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SIB/Flame Protocol
The RO recommends Simultaneous Integrated Boost (SIB) as part of my treatment. PSA was 19.76 (4/2023), then 21.78 (5/2023 to confirm initial PSA). He is concerned that the PSA does not match the Gleason score (4+3, grade 3) as PSA has surpassed 20. Multiplanar MRI and PSMA PET indicated no metastasis
The RO recommends Simultaneous Integrated Boost (SIB) as part of my treatment. PSA was 19.76 (4/2023), then 21.78 (5/2023 to confirm initial PSA). He is concerned that the PSA does not match the Gleason score (4+3, grade 3) as PSA has surpassed 20. Multiplanar MRI and PSMA PET indicated no metastasis
805guy
in
Prostate Cancer Network
9 months ago
What to do?
Hi All, At the end of August 2023 I completed 8 rounds of docetaxel. On 9/13/23 my PSA was 5.7, 10/30/23 8.25 and 11/27/23 it’s now 16.72. This year has been a shit show. I know my MO will put me on pluvicto. Here’s my quandary: I am a single gay man. Parents gone. No siblings. All I have to really
Hi All, At the end of August 2023 I completed 8 rounds of docetaxel. On 9/13/23 my PSA was 5.7, 10/30/23 8.25 and 11/27/23 it’s now 16.72. This year has been a shit show. I know my MO will put me on pluvicto. Here’s my quandary: I am a single gay man. Parents gone. No siblings. All I have to really
MJCA
in
Advanced Prostate Cancer
6 months ago
Your thoughts on next course of action
First, I'd like to thank the many good folks that contribute this forum. Your inputs have been a life send to me over the past several years, especially Tall Allen who recommended UW Medicine where my MO and RO are located. They have been fantastic to work with. The short story - Diagnosed in 2018.
First, I'd like to thank the many good folks that contribute this forum. Your inputs have been a life send to me over the past several years, especially Tall Allen who recommended UW Medicine where my MO and RO are located. They have been fantastic to work with. The short story - Diagnosed in 2018.
GBMV
in
Advanced Prostate Cancer
9 months ago
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Sudden onset of severe leg pain
Yesterday my husband was strolling about the house as usual. Last night he experienced debilitating pain in his right thigh to the point he collapsed when trying to put weight on it, and then could not sleep because of the pain. He has needed a walker for even a few steps. We visited his PCP today
Yesterday my husband was strolling about the house as usual. Last night he experienced debilitating pain in his right thigh to the point he collapsed when trying to put weight on it, and then could not sleep because of the pain. He has needed a walker for even a few steps. We visited his PCP today
Tinuriel
in
Advanced Prostate Cancer
6 months ago
PLUVICTO
I finished 6 treatments of Pluvicto in May 2023 with negligible PSA readings. In August of 23 my PSA jumped to 2.3, my September 14 PSA is 16.8. It seems like Pluvicto is losing it's grip. I have an appointment with my oncologist on September 25. I am sure he will order a PSMA scan. I am curious as to
I finished 6 treatments of Pluvicto in May 2023 with negligible PSA readings. In August of 23 my PSA jumped to 2.3, my September 14 PSA is 16.8. It seems like Pluvicto is losing it's grip. I have an appointment with my oncologist on September 25. I am sure he will order a PSMA scan. I am curious as to
Jrb12
in
Advanced Prostate Cancer
9 months ago
Pain 4 weeks after oophorectomy
Hello all, I'm just posting in the hopes that someone else has also experienced something similar and that I'm not alone! A quick timeline of my endo journey for background: -Diagnosed in October 2017 after 8 years of suffering at the age of 23. I also had an ovary that had burst due to a very large
Hello all, I'm just posting in the hopes that someone else has also experienced something similar and that I'm not alone! A quick timeline of my endo journey for background: -Diagnosed in October 2017 after 8 years of suffering at the age of 23. I also had an ovary that had burst due to a very large
AGI1994
in
Endometriosis UK
1 year ago
BAT trial update
I commenced the trial about 2 months ago and I have now had 2 cycles of treatment consisting of testosterone injections and carboplatin infusions. 5 days ago I had my first CT and bone scans and the trial leader tells me my 3 detectable rib metastases are 'stable'. The stable assessment is good enough
I commenced the trial about 2 months ago and I have now had 2 cycles of treatment consisting of testosterone injections and carboplatin infusions. 5 days ago I had my first CT and bone scans and the trial leader tells me my 3 detectable rib metastases are 'stable'. The stable assessment is good enough
Bjry
in
Advanced Prostate Cancer
6 months ago
What is reco diet to take abi with food?
