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Age-related cataracts
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Webinar: Exploring Valeda light therapy for AMD
We will be delving into the science behind Valeda light therapy for treating age-related macular degeneration (AMD). In this session, we’ll be joined Professor Tim Jackson, consultant ophthalmic surgeon from King’s College Hospital, to explore the science behind the Valeda photobiomodulation technique
We will be delving into the science behind Valeda light therapy for treating age-related macular degeneration (AMD). In this session, we’ll be joined Professor Tim Jackson, consultant ophthalmic surgeon from King’s College Hospital, to explore the science behind the Valeda photobiomodulation technique
Carol_MacularSociety
Partner
in
Macular Society
4 days ago
belimumab Infusions
Hi all, I’m suppose to be starting belimumab infusions next week, however there is a shortage in the medication so I’m just waiting for a new date I’m on all the usual medication for lupus but nothing seems to be working, I have had rituximab last year and the first lot lasted 5 months which was great
Hi all, I’m suppose to be starting belimumab infusions next week, however there is a shortage in the medication so I’m just waiting for a new date I’m on all the usual medication for lupus but nothing seems to be working, I have had rituximab last year and the first lot lasted 5 months which was great
MaryannM
in
LUPUS UK
1 month ago
Steroid injection and surgery
Hi all , I'm just wondering if anyone knows how long you have to wait after steroid injection in the bottom before having gallbladder removal I've been told operation will be in 2 to 3 mths unless a cancellation comes in. But a friend said I'll have to wait 3mths now
Hi all , I'm just wondering if anyone knows how long you have to wait after steroid injection in the bottom before having gallbladder removal I've been told operation will be in 2 to 3 mths unless a cancellation comes in. But a friend said I'll have to wait 3mths now
Trishfrog1
in
NRAS
7 days ago
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Anesthesia and PD
I’m planning on having Morton’s neuroma surgery in a few weeks, unless I chicken out! I’m concerned about any negative effects because of anesthesia . I’m going to check to see if doing some type of block instead of General, is a possibility. Has anyone had that operation, or have experience with different
I’m planning on having Morton’s neuroma surgery in a few weeks, unless I chicken out! I’m concerned about any negative effects because of anesthesia . I’m going to check to see if doing some type of block instead of General, is a possibility. Has anyone had that operation, or have experience with different
Ob6842
in
Cure Parkinson's
1 month ago
Improvement of Blood Plasmalogens and Clinical Symptoms in Parkinson's Disease by Oral Administration of Ether Phospholipids:
You got plasmalogen? Any one likes scallops? It is a lengthy article, but our HU scientists will give us their opinion. I have to find the supplement now! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7049862/
You got plasmalogen? Any one likes scallops? It is a lengthy article, but our HU scientists will give us their opinion. I have to find the supplement now! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7049862/
Despe
in
Cure Parkinson's
1 month ago
Taking Betmiga with Pred for Urine Control?
Just wondered if anyone takes Betmiga (Mirabegron) for better urine control and if it is advisable? Since having PMR from 2022 I have frequency and urgency bladder issues, particularly at night. I would love to sleep the night through or travel without angst! While I am on, glad to say I had the
Just wondered if anyone takes Betmiga (Mirabegron) for better urine control and if it is advisable? Since having PMR from 2022 I have frequency and urgency bladder issues, particularly at night. I would love to sleep the night through or travel without angst! While I am on, glad to say I had the
Motida
in
PMRGCAuk
1 month ago
selenium supplements
what are the best type? My husband has just purchased some which seem to say both sodium selenite and selenite, 100 ug,, not sure if is the correct compound. The instructions are in small Turkish language/ print n fortunately. Any comments? had not noticed autocorrect must have worked paper stuck on
what are the best type? My husband has just purchased some which seem to say both sodium selenite and selenite, 100 ug,, not sure if is the correct compound. The instructions are in small Turkish language/ print n fortunately. Any comments? had not noticed autocorrect must have worked paper stuck on
Judithdalston
in
Thyroid UK
2 months ago
Actemra and Extremely Fast Taper off of Prednisone
I didn't expect the following during my last appointment with my Rheumatologist: I told her that some symptoms were resurfacing after having reduced from 20mg for 2 weeks to 17.5mg, for 2 weeks (due to go down to 15mg. 2 days after appt), slight pressure in left temple and newly developed persistent
I didn't expect the following during my last appointment with my Rheumatologist: I told her that some symptoms were resurfacing after having reduced from 20mg for 2 weeks to 17.5mg, for 2 weeks (due to go down to 15mg. 2 days after appt), slight pressure in left temple and newly developed persistent
newsusy
in
PMRGCAuk
2 months ago
Webinar: Increased dose of Eylea to extend treatment intervals
A renowned retinal specialist based in the US, Dr Kenneth Fan will join us this month to discuss the increased dose of licensed drug Eylea (aflibercept) to treat wet age-related macular degeneration and diabetic macular oedema. Dr Fan will talk more about the trials which have led to the increased 8mg
A renowned retinal specialist based in the US, Dr Kenneth Fan will join us this month to discuss the increased dose of licensed drug Eylea (aflibercept) to treat wet age-related macular degeneration and diabetic macular oedema. Dr Fan will talk more about the trials which have led to the increased 8mg
Carol_MacularSociety
Partner
in
Macular Society
3 months ago
Is there a link with taking Forstair and cataracts?
