Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for January 2016

These Folks might not make it to 2017

Not alarming just Funny. imgur.com/gallery/7OqAm/new

shazie

•8 years ago

5 Replies

What the BMB Result Said

I met with my CLL and MPN experts this past week to learn the results of my bone marrow biopsy. My myelofibrosis is still there but not aggressive. Apparently...

I met with my CLL and MPN experts this past week to learn the results of my bone...

andrewschorr

•8 years ago

26 Replies

There are still a few spaces available for the Nottingham CLLSA members meeting - March 10th - 10.00am to 4.00pm -

Reminder - if you fancy joining us in Nottingham please register to ensure you get a place The meeting will be held at: The Belgrave Rooms, 25 Goldsmith...

Reminder - if you fancy joining us in Nottingham please register to ensure you ...

HAIRBEAR_UK

Founder Admin•8 years ago

Be the first to reply

Want to take advantage of all our features? Just log in!

My first post .... just signed up

Greetings from Kansas City. I am a 67 year old man who was diagnosed 15 months ago with both CLL and CTCL (a form of non-Hodgkins lymphoma). My doctors in...

Greetings from Kansas City. I am a 67 year old man who was diagnosed 15 months...

ron_bower

•8 years ago

9 Replies

CLL question

I was recently diagnosed with CLL. I am 59 living in USA. It is at stage 0. Last night I had to take my Mom to aft hour clinic then emergency room because...

I was recently diagnosed with CLL. I am 59 living in USA. It is at stage 0. ...

Lgotro

•8 years ago

17 Replies

The new CLL drug

It was reported today a new Cll drug Venetoclax in trials cured 78% of trial personell in trial. The drug was given to terminal cases with the drug leaving no...

It was reported today a new Cll drug Venetoclax in trials cured 78% of trial per...

brad8

•8 years ago

1 Reply

Ventoclax trial in Melbourne

Recent results from clinical trial in Melbourne reported in New England Journal of Medicine....

Recent results from clinical trial in Melbourne reported in New England Journal ...

Ge77y

•8 years ago

1 Reply

Occassional Fatigue

With CLL is there any drug or recommendation on what to take to lessen fatigue. I seem to get fatigue every two to three weeks that last for a day or two. I...

With CLL is there any drug or recommendation on what to take to lessen fatigue. ...

mpaull

•8 years ago

8 Replies

Psychosocial stresses of CLL and some upcoming patient meetings.

Friends, This week in the Living Well with CLL section of the CLL Society website, [http://cllsociety.org] we have posted a talk given by Dr. Scott Irwin...

Friends, This week in the Living Well with CLL section of the CLL Society websit...

bkoffman

CLL CURE Hero•8 years ago

Be the first to reply

17p del - any clues?

Hi all There are some great questions popping up on the forum recently - hope no-one minds if I chuck another one in! Does anyone know whether a person's...

Hi all There are some great questions popping up on the forum recently - hope n...

debs24

•8 years ago

8 Replies

Blood test,

ComponentStandard RangeYour ValueFlag WBC4.00 - 10.80 K/uL18.20H RBC3.85 - 5.15 M/uL 4.32 HGB12.0 - 15.3 g/dL12.8 HCT36.0 - 45.2 % 39.4...

ComponentStandard RangeYour ValueFlag WBC4.00 - 10.80 K/uL18.20H RBC3.85 - 5.15...

goneblonder

•8 years ago

3 Replies

The 'Big Pharma has cured cancer' and 'Vaccines cause Autism' conspiracies

I expect most of us have come across people who are adamant that one or both of the above are true, with those that espouse alternative cancer treatments more...

I expect most of us have come across people who are adamant that one or both of ...

AussieNeil

Administrator•8 years ago

4 Replies

‘Use-by’ and ‘Best-before’ dates - how are they relevant to CLL?

These dates on packaged food items are even more important to us than they were prior to our CLL diagnosis, but for different reasons. In summary, we should...

These dates on packaged food items are even more important to us than they were ...

AussieNeil

Administrator•8 years ago

7 Replies

Stressing about stress!

Hi friends, I'm not sure there is an answer as such to my query but would love to hear your thoughts: I know it's been said that stress can be a factor in...

Hi friends, I'm not sure there is an answer as such to my query but would love t...

Firefly14

•8 years ago

10 Replies

11 and 13 deletions

I recently found out from a FISH test that I have the 11th and 13th deletions. I know that the 13th is good but that the 11th is "bad". I am in my 2nd month...

I recently found out from a FISH test that I have the 11th and 13th deletions. I...

momof12

•8 years ago

21 Replies

Happy...

Happy Australia Day to everyone Down Under! Happy Republic Day to everyone celebrating in India!

Happy Australia Day to everyone Down Under! Happy Republic Day to everyone cele...

SouthFloridaLady

•8 years ago

2 Replies

stubborn bacterial eye infection

Hello, I have had a sore eye with a lot of pus for 3 weeks now. Started on different type of eye drops yesterday, as first ones haven't cleared up the...