I am on Lupron and Abi two months now with <.1 PSA down from 2.2, MO says I can do abi w food if I want, so is it an okay idea to go with 500 or 250mg per day vs 1000, and if so, how many grams of fat constitute the low fat breakfast to eat with the abi? 🙂
I am on Lupron and Abi two months now with <.1 PSA down from 2.2, MO says I can do abi w food if I want, so is it an okay idea to go with 500 or 250mg per day vs 1000, and if so, how many grams of fat constitute the low fat breakfast to eat with the abi? 🙂
jackwfrench
in
Advanced Prostate Cancer
6 months ago
Prostate cancer - no metastases - treat now with repurposed drugs?
Prostate cancer - no metastases - treat now with repurposed drugs? I am 60 and have been diagnosed with localised, non-metastatic, low grade prostate cancer: Grade 1/Gleason 6, T2c, intermediate risk. A detailed CT-PET scan (PSMA) (in addition to biopsy and MRI) has shown moderate amount of bilateral
Prostate cancer - no metastases - treat now with repurposed drugs? I am 60 and have been diagnosed with localised, non-metastatic, low grade prostate cancer: Grade 1/Gleason 6, T2c, intermediate risk. A detailed CT-PET scan (PSMA) (in addition to biopsy and MRI) has shown moderate amount of bilateral
Thunderball1
in
Advanced Prostate Cancer
10 months ago
PSA doubled 3 months after chemo - normal or a concern?
I don’t see Dr Dorff until next week, but had labs drawn today. I’m prepping any questions I might have for the appointment. My PSA has more than doubled in 3 months from 0.014 to 0.039. Testosterone at time of both tests was <7. At these low levels, is that doubling in 3 months a concern? I’m
I don’t see Dr Dorff until next week, but had labs drawn today. I’m prepping any questions I might have for the appointment. My PSA has more than doubled in 3 months from 0.014 to 0.039. Testosterone at time of both tests was <7. At these low levels, is that doubling in 3 months a concern? I’m
Gl448
in
Advanced Prostate Cancer
9 months ago
PSA after Biopsy
I've heard that the biopsy procedure (14 cores) can elevate future PSA results. What is the recommended number of days or weeks to pass before scheduling a follow up PSA test? Thank you!
I've heard that the biopsy procedure (14 cores) can elevate future PSA results. What is the recommended number of days or weeks to pass before scheduling a follow up PSA test? Thank you!
Mpls
in
Prostate Cancer Network
6 months ago
Doctor suggesting HIFU
Hello All, I was diagnosed in Oct. 2017 with Gleason score of 6 and PSA 5.8. PSA was gradually going up and up. Had blood work done June 6th 2023 for a shoulder surgery and PSA was 15.3 had a PSA test done on July 24th 2023 for fusion biopsy on July 31st 2023 and it went up to 18.3 (1 month jumped
Hello All, I was diagnosed in Oct. 2017 with Gleason score of 6 and PSA 5.8. PSA was gradually going up and up. Had blood work done June 6th 2023 for a shoulder surgery and PSA was 15.3 had a PSA test done on July 24th 2023 for fusion biopsy on July 31st 2023 and it went up to 18.3 (1 month jumped
jbsnv
in
Prostate Cancer Network
9 months ago
5th Pluvicto tomorrow
My husband's lab work for tomorrow's treatment shows a new low on his PSA, 7.9. Again there are blood numbers that are in the "low" range but last time the Doctor Wasn't concerned and we were able to return to Mexico 3 days after treatment. His weight is down 10 lbs from last time but i be been sick
My husband's lab work for tomorrow's treatment shows a new low on his PSA, 7.9. Again there are blood numbers that are in the "low" range but last time the Doctor Wasn't concerned and we were able to return to Mexico 3 days after treatment. His weight is down 10 lbs from last time but i be been sick
Karirudy
in
Advanced Prostate Cancer
6 months ago
Prostap or is it Prostrap!!!
