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Good news - I am done with PMR!
I want to share some good news... finally my PMR has left me after more than 6 years (December 2016 it began). I had been tapering for the last 6 months but never managed to get below 1mg and still had flares needing to take up to 5mg. I had been very stressed being in an unhappy and emotionally abusive
I want to share some good news... finally my PMR has left me after more than 6 years (December 2016 it began). I had been tapering for the last 6 months but never managed to get below 1mg and still had flares needing to take up to 5mg. I had been very stressed being in an unhappy and emotionally abusive
thepainterlyone
in
PMRGCAuk
2 years ago
Full Cream Milk
Oh I love it! I have decided and ordered a tin of it to add to my low fat diet in which I have recently lost 2 lbs. My decision is not based on emotions. In fact one of our Holy Imams (a.s) advised a man to drink 'milk' for weakness which I am experiencing while dieting and exercising and once in a week
Oh I love it! I have decided and ordered a tin of it to add to my low fat diet in which I have recently lost 2 lbs. My decision is not based on emotions. In fact one of our Holy Imams (a.s) advised a man to drink 'milk' for weakness which I am experiencing while dieting and exercising and once in a week
LosingGame
2022 May
in
Weight Loss Support
2 years ago
What next - pre diabetes!!!???
Any advice? I’m 71 9st 12 lbs, exercise every day and can run 5k and now have been told I have pre diabetes!!! My diet is pretty good low carb generally not much bread or root veg, and no cakes or sweet stuff, alcohol-14 -16 units a week. So what next I ask? You can consider the above a bit rhetorical
Any advice? I’m 71 9st 12 lbs, exercise every day and can run 5k and now have been told I have pre diabetes!!! My diet is pretty good low carb generally not much bread or root veg, and no cakes or sweet stuff, alcohol-14 -16 units a week. So what next I ask? You can consider the above a bit rhetorical
Misstibbs
in
British Heart Foundation
2 years ago
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Nalcrom (sodium cromoglicate) Availability
Hi, Does anyone know what the latest information is on the availability of Nalcrom (sodium cromoglicate)? Our daughter has just been prescribed it for the first time, and despite what it says on the website I am being met with “Nalcrom has been discontinued and sodium cromoglicate is out of stock.”
Hi, Does anyone know what the latest information is on the availability of Nalcrom (sodium cromoglicate)? Our daughter has just been prescribed it for the first time, and despite what it says on the website I am being met with “Nalcrom has been discontinued and sodium cromoglicate is out of stock.”
PCAD
in
The UK Mastocytosis Support Group
2 years ago
ANYONE WITH LOW BLOOD PRESSURE ISSUES WHILE TAKING ACALABRUTINIB?
I started treatment with Acalabrutinib June 2020. During first 2 months my only side effect was lightheadedness due to low Blood Pressure (BP), especially during first few hours of taking Acalabrutinib. In October and November 2021 I had gallbladder issues and suspended treatment. I lost 20 lbs and
I started treatment with Acalabrutinib June 2020. During first 2 months my only side effect was lightheadedness due to low Blood Pressure (BP), especially during first few hours of taking Acalabrutinib. In October and November 2021 I had gallbladder issues and suspended treatment. I lost 20 lbs and
CADreamer
in
CLL Support
2 years ago
Latest blood test results, where do I start?!
Afternoon everyone, I posted recently and went away to get some more blood tests, I've now got the bulk of the recent results. I'm on the waitlist for a total thyroidectomy but until then I'm just trying to improve my symptoms (mainly lack of patience, irritability, low libido, fatigue, anxiety etc
Afternoon everyone, I posted recently and went away to get some more blood tests, I've now got the bulk of the recent results. I'm on the waitlist for a total thyroidectomy but until then I'm just trying to improve my symptoms (mainly lack of patience, irritability, low libido, fatigue, anxiety etc
CTun
in
Thyroid UK
2 years ago
Some food questions.
It's slow going but I'm heading to a vegetarian eating experience. I'm finding it hard to figure out where I should start, protein, potassium or sodium, not to mention calories or carbs. I spill protein, potassium has been way to high at times and I have a lot of edema (currently on a diuretics)
It's slow going but I'm heading to a vegetarian eating experience. I'm finding it hard to figure out where I should start, protein, potassium or sodium, not to mention calories or carbs. I spill protein, potassium has been way to high at times and I have a lot of edema (currently on a diuretics)
jodaer
in
Kidney Disease
2 years ago
Has anyone cracked the code? How to loose weight??
