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vimpat / lacosamide stopped fully working
the Vimpat stopped working to completely resolve my RLS. Recent MRIs showed multiple Tarlov cysts on my spine, which is possibly causing the left leg pain and movement. It is positional and separate from the RLS in both legs in my arms and body. I see a new neurosurgeon next week. I’ve had multiple
the Vimpat stopped working to completely resolve my RLS. Recent MRIs showed multiple Tarlov cysts on my spine, which is possibly causing the left leg pain and movement. It is positional and separate from the RLS in both legs in my arms and body. I see a new neurosurgeon next week. I’ve had multiple
SleeplessinNC
in
Restless Legs Syndrome
3 days ago
Dulcolax
I took one dulcolax last night at about 10pm. I had 3 bowel movements in the space of an hour, 11am-12pm today. No pain or discomfort. I felt amazing after but it’s now 3:30pm and i feel like i’m constipated again and that there is still more to be released. Shall I take another one tonight to clear
I took one dulcolax last night at about 10pm. I had 3 bowel movements in the space of an hour, 11am-12pm today. No pain or discomfort. I felt amazing after but it’s now 3:30pm and i feel like i’m constipated again and that there is still more to be released. Shall I take another one tonight to clear
HI1237
in
IBS Network
7 days ago
Littlejoy
I had pelvic prolapse, cystocele and rectocele. Had pelvic prolapse repair 1 year ago, they took out uterus and tightened vagina to hold bladder & bowel. When I came too after op, they said I had a cyst one my left ovary so would need another op yo remove this. I have been in pain since op, it depends
I had pelvic prolapse, cystocele and rectocele. Had pelvic prolapse repair 1 year ago, they took out uterus and tightened vagina to hold bladder & bowel. When I came too after op, they said I had a cyst one my left ovary so would need another op yo remove this. I have been in pain since op, it depends
Operation
in
Pelvic Pain Support Network
2 months ago
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Walking Speed
I know our bodies are different, but we all have something in common. Has anyone done or tried something besides ampyra that increased the speed that you walk? I've tried ampyra, dysport and I'm still moving like a turtle. My legs still feel very heavy! I'm still hoping to be walking normal again!
I know our bodies are different, but we all have something in common. Has anyone done or tried something besides ampyra that increased the speed that you walk? I've tried ampyra, dysport and I'm still moving like a turtle. My legs still feel very heavy! I'm still hoping to be walking normal again!
Diva1976
in
My MSAA Community
3 months ago
I know Nitrous Oxide can cause b12 deficiency, but could Nitrogen Dioxide do it too?
I had low b12, took ppi and h2 before Mt body crashed. But I also realised that we did an experiment in the labs I was working in, when my body began to feel awful, around the time I started PPIs (before my body totally crashed months later) I know Nitrous Oxide messes with b12... Does anyone know
I had low b12, took ppi and h2 before Mt body crashed. But I also realised that we did an experiment in the labs I was working in, when my body began to feel awful, around the time I started PPIs (before my body totally crashed months later) I know Nitrous Oxide messes with b12... Does anyone know
Suffering_sunny
in
Pernicious Anaemia Society
4 months ago
Cladribine
I have recently been diagnosed as having RRMS. I have only had 2 relapses in the past year, both of which involved temporary loss of eyesight. On both occasions, my vision returned to normal by itself, without any need or medication to be prescribed. However, my most recent MRI contrast scan shows that
I have recently been diagnosed as having RRMS. I have only had 2 relapses in the past year, both of which involved temporary loss of eyesight. On both occasions, my vision returned to normal by itself, without any need or medication to be prescribed. However, my most recent MRI contrast scan shows that
max011
in
My MSAA Community
4 months ago
Webinar: Increased dose of Eylea to extend treatment intervals
A renowned retinal specialist based in the US, Dr Kenneth Fan will join us this month to discuss the increased dose of licensed drug Eylea (aflibercept) to treat wet age-related macular degeneration and diabetic macular oedema. Dr Fan will talk more about the trials which have led to the increased 8mg
A renowned retinal specialist based in the US, Dr Kenneth Fan will join us this month to discuss the increased dose of licensed drug Eylea (aflibercept) to treat wet age-related macular degeneration and diabetic macular oedema. Dr Fan will talk more about the trials which have led to the increased 8mg
Carol_MacularSociety
Partner
in
Macular Society
4 months ago
Do I have PMR?
I did some research on my own after having these pains in my shoulders, upper arms, hips and lower back. Getting out of bed, turning over in bed, getting up from a chair, or reaching for something was very painful. I’ve been having back issues with a slipped vertebrae for about 2 years. I’ve had 3 epidural
I did some research on my own after having these pains in my shoulders, upper arms, hips and lower back. Getting out of bed, turning over in bed, getting up from a chair, or reaching for something was very painful. I’ve been having back issues with a slipped vertebrae for about 2 years. I’ve had 3 epidural
Aqua47
in
PMRGCAuk
5 months ago
heel pain
I have an agonizing pain in the back right and under part of my Left heel, often occurs in bed and for no memorable reason, also on my right thigh/hip area is a patch that feels quite numb to touch But inside it feels like a firework is burning. Are these pains due to the back stenosis?. I was referred
I have an agonizing pain in the back right and under part of my Left heel, often occurs in bed and for no memorable reason, also on my right thigh/hip area is a patch that feels quite numb to touch But inside it feels like a firework is burning. Are these pains due to the back stenosis?. I was referred
lubarr
in
Pain Concern
4 days ago
Bloating - Zoladex/Tibolone
Hi I have been on Zoladex injections for a year now and have had add back HRT (tibolone) for about 6 weeks.The add back HRT has really helped the hot flushes & muscle pain but over the past 2 weeks I have been suffering with awful bloating which increases when I eat or drink anything. Has anybody else
Hi I have been on Zoladex injections for a year now and have had add back HRT (tibolone) for about 6 weeks.The add back HRT has really helped the hot flushes & muscle pain but over the past 2 weeks I have been suffering with awful bloating which increases when I eat or drink anything. Has anybody else
Bookish_Girl
in
Endometriosis UK
2 months ago
Prucalopride & Pelvic floor pain
Hi I have been suffering from rectal & pelvic floor pain for last 18 months. 2 months ago I was placed on Prucalopride as the magnesium citrate they I was taking stopped working. My pelvic floor pain & rectal spasm appears to be getting worse. I used to be able to sleep at night but now struggling
Hi I have been suffering from rectal & pelvic floor pain for last 18 months. 2 months ago I was placed on Prucalopride as the magnesium citrate they I was taking stopped working. My pelvic floor pain & rectal spasm appears to be getting worse. I used to be able to sleep at night but now struggling
Hopetobewell
in
Pelvic Pain Support Network
6 months ago
Alverine and/or Simalvia - (which is alverine citrate with simethicone.) Side effects.
I have recently been put on these. I have found that both the standard alverine citrate, which I had tried first, now the Simalvia, cause feelings of extreme anxiety about an hour after taking the tablet! Weird and not listed in the side effects. So far it seems ineffective on the pain anyway. Would
I have recently been put on these. I have found that both the standard alverine citrate, which I had tried first, now the Simalvia, cause feelings of extreme anxiety about an hour after taking the tablet! Weird and not listed in the side effects. So far it seems ineffective on the pain anyway. Would
emmjay77
in
IBS Network
6 months ago
Yellowish skin,
Hi,i have yellows.skin for 3 years.now but my liver test come back normal,i had a really high.consume alcohol,i look yellowish but with.normal bilirubin test,i have take.billirubin test seven times now,all normal,albumin normal,inr,normal,alt normal,what can it be?
Hi,i have yellows.skin for 3 years.now but my liver test come back normal,i had a really high.consume alcohol,i look yellowish but with.normal bilirubin test,i have take.billirubin test seven times now,all normal,albumin normal,inr,normal,alt normal,what can it be?
Okki49
in
British Liver Trust
7 months ago
I’m back😁. Used to be Dtech.
