Need more info on related symptoms

[Willie51]

On the surface, I seem to be doing very well. Per earlier posts: Gleason 5+4, intraductal, possible perinueral spread, PET scan shows spread to lymph nodes only but as distant as the clavicle. Apparently these clavicle lymph nodes show up very pale on the scan and are too small to biopsy. But, treatment seems to be going well, my attitude has been great…bad diagnosis but there is viable treatment. I’ve finished the first 6 weeks of treatment (Lupron + Abiraterone with Prednisone) and PSA has gone from 8.6 to .53/ testosterone less than .4. I’ve had really none of the usual side effects like hot flashes or fatigue. I start radiation of the prostate in a couple weeks. But I do have some other worrisome physical symptoms. For a couple months I’ve had an irritation of the perineum, sometimes severe. Blood tests showed no infection but after it persisted my URO gave me a round of Cipro which after the whole dose seemed to work. But after a week or so the symptoms returned. Tall Allen said these may never go away. Does anyone else have similar problems? Or treatments? Also, I have some pain off and on but becoming more persistent in both groin creases where I believe lymph nodes are located and similar spots in the rear area directly behind. Doctors say PC usually doesn’t have symptoms or pain. I also have an ache in neck/ shoulder area near the clavicle ( which could well just be tension). The problem is every new unexplained pain creates PC worry even when I try (and usually succeed ) to stay calm. Advice please? Thanks

[Tall_Allen]

A friend takes Elavil (amitriptyline) for pelvic pain from prostatitis attacks.

[Willie51 in reply to Tall_Allen]

Thanks. But is this pain caused by PC

[Tall_Allen in reply to Willie51]

Prostatitis.

[GayArtist]

When I started my hormone treatment, I too had aching pain in my lymph nodes where my PET scan showed prostate cancer lesions. My hunch is that it is an effect indicating that the medication is acting on the lesions. Now that my PSA is undetectable, the aching as stopped. I did not get an irritation to the perineum, but I do have chronic jock itch that needs constant treatment or it becomes severe. This seems to be a secondary side effect of the medication. The hot flashes causing sweating which keeps the area moist.