Posts - PSP Association | HealthUnlocked

PSP Association

9,339 members • 11,392 posts

All posts for March 2017

Passing urine

Hi just thought I'd ask if anyone else has had experience with passing urine a lot, like 2 or 3 times per hour when awake, then if fallen asleep waking up...

Hi just thought I'd ask if anyone else has had experience with passing urine a l...

•7 years ago

Introduction and questions

My name is Chris and I'm 68yrs old. I'm a 22yr Army and Vietnam Vet. My story is below. I'll list all these symptoms in the order they happened I woke up the...

My name is Chris and I'm 68yrs old. I'm a 22yr Army and Vietnam Vet. My story is...

•7 years ago

One of the main reasons I keep on going!

My little munchkin, he's grown so much! xx

My little munchkin, he's grown so much! xx

•7 years ago

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A small glimmer of hope...........

My sister sent me this link....

My sister sent me this link....

•7 years ago

Equipment soothing

It's progressing quickly. Charles can't breathe so we have started low dose morphine. I haven't stopped crying all day. The sound of the oxygen machine and...

It's progressing quickly. Charles can't breathe so we have started low dose mor...

•7 years ago

I am not mad - I've been Kafkared.

Franz Kafka - come home you got it so right. I telephoned CCG asking for a small extension to the home care service that they are already paying for under......

Franz Kafka - come home you got it so right. I telephoned CCG asking for a small...

•7 years ago

@Patricia

Dear Patricia I saw your post and there was no reply button. Seems to be a Healthunlocked hair day! Hugs to you, I am so sorry about Keith. You have been...

Dear Patricia I saw your post and there was no reply button. Seems to be a Hea...

•7 years ago

YOPD or something else?

Hi all I am 36 yo man and was diagnosed with Parkinsonism after getting an abnormal DATscan on March 2016 (I was 35) I have had symptoms since I was 34......

Hi all I am 36 yo man and was diagnosed with Parkinsonism after getting an abnor...

•7 years ago

A little Bit of Help with Cure PSP Grant

Hoping the blizzard that just passed (I'm in the NE, US) doesn't affect my flight for tomorrow. I'll be flying to AZ to attend the PSP conference. For friends...

Hoping the blizzard that just passed (I'm in the NE, US) doesn't affect my fligh...

•7 years ago

My Mom and Dad have PSP.

Hi all Both of my parent have PSP I live in PR and my mom's PSP is more progressive than my dad's. Right now my mom is having hallucination she was fine...

Hi all Both of my parent have PSP I live in PR and my mom's PSP is more progres...

•7 years ago

Should i

Hi everyone, I had a phone appointment with GP today, he wants me to take my husband to the surgery for them to examine him, but that is very difficult for me...

Hi everyone, I had a phone appointment with GP today, he wants me to take my hus...

•7 years ago

Rest

My husband has been diagnosed with psp in 2014. His illness progress very quickly, lots of people suggested respite, to give me break but I feel guilty to do...

My husband has been diagnosed with psp in 2014. His illness progress very quickl...

•7 years ago

Chinese Torture

My husband has suffered with a rash for the past 2 years. It has travelled around his body and when it seems to be getting better it appears somewhere else....

My husband has suffered with a rash for the past 2 years. It has travelled arou...

•7 years ago

Stressed

Hi Everyone Feeling stressed and tearful today. Just getting paperwork ready to take to hospital LPA mainly. Just want DC home so badly. He has been in...

Hi Everyone Feeling stressed and tearful today. Just getting paperwork ready t...

•7 years ago

Speech

Hello there, it's been a long time since I have posted. Mum is in to her 6-7th year of PSP Mum has totally lost the ability to speak but in stead she is...

Hello there, it's been a long time since I have posted. Mum is in to her 6-7th y...

•7 years ago

The End

I never imagined going through someones things could be this hard and frustrating. The hard part is understandable, the frustrating hit me. My mother in law...

I never imagined going through someones things could be this hard and frustratin...

•7 years ago

Budget 2017

Hi guys. Calling everyone in my position in the UK. Have you seen what those robbing Bar-stewards have done in the budget? They have put up the costs of...

Hi guys. Calling everyone in my position in the UK. Have you seen what those ro...

•7 years ago

Black patch in eye and headaches

My husband has been complaining of headaches and a black patch in one of his eyes. The optician saw it today and said he would ask the consultant at the...

My husband has been complaining of headaches and a black patch in one of his eye...

•7 years ago

Incontinence supplies

Hi all I've just discovered this local company to me that also deliver in UK. I've been trying to find better pads for Mum than ones supplied via NHS. Since...

Hi all I've just discovered this local company to me that also deliver in UK. ...

•7 years ago

Yvonne

Yvonne are you alright? Wondering if the hospital from hell is behaving? Or rather the people who work there? How is George? Thinking of you both. Marie x

Yvonne are you alright? Wondering if the hospital from hell is behaving? Or ra...

•7 years ago

Mum with end stage CBD: secretion suctioning issues

Hi, We are struggling with performing effective yanker suctioning for our mum. We have a portable suction but it does not seem to be effective. Also any tips...

Hi, We are struggling with performing effective yanker suctioning for our mum. ...

•7 years ago

Thinking of you all

Hope you have all had a reasonable day today. DC is still in hospital 4 weeks today since he went in. A special chair was ordered for him, it arrived at...

Hope you have all had a reasonable day today. DC is still in hospital 4 weeks to...

•7 years ago

Music at our memorial

So, Jonathan's memorial service was on Sunday. It was a lovely day, with so many family, friends and ex-colleagues who came out to help us say good bye and...

So, Jonathan's memorial service was on Sunday. It was a lovely day, with so many...

•7 years ago

Hard breathing

My father is again in the hospital:-( He was supposed to get discharged tomorrow, but over the weeeked he started to breath very hard. His oxygen level is...

My father is again in the hospital:-( He was supposed to get discharged tomorrow...

•7 years ago

No P

Oh, bother, Liz has all but stopped peeing. She went normally at 1330 yesterday and drank about 2.5 litres before bed. No peeing at bedtime or in the night,...

Oh, bother, Liz has all but stopped peeing. She went normally at 1330 yesterday ...

•7 years ago

Reminiscing

I haven't posted on here much a lately, but I read all the posts everyday which help me loads. I have cried from reading a lot of the recent posts, so I just...

I haven't posted on here much a lately, but I read all the posts everyday which ...

•7 years ago

fFeeling Blue

Feeling really low. I have just had to cancel a bowling holiday with our friends who bent over backwards to find a place with a disable friendly room, in an...

Feeling really low. I have just had to cancel a bowling holiday with our friends...

•7 years ago

Hospital

Well well can't believe this have come up to sit with George and I have a career with me the sister is saying only one of us can stay with him, for the last...

Well well can't believe this have come up to sit with George and I have a career...

Yvonneandgeorge

•7 years ago

Stiff neck

Hi All. My sister has PSP and the last few weeks i noticed that she keeps her head mostly to the one side..even if you talk to her. I sometimes have to turn...

Hi All. My sister has PSP and the last few weeks i noticed that she keeps her he...

•7 years ago

On a good evening like this...

Gosh folks I have been reading posts here this afternoon. Too many I wanted to reply to and so many wise, informed and compassionate replies. I just did a lot...

Gosh folks I have been reading posts here this afternoon. Too many I wanted to r...

•7 years ago

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