I was diagnosed with late onset asthma just before the first Covid lockdown. My eyes were always fine until then, but within a year of taking Forstair I was diagnosed with cataracts in both eyes. My research suggests the steroid in the inhaler might be responsible, but it has been dismissed by my GP
I was diagnosed with late onset asthma just before the first Covid lockdown. My eyes were always fine until then, but within a year of taking Forstair I was diagnosed with cataracts in both eyes. My research suggests the steroid in the inhaler might be responsible, but it has been dismissed by my GP
AllotmentNanna
in
Asthma Community Forum
3 months ago
Valproate: new safety and educational materials to support regulatory measures in men and women under 55 years of age
I don't think there is any reason to expect many members to be taking any form of Valproate, but this is such an important issue, with such significant consequences, I've decided to post it anyway. Even if you are not taking it, someone you know might be. [i]
Valproate (Belvo, Convulex, Depakote,
I don't think there is any reason to expect many members to be taking any form of Valproate, but this is such an important issue, with such significant consequences, I've decided to post it anyway. Even if you are not taking it, someone you know might be. [i]
Valproate (Belvo, Convulex, Depakote,
helvella
Thyroid UK
in
Thyroid UK
4 months ago
is elective surgery safe to have when you are having an Ra flare ?
hello I am due to have surgery soon, my flare is still ongoing, waiting for new drugs to work, added hydroxy 200mg daily to my ongoing mtx 15mg weekly because stopping the hydroxy caused the flare. been 7 weeks since restarting hydroxy and no sign of hydroxy working yet. my elective surgery is due
hello I am due to have surgery soon, my flare is still ongoing, waiting for new drugs to work, added hydroxy 200mg daily to my ongoing mtx 15mg weekly because stopping the hydroxy caused the flare. been 7 weeks since restarting hydroxy and no sign of hydroxy working yet. my elective surgery is due
lindyloo2018
in
NRAS
4 months ago
Heart meds and sunlight sensitivity
I am currently taking these post cardioversion (procedure successful early November 2022) meds: morning: Entresto sacubitril/valsartan 24mg/26mg Apixiban 5mg Bisoprolol Fumarate 5 mg Spironolactone 25mg Dapagliflozin 10mg evening: Entresto sacubitril/valsartan 24mg/26mg Apixiban 5mg Bisoprolol
I am currently taking these post cardioversion (procedure successful early November 2022) meds: morning: Entresto sacubitril/valsartan 24mg/26mg Apixiban 5mg Bisoprolol Fumarate 5 mg Spironolactone 25mg Dapagliflozin 10mg evening: Entresto sacubitril/valsartan 24mg/26mg Apixiban 5mg Bisoprolol
thurstonloveseva
in
AF Association
4 months ago
Finger misbehaving (!) ...Ulnar Deviation
Hello, I recently noticed my middle finger has gone bent towards the pinky finger. I couldn't believe my eyes and did internet search. It happens to people with RA and Lupus. A bit shocking. I have been doing mild squeezing exercise daily to help increase my hand strength. I think it may be due to
Hello, I recently noticed my middle finger has gone bent towards the pinky finger. I couldn't believe my eyes and did internet search. It happens to people with RA and Lupus. A bit shocking. I have been doing mild squeezing exercise daily to help increase my hand strength. I think it may be due to
Paprika60
in
LUPUS UK
4 months ago
GCA Concerns, Cold and Eyes
I hope everyone had as wonderful a Christmas as I did, despite our health battles. I flew to Arkansas where 2 of my adult kids and 4 of my grandkids live. 2 other adult kids and their spouse and fiancé came, and it’s been a wonderful time. A cold was going around, and I caught it. Just the sniffles,
