Posts - PSP Association | HealthUnlocked

PSP Association

9,339 members • 11,392 posts

All posts for February 2019

Loosing weight with PSP??

The first few years after being diagnosed with PSP my hubby gained weight - binging on cakes, biscuits, desserts etc a complete contest to his previous food...

The first few years after being diagnosed with PSP my hubby gained weight - bing...

Tippyleaf

•5 years ago

35 Replies

PSP Treatment Satisfaction

Hello everyone, I'm a student at the University of Florida conducting research on the treatment of neurological conditions. My team and I created a survey to...

Hello everyone, I'm a student at the University of Florida conducting research o...

ashleyn97

•5 years ago

11 Replies

Change in eyes response

My father has PSP and starring has changed - very vacant, not blinking. Has anyone else seen this in their people suffering from PSP?

My father has PSP and starring has changed - very vacant, not blinking. Has any...

Shakalak

•5 years ago

17 Replies

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Claustrophobia & PSP - 18mths post diagnosis

Ch is getting claustrophobia every day now. Is this the tau in action? It almost make him go crazy. A couple of things seem to set it off. One is heat (we live...

Ch is getting claustrophobia every day now. Is this the tau in action? It almost...

crab2093

•5 years ago

13 Replies

Thickened liquids and puréed foods

Dan is currently in the hospital. He was vommitting. I thought he just had a stomach virus , but he was really out of it. We look hi to the Emergrncy Room and...

Dan is currently in the hospital. He was vommitting. I thought he just had a st...

Karynleitner

•5 years ago

16 Replies

Daytona 500, J.D. Gibbs passes away, age 49, from long battle with neurological disease.

Just watching the Daytona 500. JD Gibbs passed away a few days ago "after a long battle with a neurological disease at age 49". I really wish they would name...

Just watching the Daytona 500. JD Gibbs passed away a few days ago "after a lon...

greelycat

•5 years ago

6 Replies

From LizAB

I have just read everyone's posts out to Liz. I kept asking if she wanted me to continue and she was empathic - Yes. She was very touched and your posts meant...

I have just read everyone's posts out to Liz. I kept asking if she wanted me to ...

Kevin_1

•5 years ago

23 Replies

Thank you from the bottom of our hearts and good news

Thank you everyone for your prayers and well wishes. They mean so much to Liz and I. You are such wonderful people. I am going to read some of the posts to Liz...

Thank you everyone for your prayers and well wishes. They mean so much to Liz an...

Kevin_1

•5 years ago

18 Replies

Itching and Itch relief

Has anyone with PSP experienced itching problems? If so could you share your remedy?

Has anyone with PSP experienced itching problems? If so could you share your rem...

Cocodunny

•5 years ago

7 Replies

Is PSP a genetic condition?

Hello. Does anyone know if PSP is a hereditary condition?... My mother in law was diagnosed with it about 6 years ago. Do we have to be worried about her...

Hello. Does anyone know if PSP is a hereditary condition?... My mother in law wa...

cayabrewer

•5 years ago

11 Replies

Zytiga side effect?

I’m Dave and have been taking Lupron, zitiga, and prednisone successfully for the last 18months. PSA stays less than one with only one side affect, a annoying...

I’m Dave and have been taking Lupron, zitiga, and prednisone successfully for th...

mitch1940

•5 years ago

2 Replies

Low blood pressure

So yet another first for us. Mike had a very low blood pressure episode yesterday morning and actually fainted and was out for a minute. His care giver was...

So yet another first for us. Mike had a very low blood pressure episode yesterda...

Caro2132

•5 years ago

4 Replies

Seizures and holding hands.

Hi folks Liz had a seizure of some kind this morning. Brain/dopamine deficiencies come to mind, but I don't know. She was given Medazolan, which controls...

Hi folks Liz had a seizure of some kind this morning. Brain/dopamine deficiencie...

Kevin_1

•5 years ago

62 Replies

Hello, I’m new

I’ve just joined this community, so hello to all. I’ve been diagnosed with corticobasal degeneration. I live at home with my husband who takes excellent care...

I’ve just joined this community, so hello to all. I’ve been diagnosed with cort...

Birdlover415

•5 years ago

36 Replies

A professionals guide to cbd

This would make for a better life if it actually gets read and acted upon.I have doubts that it will make any difference to the way sufferers are treated.It...

This would make for a better life if it actually gets read and acted upon.I have...

Javan

•5 years ago

8 Replies

A crazy question...

Ian has woken up each day for the last fortnight complaining of back and stomach ache. It passes after a couple of hours usually. His mobility is generally...

Ian has woken up each day for the last fortnight complaining of back and stomach...