I had a 6 month injection course of Prostap or was it Prostrap when i was 32. It helped me no end in my end to heavy long periods. I've been reading some posts and am feeling sad that its not seemed to be working for them. I noticed a drop in my periods 2nd injection in, and have not had a period
I had a 6 month injection course of Prostap or was it Prostrap when i was 32. It helped me no end in my end to heavy long periods. I've been reading some posts and am feeling sad that its not seemed to be working for them. I noticed a drop in my periods 2nd injection in, and have not had a period
valgal76
in
Menopause and Perimenopause Support
1 year ago
should I stop Zytiga early?
hello, i’m new here and encouraged by all the experience and caring nature of the conversations. Would love if anyone has wisdom around a decision to stop Zytiga early? I am 56 and was diagnosed 2/21 with Gleason 9 no lymph nodes invasion, but some vesicle invasion and perhaps a little outside margins
hello, i’m new here and encouraged by all the experience and caring nature of the conversations. Would love if anyone has wisdom around a decision to stop Zytiga early? I am 56 and was diagnosed 2/21 with Gleason 9 no lymph nodes invasion, but some vesicle invasion and perhaps a little outside margins
PaulJR
in
Advanced Prostate Cancer
9 months ago
anyone had prostap without Tibolone?
Hi I’m nearly 5 months in on the 3monthly prostap ( for fibroid shrinkage and pre hysterectomy) .. I didn’t take the Tibolone due to my fears for the first 3 months , but tried it on a half dose for about a month when I started the second 3month injection . Then I hated the side effects and they made
Hi I’m nearly 5 months in on the 3monthly prostap ( for fibroid shrinkage and pre hysterectomy) .. I didn’t take the Tibolone due to my fears for the first 3 months , but tried it on a half dose for about a month when I started the second 3month injection . Then I hated the side effects and they made
Batwoman3
in
Endometriosis UK
1 year ago
Rising PSA
Hi, have updated my profile to reflect recent changes. A gradual increase in PSA (1.2) with the prospect of changes to treatment if it continues at the current rate and gets near to 4. The oncologist is suggesting probably chemo but I would like to know more about other options before that discussion
Hi, have updated my profile to reflect recent changes. A gradual increase in PSA (1.2) with the prospect of changes to treatment if it continues at the current rate and gets near to 4. The oncologist is suggesting probably chemo but I would like to know more about other options before that discussion
FortyWinks
in
Advanced Prostate Cancer
6 months ago
prostap injection
hi, I just wanted to know when you’re periods stop while your on the prostap injection? As I’m worried, I’ve been on it for 4 months and I’m still having my periods! But thankfully no pain!
hi, I just wanted to know when you’re periods stop while your on the prostap injection? As I’m worried, I’ve been on it for 4 months and I’m still having my periods! But thankfully no pain!
Ru1989
in
Endometriosis UK
1 year ago
Intraductal Carcinoma & Cribiform pattern 4 treatment options?
Newly dx. PCa. with Intraductal carcinoma, IDC-P. This is the most aggressive prostate cancer type. In my case 4+3 with 70% pattern 4 with cribriform which make it even more worse. There are four types of pattern 4 (poorly formed glands, glomeruloid structures, cribriform glands, and fused glands) and
Newly dx. PCa. with Intraductal carcinoma, IDC-P. This is the most aggressive prostate cancer type. In my case 4+3 with 70% pattern 4 with cribriform which make it even more worse. There are four types of pattern 4 (poorly formed glands, glomeruloid structures, cribriform glands, and fused glands) and
FMOH_N
in
Advanced Prostate Cancer
10 months ago
Zencor & XmAb
My MO discussed a clinical trial for me today if I qualify with the required genetic markers. My most recent PSMA scan showed further progression of metastasis in bone and lymph nodes and my PSA has increased fairly rapidly. Currently taking both Orgovyx & Nubeqa. I'm hoping some of the smart and
My MO discussed a clinical trial for me today if I qualify with the required genetic markers. My most recent PSMA scan showed further progression of metastasis in bone and lymph nodes and my PSA has increased fairly rapidly. Currently taking both Orgovyx & Nubeqa. I'm hoping some of the smart and
AllenMarco
in
Advanced Prostate Cancer
6 months ago
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