Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,889 members • 28,221 posts

All posts for May 2012

As anyone been bitten by midges, live in the south but I am covered in bites, was also very sick not sure if it is related.

Gillyg

•12 years ago

8 Replies

New 24 hour LIVE chat room Now available for all Lupies and their carers and families.

HI Guys - I hopeyou are all enjoying this weather LOL Just to let you know our new 24 LIVE chat room is now OPEN!!!! Just type in LupusiMag.com and...

HI Guys - I hopeyou are all enjoying this weather LOL Just to let you know ou...

amandalilley

•12 years ago

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RLS (restless leg syndrome)

Has anyone experienced this - or is perhaps suffering from this? I am desperate for a good nights' sleep that I would try anything! (don't know how I...

Has anyone experienced this - or is perhaps suffering from this? I am d...

irenestephen

•12 years ago

18 Replies

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New study which looks at diet and weight loss in lupus patients taking steroids

Just wanted to share a recent scientific study with you all: Davies R, Lomer M, Yeo S, Avloniti K, Sangle S, D'Cruz D. 2012. Weight loss and...

Just wanted to share a recent scientific study with you all: Davies R, Lo...

Ani-

•12 years ago

10 Replies

Arrrrrrghhhhh

Stupid lupus, It is a lovely day and I am stuck indoors with a hyper 4 year old that wants to go out and Auntie Katie cannot go out as I over did the sunshine...

Stupid lupus, It is a lovely day and I am stuck indoors with a hyper 4 year old ...

tinkerbellquo

•12 years ago

7 Replies

How my lupus diet is going -the ups and downs!

Well it's been an interesting week! After having a horrible flare up as a direct result of eating some cheese the week before (took a good few days to get back...

Well it's been an interesting week! After having a horrible flare up as a direct...

Maya23

•12 years ago

10 Replies

DWP

Bloody DWP didn't send me a renewal form! So now have to do a complete new claim !! And money stops why doing it, only found out by calling them so people...

Bloody DWP didn't send me a renewal form! So now have to do a complete new claim...

Kerro

•12 years ago

1 Reply

Where can I purchase a reliable up-to-date Lupus Information Book?

My mum has a few out of date ones, i'd like to get her a new one!

bethhunter1994

•12 years ago

2 Replies

Nutrition, Diet and Lupus - A professional perspective

Hi Everyone, I've seen that recently a few of you are writing about diet/nutrition and lupus, and a big thank you to Colette who has mentioned my work....

Hi Everyone, I've seen that recently a few of you are writing about diet/...

Ani-

•12 years ago

8 Replies

From a family of lupus sufferers

I have had some fab care and some awful times; This petition really needs signatures. Medical staff who complain about poor care usually lose their career...

I have had some fab care and some awful times; This petition really needs signa...

MaryF

•12 years ago

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Out of Office

Hi everyone. I just wanted to let you all know that I will be out of the office between 22/05/2012 and 06/06/2012. For the rest of this week I will be...

Hi everyone. I just wanted to let you all know that I will be out of the offi...

Paul_Howard

Partner•12 years ago

6 Replies

I attended my First Lupus AGM Meeting, Warrington, Liverpool!

yesterday with my other half and found the whole day very helpful and enjoyable. I meet many people who came from as far as Cumbria to share the experience and...

yesterday with my other half and found the whole day very helpful and enjoyable....

Lulabelle

•12 years ago

4 Replies

Hey, I'm kinda new to this whole site. I basically joined because my mum has Lupus and has done for as long as i can remember.

I just wanted to ask some advice on how I can help out more? She does'nt like to admit when she's feeling a bit under the weather- she'd rather keep herself...

I just wanted to ask some advice on how I can help out more? She does'nt like to...

bethhunter1994

•12 years ago

13 Replies

the things you do for love!!!!!

hi all you "lupies" i have created a page on the justgiving web site. please would you be kind enough to support my partner and his best friend they are...

hi all you "lupies" i have created a page on the justgiving web site. please ...

talula

•12 years ago

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How much alcohol can you drink while taking methotrexate?

I'm just about to start methotrexate and am really unsure as to what my alcohol intake is allowed to be?

I'm just about to start methotrexate and am really unsure as to what my alcohol ...

Becks93

•12 years ago

7 Replies

Im Skydiving for Lupus!

I’m skydiving for Lupus! Please help me to raise awareness and fund much needed research by donating at www.justgiving.com/jump4lupus or via text message: text...

I’m skydiving for Lupus! Please help me to raise awareness and fund much needed ...

Marieb26

•12 years ago

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Flare up with emotions !!!!!!

Had bad flare up yesterday, left hand looked like a rubber glove that had been blown up, but it was the right hand that had the pain in the joints, very odd,...

