Posts - PBC Foundation | HealthUnlocked

I hope you all take the time to read Ipsen Pharmaceutical's announcements concerning PBC drugs.. Just google ' Ipsen Pharmaceutical announcement' ...........

Administrator•2 days ago

5 Replies

Please read...

I hope you all take the time to read Ipsen Pharmaceutical's announcements concer...

Administrator•2 days ago

this email is from The Foundation.... check their website as well. Hi everyone The next virtual meeting for the PBC community will take place on Friday...

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Do you belong to The PBC Foundation?

this email is from The Foundation.... check their website as well. Hi everyon...

Administrator•2 days ago

Over the past couple weeks the topics of several aspects of PBC have come up - brain fog and how to deal with it - + AMA and normal liver enzymes - itching...

Sharing in helpful

Over the past couple weeks the topics of several aspects of PBC have come up - ...

Administrator•2 days ago

What causes you the most stress since your diagnosis? How do you manage your stress?

Thursday's Thoughts

What causes you the most stress since your diagnosis? How do you manage your ...

Administrator•3 days ago

Hi members, just after a bit of advice please. I have hashimoto's and due to blood tests which were requested by my endocrinologist, positive mitochondrial...

Positive mitochondrial antibodies m2 but normal liver enzymes

Hi members, just after a bit of advice please. I have hashimoto's and due to blo...

Ladysmith53

•3 days ago

14 Replies

Thank you !

Thank you so much to those of you that responded to 'Tuesday Tip' regarding brain fog. I hope to read more of your stories and experiences. If you have found...

Thank you so much to those of you that responded to 'Tuesday Tip' regarding brai...

Administrator•3 days ago

platelets These are very small blood cells (really fragments of cells) that are responsible for clotting of our blood. In PBC, they help...

Wednesday's Word

platelets These are very small blood cells (really fragments of cells) that ar...

Administrator•3 days ago

Who is dealing with brain fog? What are you experiencing? How are you dealing with it?

Tuesday 'Tips'

Who is dealing with brain fog? What are you experiencing? How are you dealing wi...

from Dr Jones' book - Cholestyramine (Questran) is the first line treatment for the itching. If this doesn't work, then taking Rifampicin is the next line...

Administrator•5 days ago

14 Replies

more of Dr. Jones' '2 minutes versions'

from Dr Jones' book - Cholestyramine (Questran) is the first line treatment fo...

Administrator•5 days ago

Oh my, I am so sorry I nearly forgot post this. No excuses... What have you done lately to take care of yourself mentally and/or physically?...

Monday "Me"

Oh my, I am so sorry I nearly forgot post this. No excuses... What have you d...

Administrator•5 days ago

Curious if anyone experiences random liver area discomfort. Not pain, just a tender discomfort. Last usually 7 or so hours, then its good. Causes? PBC since...

Random liver discomfort

Curious if anyone experiences random liver area discomfort. Not pain, just a te...

TanGram

•6 days ago

8 Replies

anybody?

Someone who facilitates another support group is looking for someone from Algeria - or someone who speaks Arabic or French. We just need to connect some folks...

Someone who facilitates another support group is looking for someone from Algeri...

Administrator•7 days ago

We are asking for your help. 4/6/2024 Very directly. Very succinctly. We need your help. This is the most important thing the Foundation has ever worked...

Important from The PBC Foundation....

We are asking for your help. 4/6/2024 Very directly. Very succinctly. We need...

from the PBC Foundation...... We Need You! We are calling for change and your voice must be heard . If you are part of the #PBCCommunity a patient, family...

Administrator•8 days ago

13 Replies

Please Read!

from the PBC Foundation...... We Need You! We are calling for change and yo...

Administrator•8 days ago

If you could only listen to one song for the rest of your life, what would it be?

Friday Fun question

If you could only listen to one song for the rest of your life, what would it be...

Can lichen planus affect your skin ? I do not have anything orally, but this sure look suspicious.

Administrator•9 days ago

5 Replies

Lichen Planus

Can lichen planus affect your skin ? I do not have anything orally, but this su...

What - if anything - has been positive about being diagnosed with PBC?

•9 days ago

4 Replies

Thursday's Thoughts

Urso responder........ Right now the criteria used is that the patients' alkaline phosphatase result is LESS than 1.67 times the upper...

Administrator•10 days ago

9 Replies

Wednesday's Word

Urso responder........ Right now the criteria used is that the patients' alkali...

Why do you think so many of us still have a difficult time making time for ourselves? Why is it so hard to just do something that takes...

Administrator•11 days ago

13 Replies

Tuesday's Thoughts

Why do you think so many of us still have a difficult time making time for ourse...

Several times a week I want to share some of Dr. Jones' statements regarding PBC These are all taken from his book The Definitive Guide for Patients Who...

Administrator•11 days ago

7 Replies

Dr. Jones' Knowledge

Several times a week I want to share some of Dr. Jones' statements regarding PBC...

What have you done for yourself in the last week or so? How have you taken care of 'you' either physically or mentally lately?...

Administrator•12 days ago

2 Replies

It's Monday 'Me'....

What have you done for yourself in the last week or so? How have you taken care...

Administrator•13 days ago

I have been on finofibrate and rifampcin for my itch but neither helped. My pharmacist told me colesevelam can help. Has anyone here tried it, and was it...

Colesevelam for itch

I have been on finofibrate and rifampcin for my itch but neither helped. My phar...

Carly92

•14 days ago

6 Replies

Friday Fun Question

Anyone have a bucket list? What's at the top of it?

i am actually writing this for a young lady whom i found out has PBC and is a former student. She is not fifty, and seems to have an aggressive form of PBC....

Administrator•16 days ago

6 Replies

Bruising easily

i am actually writing this for a young lady whom i found out has PBC and is a fo...

i am actually writing this for a young lady whom i found out has PBC and is a former student. She is not fifty, and seems to have an aggressive form of PBC....

•16 days ago

8 Replies

Bruising easily

i am actually writing this for a young lady whom i found out has PBC and is a fo...

DO’S Tepid showers Dove or baby soap/shower gels Exfoliating gloves using quick, easy strokes Coconut oil in the shower – and afterwards Meds –...

•16 days ago

1 Reply

Hints regarding itching...

DO’S Tepid showers Dove or baby soap/shower gels Exfoliating gloves using qui...

What makes you think you are doing 'ok' since diagnosis? Do you feel you are 'ok'? By 'ok, that includes mentally as well as...

Administrator•16 days ago

2 Replies

Thursday's Thoughts

What makes you think you are doing 'ok' since diagnosis? Do you feel you are ...

Administrator•17 days ago

i am at wit’s end with this pain, that appears much worse at night~. Is this a symptom? I am in agony

Pain upper thighs, lower back

i am at wit’s end with this pain, that appears much worse at night~. Is this a s...