Still trying to get things under control.. But how DO we loose weight as Hypothyroid? - Should we stay away from certain types of exercise? (Cardio, weights, HIIT, walking, etc?) - Many said Keto may not be great… is low carb ok? On Keto I would stay within 30-40g of carbs a day which is more low carb
Still trying to get things under control.. But how DO we loose weight as Hypothyroid? - Should we stay away from certain types of exercise? (Cardio, weights, HIIT, walking, etc?) - Many said Keto may not be great… is low carb ok? On Keto I would stay within 30-40g of carbs a day which is more low carb
OudMood
in
Thyroid UK
2 years ago
Gastritis and Iron tablets
Following a recent blood test where the following levels were reported-iron 10 umol; ferritin 18ugl; tsr 15.3%; my GP wasn’t keen on giving me iron tablets said they could be “nasty” but didn’t explain the impact they could have on my atrophic gastritis !I am struggling to keep pain free from the latter
Following a recent blood test where the following levels were reported-iron 10 umol; ferritin 18ugl; tsr 15.3%; my GP wasn’t keen on giving me iron tablets said they could be “nasty” but didn’t explain the impact they could have on my atrophic gastritis !I am struggling to keep pain free from the latter
davina70
in
Pernicious Anaemia Society
2 years ago
Low sodium levels after bypass
Hi, had a bypass in October 2021 and still have low sodium levels - anybody else had similar? Many thanks.
Hi, had a bypass in October 2021 and still have low sodium levels - anybody else had similar? Many thanks.
Whitbyreds
in
British Heart Foundation
2 years ago
PROTAC: An Effective Targeted Protein Degradation Strategy for Cancer Therapy
Here is one out of far left field https://www.frontiersin.org/articles/10.3389/fphar.2021.692574/full PROTAC: An Effective Targeted Protein Degradation Strategy for Cancer Therapy www.frontiersin.orgSi-Min Qi1†, www.frontiersin.orgJinyun Dong2†, www.frontiersin.orgZhi-Yuan Xu2, www.frontiersin.orgXiang-Dong
Here is one out of far left field https://www.frontiersin.org/articles/10.3389/fphar.2021.692574/full PROTAC: An Effective Targeted Protein Degradation Strategy for Cancer Therapy www.frontiersin.orgSi-Min Qi1†, www.frontiersin.orgJinyun Dong2†, www.frontiersin.orgZhi-Yuan Xu2, www.frontiersin.orgXiang-Dong
Scout4answers
in
Advanced Prostate Cancer
2 years ago
Is this asthma or copd?
Age 65 Sex F Height 160cm Weight70kg Race W Fev1 45% pre Inhaler. Up to 50 after Inhaler. Hitting 56 during tests Duration of complaint25 to 30 years Location scotland Any existing relevant medical issues COPD or asthma Current medications trimbow ventolin Include a photo if relevant. Not
Age 65 Sex F Height 160cm Weight70kg Race W Fev1 45% pre Inhaler. Up to 50 after Inhaler. Hitting 56 during tests Duration of complaint25 to 30 years Location scotland Any existing relevant medical issues COPD or asthma Current medications trimbow ventolin Include a photo if relevant. Not
Dl98
in
Lung Conditions Community Forum
2 years ago
Efficacy of oral administration of licorice as an adjunct therapy on improving the symptoms of patients with Parkinson's disease, A randomiz
I don't have the complete paper, but this link shows a lot of it. They gave 5cc of licorice twice a day, which equals 136 mg of polyphenol-rich extract of licorice. I don't know how this relates to my Organic Licorice Root Extract 20:1 Powder https://www.amazon.com/gp/product/B079N4Z72C/ref=ppx_yo_dt_b_asin_title_o06
I don't have the complete paper, but this link shows a lot of it. They gave 5cc of licorice twice a day, which equals 136 mg of polyphenol-rich extract of licorice. I don't know how this relates to my Organic Licorice Root Extract 20:1 Powder https://www.amazon.com/gp/product/B079N4Z72C/ref=ppx_yo_dt_b_asin_title_o06
Bolt_Upright
in
Cure Parkinson's
2 years ago
Where to buy affordable Enzalutamide?
