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ICD fitting tomorrow!
I have Long QT Syndrome, and had been asymptomatic for the last 46 years until a couple of weeks ago, and since then have had 5 episodes! I'm also an HGV driver. All 5 episodes have resulted in loss of consciousness, with incontinence, and the last 3 episodes lead to VF arrest needing CPR and defib.
I have Long QT Syndrome, and had been asymptomatic for the last 46 years until a couple of weeks ago, and since then have had 5 episodes! I'm also an HGV driver. All 5 episodes have resulted in loss of consciousness, with incontinence, and the last 3 episodes lead to VF arrest needing CPR and defib.
SuffolkLad77
in
British Heart Foundation
8 months ago
Getting worse
Things are falling apart I have a therapist factor nothing is working I have a boyfriend that says I am embarrassment and I am I don't do anything to better I don't move this fear j havd my mom cries I still can't snap out of it . I am glued to my bed!!°°°°°° I pray znx pray I get up and then I look
Things are falling apart I have a therapist factor nothing is working I have a boyfriend that says I am embarrassment and I am I don't do anything to better I don't move this fear j havd my mom cries I still can't snap out of it . I am glued to my bed!!°°°°°° I pray znx pray I get up and then I look
Hidden
in
Anxiety and Depression Support
6 months ago
Midazelam
Hi I am having cataract surgery on Sunday and you are given choice of a sedative or not. The nurse said "they usually " use Midazelam -obviously anything offered if i am unsure I will go without it. Does anyone know if Midazelam is RLS safe ? Don't want legs jumping around and the surgical instruments
Hi I am having cataract surgery on Sunday and you are given choice of a sedative or not. The nurse said "they usually " use Midazelam -obviously anything offered if i am unsure I will go without it. Does anyone know if Midazelam is RLS safe ? Don't want legs jumping around and the surgical instruments
Pippins2
in
Restless Legs Syndrome
10 months ago
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Abilify and restlessness?
Hey all -- appreciate each and every one of you. I was recently prescribed Abilify as an additional anti-depressant to go along with my normal medications (Prozac, Remeron). While it has definitely helped stem away the dark moments or really deep depressive spells, I've noticed a big change in my personality
Hey all -- appreciate each and every one of you. I was recently prescribed Abilify as an additional anti-depressant to go along with my normal medications (Prozac, Remeron). While it has definitely helped stem away the dark moments or really deep depressive spells, I've noticed a big change in my personality
JTMan
in
Anxiety and Depression Support
1 year ago
Ursodeoxycholic Acid (UDCA)
Anyone on here involved with the trial of Urso, a liver drug that showed so promise to treatment of PD Drug: ursodeoxycholic acid Subjects will be provided ~50mg/kg/day (based on the use of 250 and 500mg capsules) of UDCA to be divided into 3 equal daily doses and titrated up over ~2 weeks to a stable
Anyone on here involved with the trial of Urso, a liver drug that showed so promise to treatment of PD Drug: ursodeoxycholic acid Subjects will be provided ~50mg/kg/day (based on the use of 250 and 500mg capsules) of UDCA to be divided into 3 equal daily doses and titrated up over ~2 weeks to a stable
Furch
in
Cure Parkinson's
6 months ago
Not sure how this works but am finding the holidays extra hard.
Trying to stay even in my moods but I'm not looking forward to seeing my parents over the holidays. It's very hard to be around them since I realize I suffer from complex ptsd.
Trying to stay even in my moods but I'm not looking forward to seeing my parents over the holidays. It's very hard to be around them since I realize I suffer from complex ptsd.
anxiousintexas
in
Anxiety and Depression Support
6 months ago
dp/dr
just had a dp/dr out of nowhere and I’ve been anxious and having panic attacks feel like I can’t do anything but feel disgusting rotting in bed. Feels awful feels like I’m going crazy or dying have my last therapy appointment tomorrow too and I feel so scared :( really too tired to put the cbt into practice
just had a dp/dr out of nowhere and I’ve been anxious and having panic attacks feel like I can’t do anything but feel disgusting rotting in bed. Feels awful feels like I’m going crazy or dying have my last therapy appointment tomorrow too and I feel so scared :( really too tired to put the cbt into practice
Danzdanz123
in
Anxiety and Depression Support
6 months ago
Question for ACM/ARVC folk: Nocturnal ectopics/PVCs
Hello. I have some questions for other people who have ACM/ARVC and I hope you will be able to help. I'm feeling very groggy this morning. I was woken at 1am by frequent noticeable ectopics/PVCs and some non-sustained VTs (ratio of at least 3 per normal beat, approx total 90-110 PVCs per min). It was
Hello. I have some questions for other people who have ACM/ARVC and I hope you will be able to help. I'm feeling very groggy this morning. I was woken at 1am by frequent noticeable ectopics/PVCs and some non-sustained VTs (ratio of at least 3 per normal beat, approx total 90-110 PVCs per min). It was
EmmJayTea
in
British Heart Foundation
8 months ago
sleep
I started Effexor about a month ago. My old antidepressant had really fizzled out and I like… or am learning how to like Effexor. I enjoy how it has helped me but the sleeping situation is a bit rough. I am literally pulled from a deep sleep into this weird feeling state…. In the beginning it was a
I started Effexor about a month ago. My old antidepressant had really fizzled out and I like… or am learning how to like Effexor. I enjoy how it has helped me but the sleeping situation is a bit rough. I am literally pulled from a deep sleep into this weird feeling state…. In the beginning it was a
Mskitty21
in
Anxiety and Depression Support
6 months ago
breathing exercises
Hi everyone I was wondering if any of you lovely people do breathing exercises to strengthen the lungs? I bought a contraption on Amazon after watching two doctors on youtube talk about this breathing exercise device that helps strengthen the lungs and improve oxygen flow. I did go through a phase
Hi everyone I was wondering if any of you lovely people do breathing exercises to strengthen the lungs? I bought a contraption on Amazon after watching two doctors on youtube talk about this breathing exercise device that helps strengthen the lungs and improve oxygen flow. I did go through a phase
SkyGazer177
in
Lung Conditions Community Forum
6 months ago
Hot off the press. Randomized, double-blind safety trial of high dose nicotinamide riboside in Parkinson’s disease.
Open access Published: 28 November 2023 Abstract Nicotinamide adenine dinucleotide (NAD) replenishment therapy using nicotinamide riboside (NR) shows promise for Parkinson’s disease (PD) and other neurodegenerative disorders. However, the optimal dose of NR remains unknown, and doses exceeding 2000
Open access Published: 28 November 2023 Abstract Nicotinamide adenine dinucleotide (NAD) replenishment therapy using nicotinamide riboside (NR) shows promise for Parkinson’s disease (PD) and other neurodegenerative disorders. However, the optimal dose of NR remains unknown, and doses exceeding 2000
SilentEchoes
in
Cure Parkinson's
6 months ago
Ritalin for ADHD
Hi I have a grandchild who has ADHD and possibly Tourettes Syndrome.He also has definite PLMD and suspected RLS .I can see from Google that many meds used for Tourettes are antipsychotics (sp?) which worsen RLS.MY question is does anyone,or your child take Ritolin or any other meds for ADHD and if
Hi I have a grandchild who has ADHD and possibly Tourettes Syndrome.He also has definite PLMD and suspected RLS .I can see from Google that many meds used for Tourettes are antipsychotics (sp?) which worsen RLS.MY question is does anyone,or your child take Ritolin or any other meds for ADHD and if
Pippins2
in
Restless Legs Syndrome
6 months ago
Anxiety has risen its ugly head again.
I came 500 miles to visit my mom in an assisted living facility for Thanksgiving. Upon my visit, my mom tested positive for Covid-19, then my wife, then I did. I am stuck in the boondocks of Virginia for a week of quarantine. I have had panic attacks every day in spite of my antidepressants. My father
I came 500 miles to visit my mom in an assisted living facility for Thanksgiving. Upon my visit, my mom tested positive for Covid-19, then my wife, then I did. I am stuck in the boondocks of Virginia for a week of quarantine. I have had panic attacks every day in spite of my antidepressants. My father
Goodwill1954
in
Anxiety and Depression Support
6 months ago
Hello 👋
Hi, we are all happy to have you in the group and share your insight. There is a very strong genetic component to this. My mom, brother and I all have anxiety and depression. I have been diagnosed with bipolar 2. I've tried ketamine tablets and found it effective but had to stop because it's costly.
