) I need everyones opinions & input but first let me fill you in on my family medical history with autoimmune disease as well as my own. Family History: Twin Sister: Eczema, Raynauds (Not severe), Erythema Nodosum Grandfather: Protein C deficiency & Factor 5 Leiden Mutation "Sticky Blood" (Blood
Hidden
in
LUPUS UK
10 years ago
Just a quick question
Had my rhematology appointment a month ago my thuemy was happy that plaquenil seems to be working blood results back within normal limits rhuemy says ctd and fibro (lyrica for fibro) my question is anti rnp, dsdna, ana positive does this indicate sle or mctd? no malar rash so am just trying to work out
Had my rhematology appointment a month ago my thuemy was happy that plaquenil seems to be working blood results back within normal limits rhuemy says ctd and fibro (lyrica for fibro) my question is anti rnp, dsdna, ana positive does this indicate sle or mctd? no malar rash so am just trying to work out
Hopey
in
LUPUS UK
10 years ago
Diagnosis
I have Bronchiectasis, MAC,Tia's, AT3, and Barretts disease, excuse the spelling..I have been very sick on the right side and thought it was a lung discomfort. My liver panel has been elevated for a long time. Now that I have the right Dr's in place they decided to do a series of blood work. Results
I have Bronchiectasis, MAC,Tia's, AT3, and Barretts disease, excuse the spelling..I have been very sick on the right side and thought it was a lung discomfort. My liver panel has been elevated for a long time. Now that I have the right Dr's in place they decided to do a series of blood work. Results
shirley29485
in
Lung Conditions Community Forum
10 years ago
Im giving up!
I have the butterfly rash and joint pain and inflamation along with raynods and I have days lim extremly tired and I have a lot of kidney infections. Anyway iv been dealing with joint pain for 9 years. Iv had blood work and ana was negative I had blood work again and I had an ana positive but it was
I have the butterfly rash and joint pain and inflamation along with raynods and I have days lim extremly tired and I have a lot of kidney infections. Anyway iv been dealing with joint pain for 9 years. Iv had blood work and ana was negative I had blood work again and I had an ana positive but it was
kkgirl
in
LUpus Patients Understanding and Support
10 years ago
ANA Curiousity question?
Hi! Friends, You know how they say there is a small percent of the population that are healthy but have positive ANA tests, or there ANA is always that way, or whatever it is they say about that... MY question is...those healthy individuals that are positive, what does their test look like? Does it have
Hi! Friends, You know how they say there is a small percent of the population that are healthy but have positive ANA tests, or there ANA is always that way, or whatever it is they say about that... MY question is...those healthy individuals that are positive, what does their test look like? Does it have
dgleds
in
LUPUS UK
10 years ago
My story
Following Ivonnepf's message to me I shall tell you all my story: I had been suffering a lot of stress at work and woke up one night with my heart pounding. My GP referred me to a cardiologist, who subsequently diagnosed paroxysmal atrial fibrillation (AF) and prescribed flecainide, which controlled
Following Ivonnepf's message to me I shall tell you all my story: I had been suffering a lot of stress at work and woke up one night with my heart pounding. My GP referred me to a cardiologist, who subsequently diagnosed paroxysmal atrial fibrillation (AF) and prescribed flecainide, which controlled
Hidden
in
HFI Connect - Hepatitis
10 years ago
Positive ANA doesn't necessarily mean I have lupus?
Is this possible? My rheumatologist looked at me and said he doesn't think I have lupus even with a positive ANA. Has anyone heard of this? I would love to not have lupus, but seem to have a lot of the symptoms and have to wait 6 weeks for results...ugh!
Is this possible? My rheumatologist looked at me and said he doesn't think I have lupus even with a positive ANA. Has anyone heard of this? I would love to not have lupus, but seem to have a lot of the symptoms and have to wait 6 weeks for results...ugh!
Natura
in
LUPUS UK
10 years ago
Rheumatoid arthritis, pain is back with new symptoms
Hello. I've been suffering from rheumatoid arthritis since 2006, after a long ordeal through doctors, drugs without any effect such as Cortisone, Chloroquine and Arava or too many side effects like Methotrexate plus strong pain that lead me to pass a long time stuck in bed, finally in 2011, I was given
Hello. I've been suffering from rheumatoid arthritis since 2006, after a long ordeal through doctors, drugs without any effect such as Cortisone, Chloroquine and Arava or too many side effects like Methotrexate plus strong pain that lead me to pass a long time stuck in bed, finally in 2011, I was given
cindy19981
in
NRAS
10 years ago
Am I a fraud?!!
Please can anyone help,I am at my wits end.4 years ago after an indepth investigation with a reumatologist who initially was convinced I had lupus,I was instead diagnosed with fibromyalgia,and discharged.I continue to have most of the symptoms of lupus at various times,and I am particularly bad at the
Please can anyone help,I am at my wits end.4 years ago after an indepth investigation with a reumatologist who initially was convinced I had lupus,I was instead diagnosed with fibromyalgia,and discharged.I continue to have most of the symptoms of lupus at various times,and I am particularly bad at the
twinx57
in
LUPUS UK
10 years ago
Hello everyone I currently have hypothyroidism diagnosed several years ago. In 2010 I went to my GP with overall joint pain, muscle aches,
tired. I felt like I couldn't do anything nor did I want too. Working my job was hard enough. The GP ran blood test, it came back with a positive ANA. I was sent to a rheumatologist that Dr ran a serious of test. She informed me that no arthritis and I would think she tested for lupus as well just not
tired. I felt like I couldn't do anything nor did I want too. Working my job was hard enough. The GP ran blood test, it came back with a positive ANA. I was sent to a rheumatologist that Dr ran a serious of test. She informed me that no arthritis and I would think she tested for lupus as well just not
Sally79
in
LUPUS UK
10 years ago
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