Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,889 members • 28,221 posts

All posts for July 2020

Lupus SLE - Dry Mouth

Hi there, I’ve SLE which has been very well managed on hydroxychloroquine and Methotrexate. However, this past four months I’ve had a VERY stressful time....

Hi there, I’ve SLE which has been very well managed on hydroxychloroquine and Me...

•4 years ago

Tinnitus

Hi, any tips how to cope with tinnitus , lately I had it very badly and I find it unbearable, I feel like banging my head against a wall , I don’t know what...

Hi, any tips how to cope with tinnitus , lately I had it very badly and I find i...

•4 years ago

Hcq new studies released last week show differing results to early studies.

One study shows rheumatic patients on hcq had less chance of severe covid than patients on other disease modifying drugs....

One study shows rheumatic patients on hcq had less chance of severe covid than p...

•4 years ago

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Another dermatologist phone consultation.

Well had a second phone consultation with the dermatologist which was even more of a disastrous waste of time than the first one. How on earth can any doctor...

Well had a second phone consultation with the dermatologist which was even more ...

•4 years ago

Symptoms and time !

After 20 years off living with and managing this disease .. fighting .. have people found symptoms have got worse better or stayed the same ?

After 20 years off living with and managing this disease .. fighting .. have peo...

•4 years ago

Hi I’m a Man aged 55 advice please

Hi I haven’t been diagnosed with Lupus but I’m thinking this is what has been wrong with me for a long time. Over the years I’ve had two bouts of...

Hi I haven’t been diagnosed with Lupus but I’m thinking this is what has been w...

•4 years ago

I done something silly!

I haven't posted on here for a while (usual story - busier working from home than in the office. Dusk till dawn in front of a screen. All talked out from...

I haven't posted on here for a while (usual story - busier working from home tha...

•4 years ago

Lovely weather sewing day

Afternoon all hope everyone is well. The weather for me is bliss although still suffering with mild fatigue my pain is more manageable. I've had playing...

Afternoon all hope everyone is well. The weather for me is bliss although still ...

•4 years ago

Over thinking

Hi all. I’m just after a bit of advice...how do I stop overthinking? I’ve been diagnosed with discoid on my scalp with scaring and non scaring alopecia, but...

Hi all. I’m just after a bit of advice...how do I stop overthinking? I’ve been ...

•4 years ago

New Consultant advice please!

Hi all, I am wondering if anyone can help. I have been increasingly struggling with symptoms that I believe are Lupus for the past 4 years. My main symptoms...

Hi all, I am wondering if anyone can help. I have been increasingly struggling w...

•4 years ago

Reduction of Hydroxychloroquine after 20 years & side effects?

Hi Everyone,I hope you are all keeping OK and safe xx I have had SLE & Sjgreons for 20 years . I have been on Hydroxy all that time from diagnosis. My new...

Hi Everyone,I hope you are all keeping OK and safe xx I have had SLE & Sjgreon...

•4 years ago

Methotrexate muscle pain and tinnitus

Has anyone had the above side effects from methotrexate? They started from week 2 and after increasing dose from 10mg to 15mg week 3 it has got worse. Don't...

Has anyone had the above side effects from methotrexate? They started from week ...

•4 years ago

UK DRUG RECALL NOTICE: MEPACRINE HYDROCHLORIDE 100MG TABLETS (BATCH 85641)

Hi everyone, If you are one of the small number of people with lupus who are prescribed mepacrine, please check your tablets. If they are from the affected...

Hi everyone, If you are one of the small number of people with lupus who are pre...

Partner•4 years ago

Couch to 5k update!

My little discoid rash on nose, scab and scaring 🙊 x yesterday I attempted my first 20min run on couch to 5k, with still a great achievement of 14...

My little discoid rash on nose, scab and scaring 🙊 x yesterday I attempted my ...

•4 years ago

Missed you guys ❤️

I hope you don’t mind I had to take a break from the search but I’m back ! No further forward but that’s okay ! How are you guys ❤️

I hope you don’t mind I had to take a break from the search but I’m back ! No f...

•4 years ago

Diagnoses

Saw my rhematologist this morning. Really lovely man. We spent 45 mins going through my bloods and history. Told me he's more than satisfied that everything...

Saw my rhematologist this morning. Really lovely man. We spent 45 mins going thr...

•4 years ago

Rash on face

I have just got this rash on my chin just wondering has any one got it there before never had rash on my face before have lupus now for 10 years I will post a...

I have just got this rash on my chin just wondering has any one got it there bef...

•4 years ago

Renal limited lupus nephritis.

Hello members of this wonderful community.I have a news to share. Today I received the results of my latest labs. Gfr has improved . I am under huge dose of...

Hello members of this wonderful community.I have a news to share. Today I receiv...

•4 years ago

Lupus - baby

Hello everyone. My daughter is just 10 months old and the doctors asume she has lupus. Since there is no one I colud share experience with in our small...

Hello everyone. My daughter is just 10 months old and the doctors asume she has...

•4 years ago

Is lupus face rash itchy?

Hi, I've developed possible malar rash on my face and have some other weird symptoms ..... having bloods tomorrow for suspected lupus. Just wondered if people...

Hi, I've developed possible malar rash on my face and have some other weird symp...

•4 years ago

How about this?.

Hello everyone. Hope your all feeling better now it's cooler weather. Just thought I'd add this photo as its a giant tortoise helping Cotswold Wildlife Park...

Hello everyone. Hope your all feeling better now it's cooler weather. Just tho...

•4 years ago

'I have Lupus' Hidden Disability Sunflower Lanyards - Now Available

***Due to unexpected demand we are temporarily out of stock. Further supplies will be ordered and available shortly.*** Hi everyone, We've teamed up...

***Due to unexpected demand we are temporarily out of stock. Further supplies wi...

Partner•4 years ago

Mercury/lupus?

Hi, I'm new here. My body cannot clear mercury and therefore damages organs etc. Having mercury in teething powders as a child and 15 amalgam fillings at a...

Hi, I'm new here. My body cannot clear mercury and therefore damages organs etc....

•4 years ago

I had a connective tissue disease blood screen result 0.1 ratio (0.0-1.0). Does anyone know what is actually tested eg antinuclear antibody?

Lupus, connective tissue disease

Lupus, connective tissue disease

•4 years ago

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