Posts - PSP Association | HealthUnlocked

PSP Association

9,371 members • 11,414 posts

All posts for May 2018

The PSP Chronicles Sprin-ter 2018

Hello PSP family. I can't seem to post the link. If you're interested in reading: wordpressco900.wordpress.com

Hello PSP family. I can't seem to post the link. If you're interested in reading...

daddyt

•6 years ago

13 Replies

Now out of pain

Sadly I'm writing about the passing of my beloved TJ last Thursday 17th May, 2018. After another hospitalisation for suspected aspiration pneumonia, he was...

Sadly I'm writing about the passing of my beloved TJ last Thursday 17th May, 201...

Caz49

•6 years ago

20 Replies

Changes in Eyesight and Challenges

Charles is having severe changes in his eyesight. Has lost peripheral vision and can only see me at an arms length. He can't really see TV and I might get a...

Charles is having severe changes in his eyesight. Has lost peripheral vision an...

Cuttercat

•6 years ago

27 Replies

Want to take advantage of all our features? Just log in!

Best way

Hi all I have no hoist Colin unable to sit up without flipping backwards and I am unable to get him out of bed to the commode. So My problem is if he is...

Hi all I have no hoist Colin unable to sit up without flipping backwards and I a...

Helen119

•6 years ago

23 Replies

Clinical trial information

This is my first post. Diagnosed with Psp a year ago. I’m being screened in 10 days for the clinical trial sponsored by AbbVie & would like any positive or...

This is my first post. Diagnosed with Psp a year ago. I’m being screened in 10 d...

katras

•6 years ago

29 Replies

Does Mum need to know?

Since PSP was suspected (now confirmed) Mum has not wanted to know what is going on. Had she had cancer then I suspect that she would have been given all the...

Since PSP was suspected (now confirmed) Mum has not wanted to know what is going...

Sarah1972

•6 years ago

10 Replies

Advice from Millie my cat with unforeseen consequences

Since my foray into dog world Millie has been unduly attentive .She greets me each morning with loud purrs and then plonks herself on my chest nose to nose ....

Since my foray into dog world Millie has been unduly attentive .She greets me ea...

Georgepa

•6 years ago

30 Replies

Very unstable

Hi, wondering if anyone has experienced their carefored one feeling very unstable while in bed or sitting in a chair. Colin keeps calling me and telling me he...

Hi, wondering if anyone has experienced their carefored one feeling very unstabl...

Helen119

•6 years ago

13 Replies

Carer for mum with CBD

Hello I'm quite new here never a post up. My mum was diagnosed with CBD last year with having symptoms atleast a year before that. I've been her full time...

Hello I'm quite new here never a post up. My mum was diagnosed with CBD last yea...

Bobbiejo21

•6 years ago

24 Replies

Has anyone else heard that the qualifying life expectancy for fast tracking CHC application has reduced from 6 months to a matter of weeks?

I am pushing for CHC funding for my wife. When I raised the matter of fast tracking her application because she has deteriorated very quickly (having...

I am pushing for CHC funding for my wife. When I raised the matter of fast track...

Willow_rob

•6 years ago

16 Replies

Anti Depressants

Does anyone have any advice regarding the help of anti depressants with PSP/CBD. ? When Dan was recently examined by a psychologist from VA he did not speak or...

Does anyone have any advice regarding the help of anti depressants with PSP/CBD....

Karynleitner

•6 years ago

49 Replies

A new study

I have been invited to attend Leeds general infirmary research dept to take part in a study which is taking place all over the country! Fingers crossed that...

I have been invited to attend Leeds general infirmary research dept to take part...

Mamapiggle

•6 years ago

6 Replies

Update on Michael...CBD

Having read Cuttercut's post, I am tearfully moved to share. Today I signed the papers for the love of my life to be placed on hospice. CBD is not going to...

Having read Cuttercut's post, I am tearfully moved to share. Today I signed the...

Mikey12345

•6 years ago

52 Replies

Hiccups

Hi wanted to ask if anyone else has experienced hiccups that wont go away, my husband who has the dreaded psp plus type 1 diabetes was in hospital last week...

Hi wanted to ask if anyone else has experienced hiccups that wont go away, my hu...

Hidden

•6 years ago

6 Replies

New cookbooks for swallowing problems/dysphagia

NPR has an article today about new cookbook(s) of gels, foams and purees for people with swallowing problems, by Diane Wolff, and another by Peter...

NPR has an article today about new cookbook(s) of gels, foams and purees for peo...

LostinHeadSpace

•6 years ago

2 Replies

kevin 1

many thanks to you kevin people are now falling over each other to give us help you will never know how grateful we are I followed your advice to the letter we...

many thanks to you kevin people are now falling over each other to give us help ...

wheelrace

•6 years ago

12 Replies

Hoists

Hi all, I’ve been told it’s time to have a hoist for Colin, as he is struggling sitting up and bending his legs, so making it very hard for me to get him out...

Hi all, I’ve been told it’s time to have a hoist for Colin, as he is struggling ...

