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PSP Association

9,371 members • 11,414 posts

All posts for June 2021

Don’t know what to expect

I was diagnosed with PSP and CBD in December 2020 . I haven’t had much support from the medical profession, and don’t know what to expect regarding end of life...

I was diagnosed with PSP and CBD in December 2020 . I haven’t had much support f...

AWonderfulLife

•3 years ago

5 Replies

His trial is over

Hello Friends, As expected, my lovely husband Mike passed away yesterday evening. He passed peacefully, none of the usual signs that I had been warned to look...

Hello Friends, As expected, my lovely husband Mike passed away yesterday evening...

Caro2132

•3 years ago

44 Replies

End stage

How do you know if they are in the end stage? My husband is now holding his right arm across his body real stiff. He also is not talking at all now and seems...

How do you know if they are in the end stage? My husband is now holding his righ...

Hidden

•3 years ago

4 Replies

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Restlessness/Impulsive Behavior

My 64 year old brother can’t seem to sit still. He pulls and tugs at his clothing and is extremely restless. He is extremely impulsive. Trying to get up and...

My 64 year old brother can’t seem to sit still. He pulls and tugs at his clothin...

Zebra10

•3 years ago

8 Replies

Corticobasal Disease Suggested Treatment

Sebuly14

•3 years ago

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Communication

I know I have seen something about communication aids on this site - brother's speech is now pretty incomprehensible and so frustrating for him to make himself...

I know I have seen something about communication aids on this site - brother's s...

redkilt

•3 years ago

9 Replies

Grateful to see this PSP Association

My wife, Lu, was diagnosed with CorticoBasal Ganglionic Degeneration (CBGD) on 05/23/2013 and died on 03-22-2019. Cause of death: Dehydration and CBGD. It...

My wife, Lu, was diagnosed with CorticoBasal Ganglionic Degeneration (CBGD) on ...

SunnyBoy777

•3 years ago

10 Replies

Nomination period for the 10,000 Voices Awards now open

The 10,000 Voices Awards aim to celebrate the bravery, support and achievements of people within the PSP & CBD Community. This includes people living with PSP...

The 10,000 Voices Awards aim to celebrate the bravery, support and achievements ...

HelenPSPA

Administrator•3 years ago

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whishing a miracle ....

Hello everyone, how many times have I hoped to wake up from a bad nightmare .... too many. I would like to talk about us, those who live this disease as a...

Hello everyone, how many times have I hoped to wake up from a bad nightmare .......

kjschy

•3 years ago

29 Replies

My father with PSP

Hi all from India. I can't even express what we are going through with my father having PSP. I am the main caregiver/ decision maker for him. Only handful of...

Hi all from India. I can't even express what we are going through with my father...

chonamona

•3 years ago

7 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for June 2021

Don’t know what to expect

His trial is over

End stage

Restlessness/Impulsive Behavior

Corticobasal Disease Suggested Treatment

Communication

Grateful to see this PSP Association

Nomination period for the 10,000 Voices Awards now open

whishing a miracle ....

My father with PSP

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive