Posts - PSP Association | HealthUnlocked

PSP Association

9,371 members • 11,414 posts

All posts for November 2015

Chris

We off to a family BBQ today , beautiful day , sun shining wish we could all meet up for a few hours, all different parts of the world aren't we . Really look...

We off to a family BBQ today , beautiful day , sun shining wish we could all mee...

•9 years ago

CHC Appeal

OK Guys and Gals out there - I am setting out on the dreaded road to appeal the decision to turn us down for funding , and I need the benefit of...

OK Guys and Gals out there - I am setting out on the dreaded road to appe...

•9 years ago

Recording incidents !

I'm sure lots of you do this already but as well as my diary I also got a calendar from the blind association and use colour coded stickers for falls, catheter...

I'm sure lots of you do this already but as well as my diary I also got a calend...

•9 years ago

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I am reading a wonderful post by jhmk , "Choking" It has 34 replies, It's what I'm looking for.

However, if there are other remedies please feel free to write them in my previous post, "No cheeseburger for you"

However, if there are other remedies please feel free to write them in my previ...

•9 years ago

No cheeseburger for you! Remedies please!!!

Poor B! he love(s)d the American "delicacy". But recently choking has denied him this fair as well as other foodstuffs. Has anyone (PSPer) who is still...

Poor B! he love(s)d the American "delicacy". But recently choking has denied hi...

•9 years ago

Chris

Hi everyone , So after my 4th nurse crutchit drainage on my hubby , he asked how long will we have to use the catheter for , I told him prob for the rest of...

Hi everyone , So after my 4th nurse crutchit drainage on my hubby , he asked ho...

•9 years ago

party

hi everyone! so so sorry missed party night but we had a new grandson!!!!! our first grandchild harry arthur phillip. so a bit of good newsx

hi everyone! so so sorry missed party night but we had a new grandson!!!!! our f...

•9 years ago

CHC

Just got the letter this morning - CHC funding rejected - passed all the recommendations of the various panels - turned down by the final finance...

Just got the letter this morning - CHC funding rejected - passed all the ...

•9 years ago

THE PARTY HAS STARTED

SORRY IM LAT E FOR TH E PARTY I VE JUST TRIED TO SNED A POST TOA AVB AND FAILED SO ILL HAV ETO TRY AGAIN LOL JILL MUSIC ALREADY ON" WITH A VOICE FO SINGING"...

SORRY IM LAT E FOR TH E PARTY I VE JUST TRIED TO SNED A POST TOA AVB AND FAILE...

•9 years ago

Zolpidem for PSP

Hi Does anyone have experience with Zolpidem for PSP? A user in a facebook PSP forum posted his mom's experience and linked to the study:...

Hi Does anyone have experience with Zolpidem for PSP? A user in a facebook PSP ...

•9 years ago

Nearly lost him but now he is back.

Just wanted to tell everyone that Bill has made a wonderful recovery and, once the care is sorted he can come home. Yesterday lunchtime he cheered when I...

Just wanted to tell everyone that Bill has made a wonderful recovery and, once t...

•9 years ago

Chris

Hi there to all you lovely folks out there , just let you know that hubby G doing really well using the catheters ( tho I insert it for him he struggles...

Hi there to all you lovely folks out there , just let you know that hubby G doi...

•9 years ago

PSP specialists

Hey all, hope everyone is okay and not dreading another Monday ! Just thought I'd post to say that I managed to get mum a referral to see one of the PSP...

Hey all, hope everyone is okay and not dreading another Monday ! Just thought I'...

•9 years ago

Bev says

Screw it I dont care whats in the water right now lets go skinny dipping. This is a pic of my friend Jill and Aunt Bev in the hot tub durnhing the summer. So...

Screw it I dont care whats in the water right now lets go skinny dipping. This ...

•9 years ago

Spanish?

