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Help us develop a new information resource on lupus and the menopause
We're developing new information resources about lupus and the menopause. We want to find out what people want to know about the topic and how they want to learn that information, for example through a booklet, a webinar, or a video. You can tell us your thoughts via our short survey: https://forms.gle
We're developing new information resources about lupus and the menopause. We want to find out what people want to know about the topic and how they want to learn that information, for example through a booklet, a webinar, or a video. You can tell us your thoughts via our short survey: https://forms.gle
Debbie_kinsey
Administrator
in
LUPUS UK
2 months ago
Restless Leg - Interesting Article
Article says iron is not getting across the BBB. Wonder if helps with PD.
They are trying to sell, but Interesting . I already take some of the things mentioned. Says I need Lactobacillus plantarum 299. My probiotic has Lactobacillus plantarum but does not state 299. The article has links, but
Article says iron is not getting across the BBB. Wonder if helps with PD.
They are trying to sell, but Interesting . I already take some of the things mentioned. Says I need Lactobacillus plantarum 299. My probiotic has Lactobacillus plantarum but does not state 299. The article has links, but
Gcf51
in
Cure Parkinson's
6 months ago
The Flare That Keeps on Giving
I was diagnosed with PMR in August, 2022. I also have multiple sclerosis, autoimmune thyroid disease (Grave’s) and Sjogren’s Disease. With a few ups and downs when I had to temporarily increase the dose before dropping back to just above where I had been before the flare, my taper using DL’s slow 5 week
I was diagnosed with PMR in August, 2022. I also have multiple sclerosis, autoimmune thyroid disease (Grave’s) and Sjogren’s Disease. With a few ups and downs when I had to temporarily increase the dose before dropping back to just above where I had been before the flare, my taper using DL’s slow 5 week
Donna5658
in
PMRGCAuk
2 months ago
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aspirin
good morning 😊 I came home yesterday after a mitral valve repair on Monday. I’ve only just read through all my discharge letters, as I was not ready to plough through it all yesterday. They explained to me I had to take aspirin every day now for the rest of my life, in the letter they say it’s for
good morning 😊 I came home yesterday after a mitral valve repair on Monday. I’ve only just read through all my discharge letters, as I was not ready to plough through it all yesterday. They explained to me I had to take aspirin every day now for the rest of my life, in the letter they say it’s for
Plum44
in
British Heart Foundation
1 year ago
Nutrition and Autoimmune Thyroid disease: An expert talk
[i]TONIGHT: Join Nicole Goode, (Sunday 21st April 2024, 7pm) for an informative and engaging online expert talk on nutrition and autoimmune thyroid disease![/i] [i]Book your place via Eventbrite at: [/i] https://www.eventbrite.co.uk/e/nutrition-and-autoimmune-thyroid-disease-talk-by-nicole-goode-registration
[i]TONIGHT: Join Nicole Goode, (Sunday 21st April 2024, 7pm) for an informative and engaging online expert talk on nutrition and autoimmune thyroid disease![/i] [i]Book your place via Eventbrite at: [/i] https://www.eventbrite.co.uk/e/nutrition-and-autoimmune-thyroid-disease-talk-by-nicole-goode-registration
helvella
Thyroid UK
in
Thyroid UK
2 months ago
SteveN
I am posting this here because the site won’t let me do anything else! I wanted to know if there are any Lyme disease sufferers on here, or any with ADHD/Autism? I am a Lyme disease sufferer and have spent about the last 5 years trying to test a theory about finding/engineering a treatment or cure.
I am posting this here because the site won’t let me do anything else! I wanted to know if there are any Lyme disease sufferers on here, or any with ADHD/Autism? I am a Lyme disease sufferer and have spent about the last 5 years trying to test a theory about finding/engineering a treatment or cure.
