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Recently diagnosed, WBC numbers stable but RBC/HGB trending down
Hi Everyone, I was diagnosed this October. My current WBC is around 15,000. I am Del 13q and mutated, so good markers. My 3 month blood draw actually showed a slight decrease in WBC, however for the third draw in a row my RBC and HGB have gone down. HGB is low end of normal and RBC is slightly
Hi Everyone, I was diagnosed this October. My current WBC is around 15,000. I am Del 13q and mutated, so good markers. My 3 month blood draw actually showed a slight decrease in WBC, however for the third draw in a row my RBC and HGB have gone down. HGB is low end of normal and RBC is slightly
Nikitos1979
in
CLL Support
4 months ago
Allele Burden
Quick update My interferon is currently 135 per week, its been extended from 7 to 10 days, numbers are all ok HCT 0.455, not concerned. My Allele Burden results Jan 2021 2.04% March 2023 1.62% Slightly elevated LFT ALT 54 down from 60 down from 66 GGT 64 down from 94 eGFR 89 Ferritin 34
Quick update My interferon is currently 135 per week, its been extended from 7 to 10 days, numbers are all ok HCT 0.455, not concerned. My Allele Burden results Jan 2021 2.04% March 2023 1.62% Slightly elevated LFT ALT 54 down from 60 down from 66 GGT 64 down from 94 eGFR 89 Ferritin 34
shiftzz
in
MPN Voice
4 months ago
FYI: New data on progression of visceral mets without PSA progression (discordance) and ARAT/docetaxel therapy
Interesting study, folks. We know physical progression of PCa (i.e., new metastases) can occur without PSA progression. This is known as a discordance. But we don't know how often it occurs or why it occurs. In these instances, our greatest fear is "therapy-induced neuroendocrine prostate cancer
Interesting study, folks. We know physical progression of PCa (i.e., new metastases) can occur without PSA progression. This is known as a discordance. But we don't know how often it occurs or why it occurs. In these instances, our greatest fear is "therapy-induced neuroendocrine prostate cancer
SeosamhM
in
Advanced Prostate Cancer
10 months ago
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New Diagnosis of PBC and Prescribed URSO
Hello Everyone, I recently was diagnosed with PBC and went to see a GI doctor who recommended I start taking URSO. My bloodwork shows an elevated alk phos level (over time), positive AMA, GGT, DSDNA and I also was recently diagnosed last year with an MPN (myeloproliferative neoplasm) called essential
Hello Everyone, I recently was diagnosed with PBC and went to see a GI doctor who recommended I start taking URSO. My bloodwork shows an elevated alk phos level (over time), positive AMA, GGT, DSDNA and I also was recently diagnosed last year with an MPN (myeloproliferative neoplasm) called essential
Toddyboo
in
PBC Foundation
4 months ago
Newly detectable PSA after prostatectomy: RT + ADT planned; add Erleada?
Diagnosed 12/21, PSA 7, negative PSMA PET. Radical prostatectomy with extended lymph node dissection in Mar 2022. Gleason 4+5, +cribriform, +intraductal, + bilat SVI, +ECE. Margins negative (barely) and 1/34 lymph nodes positive with very small focus of cancer. PSA was undetectable until Jun 2023, then
Diagnosed 12/21, PSA 7, negative PSMA PET. Radical prostatectomy with extended lymph node dissection in Mar 2022. Gleason 4+5, +cribriform, +intraductal, + bilat SVI, +ECE. Margins negative (barely) and 1/34 lymph nodes positive with very small focus of cancer. PSA was undetectable until Jun 2023, then
Brokedown_Palace
in
Advanced Prostate Cancer
10 months ago
Help with trying to close the gap between FT4/3
I’ve been tweaking Metavive dose and type (bovine and porcine) to try to raise FT4. It’s now at 40% and I’m happy with that because it’s risen from 12% but my FT3 is now 100%, which I don’t want - although I don’t feel over medicated at the moment Test was done as per protocol and I’d been on this
I’ve been tweaking Metavive dose and type (bovine and porcine) to try to raise FT4. It’s now at 40% and I’m happy with that because it’s risen from 12% but my FT3 is now 100%, which I don’t want - although I don’t feel over medicated at the moment Test was done as per protocol and I’d been on this
Noelnoel
in
Thyroid UK
4 months ago
FBC Test results help please
Hi, I mainly hang around the thyroid forum and a bit on here as I've injected B12 in the past. I have a friend who has had his thyroid removed last year and is struggling with liver and kidney function and GP isnt helping much. I'm trying to get him to ask GP for B12, Ferritin, Folate and vit D to be
