Hi Lisa there is scope for you to get niraparib via the nhs but as far as I’m aware olaparib is not available or funded via the nhs only as part of trials. For the niraparib the Nice guidelines are that you have to be platinum sensitive (so at least 6 months remission since your carb/gem) and then you may be eligible.
If you are eligible then all hospitals should be able to prescribe the niraparib for you.
There are a number of trials involving olaparib so it may be worth you researching where they are. I know the Christie in Manchester certainly have them currently one of which is the CEBOC trial which I was on.
Good luck and keep us updated with how you’re doing xx
Thank you so much for the info, very much appreciated. I’ll chat with my oncologist and see what he can offer, I’ll take it from there. I may do a bit of research into North East Hospitals and see if things differ.
I’m on Niraparib have been for nearly 5 months with little side effects. I’m at Addenbrookes now but my local hospital would not give it to me saying I didn’t fit the criteria. I asked for a second opinion and they said I did. Don’t let them tell you it’s a funding issue either as it’s the government who pay for it not the hospital. Keep fighting for it. I’m glad I did as they said it’s working my tumours have shrunk by 20% at last scan with no new growth. Good luck will be thinking of you. Keep us posted . Big hugs M🙋
Are you being looked after at the Freeman Hospital in Newcastle? I believe there are at least two non-BRCA ladies at the Freeman taking niraparib. Have you been to the Gynae cancer support group meetings at the Maggies Centre across from the hospital? The next one is next Tuesday 11 June at 11.00. You can just turn up.
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