Posts - CLL Support | HealthUnlocked

CLL Support

22,611 members • 38,830 posts

All posts for April 2022

Has anyone with CLl dealt with Neuro Endocrine cancer (liver) as a second cancer?

FOURTH Cancer. Melanoma, CLL, Prostate, Neuro Endocrine I stopped Imbrubica in July 2019. In the last 6 months my lymph nodes in my neck were very...

FOURTH Cancer. Melanoma, CLL, Prostate, Neuro Endocrine I stopped Imbrubica in ...

aboylan

•2 years ago

6 Replies

In the Rush to Return to ‘Normal,’ What Happens to the Vulnerable? By Sarah Wildman in NYT 04/10/22

“Covid-19 need no longer control our lives,” President Biden announced in the State of the Union address, speaking to a room of unmasked though...

“Covid-19 need no longer control our lives,” President Biden announced in the St...

Iupiter

•2 years ago

19 Replies

Evusheld petition - urgent - signatures needed

Please sign this petition for Evusheld if you haven’t already...

Tinksie

•2 years ago

19 Replies

Want to take advantage of all our features? Just log in!

Whole food Plant based diet reversed cll.

Has anyone heard about this article/study done on a cll patient's dramatic results and reversal of cll after changing to a whole food plant based diet? It...

Has anyone heard about this article/study done on a cll patient's dramatic resul...

mleo123

•2 years ago

63 Replies

Has anyone had experience taking Calquence once a day every other day?

I had too much side effects from twice a day Calquence. My blood tests are almost in normal range. My doctor wants me to get back to taking it once a day. I...

I had too much side effects from twice a day Calquence. My blood tests are almos...

Zsuzsika

•2 years ago

17 Replies

Venetoclax and Eczema

I have been on Venetoclax for 8 months and over the last 6 weeks developed Eczema over multiple part of my body. Never had it before, my son is a Consultant...

I have been on Venetoclax for 8 months and over the last 6 weeks developed Eczem...

GerryPL

•2 years ago

13 Replies

CLL and SLL in breast tissue

Diagnosed 4 years ago with CLL. A few months ago had a biopsy on breast tissue - pathologist report says "breast involvement with SLL". Hematologist doesn't...

Diagnosed 4 years ago with CLL. A few months ago had a biopsy on breast tissue ...

Imua

•2 years ago

13 Replies

Treatments for Covid - NHS

https://www.nhs.uk/conditions/coronavirus-covid-19/self-care-and-treatments-for-coronavirus/treatments-for-coronavirus/ Best, Yuck

https://www.nhs.uk/conditions/coronavirus-covid-19/self-care-and-treatments-for-...

Yuck

•2 years ago

2 Replies

Removing a teeth while CLL

As I am CLL; Shall I take any antibiotic before going to the dentist to remove a teeth?

As I am CLL; Shall I take any antibiotic before going to the dentist to remove ...

AshGS

•2 years ago

6 Replies

Any risks when going to the dentist while on Imbruvica?

As I heard that Imbruvica works as a blood thinner

AshGS

•2 years ago

11 Replies

Booster recs after 5 vaccine administration snd Evusheld

Hi I have relapsed CLL and immune globulin Deficency. I had no antibody response to 4 separate Pfizer vaccinations 12/28/20, 1/20/21, 4/30/21 and 5/20/21. I...

Hi I have relapsed CLL and immune globulin Deficency. I had no antibody response...

skipro

•2 years ago

2 Replies

Omega-3s could boost immunotherapy's cancer-fighting power

The researchers found that dietary omega-3 fatty acid supplementation blocked tumor growth in mice treated with immunotherapy, sEH inhibitor, or both...

The researchers found that dietary omega-3 fatty acid supplementation blocked tu...

bennevisplace

•2 years ago

9 Replies

Iributnib

My Husband as been on iributnib since October 2018 for CLL and he's been doing ok except for drop in platelets a few times.About a month ago I notice a few...

My Husband as been on iributnib since October 2018 for CLL and he's been doing o...

Angus1953

•2 years ago

1 Reply

CALQUENCE Headaches

My husband was diagnosed with CLL back in February. We were completely taken by surprise and our lives were turned upside down. Thank god he did very well on...

My husband was diagnosed with CLL back in February. We were completely taken by...

Orangelemonaide

•2 years ago

43 Replies

Is second booster recommeded after Evusheld?

Have had four Pfizer vaccines and the last one was six months ago. Then had Evusheld three weeks ago. I am on Ibrutinib. Is another vaccine booster...

Have had four Pfizer vaccines and the last one was six months ago. Then had Evus...

Ibru

•2 years ago

16 Replies

Sotrovimab treatment for Covid

Is there any hint that the NHS will disallow Sotrovimab treatment which the U.S FDA has now done for all of the U.S.? Thanks!, Yuck

Is there any hint that the NHS will disallow Sotrovimab treatment which the U.S ...

Yuck

•2 years ago

16 Replies

Government no plans to roll out Evusheld

Like many of you I have been looking forward to the roll out of Evusheld for those of us who cannot mount an immune response to Covid. Im devastated to see...

Like many of you I have been looking forward to the roll out of Evusheld for tho...

camper2

•2 years ago

4 Replies

5th Booster

Hi all, I had my 4th booster end of January. I was wondering if we CLL folk are going to have a 5th booster? And is it 3 month after the last vaccine. Ros

Hi all, I had my 4th booster end of January. I was wondering if we CLL folk are...

Pekingese

•2 years ago

35 Replies

CLL and CANABAIS

CLL and canabais ? I do ,or rather did enjoy having a few beers on a weekend with friends and family . Nothing heavy . Say , achieving, a nice little "buzz"....

CLL and canabais ? I do ,or rather did enjoy having a few beers on a weekend wi...

Dyba

•2 years ago

7 Replies

Evusheld Petition

I'm not sure if I'm breaking any rules putting this on here, so I apologise if I am and it has to be taken down. There was an article in the 'i' yesterday. It...

I'm not sure if I'm breaking any rules putting this on here, so I apologise if I...

Clairdensheil

•2 years ago

8 Replies

Level of B lymphocytes

I am in the UK. I was diagnosed with CLL last October and am on WW. I had my 6 month blood work done and I was told the the B lymphocytes reduced from 8 to 5....

I am in the UK. I was diagnosed with CLL last October and am on WW. I had my 6 m...

Vocals

•2 years ago

7 Replies

Should I get the second booster?

Considering my severe reactions after the first three jabs, I'm hesitating about the second booster jab. I'm curious what my fellow severe reactors are...

Considering my severe reactions after the first three jabs, I'm hesitating about...

StobiMan

•2 years ago

19 Replies

bone marrow infiltration %

How many percent bone marrow infiltration at start treatment.

tms99532

•2 years ago

22 Replies

Cellular and humoral immune response to SARS-CoV-2 mRNA vaccines in patients treated with either Ibrutinib or Rituximab

For more than a year we have been reminding each other that even if we don't produce antibodies in response to covid vaccination, we may still produce a...

For more than a year we have been reminding each other that even if we don't pro...

gardening-girl

•2 years ago

9 Replies

Evusheld reaction

I’ve seen folks asking about Evusheld and any reactions/etc. I’ve CLL and a history of lupus. Mine is not a good story. I had the first 150mg Evusheld shots...

I’ve seen folks asking about Evusheld and any reactions/etc. I’ve CLL and a hist...

GolfinIndiana

•2 years ago

7 Replies

Back Pain after Bone Marrow Biopsy

Good Afternoon, I had a Bone Marrow Biopsy back in February of 2021 and have recently been having lower back pains. I've gone to a Chiropractor and she said...

Good Afternoon, I had a Bone Marrow Biopsy back in February of 2021 and have re...

brooklyn7672

•2 years ago

5 Replies

Introducing myself to the CLL support group.

Hi my name is Karin, I was diagnosed with CLL in January, 2019. I'm currently W&W. I'm here to learn and understand more about my disease. Issues are...

Hi my name is Karin, I was diagnosed with CLL in January, 2019. I'm currently ...

dinkdog

•2 years ago

23 Replies

CAR-T treatment for CLL

Hi all, I hear that there is another treatment option available called CAR-T. Any views on this? Thanks in advance.

Hi all, I hear that there is another treatment option available called CAR-T. A...

pbaddi

•2 years ago

19 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for April 2022

Has anyone with CLl dealt with Neuro Endocrine cancer (liver) as a second cancer?

In the Rush to Return to ‘Normal,’ What Happens to the Vulnerable? By Sarah Wildman in NYT 04/10/22

Evusheld petition - urgent - signatures needed

Whole food Plant based diet reversed cll.

Has anyone had experience taking Calquence once a day every other day?

Venetoclax and Eczema

CLL and SLL in breast tissue

Treatments for Covid - NHS

Removing a teeth while CLL

Any risks when going to the dentist while on Imbruvica?

Booster recs after 5 vaccine administration snd Evusheld

Omega-3s could boost immunotherapy's cancer-fighting power

Iributnib

CALQUENCE Headaches

Is second booster recommeded after Evusheld?

Sotrovimab treatment for Covid

Government no plans to roll out Evusheld

5th Booster

CLL and CANABAIS

Evusheld Petition

Level of B lymphocytes

Should I get the second booster?

bone marrow infiltration %

Cellular and humoral immune response to SARS-CoV-2 mRNA vaccines in patients treated with either Ibrutinib or Rituximab

Evusheld reaction

Back Pain after Bone Marrow Biopsy

Introducing myself to the CLL support group.

CAR-T treatment for CLL

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive