Posts - PSP Association | HealthUnlocked

PSP Association

9,339 members • 11,392 posts

All posts for October 2018

Wedding Day 22/10/2018

Good morning from Mr and Mrs Hankinson to all you lovely people. Yesterday was simply wonderful in the end ❤️. But what a journey we had to make...it started...

Good morning from Mr and Mrs Hankinson to all you lovely people. Yesterday was s...

Hiking13

•6 years ago

47 Replies

Hello

I'm new to psp..my 76 yr old mom was diagnosed 2weeks ago and 4years ago she was diagnosed with Parkinson's..I'm taking her to another Dr for a second opinion....

I'm new to psp..my 76 yr old mom was diagnosed 2weeks ago and 4years ago she was...

Sha66

•6 years ago

14 Replies

Hoping for cure

I have just recently been diagnosed with PSP, have had nuclear brain scan an it was very positive. I have signed up to join a trial study that will start in...

I have just recently been diagnosed with PSP, have had nuclear brain scan an it ...

FaithlyHopeful

•6 years ago

41 Replies

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VA Assistance for US Veterans

Took hubby to his yearly check in at the VA. Have to see a VA doc max 2 years to keep him in the system. Told his doc my concerns about home health assistance...

Took hubby to his yearly check in at the VA. Have to see a VA doc max 2 years to...

daffodil48

•6 years ago

33 Replies

Coupons and Discounts for Medical Supplies in the USA

https://www.needymeds.org/coupons.taf?_function=list&letter=A

daffodil48

•6 years ago

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CBD

Was wondering if there as a association for ones that have CBD My sister of 70 has it , would like more information on it, with hands on. These diseases are...

Was wondering if there as a association for ones that have CBD My sister of 70 h...

Sislin

•6 years ago

13 Replies

My sister and PSP

I have not visited this site for quite a while and now as I read several stories posted by those whose members have PSP it really makes me feel very sad. My...

I have not visited this site for quite a while and now as I read several stories...

Aryanti

•6 years ago

20 Replies

Update to my post on the U-Step 2 Walker, the best walker for those with PSP

There is an attachment known as the Cueing Module that is made for the U-Step 2 Walker. This module does 2 things. There is laser option that displays a red...

There is an attachment known as the Cueing Module that is made for the U-Step 2 ...

grafixapn

•6 years ago

11 Replies

New Kid on the block here ...

Want to first say thank you to everyone that has contributed to this site. Although I have not posted before now, I have spent many hours reading all of your...

Want to first say thank you to everyone that has contributed to this site. Altho...

bazooka111

•6 years ago

29 Replies

Ignoring behaviour

Mum with PSP for a least eight years. Does anyone else experience ignoring behaviour, sometimes won’t even look at u, also high temperatures 39 degrees,...

Mum with PSP for a least eight years. Does anyone else experience ignoring behav...

Kaylewis

•6 years ago

17 Replies

Phlegm in the stomach-peg tube

Has anyone’s PSP loved one experienced excess phlegm in the stomach? While checking for residual yesterday the hospice nurse said she had never seen so much...

Has anyone’s PSP loved one experienced excess phlegm in the stomach? While check...

tlovins

•6 years ago

2 Replies

I know I’m not alone in this.

Had a real screaming match with Larry last night. Around 6 he went up to his bedroom. At 6:20 he wanted to come down again. At 7 when I was ready to go up he...

Had a real screaming match with Larry last night. Around 6 he went up to his bed...

Hidden

•6 years ago

37 Replies

Tearing my hair out

I don’t know how to help. Sometimes the rants make sense. Like water water water water.... but today I’m hearing trash trash trash trash. I tried playing 20...

I don’t know how to help. Sometimes the rants make sense. Like water water water...

bsilverman

•6 years ago

15 Replies

Handling belt???

I wonder if anyone has experience of using a handling or gate belt?? My husband can managed to lurch between grab rails around the house and I increasingly...

I wonder if anyone has experience of using a handling or gate belt?? My husband...

Tippyleaf

•6 years ago

33 Replies

New member

I have recently been diagnosed with PSP so I want to be kept informed of any new research. John Clarke

I have recently been diagnosed with PSP so I want to be kept informed of any new...

pandyjohn

•6 years ago

10 Replies

Starting Sinemet today

Starting Sinemet today. My mummy has been diagnosed with suspected PSP last month. Any support out there? Would be much appreciated. First dose and mum has...