Hi, we are all happy to have you in the group and share your insight. There is a very strong genetic component to this. My mom, brother and I all have anxiety and depression. I have been diagnosed with bipolar 2. I've tried ketamine tablets and found it effective but had to stop because it's costly.
Fallin77
in
Anxiety Support
10 months ago
Anxiety depression PTSD bipolar etc
I'm having a hard time right now with the holidays coming I miss my mama My kitty just passed away it's been really rough year
I'm having a hard time right now with the holidays coming I miss my mama My kitty just passed away it's been really rough year
Honey19Joy
in
Anxiety and Depression Support
6 months ago
LENS Neurofeedback Low Energy Neurofeedback System update.
I have had agoraphobia for the past 4 1/2 years. What has helped me may not be available in your area. It is called LENS Neurofeedback. LENS stands for Low Energy Neurofeedback System. It is different from traditional Neurofeedback in that it introduces a low current into your brain rather than just
I have had agoraphobia for the past 4 1/2 years. What has helped me may not be available in your area. It is called LENS Neurofeedback. LENS stands for Low Energy Neurofeedback System. It is different from traditional Neurofeedback in that it introduces a low current into your brain rather than just
gajh
in
Anxiety and Depression Support
6 months ago
Selegiline run out
I was told recently by my pharmacist they couldn't get any Selegiline and to ask my GP for an alternative. I still have 60 10mg tablets left and will have to inform GP soon. (I'm still waiting on my first appointment with neurologist in my new location, been waiting months as unfortunately I had to
I was told recently by my pharmacist they couldn't get any Selegiline and to ask my GP for an alternative. I still have 60 10mg tablets left and will have to inform GP soon. (I'm still waiting on my first appointment with neurologist in my new location, been waiting months as unfortunately I had to
Ardbeg28
in
Cure Parkinson's
11 months ago
Cambridge Heartbeats ICD Support Group
We are pleased to invite you to the Cambridge Heartbeats ICD Support Group meeting, taking place at The Arbury Community Centre, Campkin Road, Cambridge CB4 2LD, on Thursday 12 October at 2pm. This will be a special meeting with Training for CPR, demonstrations of AEDs and training with practice dummies
We are pleased to invite you to the Cambridge Heartbeats ICD Support Group meeting, taking place at The Arbury Community Centre, Campkin Road, Cambridge CB4 2LD, on Thursday 12 October at 2pm. This will be a special meeting with Training for CPR, demonstrations of AEDs and training with practice dummies
Hidden
Partner
in
Sudden Cardiac Arrest & Heart Attack
8 months ago
Cambridge Heartbeats ICD Support Group
We are pleased to invite you to the Cambridge Heartbeats ICD Support Group meeting, taking place at The Arbury Community Centre, Campkin Road, Cambridge CB4 2LD, on Thursday 12 October at 2pm. This will be a special meeting with Training for CPR, demonstrations of AEDs and training with practice dummies
We are pleased to invite you to the Cambridge Heartbeats ICD Support Group meeting, taking place at The Arbury Community Centre, Campkin Road, Cambridge CB4 2LD, on Thursday 12 October at 2pm. This will be a special meeting with Training for CPR, demonstrations of AEDs and training with practice dummies
Hidden
Partner
in
Arrhythmia Alliance
8 months ago
What To Do Next?
Hi Friends, First post here, although I've come back to this forum a few times. I'm at a spot where, even though I know it's untrue, I feel like I'm experiencing anxiety like no one has ever experienced it before (we all know the lonely feeling). I've been dealing with this for about a year an a half
Hi Friends, First post here, although I've come back to this forum a few times. I'm at a spot where, even though I know it's untrue, I feel like I'm experiencing anxiety like no one has ever experienced it before (we all know the lonely feeling). I've been dealing with this for about a year an a half
Cam_Cam_Cam
in
Anxiety and Depression Support
6 months ago
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