Focused Ultrasound : I have an opportunity... - Cure Parkinson's

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Focused Ultrasound

jaberalhddad profile image
26 Replies

I have an opportunity to be treated with MRI- Focused Ultrasound , has anyone did this treatment ?

What are the advantages and dis advantages of this procedure ?

Is it advisable for my condition ?

I have no tremors but sometimes little Dyskinesia and dystonia which are controlled by supplements .

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jaberalhddad profile image
jaberalhddad
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26 Replies

It has been several months since I read about ultrasound. I think it is only useful for tremors?

enjoysalud profile image
enjoysalud

What supplement are you taking for dystonia?

jaberalhddad profile image
jaberalhddad in reply toenjoysalud

healthunlocked.com/parkinso...

PDDBSwife profile image
PDDBSwife

MRgFUS or Focused Ultrasound is ablative meaning the area targeted is destroyed...can't be undone, unlike DBS. More here: linkedin.com/pulse/ablate-q...

Hope it helps!

jaberalhddad profile image
jaberalhddad in reply toPDDBSwife

Thanks it was helpful

michaela13 profile image
michaela13

Go for it! I passed all the tests, but turned down because my skull wasn't dense enough. I was so disappointed. I would do it in a heartbeat. Like DBS but non invasive... I believe it's the future of surgery.

jaberalhddad profile image
jaberalhddad in reply tomichaela13

Thanks

movinngroovin profile image
movinngroovin

It kills cells--I passed the tests but turned it down when she couldn't assure me that everyone thus far that had it was not negatively impacted, like could they walk, etc.

jaberalhddad profile image
jaberalhddad in reply tomovinngroovin

Thanks

toomuch profile image
toomuch

I believe it is very good for tremor. My understanding is it can only be done on one side of the brain, unlike DBS, they are burning the cells, cannot be "undone" like DBS can. I also heard you cannot be claustrophobic, you could be in that MRI tube for 4 hours, not for me!

hanifab23 profile image
hanifab23

where are you going to have the treatment

michaela13 profile image
michaela13

Where?

michaela13 profile image
michaela13

Baltimore or' Virginia?

jaberalhddad profile image
jaberalhddad

Its not in USA

Hikoi profile image
Hikoi

You are saying it was offered to you dyskenesia or dystonia jaberalhd.? I have never heard it used for that. Its still a very new technique and id love it for tremor but i would need to have complete confidence in the surgeon. Im not sure i would trust whoever offered to 'experiment' on you

jaberalhddad profile image
jaberalhddad in reply toHikoi

It will be done in Rambam hospital as they told me I supposed to l have a call conference via skype with the doctor toady I will know more details and will update , I don't know about ultrasound I just was asking if its good treat Dyskinesia and dystonia ?

jaberalhddad profile image
jaberalhddad

youtube.com/watch?v=272TzaU...

this lady look like she had dyskinesia and dystonia ,after the procedure she looks much better .

jaberalhddad profile image
jaberalhddad

I made my mind i will go for DBS instead of focused Ultrasound although my PD Iis not so bad .

jaberalhddad profile image
jaberalhddad

I did my dba surgery and I am happy with the results

Parkie- profile image
Parkie-

Hello Jaberalhd

Your post on xanthohumol from 3 years ago came up a few times lately. You had DBS surgery since then, does it mean the xanthohumol and other supplements gradually stopped working for you?

Thank you

Millbrook profile image
Millbrook in reply toParkie-

Wow. This is like fixing a jigsaw puzzle. Good job Parkie

Parkie- profile image
Parkie- in reply toMillbrook

Sorry Millbrook, I didn't mean to burst your hopes. Anyway, lets wait and see what Jaber has to say. Maybe he has some more precious info for us concerning xanthohumol.

Millbrook profile image
Millbrook in reply toParkie-

I was practically at the factory door

with my order

Parkie- profile image
Parkie- in reply toMillbrook

I know, I know... I have read thousands of posts, ordered and tried dozens of supplements. I totally understand you.

Millbrook profile image
Millbrook in reply toParkie-

Thank you. Hope springs eternal

beehive23 profile image
beehive23

my doc's at university colorado hospital advise me it wll only address tremor and make balance and possibly speech worse.

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