Weavernat
in
Pernicious Anaemia Society
6 months ago
Stomach rumbling growling and pain
Hi, i have a lot of stomach growling and rumbling which is extremely loud and can be heard from far away. People have commented on hearing a lot of noise and it makes me uncomfortable. I also get a lot of pain. The rumbling/growling happens most of the day and last quite a long time between intervals
Hi, i have a lot of stomach growling and rumbling which is extremely loud and can be heard from far away. People have commented on hearing a lot of noise and it makes me uncomfortable. I also get a lot of pain. The rumbling/growling happens most of the day and last quite a long time between intervals
spiderman5674
in
IBS Network
6 months ago
Lupus rash?
I have suffered many different symptoms for a period approaching 15 years. About 4 years ago my GP said that I had too many symptoms across multiple systems and there was nothing more he could do for me. He referred me to the hospital but I’m still waiting four years down the line. I discussed Lupus
I have suffered many different symptoms for a period approaching 15 years. About 4 years ago my GP said that I had too many symptoms across multiple systems and there was nothing more he could do for me. He referred me to the hospital but I’m still waiting four years down the line. I discussed Lupus
Dontknowwhattodo
in
LUPUS UK
2 months ago
Good news on memory following B12 treatment
Hi, some of the regular posters may remember me posting in absolute despair last autumn about my husband’s cognitive issues and extreme memory loss. I’m now posting an update in case it helps anyone else in his position. In summary he had experienced symptoms over a couple of decades since he was twenty
Hi, some of the regular posters may remember me posting in absolute despair last autumn about my husband’s cognitive issues and extreme memory loss. I’m now posting an update in case it helps anyone else in his position. In summary he had experienced symptoms over a couple of decades since he was twenty
Zmalp
in
Pernicious Anaemia Society
2 months ago
Is nmCRPC potentially curable?
I would appreciate any input on this. I searched the internet and found this article from Fred Saad: Treatment of nonmetastatic castration-resistant prostate cancer: focus on second-generation androgen receptor inhibitors https://www.nature.com/articles/s41391-020-00310-3 I couldn't find anything
I would appreciate any input on this. I searched the internet and found this article from Fred Saad: Treatment of nonmetastatic castration-resistant prostate cancer: focus on second-generation androgen receptor inhibitors https://www.nature.com/articles/s41391-020-00310-3 I couldn't find anything
Seasid
in
Advanced Prostate Cancer
6 months ago
Remission
In remission since May 2018. All PSA testing from oncologist has ranged from .04 to .05. Why not have my internist take my PSA yearly? Or is going to my oncologist for testing the better way to go?
In remission since May 2018. All PSA testing from oncologist has ranged from .04 to .05. Why not have my internist take my PSA yearly? Or is going to my oncologist for testing the better way to go?
Coupe31
in
Advanced Prostate Cancer
6 months ago
Cirrhosis
My friend was diagnosed two years ago and has been relatively healthy since. Losing a lot of weight, eating healthy and rarely drinking. He has been feeling sick lately and feeling bloated. Also feeling pain around the liver area. This seems to come and go. He was told a few months ago his spleen was
My friend was diagnosed two years ago and has been relatively healthy since. Losing a lot of weight, eating healthy and rarely drinking. He has been feeling sick lately and feeling bloated. Also feeling pain around the liver area. This seems to come and go. He was told a few months ago his spleen was
lifebegins53
in
British Liver Trust
6 months ago
Blood test positive lupus
Recently had bloods done due to a few skin rashes and I looked at the results and some say lupus positive I need more bloods done tomorrow but haven't spoke to the doctor yet but looked online about lupus and a lot of what I'm having seems to all add up to lupus my head is all over the place
Recently had bloods done due to a few skin rashes and I looked at the results and some say lupus positive I need more bloods done tomorrow but haven't spoke to the doctor yet but looked online about lupus and a lot of what I'm having seems to all add up to lupus my head is all over the place
Debz1974
in
LUPUS UK
2 months ago
Parathyroid
I am booked in for a Parathyroidectomy and I just wondered whether my APS, as an autoimmune disease, could have had something to do with parathyroid condition? Thank you.
