ocalivia: Hi everyone Just wanted to know if... - PBC Foundation

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ocalivia

cavi profile image
cavi
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Hi everyone Just wanted to know if any one had any side affects from Ocalivia have been taking 5mg each day itching unbearable have always been ok with itch until taking this drug also take Urso 1000mg per day Carveidol 12.5mg per day have small Varices and Hypertension wondering if i should be taking Ocalivia its frightening the new warning on the leaflet any one had any Varices bleeding if you are taking Ocalivia one of the frightening side affects any info a great help Take Care xx

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cavi
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SuziS profile image
SuziS

Yes I took it a few months ago and also had terrible itching. My silicon hairbrush became my new best friend! So I stopped. My consultant then put me on to Bezafibrate which causes zero itching and has vastly improved my bloods. I can’t take Urso so this is my only hope atm.

cavi profile image
cavi in reply to SuziS

Thank you xx for reply

gillrich profile image
gillrich

Become a member of the pbc foundation they will give you up to date and accurate information Pbcfoundation.org.uk it is free to join but donations are most welcome. They can even put you in Contact with other pbc friends near to where you live .

cavi profile image
cavi in reply to gillrich

Thank you xx for reply

Rozzie52 profile image
Rozzie52

I started on one Octilva a year ago no side effects at all, Once you take you will start to feel a lot better and liver enzymes are stable and going back to normal levels.

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