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Pegasys for MF transitioning from hydroxycarbamide
My darling wife, had her appointment today, and her blood is well below par her Hgb is 82 hematocrit 0.27, platelets 213 which is good, white cells 45. The hematologist was talking about introducing pegasys interferon injections, after her 3 bags of red cells and a ferinject. She is worried about losing
My darling wife, had her appointment today, and her blood is well below par her Hgb is 82 hematocrit 0.27, platelets 213 which is good, white cells 45. The hematologist was talking about introducing pegasys interferon injections, after her 3 bags of red cells and a ferinject. She is worried about losing
jointpain
in
MPN Voice
5 months ago
Covid Vulnerability- Baricitinib vs Rituximab
Hi All, I’m in a bit of a dilemma and would welcome opinions on my current situation. I have recently been invited for a Covid vaccination due to being on Rituximab. I don’t really want to have the jab. I have had 3 Pfizer vaccs since 2020 but none since early 2022 as the last jab resulted in a big
Hi All, I’m in a bit of a dilemma and would welcome opinions on my current situation. I have recently been invited for a Covid vaccination due to being on Rituximab. I don’t really want to have the jab. I have had 3 Pfizer vaccs since 2020 but none since early 2022 as the last jab resulted in a big
Claireybee
in
NRAS
16 days ago
covid
Has anyone noticed a difference or increase after the Covid ordeal?
Has anyone noticed a difference or increase after the Covid ordeal?
Treasures
in
Tinnitus UK
17 days ago
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covid in early pregnancy
I’ve had two positive tests this week - positive pregnancy test (4 weeks and 6 days) and then a positive covid test last night. I only have mild symptoms (mild cough, slightly tight chest, sore throat). After difficulties conceiving and previous pregnancy loss I can’t help but feel anxious about having
I’ve had two positive tests this week - positive pregnancy test (4 weeks and 6 days) and then a positive covid test last night. I only have mild symptoms (mild cough, slightly tight chest, sore throat). After difficulties conceiving and previous pregnancy loss I can’t help but feel anxious about having
AOHJ
in
Fertility Network UK - Pregnancy Support
17 days ago
Could COVID be the thing that makes Mast Cells mutate and become dysfunctional?
Could COVID be the thing that makes Mast Cells mutate and become dysfunctional? Answered by Dr. Leonard Weinstock M.D. https://youtu.be/O_QLVYA1afE
Could COVID be the thing that makes Mast Cells mutate and become dysfunctional? Answered by Dr. Leonard Weinstock M.D. https://youtu.be/O_QLVYA1afE
Shewulf
Administrator
in
LDN Research Trust
17 days ago
Covid Boosters
I am fairly lucky regarding my asthma as this period of spring/summer I rarely suffer flare ups. However having my Covid booster a couple of weeks ago triggered my asthma and this also occurred last year following the booster. I am therefore am very interested to know if anyone else has experienced a
I am fairly lucky regarding my asthma as this period of spring/summer I rarely suffer flare ups. However having my Covid booster a couple of weeks ago triggered my asthma and this also occurred last year following the booster. I am therefore am very interested to know if anyone else has experienced a
76RL
in
Asthma Community Forum
17 days ago
Covid vaccine reaction
When the vaccines for covid first appeared I received the AstraZeneca type. Two or three weeks later I ended up in hospital with unbearable headache and not able to lie down. The pain was excruciating and it was thought I was developing a stroke. I had a brain scan and fortunately it was not a stroke
When the vaccines for covid first appeared I received the AstraZeneca type. Two or three weeks later I ended up in hospital with unbearable headache and not able to lie down. The pain was excruciating and it was thought I was developing a stroke. I had a brain scan and fortunately it was not a stroke
Jelbea
in
MPN Voice
17 days ago
Covid!!!!
Hubby and I were both enjoying a long overdue week in the sunshine - 4 days into the holiday hubby developed a sore throat and a cough, and a few shivers. Temperature ok… Roll forward 2 days and my AF was kicking off in spite of medication. Home today and both of us tested positive for Covid. Fortunately
Hubby and I were both enjoying a long overdue week in the sunshine - 4 days into the holiday hubby developed a sore throat and a cough, and a few shivers. Temperature ok… Roll forward 2 days and my AF was kicking off in spite of medication. Home today and both of us tested positive for Covid. Fortunately
Fight-the-good-fight
in
Atrial Fibrillation Support
18 days ago
COVID vaccination
I think all of these horrible symptoms we have are the results of COVID-19 vaccination. I’m so angry 😡
I think all of these horrible symptoms we have are the results of COVID-19 vaccination. I’m so angry 😡
Sissiotto
in
Pernicious Anaemia Society
19 days ago
Covid Vaccine help and advice please 😊
I have had a week of ill health (hellish) following every vaccine but my body seems to accept the Pfizer !! so this time round was hopeful. However there is none to be had . I have been offered the Moderna , has anyone else who has systemic lupus had this one ? And can you tell me how you were ? I just
I have had a week of ill health (hellish) following every vaccine but my body seems to accept the Pfizer !! so this time round was hopeful. However there is none to be had . I have been offered the Moderna , has anyone else who has systemic lupus had this one ? And can you tell me how you were ? I just
Maddymay65
in
LUPUS UK
19 days ago
Neuropathy worse after covid jab, anyone?
