Posts - CLL Support | HealthUnlocked

CLL Support

22,663 members • 38,898 posts

All posts for November 2021

Spike Protein AB Test - What color Vial

I attended the hospital today for my monthly IVIG infusion. Whilst there, I also have my regular blood draw. Included in the blood draw today was a Covid...

I attended the hospital today for my monthly IVIG infusion. Whilst there, I als...

RobertCLL

•3 years ago

14 Replies

National COVID Cancer Survey UK- Second Result

Hi. Just an update on a previous entry. I had a negative result after doing a COVID test with the survey. Has it had only been 17 days after the 3rd jab I was...

Hi. Just an update on a previous entry. I had a negative result after doing a CO...

Strech51

•3 years ago

6 Replies

RONAPREVE

ARE THERE ANY MOVES TO GET RONAPREVE INTO OUR ARMS BEFORE WE GET ILL,SEEMS LIKE A NO BRAINER TO ME!!AND WHAT ABOUT MOLNUPIRAVIR BOTH NEED TO BE GIVEN QUICKLY...

ARE THERE ANY MOVES TO GET RONAPREVE INTO OUR ARMS BEFORE WE GET ILL,SEEMS LIKE ...

neddyseagoon

•3 years ago

35 Replies

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Financial assistance for IVIG

Hi. Is there any financial assistance for IVIG treatment in USA?

pragnar

•3 years ago

6 Replies

Nose bleeds with Venetoclax

Anyone experienced nose bleeds with Venetoclax?

Saddlemountain

•3 years ago

5 Replies

O & V Treatment - ALC Doubling

Hi, this is my first post on this site. It's been a great source of hope, support and enduring posts that have kept me informed of what others are going...

Hi, this is my first post on this site. It's been a great source of hope, suppo...

C0llin

•3 years ago

8 Replies

A perspective on the future of SARS-CoV-2 vaccination...

... and a concluding remark especially relevant to those whom vaccines don't protect against severe illness. These people need effective, affordable...

... and a concluding remark especially relevant to those whom vaccines don't pro...

bennevisplace

•3 years ago

3 Replies

Chronic Lymphocytic Leukemia/Leukaemia (CLL) Patients: Shingles, Antivirals, Antibiotics, and the new Shingrix Vaccine (Please read first)

Dear CLL Support Healthunlocked (HU) Readers, First, for those new to this forum, please have a read of:...

Dear CLL Support Healthunlocked (HU) Readers, First, for those new to this forum...

Ernest2

•3 years ago

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Full Body Cryotherapy

Anyone have any research or stories about whole body cryotherapy and CLL? I tried a 3 minuet liquid nitrogen cryotherapy today. My thinking was cold...

Anyone have any research or stories about whole body cryotherapy and CLL? I tri...

Rando21

•3 years ago

2 Replies

Getting antivirals UK

Hi looking for information and help. I have been in contact with someone who has tested positive for covid (LFT positive and PCR test to follow). I knew my...

Hi looking for information and help. I have been in contact with someone who ha...

camper2

•3 years ago

19 Replies

VACCINATING GUIDE

Vaccinating Adults: A Step-by-Step Guide provides 142 pages of practical information in an easy-to-use format to help you implement or enhance adult...

Vaccinating Adults: A Step-by-Step Guide provides 142 pages of practical informa...

Tupelomojo

•3 years ago

3 Replies

Nation's vaccine experts debate goal of booster campaign

Are boosters meant to prevent infections? Or to keep people out of the hospital? Oct. 20, 2021, 8:36 PM UTC By Akshay Syal, MD As the U.S. heads into the...

Are boosters meant to prevent infections? Or to keep people out of the hospital?...

Tupelomojo

•3 years ago

1 Reply

Vacation with CLL

Had anyone taken a foreign trip whilst undergoing treatment with Oman and venetoclax ? I'm concerned about infection 🤔

Had anyone taken a foreign trip whilst undergoing treatment with Oman and veneto...

Cazma

•3 years ago

10 Replies

MORE ON VACCINES? But of course!

How often have we heard; "Let's go see what the dictionary says?" So here's, Medical dictionary info and . . . WIKIPEDIA too? OK, let's GO SEE! 👍‍ A...

How often have we heard; "Let's go see what the dictionary says?" So here's, ...

Tupelomojo

•3 years ago

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Beat Covid in 8 Days

I was triple vaccinated and still got Covid. I did have mild symptoms. Worst thing is pink eye in one eye. I received the monoclonal antibodies and now 8...

I was triple vaccinated and still got Covid. I did have mild symptoms. Worst t...

CCLandwell

•3 years ago

9 Replies

Should we get immune globulin for Covid pneumonia lingering on Day 75

Hi Folks , it’s Steffie, John 64 year old 11q ATM is approx. Day 75 post Covid pneumonia infection and on 2L of oxygen and doing well by in a very long...

Hi Folks , it’s Steffie, John 64 year old 11q ATM is approx. Day 75 post Covi...

LovecuresCLL

•3 years ago

5 Replies

Booster and Swollen gland underarm

Thanks all for responding to my request, it seems that it is not uncommon to have the half golf ball swollen gland in the armpit of the phizer jab. I was seen...