Hello, I have had a sore eye with a lot of pus for 3 weeks now. Started on diffe...

Parramatta

•8 years ago

21 Replies

Walk in the woods

lovely to see the snowdrops,makes me long for spring.

sun_flower

•8 years ago

5 Replies

Stage 2, not Stage 0

I was recently diagnosed with CLL (Dec. 12). Today I did a follow-up with my doctor and he is setting it at Stage 2, instead of Stage 0 as he had figured it...

I was recently diagnosed with CLL (Dec. 12). Today I did a follow-up with my do...

KHuff

•8 years ago

9 Replies

Nails splitting since ibutrinib

Anyone else experiencing severe nail splitting and breakage since starting ibutrinib? Anyone have any suggestions to help? Thanks in advance.

Anyone else experiencing severe nail splitting and breakage since starting ibutr...

Jilltap

•8 years ago

13 Replies

Spleen

Hello everyone I had a test do e today that showed a graph of everything going on inside my liver kidneys and lungs were green and good but my spleen level was...

Hello everyone I had a test do e today that showed a graph of everything going o...

Missymoo555

•8 years ago

8 Replies

Lymph nodes pain

Hi everyone. I was diagnosed in July 2015 with SLL. My bloods at my two checkups have so far been normal. Just recently my 4 swollen lymph nodes in my neck...

Hi everyone. I was diagnosed in July 2015 with SLL. My bloods at my two checkups...

Cindy1462

•8 years ago

22 Replies

Why cancer cells thrive when blood sugar is high

Note that this finding is from studying solid tumours in fruit flies. If the effect is confirmed people, the implication is that we need to be more careful...

Note that this finding is from studying solid tumours in fruit flies. If the ef...

AussieNeil

Administrator•8 years ago

4 Replies

First specialist appt.

Thank you for those who led me to the specialist. First appointment was a long wait but then a blessing. There is nothing like being heard and then given...

Thank you for those who led me to the specialist. First appointment was a long ...

Jilltap

•8 years ago

4 Replies

First proper clinic post-chemo

It seems like a lifetime away - the chemo that is - but was only about four months ago. My mind and memory are still doing its best to trip me up! Yesterday...

It seems like a lifetime away - the chemo that is - but was only about four mont...

thelutondodger

•8 years ago

2 Replies

New laboratory is Le 107.8,Hgb 127 Er 3600000 Trombociti 166-ansocitosis Lymf.87 (ALC 93). Today I going hematologist.I must Chlorambucil?

maybe Gaziva??Experimental in clinic? Lara help translate!Chris please say me what is for me.. Olga in panic

maybe Gaziva??Experimental in clinic? Lara help translate!Chris please say me wh...

Name-1

•8 years ago

11 Replies

Arming the immune system - CAR-T therapy

Hope people find this interesting, I did. I'm not going to copy/paste a part, it is a reasonably easy read. rob...

Hope people find this interesting, I did. I'm not going to copy/paste a part, i...

Oleboyredw-uk

•8 years ago

7 Replies

discouraged on FLAIR

Flair trail. After Rituximab infusion 3, about 3 weeks ago. A lot of muscle pain, paracetamol hardly takes the edge off. Still tired though flashes of...

Flair trail. After Rituximab infusion 3, about 3 weeks ago. A lot of muscle pain...

romarin

•8 years ago

6 Replies

Dangerous places.

I am in the waiting room waiting for my blood tests and my six month consult with my oncologist/hematologist. There are so many people here today. The place...

I am in the waiting room waiting for my blood tests and my six month consult wit...

RK66

•8 years ago

11 Replies

Checkup - another six months done

Well, here I am and I'm quite pleased/relieved. Currently sitting drinking a cup of tea in The Christie having had my six month review. I went into it with a...

Well, here I am and I'm quite pleased/relieved. Currently sitting drinking a cu...

Oleboyredw-uk

•8 years ago

17 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for January 2016

These Folks might not make it to 2017

What the BMB Result Said

There are still a few spaces available for the Nottingham CLLSA members meeting - March 10th - 10.00am to 4.00pm -

My first post .... just signed up

CLL question

The new CLL drug

Ventoclax trial in Melbourne

Occassional Fatigue

Psychosocial stresses of CLL and some upcoming patient meetings.

17p del - any clues?

Blood test,

The 'Big Pharma has cured cancer' and 'Vaccines cause Autism' conspiracies

‘Use-by’ and ‘Best-before’ dates - how are they relevant to CLL?

Stressing about stress!

11 and 13 deletions

Happy...

stubborn bacterial eye infection

Walk in the woods

Stage 2, not Stage 0

Nails splitting since ibutrinib

Spleen

Lymph nodes pain

Why cancer cells thrive when blood sugar is high

First specialist appt.

First proper clinic post-chemo

New laboratory is Le 107.8,Hgb 127 Er 3600000 Trombociti 166-ansocitosis Lymf.87 (ALC 93). Today I going hematologist.I must Chlorambucil?

Arming the immune system - CAR-T therapy

discouraged on FLAIR

Dangerous places.

Checkup - another six months done

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive