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Mast cell activation syndrome (MCAS)
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Free syringes
I am happy to post them to anyone who needs them - I am no longer Self Injecting - as I had developed histamine intolerance and possibly
Mast
Cell
Activation
Syndrome
and became more or less allergic to an ingredient in my B12 injections.
I am happy to post them to anyone who needs them - I am no longer Self Injecting - as I had developed histamine intolerance and possibly
Mast
Cell
Activation
Syndrome
and became more or less allergic to an ingredient in my B12 injections.
Slosh
in
Pernicious Anaemia Society
4 years ago
Curious about long time tic
Hi, for as long as i can remember ive always had this strange tic that it seems like no one else has. I get words, phrases, sometimes even songs, stuck in my head, either from hearing them, reading them, or saying them myself, and then will repeatedly mouth the words to myself inside my own mouth, silently
Hi, for as long as i can remember ive always had this strange tic that it seems like no one else has. I get words, phrases, sometimes even songs, stuck in my head, either from hearing them, reading them, or saying them myself, and then will repeatedly mouth the words to myself inside my own mouth, silently
Itsukori
in
Autism Support
3 years ago
BFP after previous MMC - how to cope
Got a BFP earlier this week after fresh transfer. Hcg was 102 10dp5dt. Was totally delighted but it hasn't lasted for long. Previously had a MMC at 7.5 weeks (after seeing heartbeat at 7 weeks) and now panicking I don't feel sick and it's going to happen again. Any tips for how to cope? I have PCOS
Got a BFP earlier this week after fresh transfer. Hcg was 102 10dp5dt. Was totally delighted but it hasn't lasted for long. Previously had a MMC at 7.5 weeks (after seeing heartbeat at 7 weeks) and now panicking I don't feel sick and it's going to happen again. Any tips for how to cope? I have PCOS
Kit84
in
Fertility Network UK
3 years ago
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burning legs/feeling extremely cold?
my legs currently feel like they’re burning/are freezing, i also have pins and needles. is this a part of RLS? also, would oxycodone help restlessness? or did it only help you guys with sleep/pain? respond ASAP please! i just want to take something to help this. percocet specifically, it’s Oxycodone/
my legs currently feel like they’re burning/are freezing, i also have pins and needles. is this a part of RLS? also, would oxycodone help restlessness? or did it only help you guys with sleep/pain? respond ASAP please! i just want to take something to help this. percocet specifically, it’s Oxycodone/
mmjxc
in
Restless Legs Syndrome
3 years ago
Restless legs are worse from a foot massager
Why are my restless legs worse after using a foot massager? I got this massager to ease my restless legs. Instead, it’s worse.
Why are my restless legs worse after using a foot massager? I got this massager to ease my restless legs. Instead, it’s worse.
Madnaz
in
Restless Legs Syndrome
3 years ago
New to the site
I had Sjogren's antibodies and slightly positive SCL 70 two years ago. Other than photosensitivity and leg pain, I didn't have any other symptoms. In March of this year I got covid and suddenly my ANA went from 1:80 to 1: 640 and my SCL70 was now more than 8. I now have fatigue muscle aches, Raynauds
I had Sjogren's antibodies and slightly positive SCL 70 two years ago. Other than photosensitivity and leg pain, I didn't have any other symptoms. In March of this year I got covid and suddenly my ANA went from 1:80 to 1: 640 and my SCL70 was now more than 8. I now have fatigue muscle aches, Raynauds
Erniedoll
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
THE NIGHTMARES HAVE BEEN THE WORST eek eek
I finished my withdrawal from Ropinirole the last week in Feb. 2020 . In March I felt pretty well until the nightmares started . They were horrific . I was afraid to be alone in broad daylight and going to bed was hellish.. At the time I was taking suboxone and gabapentin for RLS and having trouble
I finished my withdrawal from Ropinirole the last week in Feb. 2020 . In March I felt pretty well until the nightmares started . They were horrific . I was afraid to be alone in broad daylight and going to bed was hellish.. At the time I was taking suboxone and gabapentin for RLS and having trouble
sweetiepye
in
Restless Legs Syndrome
3 years ago
Pregabalin and ropinirole
Would like to know if anyone has any advice for me.....been on 2mg ropinirole along with 300mg pregabalin for about 2 years. I was able to see Dr Winkleman at Mass General 2 years ago when I was on 6 mg. of ropinirole . Never totally got off of it . I also experienced augmentation when on the 6mg....
Would like to know if anyone has any advice for me.....been on 2mg ropinirole along with 300mg pregabalin for about 2 years. I was able to see Dr Winkleman at Mass General 2 years ago when I was on 6 mg. of ropinirole . Never totally got off of it . I also experienced augmentation when on the 6mg....
tweedy66
in
Restless Legs Syndrome
3 years ago
Help for after Meningitis
Hello friends! I wish all of you a healthy 2021! My name is Fredy, I was born in Peru, but for problems in my country I moved to the USA, now I live in New York. In 2012 I got meningitis, 2 weeks in comma, when I woke up from coma, my brain was gone, after that took me like 4 years to understand something
Hello friends! I wish all of you a healthy 2021! My name is Fredy, I was born in Peru, but for problems in my country I moved to the USA, now I live in New York. In 2012 I got meningitis, 2 weeks in comma, when I woke up from coma, my brain was gone, after that took me like 4 years to understand something
menin
in
Meningitis Now
3 years ago
Update on weighted blanket and Trazodone
Hi all!! I still like my weighted blanket but actually it's not as good as I thought at the beginning. A few days after I began using it, my legs started to bother me again although not as bad as before.😪 I was hoping the problem would disappear as long as I used the blanket. Oh well..😯 At that time
Hi all!! I still like my weighted blanket but actually it's not as good as I thought at the beginning. A few days after I began using it, my legs started to bother me again although not as bad as before.😪 I was hoping the problem would disappear as long as I used the blanket. Oh well..😯 At that time
Micafe
in
Restless Legs Syndrome
3 years ago
Leaving Ropinirole for Buprenorphine - Do I needed to ease off R first?
Hello, Quick question. If I am able to have my doctor prescribe Buprenorphine will I need to slowly come off Ropinirole while taking Buprenorphine or can I just stop Ropinirole? I see the doctor first week of January and think I could start reducing Ropinirole now but would rather not do it over the
Hello, Quick question. If I am able to have my doctor prescribe Buprenorphine will I need to slowly come off Ropinirole while taking Buprenorphine or can I just stop Ropinirole? I see the doctor first week of January and think I could start reducing Ropinirole now but would rather not do it over the
B534967
in
Restless Legs Syndrome
3 years ago
Prolia
Hi friends. I have been prescribed Prolia by a bone specialist and thought I would seek your opinions on the matter. Here's what's happening: I have had PMR for 2 years and am still on 16mg of prednisone. Right now I am using the DSNS method with a bit of an extension to reduce 1mg every 6 weeks or so
Hi friends. I have been prescribed Prolia by a bone specialist and thought I would seek your opinions on the matter. Here's what's happening: I have had PMR for 2 years and am still on 16mg of prednisone. Right now I am using the DSNS method with a bit of an extension to reduce 1mg every 6 weeks or so
BoaterAnnie
in
PMRGCAuk
4 years ago
Insurance companies rejecting Fulvestrant Injection
Hi, My mom has metstatic breast cancer and she has been advised fulvestrant injection but the claim has been getting rejected by tpa saying that is not included in the administrative 24 hours clause. Did anyone was able to get around this stuff in India and got their claim accepted. What documents were
Hi, My mom has metstatic breast cancer and she has been advised fulvestrant injection but the claim has been getting rejected by tpa saying that is not included in the administrative 24 hours clause. Did anyone was able to get around this stuff in India and got their claim accepted. What documents were
king_singh72
in
Breast Cancer India
3 years ago
PMR Seronegative Polyarthritis
PMR - Seronegative Arthritis - Gout attacks and three other "nasties". HAPPY FIRST OF ADVENT EVERYONE.💥❄️💐💃👵🏻 Don't think I'll send this one to my rheumatologist!!!
PMR - Seronegative Arthritis - Gout attacks and three other "nasties". HAPPY FIRST OF ADVENT EVERYONE.💥❄️💐💃👵🏻 Don't think I'll send this one to my rheumatologist!!!
Constance13
in
PMRGCAuk
4 years ago
Stem Cell Transplantation at Mass General
I have posted about this particular stem cell transplantation at least twice before. I understand that it was a "pay for play" situation. I understand that it is an "N of 1" situation. I understand that "placebo effect" could be a factor. I understand that much broader studies may be necessary. With
I have posted about this particular stem cell transplantation at least twice before. I understand that it was a "pay for play" situation. I understand that it is an "N of 1" situation. I understand that "placebo effect" could be a factor. I understand that much broader studies may be necessary. With
jimcaster
in
Cure Parkinson's
3 years ago
Tocilizumab patients and the COVID Vaccine
My Rheumatologist has let me know that it is fine for me to have the COVID Vaccine and to continue having my Tocilizumab injections. I am also on 10 mgs of Prednisalone. I have Giant Cell Arteritis/Large Vessel Vasculitis.
My Rheumatologist has let me know that it is fine for me to have the COVID Vaccine and to continue having my Tocilizumab injections. I am also on 10 mgs of Prednisalone. I have Giant Cell Arteritis/Large Vessel Vasculitis.
SheffieldJane
in
PMRGCAuk
3 years ago
Tomorrow
Well wish me luck as I'm seeing a neurologist or under study tomorrow again. Last time they told me to go on ropinerole but I refused as I'd weaned off prami. So I'm armed I've written my rls story which is sad reading and I've saved some of the links u provided onto my main screen on my phone and printed
Well wish me luck as I'm seeing a neurologist or under study tomorrow again. Last time they told me to go on ropinerole but I refused as I'd weaned off prami. So I'm armed I've written my rls story which is sad reading and I've saved some of the links u provided onto my main screen on my phone and printed
Netball-50
in
Restless Legs Syndrome
3 years ago
Dry eyes and humidifiers
Hi Everyone I've had long standing dry eyes for many, many years (pre diagnosis of my Lupus and Relapsing Polychondritis) but in this past year the dryness has been especially awful. Alongside that I recently had a haemoraged blood vessel in one of my eyes which thankfully healed of its own accord. I've
Hi Everyone I've had long standing dry eyes for many, many years (pre diagnosis of my Lupus and Relapsing Polychondritis) but in this past year the dryness has been especially awful. Alongside that I recently had a haemoraged blood vessel in one of my eyes which thankfully healed of its own accord. I've
BookishVibes
in
LUPUS UK
3 years ago
Has anyone had pain in their leg(s)?
As my restless legs got worse, I started having pain in the front of my legs. I sleep on my stomach and the pain although mild keeps me from going back to sleep, although occasionally it is mild enough I can. I would also have it lying on my back. After awhile I started having the pain when I was up
As my restless legs got worse, I started having pain in the front of my legs. I sleep on my stomach and the pain although mild keeps me from going back to sleep, although occasionally it is mild enough I can. I would also have it lying on my back. After awhile I started having the pain when I was up
SueJohnson
in
Restless Legs Syndrome
3 years ago
Article from John-Hopkins regaurding the effects of opiates on RLS
No question, I just wanted to post some of an article regaurding the effects of opiates on RLS (the full text can be found on John Hopkins university website. Dr. Willis (as in Willis-Ekbomb disease / RLS) in his description of this disease in 1685 also reported on the benefits of opiates for treating
No question, I just wanted to post some of an article regaurding the effects of opiates on RLS (the full text can be found on John Hopkins university website. Dr. Willis (as in Willis-Ekbomb disease / RLS) in his description of this disease in 1685 also reported on the benefits of opiates for treating
Stdorn
in
Restless Legs Syndrome
3 years ago
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