Alacabrutinib for relapsed CLL: Hi everyone, I... - CLL Support

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Alacabrutinib for relapsed CLL

lymphomaoz profile image
2 Replies

Hi everyone, I was just wondering if anyone in this group is from Australia and has had alacabrutinib for relapsed CLL. It would be great to know more

Thank you Sharon

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lymphomaoz profile image
lymphomaoz
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2 Replies
lankisterguy profile image
lankisterguyVolunteer

Hi lymphomaoz,

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I see that you have been with us since 2017, and an active participant in the Australian medical approval process. So you probably have used this to review the profiles of the members that list Australia in their profiles: healthunlocked.com/cllsuppo...

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And you likely know that AussieNeil and CLLerinOz are both from "down under" so they may be able to point you to Acalabrutinib/Calquence patients.

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There are some videos healthunlocked.com/cllsuppo...

where Debinoz interviews some of your CLL experts.

I recall that Deb has stopped taking Venetoclax and started Ibrutinib after considering Acala & Zana - cllforum.com/reply.php?topi...

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But you probably know all that.

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Len

lymphomaoz profile image
lymphomaoz in reply to lankisterguy

Hi Len thanks so much for this and I know Neil and Deb. I am CEO of lymphoma Australia and my mum was diagnosed with CLL many years ago. This group is great and we hope to have a good announcement about this treatment soon and we were hoping to have a patient help. All the best and hope we can do more for everyone

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