Hi, I mainly hang around the thyroid forum and a bit on here as I've injected B12 in the past. I have a friend who has had his thyroid removed last year and is struggling with liver and kidney function and GP isnt helping much. I'm trying to get him to ask GP for B12, Ferritin, Folate and vit D to be
tzracer
in
Pernicious Anaemia Society
4 months ago
Brain metastasis
New (Portuguese) anecdotal case study below. [1] When I began reading PCa studies on PubMed, I saw a lot of cell studies that used LNCaP (from a lymph PCa cell), PC3 (from a bone PCa cell) &/or DU145 (supposedly a brain met cell, but now described as "derived from a central nervous system metastasis
New (Portuguese) anecdotal case study below. [1] When I began reading PCa studies on PubMed, I saw a lot of cell studies that used LNCaP (from a lymph PCa cell), PC3 (from a bone PCa cell) &/or DU145 (supposedly a brain met cell, but now described as "derived from a central nervous system metastasis
pca2004
in
Fight Prostate Cancer
10 months ago
AUA 2023: PSA Response and Time-to-Castration Resistance Among Patients with mCSPCa Initiated on Apalutamide, Enzalutamide, or Abiraterone
The objective of this study was to describe a “real-world” experience of mCSPC patients treated with apalutamide, enzalutamide, and abiraterone acetate, with a focus on PSA response and development of castration resistance outcomes. This study identified patients with mCSPC newly initiated on apalutamide
The objective of this study was to describe a “real-world” experience of mCSPC patients treated with apalutamide, enzalutamide, and abiraterone acetate, with a focus on PSA response and development of castration resistance outcomes. This study identified patients with mCSPC newly initiated on apalutamide
skiingfiend
in
Advanced Prostate Cancer
10 months ago
Slow Release T3 - SRT
Hi, My Dr has offered me Slow Release T3 or Sustained Release T3. I'm happy to try it, but it's expensive, so I wanted to gather peoples thoughts and experience before I proceed. Many thanks.
Hi, My Dr has offered me Slow Release T3 or Sustained Release T3. I'm happy to try it, but it's expensive, so I wanted to gather peoples thoughts and experience before I proceed. Many thanks.
joey82
in
Thyroid UK
4 months ago
Flare
Thursday, my husband had his follow-up appointment with Oncologist. I was very alarmed at some of his blood test results. His PSA went up to 1600. Doctor said other blood work was to be expected. I researched surged in PSA and found this, The PSA flare is a well-known phenomenon. The post chemotherapy
Thursday, my husband had his follow-up appointment with Oncologist. I was very alarmed at some of his blood test results. His PSA went up to 1600. Doctor said other blood work was to be expected. I researched surged in PSA and found this, The PSA flare is a well-known phenomenon. The post chemotherapy
MsHope
in
Advanced Prostate Cancer
5 months ago
Heartened to know I am not alone in the struggles caused by pramipexole
I have had RLS and PLMD as long as I can remember. I’m sure all of those nights I struggled with symptoms as a child that were brushed off as growing pains…RLS. My mom suffers mildly. Unfortunately, both of my daughters also have many challenges that began as teens. What I’ve been through is so complex
I have had RLS and PLMD as long as I can remember. I’m sure all of those nights I struggled with symptoms as a child that were brushed off as growing pains…RLS. My mom suffers mildly. Unfortunately, both of my daughters also have many challenges that began as teens. What I’ve been through is so complex
SleeplessinNC
in
Restless Legs Syndrome
4 months ago
Bakers cysts
Hi, does anyone have or have knowledge on bakers cysts behind knees? I haven't been diagnosed with them but my own googling of symptoms and images of them look exactly like my knees look like. Swollen lumps behind knees, sore to touch, stiff, limited movement. I'm getting bloods done tomorrow testing
Hi, does anyone have or have knowledge on bakers cysts behind knees? I haven't been diagnosed with them but my own googling of symptoms and images of them look exactly like my knees look like. Swollen lumps behind knees, sore to touch, stiff, limited movement. I'm getting bloods done tomorrow testing
Monkey321
in
PMRGCAuk
4 months ago
Graves lack of appetite & feeling very low.
