Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for June 2013

I made the decision to beat Lupus

I'm Allyson, I'm 48 yrs old and I was first diagnosed with Lupus in 2004. When the doctor told me I had Lupus I basically shrugged my shoulders and he said...

I'm Allyson, I'm 48 yrs old and I was first diagnosed with Lupus in 2004. Whe...

suncoast

•11 years ago

65 Replies

Scared my lupus isn't manageable and about adding mycophenolate

I have SLE and Sjogren's Syndrome. Diagnosed with lupus when I was 12, fine most of my adult life and struggling more in the past 6 years since I stopped...

I have SLE and Sjogren's Syndrome. Diagnosed with lupus when I was 12, fine most...

ShannonB

•11 years ago

7 Replies

Does lupus make shingles worse?

I have had shingles in the past but have never felt this bad. I have been having an active lupus flare for about two and a half years but just recently...

I have had shingles in the past but have never felt this bad. I have been having...

madmagz

•11 years ago

13 Replies

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Some positive new's i'd thought that I would share!

Hi All, It's been a long time since I posted, due to one thing all another, but I thought I would post some GOOD NEW'S at last. Since being diagnosed...

Hi All, It's been a long time since I posted, due to one thing all another, b...

Lulabelle

•11 years ago

7 Replies

vitamin c

anyone tried taking vitamin c supplements and if so was there any effects?

scoobydoo1

•11 years ago

14 Replies

My first ruematology appointment on the 4th july!

What can ì expect to happen?what tests will be done etc what difference is there from my haematologist appointments? Any wise words or help greatfully...

What can ì expect to happen?what tests will be done etc what difference is there...

crankyme

•11 years ago

1 Reply

Sjögren's Syndrome or not...

was diagnosed with lupus 21 years ago. downgraded to Sjögren's Syndrome about 10 years ago. had blood tests done in February which he said were okay. But...

was diagnosed with lupus 21 years ago. downgraded to Sjögren's Syndrome about 1...

katerowley

•11 years ago

9 Replies

On a happier note than last time!

I came on this site back in December totally distraught with everything! Really down and upset about life in general and even though I have my ups and downs...

I came on this site back in December totally distraught with everything! Really ...

Twilo76

•11 years ago

6 Replies

How long before hydrochloroquine works?

Hi all, I was started on hydrochloroquine 5 weeks ago and still haven't noticed a positive change. Still feeling horrendously tired, painful joints and hair...

Hi all, I was started on hydrochloroquine 5 weeks ago and still haven't noticed ...

Belee

•11 years ago

17 Replies

What symptoms can Lupus cause?

I ask this because I am under a Nuerologist aswell as a Rheumaltologist , and I am not sure which of my symptoms point to MS and which to Lupus. But the more I...

I ask this because I am under a Nuerologist aswell as a Rheumaltologist , and I ...

Gymbabe

•11 years ago

6 Replies

How can my previous positive tests come back negative after a repeat?

I had a repeat test (as requested after 6mths by lab) for my POSITIVE ANA - POSITIVE HEP 2 CELLS (which included a pattern) ..borderline positive dsDNA...

I had a repeat test (as requested after 6mths by lab) for my POSITIVE ANA - POSI...

nannytutu

•11 years ago

8 Replies

immunosupressed lupus sufferers

is it okay for dwp to put lupus patiemts back to work when on immunosuppresent is there a site which tells you all the diseases that are really dangerous to...

is it okay for dwp to put lupus patiemts back to work when on immunosuppresent ...

corrie4

•11 years ago

4 Replies

Waiting for a statement of Reasons.

I had a tribunal hearing for dla five weeks ago which was very, very distressing. I feel I was treated quite badly and so I asked for a statement of reasons as...

I had a tribunal hearing for dla five weeks ago which was very, very distressing...

lillyanne

•11 years ago

6 Replies

Dizzy Turns and Flash Backs

Hi Guys, for the past couple of months, in particular, I have been taking dizzy turns, pins and needles in hands, hairs on my arms and legs stand on end...

Hi Guys, for the past couple of months, in particular, I have been taking dizzy ...

Liberton

•11 years ago

1 Reply

Sjogren's Hydroxy and Glaucoma confused about the tests I have!

When I was diagnosed and given Plaquenil I had a baseline eye test, the hospital had an eye clinic since closed. Don't remember exactly what they they did. I...

When I was diagnosed and given Plaquenil I had a baseline eye test, the hospital...

saranne

•11 years ago

2 Replies

Anyone here had/has lyme disease as well as lupus? And how did it affect you?

trueman

•11 years ago

7 Replies

funny sensation in tips of fingers

Has anyone experienced a pain in the tips of their fingers. For the past few days I've noticed that I get a sharp pain, as if I've caught myself on something...

Has anyone experienced a pain in the tips of their fingers. For the past few day...

lillyanne

•11 years ago

5 Replies

To plaqinel or not to plaqinel?