Just wondering if its possible to buy this drug anywhere at reasonable prices? I know I can get generic abiraterone from India which can be affordable. Only problem is my dad already has had abiraterone many years ago and I would like to add enzalutamide to radium 223 which has been proven safe and more
Just wondering if its possible to buy this drug anywhere at reasonable prices? I know I can get generic abiraterone from India which can be affordable. Only problem is my dad already has had abiraterone many years ago and I would like to add enzalutamide to radium 223 which has been proven safe and more
Howmuchisthefish
in
Advanced Prostate Cancer
2 years ago
Low carb, high fat diet
When I was first diagnosed I decided I wanted to watch my weight. I had put on weight over the years and was 12 stone. I had read about reducing carbohydrates. A few months after my PMR diagnosis I was diagnosed with type 2 diabetes. I read all I could and changed my diet to a low carb, high fat diet
When I was first diagnosed I decided I wanted to watch my weight. I had put on weight over the years and was 12 stone. I had read about reducing carbohydrates. A few months after my PMR diagnosis I was diagnosed with type 2 diabetes. I read all I could and changed my diet to a low carb, high fat diet
Koalajane
in
PMRGCAuk
2 years ago
Preparing for a Colonoscopy when suffering with Cirrhosis. On going bowel issues. Future plans.
My Cirrhosis was discovered as I was having stomach pains and irregular bowel movements, often with a degree of urgency. This was last August. I have had Bloods, Fibroscan and Ultrasound and from this, diagnosed. To date I haven't seen a NHS Consultant, although I have been referred. I did pay for a
My Cirrhosis was discovered as I was having stomach pains and irregular bowel movements, often with a degree of urgency. This was last August. I have had Bloods, Fibroscan and Ultrasound and from this, diagnosed. To date I haven't seen a NHS Consultant, although I have been referred. I did pay for a
Marquee1880
in
British Liver Trust
2 years ago
Radium 223
I just completed radium 223 number two both times I seem to have blood in my urine. Is anyone else on this blog had the same issue. Any response gratefully accepted.
I just completed radium 223 number two both times I seem to have blood in my urine. Is anyone else on this blog had the same issue. Any response gratefully accepted.
Goldberg
in
Advanced Prostate Cancer
2 years ago
Levothyroxine
Is teva taking over thyroid medications. Im struggling to get MP. Got accord from boots, suffered dizziness. They would not get me MP. Have to keep changing chemists. Thought this chemist stocked MP but got northstar and wockhardt as no MP in. It did say not teva on my script. Did a quick search and
Is teva taking over thyroid medications. Im struggling to get MP. Got accord from boots, suffered dizziness. They would not get me MP. Have to keep changing chemists. Thought this chemist stocked MP but got northstar and wockhardt as no MP in. It did say not teva on my script. Did a quick search and
Foxylady11
in
Thyroid UK
2 years ago
My #1 support person & me
I'm new to the form. I have mcrpc. I was on lupron injections for almost 1 year. I didn’t like the pain for 5 days after injection plus insurance only paid half the cost so I got an orchiectomy. I don’t regret that. Several months after the orchiectomy, my PSA level went up so my urologist said it’s
I'm new to the form. I have mcrpc. I was on lupron injections for almost 1 year. I didn’t like the pain for 5 days after injection plus insurance only paid half the cost so I got an orchiectomy. I don’t regret that. Several months after the orchiectomy, my PSA level went up so my urologist said it’s
Canis-Lupus53
in
Advanced Prostate Cancer
2 years ago
Happy Friday the 13th and in chemo bay #13 now 😁
Hey y'all, Another Cabazitazel session, getting 12 total to put me at 33 chemos in 7 years this July PSA ticked up 0.1 to 2.5 last time 🤔 MO may do PSMA scan and biopsy any large enough lymph nodes, if PSA continues upward. Still on Lupron 3 every months, and doing Intermittent Fast for 16 hrs/day
Hey y'all, Another Cabazitazel session, getting 12 total to put me at 33 chemos in 7 years this July PSA ticked up 0.1 to 2.5 last time 🤔 MO may do PSMA scan and biopsy any large enough lymph nodes, if PSA continues upward. Still on Lupron 3 every months, and doing Intermittent Fast for 16 hrs/day
dockam
in
Advanced Prostate Cancer
2 years ago
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