I have my follow up endo appointment on 4th March by telephone to discuss my bloods which I need to have taken again next week. I was diagnosed on 22nd January with graves, the GP requested the Trab test back in October but it was refused, it was only after I’d seen the endo that the test was the retaken
I have my follow up endo appointment on 4th March by telephone to discuss my bloods which I need to have taken again next week. I was diagnosed on 22nd January with graves, the GP requested the Trab test back in October but it was refused, it was only after I’d seen the endo that the test was the retaken
Mah43
in
Thyroid UK
4 months ago
Blood work
Hey I've been diagnosed with hypothyroidism for just over a year now, but recent bloods have been taken for blood count and iron etc my haemoglobin is 122 ( 122-165 ) Ferritin 18 (13-250 ) B12 - 437 ( 197-771 ) Folate 4.7 ( 3.9-26.8 ) although under blood work it says folate comment: folate maybe falsly
Hey I've been diagnosed with hypothyroidism for just over a year now, but recent bloods have been taken for blood count and iron etc my haemoglobin is 122 ( 122-165 ) Ferritin 18 (13-250 ) B12 - 437 ( 197-771 ) Folate 4.7 ( 3.9-26.8 ) although under blood work it says folate comment: folate maybe falsly
Jojomcc
in
Thyroid UK
4 months ago
Watching House
I am off on a long weekend (tomorrow I go back to work), and watching House on Netflix. Funny how they focus on positive ANA for lupus on this. Of course it is never lupus, but the irony is, when you don’t tests positive on ANA - it can’t be lupus. BUT, if people test positive for ANA, you are told
I am off on a long weekend (tomorrow I go back to work), and watching House on Netflix. Funny how they focus on positive ANA for lupus on this. Of course it is never lupus, but the irony is, when you don’t tests positive on ANA - it can’t be lupus. BUT, if people test positive for ANA, you are told
Willow7733
in
LUPUS UK
4 months ago
can you pls sugest a site to buy other brands of levothyroxine
i am interested of buying on line thyroxine tirosit or other bransds apart from euthyrox ot lt4 pls suggest a site tks
i am interested of buying on line thyroxine tirosit or other bransds apart from euthyrox ot lt4 pls suggest a site tks
morcan54
in
Thyroid UK
4 months ago
Start from scratch
Great advice here! So I concentrated on my daughter’s health now to me. After flu I’ve gone to my gp to request the T3 as well as full blood count etc but they have refused the T3 So I placed an order for my private tests as recommended here and will keep you updated as to my progress
Great advice here! So I concentrated on my daughter’s health now to me. After flu I’ve gone to my gp to request the T3 as well as full blood count etc but they have refused the T3 So I placed an order for my private tests as recommended here and will keep you updated as to my progress
MissWilliams
in
Thyroid UK
4 months ago
Is it normal?
I know I am probably repeating myself but my anxiety is so bad and frightening now I need some comfort and reassurance please. I am so isolated and very alone with all this Is it normal to have palpitations about an hour after taking any dose of T3? I have noticed it a few times but just put it down
I know I am probably repeating myself but my anxiety is so bad and frightening now I need some comfort and reassurance please. I am so isolated and very alone with all this Is it normal to have palpitations about an hour after taking any dose of T3? I have noticed it a few times but just put it down
Jefner
in
Thyroid UK
4 months ago
Hypo on Aristo
I have been taking 62.5 mcg mercury pharma plus 15T3 for a couple of years Every time I try and increase the Thyroxine I get itchy eyes and a runny nose ( with stomach pain) so eventually I got a prescription for Aristo.. but since being on it I am so hypothyroid, I’m struggling to walk and spend most
I have been taking 62.5 mcg mercury pharma plus 15T3 for a couple of years Every time I try and increase the Thyroxine I get itchy eyes and a runny nose ( with stomach pain) so eventually I got a prescription for Aristo.. but since being on it I am so hypothyroid, I’m struggling to walk and spend most
Bean101
in
Thyroid UK
4 months ago
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