is transplant possible after discovery of t... - PBC Foundation

PBC Foundation

9,475 members8,328 posts

is transplant possible after discovery of tumour?

PBCSheila profile image
11 Replies

I'm new to this board and wondered if anyone has any experience of having been told they are at the point of needing to be referred for transplant to then be told that's not possible now due to CT scan having detected a small tumour on one of my kidneys? I was given this news today and I really dont know how to cope with it. I have had one bad oesophageal bleed in September this year with 3 varices banded and a second gastroscopy 4 weeks later with 4 varices banded and due a third gastroscopy in two weeks time. Should the tumour be benign would anyone know if this still limits my ability to be referred for transplant? I understand there's no chance if the tumour is malignant as i dont have 5-10 years to be clear of cancer to wait for a transplant. Having come to terms with the fact I need a transplant to suddenly have that ripped away from is hard to take on board. Any advice greatly appreciated - many thanks :-)

Written by
PBCSheila profile image
PBCSheila
To view profiles and participate in discussions please or .
Read more about...
11 Replies
Oidra profile image
Oidra

Do speak to someone at the PBC Foundation, they will give you the support you need. You write in a "matter of fact" way which shows you have great strength and that will help you to get through this difficult time. I wish you the best result possible.

teddybear7 profile image
teddybear7

Oh honey you must be tearing your hair out. You need to ask lots of questions and don't be fobbed off. The other lady is right ring the foundation they were so good to me when I needed them. I'll keep you in my thoughts & pray you get your answers and solutions soon. Keep your chin up. Xx

GrittyReads profile image
GrittyReads

I agree with Oidra and Teddybear, phone the Foundation - link to their website at the top of this page, with phone etc details on the site.

Meanwhile, we are thinking of you - you will get through this.

paulineemily profile image
paulineemily

What bad luck, hopefullythe tumour is benign and you will get a transplant, my thoughts are with you.

liver-bird profile image
liver-bird

Positive thoughts and prayers coming your way. God bless

Rosie2410 profile image
Rosie2410

Sending you prayers and best wishes I hope it's benign and you get the transplant x

Carolebroadbent profile image
Carolebroadbent

Hope all goes well for you . Best of luck . Thinking of you xx

kizzy40 profile image
kizzy40

Hoping for a positive outcome for you Shiela x

Calogia profile image
Calogia

What stage is your PBC?

alpha3 profile image
alpha3

So sorry to hear your news. I'm unable to help you but am sure the Foundation will be able to. Try and keep positive, we're all thinking of you on this site.

Ter74 profile image
Ter74

There hasn't been a reply after the last which was two years ago and I tried friending you Sheila. I pray you are still with us. I have the exact same question. While testing for the liver transplant list a CT of the Abd revealed an Adrenal Tumor. They are 80%benign so it was watched for a year. I had a pheochromocytoma and it's overproduces my Thyroid Stimulating Hormone. I have been told until it out and biopsied I must wait. Now they have discovered in my last MRI that I have a tumor in my spine next to my L5. That explained the intermittent back pain I had been having but doesn't look well towards a benign diagnosis. If anyone found any answers and is still on this blog please let me know. I'm in the advanced stages of PBC and was told Stage 3 Cirrhosis in 2014. Any info is appreciated! Terri

Not what you're looking for?

You may also like...

Transplant

Hi I have bn diagnosed for few years now and bn on urso which now isnt working so I am now at stage...
evelyn1 profile image

Back after a transplant

Hi everybody, I am so sorry for being quiet on the forum for a while, I have been rather busy. As...
busylady profile image

EGD & varicies

Just wanted to update everyone. I went in for my follow-up EGD this morning due to having two areas...
Shulsey profile image

Varices and treatment

Hi everyone, I am,after 20 years, now in the more advanced stages pf PBC and have developed...
crundalite profile image

VARICES

I went for an endoscopy a few days ago to check my peptic ulcer and ended up getting 3 varices...
HelenTM profile image

Moderation team

See all
PBCCheryll profile image
PBCCheryllAdministrator
janethomas profile image
janethomasModerator
Cupcake1971_ profile image
Cupcake1971_Moderator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.