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Pernicious Anaemia Society

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feeling desperate.

Ok so I am hopefully going to be starting injecting every other day soon (possibly end of this week), but can’t just yet and I don’t know how to cope. I ain’t...

Ok so I am hopefully going to be starting injecting every other day soon (possib...

Gobbozoid

•4 hours ago

2 Replies

Case Report of PA with SACD in Japan

"Seventy-Three-Year-Old Man with Pernicious Anemia Complicated by Subacute Combined Spinal Cord Degeneration and Cognitive Impairment"...

"Seventy-Three-Year-Old Man with Pernicious Anemia Complicated by Subacute Combi...

Technoid

•17 hours ago

5 Replies

trying to get B12 SI schedule right for me

hi all Just trying to get my SI schedule right to feel my best. I live in the USA so tx protocol is once a month B12 injection. This doesn’t work for me. I...

hi all Just trying to get my SI schedule right to feel my best. I live in the...

Schpsych2414

•20 hours ago

1 Reply

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Does fear play a role with pernicious anemia?

Hey guys, I hope this message finds you well. It's good to have a place to come that someone has some understanding of what you're going through! I messaged...

Hey guys, I hope this message finds you well. It's good to have a place to come ...

25092

•22 hours ago

3 Replies

Is it B12 anemia? I’m confused.

Hello all, I’m new here and not sure if I need to pursue some concerns I have with my health so wondered if anyone could possible give me some......

Hello all, I’m new here and not sure if I need to pursue some concerns I have wi...

BlueOkapi

•23 hours ago

18 Replies

Magnesium supplements

Hi everyone, if you have low stomach acid is it wise to take magnesium supplements, just wondering 🤔 thanks

Hi everyone, if you have low stomach acid is it wise to take magnesium supplemen...

Helliborous

•23 hours ago

5 Replies

iron infusion + b12 injection side effects

Had my iron infusion and first B12 injection yesterday and this evening I have diarrhoea. Anyone else had this side effect after?

Had my iron infusion and first B12 injection yesterday and this evening I have d...

Chickens44

•2 days ago

4 Replies

B12 levels advice

I have been trying to raise my B12 levels for a number of years (since i was diagnosed hypothyroid and advised B12 levels needed to be higher). I have been...

I have been trying to raise my B12 levels for a number of years (since i was dia...

Threes

•3 days ago

14 Replies

Supplies

Hello. I found the helpful post with b12 supplies and have ordered panpharma b12. I hope I've got it right! I used the code so should be ok I'm just very...

Hello. I found the helpful post with b12 supplies and have ordered panpharma b12...

RedOne1

•3 days ago

19 Replies

Next steps advice, B12D

After completing all relevant blood tests (everything fine apart from low iron and 165 ng/L) I have completed my 6 loading doses 2 weeks ago and generally do...

After completing all relevant blood tests (everything fine apart from low iron a...

Sailing63

•3 days ago

1 Reply

What is folic acid used for?

For other reasons, nothing to do with Pernicious Anaemia, I was checking the Patient Information Leaflet for a UK folic acid product. And I noticed this bit:...

For other reasons, nothing to do with Pernicious Anaemia, I was checking the Pat...

helvella

•3 days ago

17 Replies

Need help

Hi i was disgosed with PA at 17years old iv been havin injections every 3 months since and im 26 now .. was wondering do they have to give me regular check ups...

Hi i was disgosed with PA at 17years old iv been havin injections every 3 months...

Courts12

•4 days ago

4 Replies

Still tired

5/30/2024 Iron: Normal range: 50 - 212 mcg/dL 101 TIBC: Normal range: 228 - 428 mcg/dL 314 % Percent Saturation: Normal range: 20 - 50 % 32...

5/30/2024 Iron: Normal range: 50 - 212 mcg/dL 101 TIBC: Normal range: 22...

djrpdx

•4 days ago

1 Reply

Dr agrees to test B12 but not blood test...

Hi All, on going (20 years) of discussion with GP about exhaustion. He agreed to injections for a while but that stopped during Covid. I've injected myself...

Hi All, on going (20 years) of discussion with GP about exhaustion. He agreed t...

auldreekie

•4 days ago

8 Replies

Can anyone recommend an MD who understands PA?

I know most of my friends here are not in the US, but I'm hoping for a referral to a doctor (any specialty) in the US (particularly in the New York/Long...

I know most of my friends here are not in the US, but I'm hoping for a referral...

Greeneyecolor

•4 days ago

18 Replies

temperature/anxiety and excess urination.

so I’ve just had a second lot of loading doses. All was going well however I got sick towards the end of these last week. Before I got sick all my B12 symptoms...

so I’ve just had a second lot of loading doses. All was going well however I got...

Gobbozoid

•4 days ago

8 Replies

understanding test results

recently been told my b12 levels are on the low side and have had 4 out of my 5 loading doses. Just checked the rest of my blood test results and some of my...

recently been told my b12 levels are on the low side and have had 4 out of my 5 ...