I am booked in for a Parathyroidectomy and I just wondered whether my APS, as an autoimmune disease, could have had something to do with parathyroid condition? Thank you.
Raschen
in
Hughes Syndrome APS Forum
2 months ago
Blood results help
Hi I have had blood test tsh is one (range 0.4 to 5) and T4 is 14 ( range is 9 to 19). Also had an ultrasound which showed altered echotexture but no enlargement of thyroid. Are these results OK? Have symptoms of underactive thyroid but results all in range. Thanks
Hi I have had blood test tsh is one (range 0.4 to 5) and T4 is 14 ( range is 9 to 19). Also had an ultrasound which showed altered echotexture but no enlargement of thyroid. Are these results OK? Have symptoms of underactive thyroid but results all in range. Thanks
Lolly2564
in
Thyroid UK
2 months ago
Christmas
Wishing you all a very Happy 🎄 and a prosperous New Year in 2024. Do hope you are well enough to enjoy it . I am now Covid free but still coughing , sounds like croup. Have , had to cancel our plans for Christmas. Fatigue and still contagious . Having a quite one. Thank you all for your support and
Wishing you all a very Happy 🎄 and a prosperous New Year in 2024. Do hope you are well enough to enjoy it . I am now Covid free but still coughing , sounds like croup. Have , had to cancel our plans for Christmas. Fatigue and still contagious . Having a quite one. Thank you all for your support and
Stavrou1
in
CLL Support
6 months ago
Other blood results
I now have more results Serum folate 14.3 (3.1-17.5) Ferritin 138 (13-150) Iron 14 (5-28) B12 280 (200-940) Since they are in the range ‘everything is normal’! The coeliac one was clear so I can now try gluten free for 3 months to see if it makes any changes. But I am still tired, muscle aches
I now have more results Serum folate 14.3 (3.1-17.5) Ferritin 138 (13-150) Iron 14 (5-28) B12 280 (200-940) Since they are in the range ‘everything is normal’! The coeliac one was clear so I can now try gluten free for 3 months to see if it makes any changes. But I am still tired, muscle aches
Purple450
in
Thyroid UK
2 months ago
new member
hi everyone l joined this group today was wondering could l get any advice, am 38 been recently diagnosed with underactive thyroid l am currently on 100mg of Lev tablets but l still feel tired l have put on so much weigh in past few years and didn’t know what was causing it, I have bought the semuglutide
hi everyone l joined this group today was wondering could l get any advice, am 38 been recently diagnosed with underactive thyroid l am currently on 100mg of Lev tablets but l still feel tired l have put on so much weigh in past few years and didn’t know what was causing it, I have bought the semuglutide
Preciouspearl
in
Thyroid UK
2 months ago
Lupus re-diagnosis UCTD
Hello All, so when I last posted I had been to the rheumatologist Prof X and told my bloods were not suggestive of lupus but he did not suggest want condition could be the underlying cause of my symptoms. This morning he chose not to see me, instead I saw a very nice female doctor in clinical research
Hello All, so when I last posted I had been to the rheumatologist Prof X and told my bloods were not suggestive of lupus but he did not suggest want condition could be the underlying cause of my symptoms. This morning he chose not to see me, instead I saw a very nice female doctor in clinical research
KeepingUpBeat
in
LUPUS UK
2 months ago
Study: Depression is largely prevalent, but undiagnosed in SLEResearchers in Pakistan surveyed 40 people with SLE using PHQ-9 scale
Depression is highly prevalent among people with systemic lupus erythematosus (SLE), but often goes undiagnosed, according to a single center study in Pakistan. The “treatment of depression is a vital component in the management of these patients and should be offered where appropriate,” the researchers
Depression is highly prevalent among people with systemic lupus erythematosus (SLE), but often goes undiagnosed, according to a single center study in Pakistan. The “treatment of depression is a vital component in the management of these patients and should be offered where appropriate,” the researchers
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 months ago
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