After my recent ninth Covid jab (second time with Moderna), I found I had reactions (have always had none before, lucky me). First I developed the grandly named"Covid arm" which was nothing much, just a faint, occasional itch around the jab area which disappeared after a week. Then, for about a week
After my recent ninth Covid jab (second time with Moderna), I found I had reactions (have always had none before, lucky me). First I developed the grandly named"Covid arm" which was nothing much, just a faint, occasional itch around the jab area which disappeared after a week. Then, for about a week
Trickysite
in
My Ovacome
21 days ago
Covid Vax and age
I’m in the US and have lupus and many other disqualifying illnesses 😊. I just read a thread in which folks thought their PMR began with Covid jabs. After 3 Moderna, and 3 bouts of Covid I don’t think I want to get vaccinated again. But then there’s flirt. I have 2 grandchildren ages 5 and 4 with long
I’m in the US and have lupus and many other disqualifying illnesses 😊. I just read a thread in which folks thought their PMR began with Covid jabs. After 3 Moderna, and 3 bouts of Covid I don’t think I want to get vaccinated again. But then there’s flirt. I have 2 grandchildren ages 5 and 4 with long
MrsMarigold
in
PMRGCAuk
22 days ago
Protection from Coronaviruses That Haven’t Yet Emerged
To paraphrase Ozzy Osbourne, pandemics can spring up without warning. Although 101 years separated the most recent, truly global pandemics - the H1N1 virus killing tens of millions of people from 1918 to 1920 and SARS-COV2 killing an estimated 14.8 million people in 2020-21 alone https://www.ncbi.nlm.nih.gov
To paraphrase Ozzy Osbourne, pandemics can spring up without warning. Although 101 years separated the most recent, truly global pandemics - the H1N1 virus killing tens of millions of people from 1918 to 1920 and SARS-COV2 killing an estimated 14.8 million people in 2020-21 alone https://www.ncbi.nlm.nih.gov
bennevisplace
in
CLL Support
22 days ago
What is classed as a flare?
Hi, I was diagnosed in November, had a steroid injection and started on MTX, once the steroid started wearing off the pain and swelling in my knees returned straight away but not in my hands, they have been great. Had a load of fluid sucked out of my knee and another steroid injection about 6 weeks ago
Hi, I was diagnosed in November, had a steroid injection and started on MTX, once the steroid started wearing off the pain and swelling in my knees returned straight away but not in my hands, they have been great. Had a load of fluid sucked out of my knee and another steroid injection about 6 weeks ago
Cat-E
in
NRAS
2 months ago
Update- Moderna Spikevax
Just to update. Received blood result and all within rang with the exception of Lymphocyte count which 3.1 only slightly over range. CPR 4 g/L, ESR 2. Which rules out PMR flare. So onwards and upwards, definitely downwards with Pred.-so pleased. I am now wondering whether the muscle paralysis I had
Just to update. Received blood result and all within rang with the exception of Lymphocyte count which 3.1 only slightly over range. CPR 4 g/L, ESR 2. Which rules out PMR flare. So onwards and upwards, definitely downwards with Pred.-so pleased. I am now wondering whether the muscle paralysis I had
Pebblegod
in
PMRGCAuk
23 days ago
COVID diagnosis
Just been on a 300 mile bike ride and returned with COVID. Don't feel too bad but should I contact consultant. I have had a vaccination about 3 weeks ago.
Just been on a 300 mile bike ride and returned with COVID. Don't feel too bad but should I contact consultant. I have had a vaccination about 3 weeks ago.
Guinness4822
in
CLL Support
24 days ago
Shingles Vaccination UK
Hi I am glad to report that I needed no hospital admissions in 2023 (having had 4 in 2022) Decided after open ended discussion with my GP not to take Covid or Flu vaccinations as each one had in the past laid me up with fever etc for a week to ten days and feeling dreadful. Next up is an offer of
Hi I am glad to report that I needed no hospital admissions in 2023 (having had 4 in 2022) Decided after open ended discussion with my GP not to take Covid or Flu vaccinations as each one had in the past laid me up with fever etc for a week to ten days and feeling dreadful. Next up is an offer of
Hihohiho
in
CLL Support
5 months ago
COVID, FND, and Cymbalta Ruined My Life
This is a long story, and I apologize in advance for any, bitter angry undertones. I'll skip all of the grief I've had in life and the hard times that I've experienced. I'll try to keep it to the medical issues. It will feel good to tell a part of my story, arguably the hardest I've been through.***Trigger
This is a long story, and I apologize in advance for any, bitter angry undertones. I'll skip all of the grief I've had in life and the hard times that I've experienced. I'll try to keep it to the medical issues. It will feel good to tell a part of my story, arguably the hardest I've been through.***Trigger
LoverOfAllThings
in
Functional Neurological Disorder - FND Hope
24 days ago
Increase in Synthroid Dose Worse Before Feeling Better?
Hello, I'm a long time hypothyroid patient but the last few years after covid have been a wild ride finding the right dose again. I'm curious if anyone can offer insight as to why the first one to two weeks of a medication dose increase I feel amazing and then I tank horribly after. All the hypo symptoms
Hello, I'm a long time hypothyroid patient but the last few years after covid have been a wild ride finding the right dose again. I'm curious if anyone can offer insight as to why the first one to two weeks of a medication dose increase I feel amazing and then I tank horribly after. All the hypo symptoms
Clarabethk
in
Thyroid UK
24 days ago
Allergic reaction To preventer inhaler
I have been on Symbicort pressurised inhaler for over 3 years but am Now getting side effects of pins & needles in my lips and fingers. I have eliminatedall my other medication and tried fostair and ellipta and they too are causing the same. Can anyone advise me of any other inhaler that does not contain
I have been on Symbicort pressurised inhaler for over 3 years but am Now getting side effects of pins & needles in my lips and fingers. I have eliminatedall my other medication and tried fostair and ellipta and they too are causing the same. Can anyone advise me of any other inhaler that does not contain
pam7974
in
Asthma Community Forum
5 months ago
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