Greydonkey

•4 days ago

6 Replies

”Placebo effect”

my doctor just told me it’s placebo effect having tiredness, pins and needles, dizziness etc before having my injection at the 12 week point. I’ve never gotten...

my doctor just told me it’s placebo effect having tiredness, pins and needles, d...

Ellamae2

•5 days ago

20 Replies

please help with figuring out what is wrong

I posted recently that my Mom’s Hemoglobin is dropping, same as RBC and Hemocrit, while MCV and MCH are high. She was diagnosed with Macrocytic Anemia but...

I posted recently that my Mom’s Hemoglobin is dropping, same as RBC and Hemocrit...

Simonapo

•5 days ago

16 Replies

Current Trial

Current Trial 1.5 mg hydroxocobalamin/B12 SC injection at 3mg/ml concentration, 1.5mg injection methylcobalamin/B12 at 3mg/ml concentration, 1.5mg injection...

Current Trial 1.5 mg hydroxocobalamin/B12 SC injection at 3mg/ml concentration, ...

WIZARD6787

•5 days ago

Be the first to reply

B12 and anxiety

Just posted but forgot to add this.. Since loading doses still having headaches, the pins and needles have stopped but I feel weird I think it's anxiety my...

Just posted but forgot to add this.. Since loading doses still having headaches,...

gemmacampbell

•5 days ago

12 Replies

Folic acid and iron

Just finished loading doses for b12 still feel awful. My folate is low so does that mean I need to take folic acid tablets or iron tablets?

Just finished loading doses for b12 still feel awful. My folate is low so does t...

gemmacampbell

•5 days ago

11 Replies

Lyme disease

I found out recently I have Lyme disease, that’s why I’ve been deficient in vitamin B12, Vitamin D and Iron. As Lyme makes you deficient in all three! I’m...

I found out recently I have Lyme disease, that’s why I’ve been deficient in vita...

qwertystar

•5 days ago

24 Replies

Guidance Given For Metformin Users

https://www.gov.uk/drug-safety-update/metformin-and-reduced-vitamin-b12-levels-new-advice-for-monitoring-patients-at-risk

https://www.gov.uk/drug-safety-update/metformin-and-reduced-vitamin-b12-levels-n...

B12again

•5 days ago

2 Replies

1 1/2yrs of treatment and I’m getting worse again.

Need advice. I’m concerned. I was diagnosed with PA (lack IF via blood test) a year and a half ago. I have been on daily Hydroxo injections since. I...

Need advice. I’m concerned. I was diagnosed with PA (lack IF via blood test) ...

lb9999

•5 days ago

9 Replies

C-Reactive Protein Test

Good day everyone. Has anyone has their levels checked? Does high levels correlate with PA and Autoimmune Gastritis? Thank you

Good day everyone. Has anyone has their levels checked? Does high levels correl...

Canadian77

•6 days ago

3 Replies

extreme fatigue

After two years of treatments for Pernicious Anaemia I still struggle with fatigue. I've been working out and riding a bike as much as energy levels allow me....

After two years of treatments for Pernicious Anaemia I still struggle with fatig...

djrpdx

•6 days ago

21 Replies

B12 Deficiency, recently diagnosed, seeking advice.

Hi, I was initially diagnosed with carpal tunnel syndrome about 18 months ago, due to numbness, pins and needles and burning sensations in my left arm / hand...

Hi, I was initially diagnosed with carpal tunnel syndrome about 18 months ago, ...

Dfthbhjj

•6 days ago

21 Replies

Methylation to feel good

Hi Folks, Thank you for all the advice and words of encouragement. I’ve been reading a lot of papers on methylation and the effects on the body, below is an...

Hi Folks, Thank you for all the advice and words of encouragement. I’ve been re...

Karenedawson

•6 days ago

10 Replies

Is serum folate levels the level of b12?

I received this as a blood result 3 weeks after receiving my b12 injection but I am confused. Does this tell me the level of b12 in my blood or folate? There...

I received this as a blood result 3 weeks after receiving my b12 injection but I...

Lynne81

•7 days ago

5 Replies

Write a post or ask a question

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

feeling desperate.

Case Report of PA with SACD in Japan

trying to get B12 SI schedule right for me

Does fear play a role with pernicious anemia?

Is it B12 anemia? I’m confused.

Magnesium supplements

iron infusion + b12 injection side effects

B12 levels advice

Supplies

Next steps advice, B12D

What is folic acid used for?

Need help

Still tired

Dr agrees to test B12 but not blood test...

Can anyone recommend an MD who understands PA?

temperature/anxiety and excess urination.

understanding test results

”Placebo effect”

please help with figuring out what is wrong

Current Trial

B12 and anxiety

Folic acid and iron

Lyme disease

Guidance Given For Metformin Users

1 1/2yrs of treatment and I’m getting worse again.

C-Reactive Protein Test

extreme fatigue

B12 Deficiency, recently diagnosed, seeking advice.

Methylation to feel good

Is serum folate levels the level of b12?

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