JCRy

•5 years ago

6 Replies

Lake House in the Winter

I took Momma up to our lake house (on Lake Erie, one of the Great Lakes) and this morning we enjoyed her favorite country breakfast! Gravy & Biscuits!!!...

I took Momma up to our lake house (on Lake Erie, one of the Great Lakes) and thi...

bazooka111

•5 years ago

6 Replies

So much JOY & Chocolate & Strawberries

Her baby boy Brad came to visit and brought her chocolate covered strawberries for Valentine’s Day!! It’s the little things that bring on so much JOY! Of...

Her baby boy Brad came to visit and brought her chocolate covered strawberries f...

bazooka111

•5 years ago

3 Replies

Vegans with psp

Just curious to know are there any psp sufferers who were vegan before/whilst they were diagnosed with psp?

Just curious to know are there any psp sufferers who were vegan before/whilst th...

Mustafa128h

•5 years ago

8 Replies

Unable to swallow or open mouth

Another new thing with Dad PSP. I know its been a log time since I posted, things leveled out for quite some time once he got worked out the proper...

Another new thing with Dad PSP. I know its been a log time since I posted, thin...

bgentges

•5 years ago

4 Replies

Difficulties with psp

What medications are given generally to the patients suffering from psp in the final stage ?

What medications are given generally to the patients suffering from psp in the...

787878

•5 years ago

16 Replies

A Proffesional's Guide to Corticobasal Degeneration

For anyone that doesn't belong or doesn't have access to the PSPA magazine, ' PSP Matters', I would like to bring attention to the fact that the magazine does...

For anyone that doesn't belong or doesn't have access to the PSPA magazine, ' PS...

DenB

•5 years ago

16 Replies

PSP parkinosn

Hello My father 65 age suffering from PSP Parkinson. Any suggestions plz how it will be curable?

Hello My father 65 age suffering from PSP Parkinson. Any suggestions plz how it...

Divya85

•5 years ago

7 Replies

Muscle cramps

I have been suffering from awful muscle cramps at night. I have a slow release madapor tablet before going to bed but doesn't help. Grateful for any advice on...

I have been suffering from awful muscle cramps at night. I have a slow release m...

Kimmyliz12

•5 years ago

24 Replies

CBD HEADACHES

Is snyone experiencing severe headaches with sharp pains to temporal area?

MartyBo

•5 years ago

5 Replies

It DOES NOT look like a BIB!

So I found it!! My mom has always been a classy lady, and I have just refused letting her wear any of these ugly options they call “adult bibs” ... I wish I...

So I found it!! My mom has always been a classy lady, and I have just refused le...

bazooka111

•5 years ago

17 Replies

Benefits for U.K. suffers

I guess you all are aware of attendance allowance and blue badge entitlement ,but you may not know that p.s.p. suffers can get a reduction on council tax.Pick...

I guess you all are aware of attendance allowance and blue badge entitlement ,bu...

acorneater

•5 years ago

8 Replies

Rummy!!!!!

She loves playing rummy! I have found that playing cards really makes her think, ... I love to watch her face as she prepares to make her next move!

She loves playing rummy! I have found that playing cards really makes her think,...

bazooka111

•5 years ago

4 Replies

Neurodegenerative diseases

Have any of the PSP and other patients ever tried to treat themselves with ozone? It is known that ozone is the enemy of pharmaceuticals. Apart from being...

Have any of the PSP and other patients ever tried to treat themselves with ozone...

Almor957

•5 years ago

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Best Friends

Happiness is ... spending the day with a life long friend. I drove my Mom to spend some time with a long time friend; she was so happy to reminisce about old...

Happiness is ... spending the day with a life long friend. I drove my Mom to sp...

bazooka111

•5 years ago

4 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for February 2019

Loosing weight with PSP??

PSP Treatment Satisfaction

Change in eyes response

Claustrophobia & PSP - 18mths post diagnosis

Thickened liquids and puréed foods

Daytona 500, J.D. Gibbs passes away, age 49, from long battle with neurological disease.

From LizAB

Thank you from the bottom of our hearts and good news

Itching and Itch relief

Is PSP a genetic condition?

Zytiga side effect?

Low blood pressure

Seizures and holding hands.

Hello, I’m new

A professionals guide to cbd

A crazy question...

Lake House in the Winter

So much JOY & Chocolate & Strawberries

Vegans with psp

Unable to swallow or open mouth

Difficulties with psp

A Proffesional's Guide to Corticobasal Degeneration

PSP parkinosn

Muscle cramps

CBD HEADACHES

It DOES NOT look like a BIB!

Benefits for U.K. suffers

Rummy!!!!!

Neurodegenerative diseases

Best Friends

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive