Focused Ultrasound question: Does anyone... - Cure Parkinson's

Cure Parkinson's

26,491 members27,905 posts

Focused Ultrasound question

Tdonahue5 profile image
15 Replies

Does anyone have experience or data on how much difference the doctor makes in this procedure. I'm considering the procedure for right arm tremor. My local hospital has performed about 20 procedures. Is it worth seeking out a doctor that has performed a much larger number even if I have to travel to another state. What I'm trying to understand is how much is judgement and experience vs how much is formulaic

Written by
Tdonahue5 profile image
Tdonahue5
To view profiles and participate in discussions please or .
15 Replies
MBAnderson profile image
MBAnderson

Imho, experience is everything, because the deficits are potentially grievous. It is brain surgery after all.

thalamotomy or pallidothalamic tractotomy?

MBAnderson profile image
MBAnderson in reply to

Hitting the target precisely is crucial in both because missing either target has potentially grave consequences. Missing the target in thalamotomy may carry more risk.

in reply toMBAnderson

How come?

MBAnderson profile image
MBAnderson in reply to

My guess is the thalamus does a lot of critically important functions whereas the PTT is a pathway between the thalamus and the pallidum.

The doctors in Switzerland emphasized the importance of staying away from the thalamus.

in reply toMBAnderson

Dude, that makes so much sense. Thanks for the time to explain this.

NewHope1961 profile image
NewHope1961

great question

MBAnderson profile image
MBAnderson

I don't equate non invasive with non surgical. They are altering a structure deep in the brain.

MBAnderson profile image
MBAnderson

I know of a person who feels the same procedure worsened their condition. I don't know what other variable could be responsible for that except missing the target. (The equipment and procedures are identical.)

Markbit profile image
Markbit

Experience has a big weight! My intervention took about 2 hours. The first interventions from the same team (sonimodul) took about 8 hours with no better results. It's a big learning curve.

MBAnderson profile image
MBAnderson in reply toMarkbit

Kudos to you for translating Daphne's book. A huge project.

Trixiedee profile image
Trixiedee

I’d look at the different targets in the brain first. Personally I would only opt for the pallido thalamic tract at Sonimodul as they have the most experience and are the only place that operates on both sides of the brain.

Tdonahue5 profile image
Tdonahue5 in reply toTrixiedee

Is anyone aware if the pallido thalamic tract is being done by any Doctors in the US?

Trixiedee profile image
Trixiedee in reply toTdonahue5

it’s only being done as part of a clinical trial which is full.

Tdonahue5 profile image
Tdonahue5

Thanks to all for the responses they are helpful

Not what you're looking for?

You may also like...

Focused Ultrasound

I have an opportunity to be treated with MRI- Focused Ultrasound , has anyone did this treatment ?...

Focused Ultrasound in Switzerland

I have decided to see if I can have focused ultrasound at Sonimodul clinic in Switzerland. The...
Trixiedee profile image

Focused Ultrasound

I had my FUS treatment two days ago at Sonimodul and although it wasn’t easy with a full on...
Trixiedee profile image

Focused Ultrasound Pallidotomy & Me

We just got home from Columbus, OH couple hours ago where the FUS was done. I hope I answered all...
MBAnderson profile image

Focused ultrasound

Well, sadly,I was turned down in being part of the clinical trial for focused ultrasound. Since...
michaela13 profile image

Moderation team

See all
CPT_Aleksandra profile image
CPT_AleksandraAdministrator
CPT_Anaya profile image
CPT_AnayaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.