Starting Sinemet today. My mummy has been diagnosed with suspected PSP last mont...

Mymummy

•6 years ago

34 Replies

Saliva Management

Hi to all i have been doing more reading on Saliva. If you type this into Google search http://www.mndcare.net.au /living with mnd I know this is about motor...

Hi to all i have been doing more reading on Saliva. If you type this into Google...

Birdman34265

•6 years ago

6 Replies

Marathon Update

I just thought I would let you all know that my daughter and I completed the Yorkshire Marathon yesterday. It rained heavily throughout the entire event but it...

I just thought I would let you all know that my daughter and I completed the Yor...

Hiking13

•6 years ago

18 Replies

Coughing on Saliva

Hi to all ,i have found something helpful on coughing on Saliva,if put one quarter teaspoon of baking soda in half a glass of water and rinse there mouth out...

Hi to all ,i have found something helpful on coughing on Saliva,if put one quart...

Birdman34265

•6 years ago

10 Replies

My Father

I Regret to inform you that my father Edmond A. lost his battle to PSP on sept 24th.I was so thankful to spend the day with him before he passed and I now know...

I Regret to inform you that my father Edmond A. lost his battle to PSP on sept 2...

Jantebi

•6 years ago

38 Replies

Is it the diet of the African American or the way they prepare their food is what is harmful to their health?

Nurse: Lorna Libbett It's not the food itself greens, cornbread, yams, turkey, dressing, it's the grease, high volumes of salt, butter, sugar, that triggers or...

Nurse: Lorna Libbett It's not the food itself greens, cornbread, yams, turkey, d...

NurseLibbett

•6 years ago

Be the first to reply

My step dad

My dad has cbd

Ryder123

•6 years ago

9 Replies

Travel Insurance

Hi all my husband is 55 and has CBD. He is in the early stages. He is mobile. We are going to spain for a week next year. Does anyone have any advice regarding...

Hi all my husband is 55 and has CBD. He is in the early stages. He is mobile. We...

Hidden

•6 years ago

16 Replies

Medication help

Hello I'm looking for advice. My mum has CBD and has lately been forgetting to take her medication. I can't be with her 24/7 and was wondering if anyone has...

Hello I'm looking for advice. My mum has CBD and has lately been forgetting to t...

Bobbiejo21

•6 years ago

7 Replies

Marathon

Good morning all you lovely people. I just thought I would share something positive. On Sunday I am running my first ever marathon in York. I have never done a...

Good morning all you lovely people. I just thought I would share something posit...

Hiking13

•6 years ago

6 Replies

New Fundraiser...

Hello one and all, I know that there some on this forum who don't use Facebook. For those who do, I created a new group specifically for raising awareness and...

Hello one and all, I know that there some on this forum who don't use Facebook....

daddyt

•6 years ago

4 Replies

Another picture

To cheer us up 😀

jmoffat

•6 years ago

10 Replies

His new thing.

Larry has decided to get up at 1 or 2 in the morning and insists on going down to the living room because he can’t sleep. He wants to be in his lift chair that...

Larry has decided to get up at 1 or 2 in the morning and insists on going down t...

Hidden

•6 years ago

29 Replies

Help on meds

FIL has been prescribed meds for the spasms he is troubled by. Problem is he went from having them every few days to two a day. They don't last as long but...

FIL has been prescribed meds for the spasms he is troubled by. Problem is he wen...

Pooches

•6 years ago

17 Replies

Excellent Care home in South London

Sadly it feels that my Mother who suffers from PSP will need a team of helpers pretty soon and wanted to know if anyone could recommend a really good care home...

Sadly it feels that my Mother who suffers from PSP will need a team of helpers p...

Ruby1978

•6 years ago

4 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for October 2018

Wedding Day 22/10/2018

Hello

Hoping for cure

VA Assistance for US Veterans

Coupons and Discounts for Medical Supplies in the USA

CBD

My sister and PSP

Update to my post on the U-Step 2 Walker, the best walker for those with PSP

New Kid on the block here ...

Ignoring behaviour

Phlegm in the stomach-peg tube

I know I’m not alone in this.

Tearing my hair out

Handling belt???

New member

Starting Sinemet today

Saliva Management

Marathon Update

Coughing on Saliva

My Father

Is it the diet of the African American or the way they prepare their food is what is harmful to their health?

My step dad

Travel Insurance

Medication help

Marathon

New Fundraiser...

Another picture

His new thing.

Help on meds

Excellent Care home in South London

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive