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PSP Association

9,342 members • 11,393 posts

All posts for December 2016

The Long Goodbye

This is the title of one of my favourite novels. It also seems to be the way PSP works. A little more than 15 months after the final diagnosis, Bugs died at...

This is the title of one of my favourite novels. It also seems to be the way PS...

•7 years ago

Merry Christmas Everyone

I thought I'd better wish all of you wonderful people a Merry Christmas as the family descend on us tomorrow and I might not get round to it. Thinking of you...

I thought I'd better wish all of you wonderful people a Merry Christmas as the f...

•7 years ago

Christmas spirit

V had a very bad night last Wednesday , woke at three am and that was it . So by Thursday night she totally zonked . I had a carer in to help me get...

V had a very bad night last Wednesday , woke at three am and that was it . ...

•7 years ago

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The PSP Chronicles

https://wordpressco900.wordpress.com/2016/02/16/the-psp-chronicles-4th-week-january-2016/ Merry Christmas to you and yours... Happy Holidays everyone.

https://wordpressco900.wordpress.com/2016/02/16/the-psp-chronicles-4th-week-janu...

•7 years ago

WE ARE DEFINITEY LEAVING FRANCE

WE ARE DEFINITELY LEAVING FRANCE ( THIS IS A PICTURE OF ME AND MY DARLNG CARING HUSBAND FRED ) AFTER WEEKS O NOT KNOWING WHEN OR EVEN IF WE WERE GOING HOME...

WE ARE DEFINITELY LEAVING FRANCE ( THIS IS A PICTURE OF ME AND MY DARLNG CARING ...

•7 years ago

Happy Holiday

I WISH YOU ALL A WONDERFUL CHRISTMAS AND A PEACFUL 2017. All my love Maddy. 🎄

I WISH YOU ALL A WONDERFUL CHRISTMAS AND A PEACFUL 2017. All my love Maddy. 🎄

•7 years ago

Italian Christmas

Hi All It's that time of year when baking, cooking eating and drinking takes place around the world. As usual, I will be hosting Christmas at my house with no...

Hi All It's that time of year when baking, cooking eating and drinking takes pla...

•7 years ago

Desicion!

At long last S has finally agreed to have a Peg fitted. Having hardly eaten or drank anything for the last month, losing a stone (14lbs) in weigh, we were...

At long last S has finally agreed to have a Peg fitted. Having hardly eaten or ...

•7 years ago

CBD Driving him up the wall.......literally

Hello Everyone, well the past few weeks dad has been very up and down..some days he wont get out of bed and others his mobility is fairly good. So today dad...

Hello Everyone, well the past few weeks dad has been very up and down..some day...

•7 years ago

The PSP Chronicles

https://wordpressco900.wordpress.com/2016/02/16/the-psp-chronicles-3rd-week-january-2016/ This is a new fundraiser I've been working on. Sorry for the...

https://wordpressco900.wordpress.com/2016/02/16/the-psp-chronicles-3rd-week-janu...

•7 years ago

PSP gifts!

Well, we all know of the problems PSP can bring and we learn bit by bit to cope with each of them but for us it has brought a couple of gifts with it. First...

Well, we all know of the problems PSP can bring and we learn bit by bit to cope ...

•7 years ago

Peace

Although I have never posted on here I have read with much interest many posts. Almost 3 years ago Mum was finally diagnose with PSP. Well last night my lovely...

Although I have never posted on here I have read with much interest many posts. ...

•7 years ago

The PSP Chronicles

https://wordpressco900.wordpress.com/2016/02/16/the-psp-chronicles-2nd-3rd-of-week-january-2016/. I experienced a terrible back spasm this morning, similar to...

https://wordpressco900.wordpress.com/2016/02/16/the-psp-chronicles-2nd-3rd-of-we...

•7 years ago

Knackered

Thanks for all your posts we are all in the same boat. Alan having a not such a bad day, gave him much needed hair cut and shower and shave and he didn't say a...

Thanks for all your posts we are all in the same boat. Alan having a not such a ...

•7 years ago

Knackered

Hi everyone been really P??D off last few weeks. Alan just doesn't seem to want to do anything given up saying even one word needs and hand signals just this...

Hi everyone been really P??D off last few weeks. Alan just doesn't seem to want ...

•7 years ago

I have CBD disease

Hello all My name is Shirley Norman 57, who lives in Australia and would like to communicate with those living with this disease so I want feel so much alone...

Hello all My name is Shirley Norman 57, who lives in Australia and would like t...

•7 years ago

First post

Hi all been a member for about 18 months when my wife was first diagnosed at only 58 so young Sue has been getting progressively worse in some ways but can be...

Hi all been a member for about 18 months when my wife was first diagnosed at onl...

•7 years ago

The PSP Chronicles

https://wordpressco900.wordpress.com/2016/02/16/the-psp-chronicles-2nd-week-january-2016/ it's re-run time for those who missed the original posting. daddyt

https://wordpressco900.wordpress.com/2016/02/16/the-psp-chronicles-2nd-week-janu...

•7 years ago

Friends

This is how I feel about everyone on here, thank you all, you are all amazing people. Yvonne xxxxx

This is how I feel about everyone on here, thank you all, you are all amazing pe...

Yvonneandgeorge

•7 years ago

Dizziness

Hi, mum is getting dizzy and 'out of it during the day on a regular basis. She's taking 7.5g zoplicone for sleeping tablets, which actually only makes her...

Hi, mum is getting dizzy and 'out of it during the day on a regular basis. She's...

•7 years ago

Clicking jaw

Has any body experienced this we have been to the dentist with m this morning who could find nothing wrong ,told us to see the doctor duty it was them who...

Has any body experienced this we have been to the dentist with m this morning w...

allotmentartist

•7 years ago

Gotcha!!!

Well, today was an interesting day. Went to the home to bring all the nurses, doctor and the director some homebaked goodies. As I made my was to my mother in...

Well, today was an interesting day. Went to the home to bring all the nurses, do...

•7 years ago

Waiving not yet drowning

Gosh Liz and I have dropped off the radar again! Liz came back from respite fully charged and then continued to be 'difficult' with me. She then announced that...

Gosh Liz and I have dropped off the radar again! Liz came back from respite full...

•7 years ago

How things were

I often say to professionals I wish you had known Rog when he was Rog! So for you all this was only two years ago pre proper diagnosis and just before our trip...

I often say to professionals I wish you had known Rog when he was Rog! So for yo...

•7 years ago

Titter

Morning Every night when Rog goes up to bed in the through floor lift I travel with him and say 'where are we flying to tonight' no reply just a stare . Last...

Morning Every night when Rog goes up to bed in the through floor lift I travel w...

•7 years ago

OOOPs the hunt

You do understand it wasn't the horses in tight white breeches - slight lack of punctuation there - !!!!

You do understand it wasn't the horses in tight white breeches - slight lack...

•7 years ago

The Hunt

Last week I was pushing V up our village high street on what I call the " drug run " (collecting V's prescriptions from the pharmacy at our surgery ,...

Last week I was pushing V up our village high street on what I call the " dru...

•7 years ago

I miss caring for my dad

Hi I found this site literally a few hours before my dad passed away. I was desperate for answers about how my dad would pass and how bad things would get! I...

Hi I found this site literally a few hours before my dad passed away. I was des...

•7 years ago

South Wales - people with PSP/CBD

This is a message to anyone in South Wales who has PSP or CBD. I've moved back to Cardiff and noticed there are no support groups here for people with the...

This is a message to anyone in South Wales who has PSP or CBD. I've moved back t...

•7 years ago

Friday night special!!!

Yes, spent a fabulous evening at Bristols hot spot for entertainment. Southmead Hospital! The girl at Costa even told me to "enjoy my evening"! Tried to wake...

Yes, spent a fabulous evening at Bristols hot spot for entertainment. Southmead...

•7 years ago

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