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Experiences with
Arrhythmogenic right ventricular cardiomyopathy (ARVC)
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Being negative about being positive
I am too cheerful, I don't struggle enough, I have it too easy, I don't suffer, I am too happy, wait until you get advanced, a bad advert for fundraising, must have an agenda..... believe me I have heard all of these and more.... I am 50 in two days time. It feels like a milestone of sorts, but only
I am too cheerful, I don't struggle enough, I have it too easy, I don't suffer, I am too happy, wait until you get advanced, a bad advert for fundraising, must have an agenda..... believe me I have heard all of these and more.... I am 50 in two days time. It feels like a milestone of sorts, but only
Hidden
in
Cure Parkinson's
11 years ago
Questran Light
I just wanted to know how long it takes before you get any relief from the Itching,only just started to take it and i am living in hope that it does help me,any other advice on taking this will really help me,hope it's helped all of you who take it. Take Care
I just wanted to know how long it takes before you get any relief from the Itching,only just started to take it and i am living in hope that it does help me,any other advice on taking this will really help me,hope it's helped all of you who take it. Take Care
cavi
in
PBC Foundation
11 years ago
Light Therapy abandoned
Title says it all really. Having cancelled session 3 last week, I turned up for what would've been session 4 this morning but the nurse said she was not prepared to continue. Basically she said that because I'd burnt after such a small dose (2 x 17 seconds) she could not see how I would ever build up
Title says it all really. Having cancelled session 3 last week, I turned up for what would've been session 4 this morning but the nurse said she was not prepared to continue. Basically she said that because I'd burnt after such a small dose (2 x 17 seconds) she could not see how I would ever build up
PamJK
in
MY SKIN
11 years ago
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I'm so excited!
Finally, after going down with a virus and reacting strongly to light therapy, I think I'm finally fit enough to get back out there tonight! I had got to the end of Week 2 (and done R3 twice already) but think I'll do R3 again tonight just to get me back into it. If that goes alright, I'll have
Finally, after going down with a virus and reacting strongly to light therapy, I think I'm finally fit enough to get back out there tonight! I had got to the end of Week 2 (and done R3 twice already) but think I'll do R3 again tonight just to get me back into it. If that goes alright, I'll have
PamJK
Graduate
in
Couch to 5K
11 years ago
Light Therapy - agony
Well last night, my thighs continued to swell until my knees disappeared amongst several folds of swollen skin. The skin was red raw, tight and painful. Sunburn without having seen the sun. Thankfully it has calmed down somewhat overnight but hasn't gone completely. And what an awful night
Well last night, my thighs continued to swell until my knees disappeared amongst several folds of swollen skin. The skin was red raw, tight and painful. Sunburn without having seen the sun. Thankfully it has calmed down somewhat overnight but hasn't gone completely. And what an awful night
PamJK
in
MY SKIN
11 years ago
Light Therapy for PLE - Session 2 of 8
Well it was a quick in and out at the hospital. Did discuss with the nurse the after-effects of the first session last Friday who seemed surprised by my rise in temperature. That's normal part of my PLE I find. She checked my legs were no longer showing any signs of redness, which they weren't so
Well it was a quick in and out at the hospital. Did discuss with the nurse the after-effects of the first session last Friday who seemed surprised by my rise in temperature. That's normal part of my PLE I find. She checked my legs were no longer showing any signs of redness, which they weren't so
PamJK
in
MY SKIN
11 years ago
Anyone every been told in years how much the Urso can slow down the progression of PBC?
The reason I ask is that I was told at my last appointment when I asked if I needed to go back on Urso( due to my Lft enymes being very elevated though Albumen normal and Bilirubin only slightly raised at 30) that even if I did go back on it, it may only slow down the progression by a year or two tops
The reason I ask is that I was told at my last appointment when I asked if I needed to go back on Urso( due to my Lft enymes being very elevated though Albumen normal and Bilirubin only slightly raised at 30) that even if I did go back on it, it may only slow down the progression by a year or two tops
littlemo
in
PBC Foundation
11 years ago
First light therapy + 10.5 hours.
