Posts - PSP Association | HealthUnlocked

PSP Association

9,341 members • 11,393 posts

All posts for September 2017

Communication

The biggest problem I found every day is communication. Speaking is understood with a lot of difficulty and writing is very confusing. The best results are...

The biggest problem I found every day is communication. Speaking is understood w...

LuisRodicioRodicio

•7 years ago

Just diagnosed with psp

I'm 70 years old and married to the most wonderful man in the world for 45 years. I am more concerned for him than me.how do you handle it when you are told...

I'm 70 years old and married to the most wonderful man in the world for 45 years...

•7 years ago

My David struggles no more

Hi, Long time reader and only occasional poster, but I just wanted to post that my partner David finally lost his fight against PSP a couple of Saturday's...

Hi, Long time reader and only occasional poster, but I just wanted to post that...

•7 years ago

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Hi

Life's been hectic thought I needed to send a hello not been on the site for a while. Mums getting worse.... I didn't think it was possible. She's having...

Life's been hectic thought I needed to send a hello not been on the site for a w...

•7 years ago

Positive update

Firstly thank you to everyone who responded to my post, it really does help through them dark moments.. Anyway, mum is feeling much better and the chest...

Firstly thank you to everyone who responded to my post, it really does help thro...

•7 years ago

Hello everyone.

I have been diagnosed with pseudobulbar palsy. I'm waiting for my second emg. I am dreading it Walking is an effort now but I have no pain. Pls has been ruled...

I have been diagnosed with pseudobulbar palsy. I'm waiting for my second emg. I...

•7 years ago

My experience. ¿Suggestions?

Hello! I am living in North Spain. In few wors these are my experiences on PSP disease: My wife suffers from PSP. The first symptoms (difficulty speaking) will...

Hello! I am living in North Spain. In few wors these are my experiences on PSP d...

LuisRodicioRodicio

•7 years ago

Anyone near home

Is there anyone on here from the north or south of ireland

Is there anyone on here from the north or south of ireland

•7 years ago

Confusion ....

My Barry is confused most of the time. His dreams and reality are merged. His speech is muddled which makes it difficult to understand and then he makes sense...

My Barry is confused most of the time. His dreams and reality are merged. His sp...

•7 years ago

Help! urgent advice needed?

Hi all My lovely Mother is in her 7th year of CBD. We have tried to get privately funded carers (tried 3 companies) and also carers through social services. We...

Hi all My lovely Mother is in her 7th year of CBD. We have tried to get privatel...

•7 years ago

New challenges!

We're getting ready for dad to be discharged early next week, but had a new challenge yesterday. My mum had a small heart attack ,and is now on the ward next...

We're getting ready for dad to be discharged early next week, but had a new chal...

•7 years ago

Obsessive Compulsive Disorder

My brother has always been an anxious person and for years has had OCD to the extent that in recent years he recognised that it, combined with acute anxiety,...

My brother has always been an anxious person and for years has had OCD to the ex...

•7 years ago

Exelon

Does anyone have experience with Exelon capsules and if so how did it help, if it did?

Does anyone have experience with Exelon capsules and if so how did it help, if i...

•7 years ago

Another seizure

My Mum just had another seizure, first one was in February. They didn't start her on medication then in case was a one off. I've rung out of hours doctors...

My Mum just had another seizure, first one was in February. They didn't start h...

•7 years ago

Psp

Is dbs benificial for psp patient?

Is dbs benificial for psp patient?

•7 years ago

Now a CPAP Machine?

Hi all my lovely Mother is deteriorating rapidly. We are still in the dilemma of PEG feeding and now her respiratory system is going downhill. We are now in...

Hi all my lovely Mother is deteriorating rapidly. We are still in the dilemma of...

•7 years ago

Every day a different challenge,

My Barry is not eating well. He says his throat feels like sandpaper. Is this the build up to using a peg ?? He is going through the angry stage again and is...

My Barry is not eating well. He says his throat feels like sandpaper. Is this t...

•7 years ago

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