Hi, I know there's a lot of info about good old Plaquinel, but I really don't think rheumy listening to me. GP lowered it to 200mg instead of 400mg as I...

Hi, I know there's a lot of info about good old Plaquinel, but I really don't ...

lizzidrippin

•11 years ago

3 Replies

I feel my doctors can't help me

I am having a nasty flare, enveloped in pain and exhausted also feeling nausious . My mum asked me to call my doctor but I told her they will practically do...

I am having a nasty flare, enveloped in pain and exhausted also feeling nausious...

ijeasike

•11 years ago

3 Replies

Play by Melanie Spencer

There is a play at Hampstead Theatre NW3 called Responsible Others about a 15year old girl with Lupus. It is on until 20th July.

There is a play at Hampstead Theatre NW3 called Responsible Others about a 15yea...

LloydE

•11 years ago

2 Replies

Sheffield Lupus Group Meeting Sat 29th!

Thank you again to everyone that came along to our VERY successful first meeting in April, it was such a blessing to be able to meet so many new friends The...

Thank you again to everyone that came along to our VERY successful first meeting...

Silvermyst

•11 years ago

1 Reply

PIP Consultation on mobility component, please take part!

Hi All I've just been given the heads up by benefits and work that we now have the opportunity to take part in the Government Consultation on PIP regarding...

Hi All I've just been given the heads up by benefits and work that we now hav...

cloggy73

•11 years ago

3 Replies

Doctors

Doe's any body feel as though Doctors have given up on us loopies. Every time I go to the Doctors all they say is its down to LUPUS, no tests or scans or...

Doe's any body feel as though Doctors have given up on us loopies. Every time I ...

gazzasoens

•11 years ago

10 Replies

seroxat/paroxetine for neurological symptoms??

Another med to try??although im very anxious,consultant has suggested trying an ssri seroxat for rebalancing the nervous system ,im also very depressed and my...

Another med to try??although im very anxious,consultant has suggested trying an ...

brave

•11 years ago

10 Replies

Sore mouth

Does anybody get sore/swollen lining of the mouth? Not quite ulcers and doesn't look red but is swollen and really sore to eat/smile or talk. If so, any...

Does anybody get sore/swollen lining of the mouth? Not quite ulcers and doesn't...

Jaxqueline

•11 years ago

10 Replies

Everything is under control except for for direct Coombs test

3 months ago , I was diagnosed as lupus . 2 weeks after treatment everything is under controlled and the results become normal except for direct coins test...

3 months ago , I was diagnosed as lupus . 2 weeks after treatment everything is ...

Yangon

•11 years ago

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Traction Therapy!

Does such a think exist? I can not think of anything better right now. How I'd love to lay on a bed and be gently stretched out. If this doesn't exist, I'm...

Does such a think exist? I can not think of anything better right now. How I'd l...

chrissiij

•11 years ago

3 Replies

Lights going to be a problem?

I have a dentist appointment today, haven't been for two years, and all of a sudden I am panicking about the lights. My husband has been to this clinic and he...

I have a dentist appointment today, haven't been for two years, and all of a sud...

Chapter

•11 years ago

6 Replies

Azathioprine

Hi does anyone have any experience of Azathioprine? My registar wants me to go in it, but I'm reluctant. I've been following a strict diet which excludes...

Hi does anyone have any experience of Azathioprine? My registar wants me to go i...

Zoeblu

•11 years ago

9 Replies

Six weekly blood tests? Is that normal?

Hi there I have been on Hydroxychloroquine for about a month now. I had blood tests taken by my rheumy in January, then in March, and again just before I...

Hi there I have been on Hydroxychloroquine for about a month now. I had blood t...

sparkle247

•11 years ago

22 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2013

I made the decision to beat Lupus

Scared my lupus isn't manageable and about adding mycophenolate

Does lupus make shingles worse?

Some positive new's i'd thought that I would share!

vitamin c

My first ruematology appointment on the 4th july!

Sjögren's Syndrome or not...

On a happier note than last time!

How long before hydrochloroquine works?

What symptoms can Lupus cause?

How can my previous positive tests come back negative after a repeat?

immunosupressed lupus sufferers

Waiting for a statement of Reasons.

Dizzy Turns and Flash Backs

Sjogren's Hydroxy and Glaucoma confused about the tests I have!

Anyone here had/has lyme disease as well as lupus? And how did it affect you?

funny sensation in tips of fingers

To plaqinel or not to plaqinel?

I feel my doctors can't help me

Play by Melanie Spencer

Sheffield Lupus Group Meeting Sat 29th!

PIP Consultation on mobility component, please take part!

Doctors

seroxat/paroxetine for neurological symptoms??

Sore mouth

Everything is under control except for for direct Coombs test

Traction Therapy!

Lights going to be a problem?

Azathioprine

Six weekly blood tests? Is that normal?

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