Now feeling really crappy. Had a dental appointment this afternoon - check up and S&P. Pointed out a lump I have on my jaw and now another referral to another specialist at another hospital. :( But I digress. Came home from dentist feeling cold and shivering. Realised this is not the effects of
Now feeling really crappy. Had a dental appointment this afternoon - check up and S&P. Pointed out a lump I have on my jaw and now another referral to another specialist at another hospital. :( But I digress. Came home from dentist feeling cold and shivering. Realised this is not the effects of
PamJK
in
MY SKIN
11 years ago
Light Therapy
Well, I went for my first light therapy session this morning. It was a bit uncomfortable not being able to put any body lotion or moisturiser on after my shower but those were the instructions. My face felt so dry and my lips cracked in the cold wind. I wonder if a little lip salve would've been fine
Well, I went for my first light therapy session this morning. It was a bit uncomfortable not being able to put any body lotion or moisturiser on after my shower but those were the instructions. My face felt so dry and my lips cracked in the cold wind. I wonder if a little lip salve would've been fine
PamJK
in
MY SKIN
11 years ago
PLE
Finally got to the hospital this morning to discuss light therapy treatment. Start the actual sessions on Friday - two a week for 4 weeks. Just hope it helps. Feeling a bit anxious of the process - have to completely strip off apparently! - but I assume it's all sensitively done. Will let you know how
Finally got to the hospital this morning to discuss light therapy treatment. Start the actual sessions on Friday - two a week for 4 weeks. Just hope it helps. Feeling a bit anxious of the process - have to completely strip off apparently! - but I assume it's all sensitively done. Will let you know how
PamJK
in
MY SKIN
11 years ago
psoriasis ruining my life :(
hi, i developed psoriasis about 10 years ago, when me and my partner got together, it started on my head and is now on my head, ears, hands, elbows, belly, bum, knees and ankles :( i have tried every cream the doctor could prescribe and also got referred to a dermatology nurse, who wasnt very helpful
hi, i developed psoriasis about 10 years ago, when me and my partner got together, it started on my head and is now on my head, ears, hands, elbows, belly, bum, knees and ankles :( i have tried every cream the doctor could prescribe and also got referred to a dermatology nurse, who wasnt very helpful
louismummy2010
in
MY SKIN
11 years ago
light therapy
i have been having light therapy for several years due to psoriasis this latest treatment they have increased my time that im in the machine,i have never been in for so long,past treatments i only managed to stay in for a max of 4.5 mons but this treatment iv been in for 8.49 mins which was reduced
i have been having light therapy for several years due to psoriasis this latest treatment they have increased my time that im in the machine,i have never been in for so long,past treatments i only managed to stay in for a max of 4.5 mons but this treatment iv been in for 8.49 mins which was reduced
pickle1234
in
Fibromyalgia Action UK
11 years ago
Arghhhhhhhhhhhhhhhhhhhhh
The last couple of weeks have been so frustrating for so many reason, poor health is driving me to distraction, and after brief admission to hospital (apparently I know myself so well, that is quite okay to discharge me one hour after being admitted to hospital, despite being brought in by the big yellow
The last couple of weeks have been so frustrating for so many reason, poor health is driving me to distraction, and after brief admission to hospital (apparently I know myself so well, that is quite okay to discharge me one hour after being admitted to hospital, despite being brought in by the big yellow
Daxiemad
in
Lung Conditions Community Forum
11 years ago
No, no, no, the heart?!
Hello again peeps. I've been doing pretty well until now, but I've been hit hard by symptoms again. I've got an echo coming up next week, but I'm very worried so I need some pre-test advice please. As you can probably tell from the title of my post, I'm worried to no end! I have an echo coming up
Hello again peeps. I've been doing pretty well until now, but I've been hit hard by symptoms again. I've got an echo coming up next week, but I'm very worried so I need some pre-test advice please. As you can probably tell from the title of my post, I'm worried to no end! I have an echo coming up
Daxter
in
Anxiety Support
11 years ago
Dirty Weekend!