Had bad flare up yesterday, left hand looked like a rubber glove that had been b...

lupydragon

•12 years ago

6 Replies

Does any1 have Glaucoma as well as Lupus?

I've had Lupus sle 4 15yrs & have just been told that they think i have glaucoma (as been having eye probs 4 a while)R they linked?Ive only just started taking...

I've had Lupus sle 4 15yrs & have just been told that they think i have glaucoma...

Lisa78

•12 years ago

4 Replies

Is it safe to take supplements, such as Gingko biloba? I'm not on any lupus meds.

LynnHall

•12 years ago

9 Replies

thank you

just like to thank you all for your messages they realy have help last nite was the worst iv ever had i realy could not walk at all my daughter saw it for the...

just like to thank you all for your messages they realy have help last nite was ...

lizzy1963

•12 years ago

3 Replies

HAS ANYONE READ AND TRIED OUT, Jill harringtons book about Lupus and Diet???

Was wondering if anyone has read the book and implemented the diet? Is it all hype or did anyone see results? I tried juicing but couldn't go hungry and to be...

Was wondering if anyone has read the book and implemented the diet? Is it all hy...

Ca2jarman

•12 years ago

2 Replies

I am on hydroxy and naprosyn and would like to take milk thistle to help my liver. does anyone take this?

jomul

•12 years ago

2 Replies

Mrs Lupus

I hope you will enjoy this

janiceray

•12 years ago

2 Replies

I've been getting shaRp pains below the left hand side of my stomach near my hip! It happens around once a month and gets more painful!

I am a 23 yr old female

Babyface

•12 years ago

5 Replies

Hopeful that diet can help treat Lupus

I noticed a question recently (by TeganSara) about whether anyone had tried a vegan diet or going chemical free to treat lupus. In the comments someone...

I noticed a question recently (by TeganSara) about whether anyone had tried a ve...

Maya23

•12 years ago

18 Replies

my diagnosis

Been back to the docs today to get everything explained to me after going to see my rheumatology doc who didnt explain anything she told me that i have...

Been back to the docs today to get everything explained to me after going to see...

laney

•12 years ago

3 Replies

Does anyone get lead-like legs? I seem to get it when I have over done things or am tired.

My legs literally feel like they are filled with lead making walking or stairs extremely hard. I noticed a huge improvement recently when I was taking 40mg...

My legs literally feel like they are filled with lead making walking or stairs e...

loopy-lou

•12 years ago

27 Replies

Does anyone know if there are any support groups in Derbyshire

laney

•12 years ago

2 Replies

Greenwich lupies & Fibromyalgia support group.

Greenwich lupus and Fibromyalgia support group these meetimgs will be held first Wednesday of everymonth @ harmoney harbour boutque 192 Evelyn st Deptford at...

Greenwich lupus and Fibromyalgia support group these meetimgs will be held first...

jacquiann

•12 years ago

1 Reply

Support Group

Is anyone in the RCT area interested in setting up a support group. Im happy to get it started but need to know if its viable first. So please let me know xx

Is anyone in the RCT area interested in setting up a support group. Im happy to...

ebril

•12 years ago

5 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2012

As anyone been bitten by midges, live in the south but I am covered in bites, was also very sick not sure if it is related.

New 24 hour LIVE chat room Now available for all Lupies and their carers and families.

RLS (restless leg syndrome)

New study which looks at diet and weight loss in lupus patients taking steroids

Arrrrrrghhhhh

How my lupus diet is going -the ups and downs!

DWP

Where can I purchase a reliable up-to-date Lupus Information Book?

Nutrition, Diet and Lupus - A professional perspective

From a family of lupus sufferers

Out of Office

I attended my First Lupus AGM Meeting, Warrington, Liverpool!

Hey, I'm kinda new to this whole site. I basically joined because my mum has Lupus and has done for as long as i can remember.

the things you do for love!!!!!

How much alcohol can you drink while taking methotrexate?

Im Skydiving for Lupus!

Flare up with emotions !!!!!!

Does any1 have Glaucoma as well as Lupus?

Is it safe to take supplements, such as Gingko biloba? I'm not on any lupus meds.

thank you

HAS ANYONE READ AND TRIED OUT, Jill harringtons book about Lupus and Diet???

I am on hydroxy and naprosyn and would like to take milk thistle to help my liver. does anyone take this?

Mrs Lupus

I've been getting shaRp pains below the left hand side of my stomach near my hip! It happens around once a month and gets more painful!

Hopeful that diet can help treat Lupus

my diagnosis

Does anyone get lead-like legs? I seem to get it when I have over done things or am tired.

Does anyone know if there are any support groups in Derbyshire

Greenwich lupies & Fibromyalgia support group.

Support Group

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