Been a while since I was last on here. I didn’t go on a lot unless I could help with anything. So jock update. I’m now happily retired. Dog walking and playing golf. Going on occasional holidays. Had a week in Seville to celebrate my 70th birthday. January I had a bad hip. Thought it was just a strain
Been a while since I was last on here. I didn’t go on a lot unless I could help with anything. So jock update. I’m now happily retired. Dog walking and playing golf. Going on occasional holidays. Had a week in Seville to celebrate my 70th birthday. January I had a bad hip. Thought it was just a strain
Retiredtech28
in
NRAS
1 day ago
Tapering
It is some time since I posted anything about my PMR journey, but want to share my recent tapering experience. I have been on prednisone for 4.5 years and struggled over covid lockdowns being able to talk to anyone, gp or rheumatoid, when I was having what I thought were flares of pmr when trying to
It is some time since I posted anything about my PMR journey, but want to share my recent tapering experience. I have been on prednisone for 4.5 years and struggled over covid lockdowns being able to talk to anyone, gp or rheumatoid, when I was having what I thought were flares of pmr when trying to
Kiwisufferer2019
in
PMRGCAuk
3 days ago
Caution: regarding medical procedure to insert a gel to protect organs while undergoing radiation
I’m 73 and I recently had this procedure done and it seems to be working well. But a word of caution. I’ve had some severe back problems where 3 vertebra are pinching nerves for several years. Typically the pain is sporadic and only a 3-4 out of 10. I have in the past had a couple very painful bouts
I’m 73 and I recently had this procedure done and it seems to be working well. But a word of caution. I’ve had some severe back problems where 3 vertebra are pinching nerves for several years. Typically the pain is sporadic and only a 3-4 out of 10. I have in the past had a couple very painful bouts
Willie51
in
Prostate Cancer And Gay Men
3 days ago
Advice
I have asked my GP for a learning disabilities assessment to keep getting help from a family support worker, but He said that He would chase my ASD assessment instead. I am really worried because our actual family support worker is leaving us as our daughter is 18 next month, but I cannot make conversations
I have asked my GP for a learning disabilities assessment to keep getting help from a family support worker, but He said that He would chase my ASD assessment instead. I am really worried because our actual family support worker is leaving us as our daughter is 18 next month, but I cannot make conversations
Ranger24
in
Mencap
4 days ago
struggling to get diagnosed
Since I was 13 I have been dealing with significant pain in my lower abdomen and back, particularly during my menstrual cycle. The intensity of the pain has been increasing, to the point where it is impacting my ability to carry out normal daily activities some days. Additionally, I have been experiencing
Since I was 13 I have been dealing with significant pain in my lower abdomen and back, particularly during my menstrual cycle. The intensity of the pain has been increasing, to the point where it is impacting my ability to carry out normal daily activities some days. Additionally, I have been experiencing
Ca1t7yn
in
Endometriosis UK
5 days ago
Unable to take NSAID's due to blood thinners...
I suffer from chronic glute/back pain due to lumbar spinal stenosis, but am unable to take NSAID's due to taking Rivaroxaban blood thinners. Is there any effective pain killer that I can take?...
I suffer from chronic glute/back pain due to lumbar spinal stenosis, but am unable to take NSAID's due to taking Rivaroxaban blood thinners. Is there any effective pain killer that I can take?...
geoffpuma
in
Pain Concern
5 days ago
Intrinsic factor
I seem to be at a sticking point with the findings of the intrinsic factor test. This is due to the way they now interpret the test results. My test result was Au/ml 1.63 ... Which I jumped with joy over as I thought "at last, this proves I have been telling the truth". How wrong I was. It is no longer
I seem to be at a sticking point with the findings of the intrinsic factor test. This is due to the way they now interpret the test results. My test result was Au/ml 1.63 ... Which I jumped with joy over as I thought "at last, this proves I have been telling the truth". How wrong I was. It is no longer
Allywales8663
in
Pernicious Anaemia Society
7 days ago
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