Boy have I got down and filthy dirty this weekend, and loved every single minute of it! Saturday morning was spent helping hubby cut up and bag the lopped part of my Cherry Tree. Hubby who normally does so much is still experiencing almost total role reversal, and I am loving it, whilst from time to
Boy have I got down and filthy dirty this weekend, and loved every single minute of it! Saturday morning was spent helping hubby cut up and bag the lopped part of my Cherry Tree. Hubby who normally does so much is still experiencing almost total role reversal, and I am loving it, whilst from time to
Daxiemad
in
Lung Conditions Community Forum
12 years ago
I'm back!
11 days since my discharge from the Royal Brompton, London for 10 days of IV's and drips for my Brittle Asthma. And since I have been home have made it a rule not to spend so much time in Cyber World, 10 days of breathing space (sorry no pun intended) gave me plenty of time to realise how little of
11 days since my discharge from the Royal Brompton, London for 10 days of IV's and drips for my Brittle Asthma. And since I have been home have made it a rule not to spend so much time in Cyber World, 10 days of breathing space (sorry no pun intended) gave me plenty of time to realise how little of
Daxiemad
in
Lung Conditions Community Forum
12 years ago
Am an oldie on here by sounds of things in relation to how long have had pbc!
I was diagnosed in 2002 with pbc having suffered the symptoms of it namely horrendous itch, fatigue and joint pains, the worst of these for me being the itch. I have had the itch to a greater and lesser degree day and night (worse at night) for the past 11 almost 12 yrs. On the whole I learnt
I was diagnosed in 2002 with pbc having suffered the symptoms of it namely horrendous itch, fatigue and joint pains, the worst of these for me being the itch. I have had the itch to a greater and lesser degree day and night (worse at night) for the past 11 almost 12 yrs. On the whole I learnt
littlemo
in
PBC Foundation
12 years ago
Is there anyone on here who has had pbc for more than 10yrs, suffered with the itch but never been on urso?
I have suffered with the dreaded itch for 11yrs and have been on urso all this time (apart from first 3 months of my pregnancy 6 yrs ago). I have managed to live with it all this time and using questran light has helped but have never gotten rid of it completely. Then from sep 2011- aug 2012 it became
I have suffered with the dreaded itch for 11yrs and have been on urso all this time (apart from first 3 months of my pregnancy 6 yrs ago). I have managed to live with it all this time and using questran light has helped but have never gotten rid of it completely. Then from sep 2011- aug 2012 it became
littlemo
in
PBC Foundation
12 years ago
Suntan Sea and ICU
I had come home from a wonderful 2 week holiday in Spain with my wife. I felt refreshed and relaxed ready for the working months ahead. With the aim to earn enough to pay the bills and think of where to go next year for our holiday. At least that was the plan and like most well laid plans, things
I had come home from a wonderful 2 week holiday in Spain with my wife. I felt refreshed and relaxed ready for the working months ahead. With the aim to earn enough to pay the bills and think of where to go next year for our holiday. At least that was the plan and like most well laid plans, things
Offcut
in
ICUsteps
12 years ago
Litebook Elite Lamp
Today's Sunday Mail carries a report in the health section about the above lamp. This review specifically states that use of this lamp, which is not cheap, 'can reduce the symptoms of Parkinsons'. It also says that a study conducted in Germany found that 'light therapy significantly improved tremors
Today's Sunday Mail carries a report in the health section about the above lamp. This review specifically states that use of this lamp, which is not cheap, 'can reduce the symptoms of Parkinsons'. It also says that a study conducted in Germany found that 'light therapy significantly improved tremors
Court
in
Cure Parkinson's
12 years ago
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