I hope everyone had as wonderful a Christmas as I did, despite our health battles. I flew to Arkansas where 2 of my adult kids and 4 of my grandkids live. 2 other adult kids and their spouse and fiancé came, and it’s been a wonderful time. A cold was going around, and I caught it. Just the sniffles,
Lenore58
in
PMRGCAuk
4 months ago
Right Atrial Hypertrophy
Good morning. Has anyone ever been diagnosed with right atrial enlargement (RAH)? If yes, what was/is the experience? What were the options as it relates to medication?
Good morning. Has anyone ever been diagnosed with right atrial enlargement (RAH)? If yes, what was/is the experience? What were the options as it relates to medication?
Ocean3
in
AF Association
5 months ago
Vitamin B6 Toxicity: Available Testing of B6 Plasma Level Does NOT Tell You What You Need to Know
[u]
Background
[/u]: Vitamin B6 participates as a coenzyme in over 100 different biochemical reactions. When it does so it is converted to the inactive form, pyridoxine. The body contains a recycling loop that restores the pyridoxine to the active form, P5P. Vitamin B2 is required for this process
[u]
Background
[/u]: Vitamin B6 participates as a coenzyme in over 100 different biochemical reactions. When it does so it is converted to the inactive form, pyridoxine. The body contains a recycling loop that restores the pyridoxine to the active form, P5P. Vitamin B2 is required for this process
park_bear
in
Cure Parkinson's
5 months ago
New treatment plan GCA
Hi! I met with my rheumy yesterday and now seven months into my treatment for GCA. Initially I was told that I would be on Actemra for one year with Prednisone and then Methotrexate. Yesterday, I was informed that there will be no Methotrexate and from month ten, I move to fortnightly Actemra injections
Hi! I met with my rheumy yesterday and now seven months into my treatment for GCA. Initially I was told that I would be on Actemra for one year with Prednisone and then Methotrexate. Yesterday, I was informed that there will be no Methotrexate and from month ten, I move to fortnightly Actemra injections
Bessyg
in
PMRGCAuk
5 months ago
Methotrexate or Prednisone which is more damaging?(also update on eyes)
Hi, it's me again. During an eye exam, I was told my optic nerve was narrow, and that I needed to be seen asap due to the risk of blindness with GCA. I got in to see a neuro ophthalmologist who told me that my optic nerve isn't narrow, it's just turned on an angle. Probably from my connective disease
Hi, it's me again. During an eye exam, I was told my optic nerve was narrow, and that I needed to be seen asap due to the risk of blindness with GCA. I got in to see a neuro ophthalmologist who told me that my optic nerve isn't narrow, it's just turned on an angle. Probably from my connective disease
potterylady
in
PMRGCAuk
5 months ago
Rate of Decrease in RBC Count
Recent diagnosis of MPN, all three counts elevated. RBC count was 1.2 million, but lowered by phlebotomy to 922,000. I have started on Hydroxyurea. Are there any resources that provide information on the rate I could expect my RBC count to go down? 100K/month, 50K/month, etc. Thanks! hsdale3
Recent diagnosis of MPN, all three counts elevated. RBC count was 1.2 million, but lowered by phlebotomy to 922,000. I have started on Hydroxyurea. Are there any resources that provide information on the rate I could expect my RBC count to go down? 100K/month, 50K/month, etc. Thanks! hsdale3
hsdale3
in
MPN Voice
5 months ago
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