Does anyone know how to change the text back to English? My page has suddenly changed to Spanish!!! I can ask for a beer or wine in the language ( there's a...

Does anyone know how to change the text back to English? My page has suddenly c...

•9 years ago

Alone

Just read several posts complaining about being alone. I know how you feel. We live in the south of England. My son lives in Orkney ( North of Scotland). Bill...

Just read several posts complaining about being alone. I know how you feel. We l...

•9 years ago

Saturday night..........

I am here about to explode! Don't know what know what to do, except talk to people who understand!!! I have just cooked one of S's favourite meals and he is...

I am here about to explode! Don't know what know what to do, except talk to peo...

•9 years ago

We are new to this

My husband has CBGD. He is 78. For the past month he does not know I am his wife. We are struggling. He is still walking but has a lot of difficulty using his...

My husband has CBGD. He is 78. For the past month he does not know I am his wif...

•9 years ago

The online party is on Tuesday next week for all of you who can make it

AT 6PM GMT(OR WHATEVER TIME ZONE WE'RE NOW ON LOL jill HUGS AND XXX 2 YOU ALL

AT 6PM GMT(OR WHATEVER TIME ZONE WE'RE NOW ON LOL jill HUGS AND XXX 2 YOU ALL

•9 years ago

Recipes for swallowing problems

They have put Bill on a " purée diet" and I tasted the food and it is truly vile! So I have started to take things in to supplement his diet. Puréed beef stew...

They have put Bill on a " purée diet" and I tasted the food and it is truly vile...

•9 years ago

Chris

Hi everyone Today we went to the clinic to c the continence nurse , hubby not really wanting this at all . So nurse and offsides talked to him reason why...

Hi everyone Today we went to the clinic to c the continence nurse , hubby not r...

•9 years ago

Unexpected wedding invitation.

Very funny and uplifting day yesterday. I had managed to have coffee with 3 friends when a lovely young lady came to our table and asked if we would be...

Very funny and uplifting day yesterday. I had managed to have coffee with 3 frie...

•9 years ago

when the carer is ill

morning! just a little share , my worry has been for quite a while what happens to rog if i am ill or not around? he needs full time care so could not be left,...

morning! just a little share , my worry has been for quite a while what happens ...

•9 years ago

Nearly lost him.......continued

I spent 2 nights at the hospital. Bills blood pressure slowly went from 53/44 to normal levels. Last night he had a little food by mouth and he was conscious...

I spent 2 nights at the hospital. Bills blood pressure slowly went from 53/44 to...

•9 years ago

what the hell is peoples problem

I take care of my aunt bev and i do it alone why does every one want me to do the humaine thing and well they didnt come out and say it but i know what the...

I take care of my aunt bev and i do it alone why does every one want me to do th...

•9 years ago

Nearly lost him

Monday was not a good day. It started, as usual, with Bill waking up and me getting a cup of orange juice for him. As usual he was really thirsty and tried to...

Monday was not a good day. It started, as usual, with Bill waking up and me gett...

•9 years ago

Chris

Hi all you lovely people We had four days down at youngest daughters house with her and partner and their 4 children (blended family ) . Our eldest daughter...

Hi all you lovely people We had four days down at youngest daughters house with...

•9 years ago

MEMORY

Don is starting to forget things. He called our grandson his nephew. PSP, med, or age?

Don is starting to forget things. He called our grandson his nephew. PSP, med, o...

•9 years ago

Doctors

We paid private to go and see a doctor, because CHC are asking for a cognitive report, doctor at the hospital, was very nice, he had heard about PSP, took some...

We paid private to go and see a doctor, because CHC are asking for a cognitive r...

Yvonneandgeorge

•9 years ago

Apps!

I know these are aliens to most of us, but I have downloaded one, to help S communicate. Well, I actually downloaded two, but one Touch voice Gold is useless,...

I know these are aliens to most of us, but I have downloaded one, to help S comm...

•9 years ago

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