Thanks all for responding to my request, it seems that it is not uncommon to hav...

Vindicatrix

•3 years ago

12 Replies

Switching CLL Docs?

I am having a bit of an issue trying to decide what to do about my CLL Specialist. I have been going to see Dr. Mato at Sloan Kettering for at least the last...

I am having a bit of an issue trying to decide what to do about my CLL Specialis...

Jmiah717

•3 years ago

13 Replies

Moderna booster almost killed me

I just got my Moderna booster shot, 8 months after my second shot, and had a terrible reaction. I've never had a bad reaction to any kind of shot before, but...

I just got my Moderna booster shot, 8 months after my second shot, and had a ter...

Pogee

•3 years ago

45 Replies

Booking a cruise holiday

I was diagnosed with CLL in September 2021. I am in the WW phase. We would like to book a cruise holiday in august 2022. What are your thoughts? Is it...

I was diagnosed with CLL in September 2021. I am in the WW phase. We would like ...

Vocals

•3 years ago

16 Replies

CLL patients in UK

Hi. Is anyone in this group from UK please? I am a newly diagnosed CLL patient in the WW stage and it will be good to connect with others in UK.

Hi. Is anyone in this group from UK please? I am a newly diagnosed CLL patient i...

Vocals

•3 years ago

38 Replies

Shingles

Hello everyone , just a quick update on my husbands condition - he was admitted to A & E 10 days ago ( different hospital to cll treatment) with pain around...

Hello everyone , just a quick update on my husbands condition - he was admitted ...

Lesley3

•3 years ago

51 Replies

Cytology

Do doctors start treatment based on cytology reports if abnormal B cell are high

Do doctors start treatment based on cytology reports if abnormal B cell are high...

200185

•3 years ago

2 Replies

Keto diet and venetoclax

Really happy to be here.. To any one who has Cll. Is anyone on a keto diet and taking venetoclax ? Are you having good outcomes? Thanks so much..

Really happy to be here.. To any one who has Cll. Is anyone on a keto diet and ...

Kevin_m

•3 years ago

8 Replies

Refusing to have Covid jab

How do you deal with a family member wanting to visit you at Xmas when you are on immunotherapy with low immune system? Is a flow test good enough days before...

How do you deal with a family member wanting to visit you at Xmas when you are o...

Larkfield-UK

•3 years ago

125 Replies

FCR failed.!!! Nodes grew back in 15 days !!!!

Hello all. I have only posted I think 1 maybe twice here about having SLL. In May I had to stop FCR do to holes in my colon. By June 15th my lymph nodes came...

Hello all. I have only posted I think 1 maybe twice here about having SLL. In M...

teknomek

•3 years ago

22 Replies

New to CLL

I recently was diagnosed with CLL. I'm in the watch and wait phase. I went in for a routine medical exam and my gp saw elevated white blood cell counts and...

I recently was diagnosed with CLL. I'm in the watch and wait phase. I went in fo...

rlajbsmith

•3 years ago

10 Replies

Rituxan

Hello everyone. I am 6 years with CLL. My skin issues keep getting worse and my Oncologist has just recommended a 4 week (once per week) infusion of Rituxan....

Hello everyone. I am 6 years with CLL. My skin issues keep getting worse and my ...

mkuhlman

•3 years ago

5 Replies

Booster or 3rd Jab

I had a covid booster in Scarborough on Saturday, tried to explain that I had CLL and wanted it noted as a 3rd vaccine but they where not interested, showed...

I had a covid booster in Scarborough on Saturday, tried to explain that I had CL...

Ellim

•3 years ago

47 Replies

Any danger if you inadvertently take 2 Imbruvica 420 tabs at same time?

What are side affects if any when you inadvertently take 2 tabs of Imbruvica at same time?

What are side affects if any when you inadvertently take 2 tabs of Imbruvica at ...

Timree

•3 years ago

9 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for November 2021

Spike Protein AB Test - What color Vial

National COVID Cancer Survey UK- Second Result

RONAPREVE

Financial assistance for IVIG

Nose bleeds with Venetoclax

O & V Treatment - ALC Doubling

A perspective on the future of SARS-CoV-2 vaccination...

Chronic Lymphocytic Leukemia/Leukaemia (CLL) Patients: Shingles, Antivirals, Antibiotics, and the new Shingrix Vaccine (Please read first)

Full Body Cryotherapy

Getting antivirals UK

VACCINATING GUIDE

Nation's vaccine experts debate goal of booster campaign

Vacation with CLL

MORE ON VACCINES? But of course!

Beat Covid in 8 Days

Should we get immune globulin for Covid pneumonia lingering on Day 75

Booster and Swollen gland underarm

Switching CLL Docs?

Moderna booster almost killed me

Booking a cruise holiday

CLL patients in UK

Shingles

Cytology

Keto diet and venetoclax

Refusing to have Covid jab

FCR failed.!!! Nodes grew back in 15 days !!!!

New to CLL

Rituxan

Booster or 3rd Jab

Any danger if you inadvertently take 2 Imbruvica 420 tabs at same time?

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