Helen119

•6 years ago

14 Replies

THICK IT

Hi All, I have surplus Boxes of Thick It powder 36OZ Yellow label expiry date 2019 - 2020. Which we are in the process of disposing @ of Rs.3000/- each at the...

Hi All, I have surplus Boxes of Thick It powder 36OZ Yellow label expiry date 20...

Alankar

•6 years ago

Be the first to reply

PSP and commercially purchased DNA kit(23andMe).

My wife passed from PSP. An interesting thing is that about 3 years before we noticed any symptoms we purchased a DNA kit from 23 an Me. We both did buccal...

My wife passed from PSP. An interesting thing is that about 3 years before we n...

Drbotto

•6 years ago

17 Replies

Are we ever really ready?

Given this week's news I am sadly thinking "are we ever really ready?" Charles is slowly declining but the coughing with eating is becoming an issue that has...

Given this week's news I am sadly thinking "are we ever really ready?" Charles ...

Cuttercat

•6 years ago

35 Replies

The wisdom of children.

A friends young daughter explained psp/cbd as a neuclear bomb to the brain. First the bang then all the following problems. Oh the beauty of young minds.

A friends young daughter explained psp/cbd as a neuclear bomb to the brain. Firs...

Javan

•6 years ago

2 Replies

John

I have been hoping to have John home and have over the last nine weeks tried to get a package in place. Two Carers and an OT came last Thursday. They said...

I have been hoping to have John home and have over the last nine weeks tried to ...

Dickenson2

•6 years ago

16 Replies

Information regarding Cambridge hospital for your loved ones UK in regards of medication

Hi I was lucky to attend one of the support meeting and meet Martin, one of the very kind caring attendance who is looking after his wife expressed managed to...

Hi I was lucky to attend one of the support meeting and meet Martin, one of the ...

Samila

•6 years ago

7 Replies

Holiday with mum

My mum has PSP that was diagnosed last year but this was after many appointments over previous years to establish reasons to her deteriorating health. When my...

My mum has PSP that was diagnosed last year but this was after many appointments...

Elisa67

•6 years ago

12 Replies

Brain shrinkage/loss ?

One of the senior carers in P`s nursing home returned from a training session and said she had spoken to the Parkinson`s nurse about PSP. This nurse `told her...

One of the senior carers in P`s nursing home returned from a training session an...

NanBabs

•6 years ago

23 Replies

My blog

Some of you read my blog, here are my latest posts. I find writing so therapeutic & I was going to stop writing after my dad died. However, I can't! I have...

Some of you read my blog, here are my latest posts. I find writing so therapeut...

Hidden

•6 years ago

4 Replies

Dealing with the loss of my father

My Father passed away on Thursday morning after a long battle with PSP. He was in a nursing home towards the end but we couldn't have asked any more of them....

My Father passed away on Thursday morning after a long battle with PSP. He was ...

PMoore

•6 years ago

37 Replies

Update on swallowing problem

Michael was transferred back to the nursing home today. I was not able to transfer him to another facility to date. I am hoping to talk to a facility on Mon....

Michael was transferred back to the nursing home today. I was not able to trans...

Mikey12345

•6 years ago

15 Replies

Trying to keep spirits up and positive outlook is sometimes challenging

I currently take care of a friend who has been diagnosed with PSP. I am an RN and work with her 9-10 hours a day 5 days a week. I am trying very hard to be...

I currently take care of a friend who has been diagnosed with PSP. I am an RN an...

bjs3boys

•6 years ago

6 Replies

Happy Mom's Day

Yesterday, May 10th, was Dia de Las Madres in Mexico, being of Mexican descent on both my mom's and dad's side, and with this Sunday, May 13th, being MOTHER'S...

Yesterday, May 10th, was Dia de Las Madres in Mexico, being of Mexican descent o...

enjoysalud

•6 years ago

9 Replies

Search posts

Latest poll

See all polls

What are your main concerns as a carer?

Vote

Topics

All posts(135)

All things PSP Association(135)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - PSP Association | HealthUnlocked

PSP Association

All posts for May 2018

The PSP Chronicles Sprin-ter 2018

Now out of pain

Changes in Eyesight and Challenges

Best way

Clinical trial information

Does Mum need to know?

Advice from Millie my cat with unforeseen consequences

Very unstable

Carer for mum with CBD

Has anyone else heard that the qualifying life expectancy for fast tracking CHC application has reduced from 6 months to a matter of weeks?

Anti Depressants

A new study

Update on Michael...CBD

Hiccups

New cookbooks for swallowing problems/dysphagia

kevin 1

Hoists

THICK IT

PSP and commercially purchased DNA kit(23andMe).

Are we ever really ready?

The wisdom of children.

John

Information regarding Cambridge hospital for your loved ones UK in regards of medication

Holiday with mum

Brain shrinkage/loss ?

My blog

Dealing with the loss of my father

Update on swallowing problem

Trying to keep spirits up and positive outlook is sometimes challenging

Happy Mom's Day

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive