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Hard week so far
Monday was one of my worst days since diagnosis. Tuesday I has a colonoscopy/endoscopy. Today, Wednesday, my daughter was goiing to vist if I were up to it--I am but she isn't! Monday was the awful colonoscopy prep day, but I felt pretty lousy without that started. Off balance, upset belly, like unlike
Monday was one of my worst days since diagnosis. Tuesday I has a colonoscopy/endoscopy. Today, Wednesday, my daughter was goiing to vist if I were up to it--I am but she isn't! Monday was the awful colonoscopy prep day, but I felt pretty lousy without that started. Off balance, upset belly, like unlike
PJBinMI
in
SHARE Metastatic Breast Cancer
8 months ago
Still waiting …
Quite a while ago I asked my haematologist to refer me to Professor Harrison at Guys, he says he now has eventually sent a letter via ‘snail mail’ ( royal mail) about 3 weeks ago, however Professor Harrison says they haven’t received anything yet. I rang my specialist nurse and asked if it had been sent
Quite a while ago I asked my haematologist to refer me to Professor Harrison at Guys, he says he now has eventually sent a letter via ‘snail mail’ ( royal mail) about 3 weeks ago, however Professor Harrison says they haven’t received anything yet. I rang my specialist nurse and asked if it had been sent
lizzziep
in
MPN Voice
8 months ago
Advice for Chemo Treatment
Hey everyone, this is my first post here! I am posting in relation to my mum (who is grateful for the support and guidance on this forum and is finding it very useful) who has recently been diagnosed with ovarian cancer. She had a complicated debulking surgery but is now recovering well from that and
Hey everyone, this is my first post here! I am posting in relation to my mum (who is grateful for the support and guidance on this forum and is finding it very useful) who has recently been diagnosed with ovarian cancer. She had a complicated debulking surgery but is now recovering well from that and
Ripley9696
in
My Ovacome
8 months ago
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Starting Kisquali and Injections
Progression after being on Ibrance for two years…CT scans didn’t show any cancer progression. I had one small area that the Urologist found to be inflammation so…I had a PET and found many new areas of metastasized areas. Why are CT scans so unreliable? Kind of scares me now. I would like to hear from
Progression after being on Ibrance for two years…CT scans didn’t show any cancer progression. I had one small area that the Urologist found to be inflammation so…I had a PET and found many new areas of metastasized areas. Why are CT scans so unreliable? Kind of scares me now. I would like to hear from
Paratroop1
in
SHARE Metastatic Breast Cancer
8 months ago
thoughts 🙏
hi everyone, my dad has had MBC since June of 2022. He has been on Ibrance, letrozole, lupron, and xjeva. His Mets were to bone and then he was NED for a year from June 2022 to June 2023. In July he took a PET scan and it showed a slight uptake of activity to his chest wall. Plan was to keep him on
hi everyone, my dad has had MBC since June of 2022. He has been on Ibrance, letrozole, lupron, and xjeva. His Mets were to bone and then he was NED for a year from June 2022 to June 2023. In July he took a PET scan and it showed a slight uptake of activity to his chest wall. Plan was to keep him on
Jenniferp2122
in
SHARE Metastatic Breast Cancer
8 months ago
Feeling of fullness / bloating 3 weeks after ablation
Hello, I am nearly 4 weeks post ablation and only for the last few days have had a feeling of fullness / bloating after eating relatively small meals. I have read on the information leaflet that there can be some digestive issues after ablation is this the kind of thing it is referring too? I also googled
Hello, I am nearly 4 weeks post ablation and only for the last few days have had a feeling of fullness / bloating after eating relatively small meals. I have read on the information leaflet that there can be some digestive issues after ablation is this the kind of thing it is referring too? I also googled
Green_pink
in
Atrial Fibrillation Support
6 months ago
Iron profile
So these are my levels 6 weeks post iron infusion ,a combination of coming off the gabapentin and moving to pregablin I'm no longer depressed and able to function ,although my legs are still live they are no longer violent. Serum.iron ..22 Serum tibc 47 Iron transferrin sat 46.8 Serum ferritin 175
So these are my levels 6 weeks post iron infusion ,a combination of coming off the gabapentin and moving to pregablin I'm no longer depressed and able to function ,although my legs are still live they are no longer violent. Serum.iron ..22 Serum tibc 47 Iron transferrin sat 46.8 Serum ferritin 175
Baz33
in
Restless Legs Syndrome
6 months ago
Bladder dysfunction
in 2014, diagnosed Gleason 9, had Prostate surgery, cancer metastasized to pelvic region, did ADT, followed by 72 Proton blasts ( 37 to cavity-35 to pelvic) Two years ago, stricture surgery ( 80% urethra blockage- all good), had stricture surgery 3 weeks ago ( 25% blockage), but bladder stopped operating
in 2014, diagnosed Gleason 9, had Prostate surgery, cancer metastasized to pelvic region, did ADT, followed by 72 Proton blasts ( 37 to cavity-35 to pelvic) Two years ago, stricture surgery ( 80% urethra blockage- all good), had stricture surgery 3 weeks ago ( 25% blockage), but bladder stopped operating
Tkwham
in
Advanced Prostate Cancer
7 months ago
does diverticula /ibs make you unable/little pass of urine but there’s an urgency to need to pass urine ??? I’m on antibiotics .
does diverticula /ibs make you unable/little pass of urine but there’s an urgency to need to pass urine , no burning sensation ?? I’m on antibiotics again as kidneys were very painful!
does diverticula /ibs make you unable/little pass of urine but there’s an urgency to need to pass urine , no burning sensation ?? I’m on antibiotics again as kidneys were very painful!
-lilybet
in
IBS Network
6 months ago
symptoms made clearer
maybe I should make my conditions clearer. intussusception is when the lining of the bowel folds back on itself and makes an inverted U shape which then makes it very difficult for anything to pass through the bowel unless it is very soft, so making constipation or blockages , Like a tyre inner
maybe I should make my conditions clearer. intussusception is when the lining of the bowel folds back on itself and makes an inverted U shape which then makes it very difficult for anything to pass through the bowel unless it is very soft, so making constipation or blockages , Like a tyre inner
Corneater
in
IBS Network
3 months ago
I have IBS but there is hope
I am a male retired now but I have no gallbladder and suffer from what I believe is BAM, my obesity doesn't help ..but since I have been taking Colesevelam my bowels are more regular where before I had bad diarehea. I hope we find more info on this channel.
I am a male retired now but I have no gallbladder and suffer from what I believe is BAM, my obesity doesn't help ..but since I have been taking Colesevelam my bowels are more regular where before I had bad diarehea. I hope we find more info on this channel.
paraiba1
in
IBS Network
6 months ago
Iron panel interpretation please
This is a friend’s recent iron panel I’ve looked on rT3 adrenals where it says a low transferrin level indicates a lack of capacity for supplemental iron. I really don’t understand this when it’s clear her whole panel is low, including ferritin. My grasp of iron is poor so anyone who
does
have
This is a friend’s recent iron panel I’ve looked on rT3 adrenals where it says a low transferrin level indicates a lack of capacity for supplemental iron. I really don’t understand this when it’s clear her whole panel is low, including ferritin. My grasp of iron is poor so anyone who
does
have
Noelnoel
in
Thyroid UK
6 months ago
Rectal fissure - healed!
I'm not sure if this is the correct group to post in as I do not have IBS, however for 10+ years, I had a rectal fissure that just wouldn’t go away. I live in the Caribbean, have a healthy lifestyle and diet. Years ago, when first diagnosed with the fissure, I was prescribed Lidoprocto suppositories
I'm not sure if this is the correct group to post in as I do not have IBS, however for 10+ years, I had a rectal fissure that just wouldn’t go away. I live in the Caribbean, have a healthy lifestyle and diet. Years ago, when first diagnosed with the fissure, I was prescribed Lidoprocto suppositories
StogStog
in
IBS Network
6 months ago
Losing blood, mucus & clots very scared
A few days ago (Saturday 25th of November) I got very unwell with severe stomach, cramps, diarrhoea, weakness and hot sweats. I had to take all of my clothes off and lie on the bathroom floor and had diarrhoea for around three hours (this has happened to me in the past with no answers other than that
A few days ago (Saturday 25th of November) I got very unwell with severe stomach, cramps, diarrhoea, weakness and hot sweats. I had to take all of my clothes off and lie on the bathroom floor and had diarrhoea for around three hours (this has happened to me in the past with no answers other than that
Anxietylife123
in
Crohn's and Colitis Support
6 months ago
Kidney update and possible gallstones
Hi everyone, it’s been a hot minute since I posted about my kidneys! A few weeks ago I found out I had leaky protein, but I saw the specialist (who was pretty thorough) and he’s not worried about it. And if he’s not worried, I’m not worried! We’re gonna review in 3 months’ time. I’m so glad it turned
Hi everyone, it’s been a hot minute since I posted about my kidneys! A few weeks ago I found out I had leaky protein, but I saw the specialist (who was pretty thorough) and he’s not worried about it. And if he’s not worried, I’m not worried! We’re gonna review in 3 months’ time. I’m so glad it turned
MusicalFurbaby
in
LUPUS UK
4 months ago
Great MBC Retreats
As a long timer with MBC, I've attended many MBC and BC conferences, in my quest to learn all I can about this lousy cancer, and sometime ago I heard about the wonderful retreats offered by Breast Cancer Recovery, an organization in Wisconsin. Several years ago I was able to attend more than one of
As a long timer with MBC, I've attended many MBC and BC conferences, in my quest to learn all I can about this lousy cancer, and sometime ago I heard about the wonderful retreats offered by Breast Cancer Recovery, an organization in Wisconsin. Several years ago I was able to attend more than one of
PJBinMI
in
SHARE Metastatic Breast Cancer
8 months ago
endo symptoms on hormonal therapy
hello, im just wondering for those who are on any kind of hormone therapy eg pill, IUD and DONT have period because of this what are your symptoms?? I don’t have periods anymore but wondering what kind of Endo symptoms people experience when they don’t menstruate. Been told by a DR I can’t have
hello, im just wondering for those who are on any kind of hormone therapy eg pill, IUD and DONT have period because of this what are your symptoms?? I don’t have periods anymore but wondering what kind of Endo symptoms people experience when they don’t menstruate. Been told by a DR I can’t have
PBGV24
in
Endometriosis UK
8 months ago
Study: Cannabidiol Inhibits the Proliferation and Invasiveness of Prostate Cancer Cells
Abstract Prostate cancer is the fifth leading cause of cancer death in men, responsible for over 375,000 deaths in 2020. Novel therapeutic strategies are needed to improve outcomes. Cannabinoids, chemical components of the cannabis plant, are a possible solution. Preclinical evidence demonstrates
Abstract Prostate cancer is the fifth leading cause of cancer death in men, responsible for over 375,000 deaths in 2020. Novel therapeutic strategies are needed to improve outcomes. Cannabinoids, chemical components of the cannabis plant, are a possible solution. Preclinical evidence demonstrates
NewPotatoCaboose
in
Advanced Prostate Cancer
8 months ago
Colonoscopy pain
Hi everyone 👋I had a colonoscopy last week Wednesday, and had some biopsies taken at the time, my endo pain was improving, it had been terrible for the 3 weeks prior but didn't want to miss this appointment as it had been booked for months so went anyway, since then the pain has been so much worse,
Hi everyone 👋I had a colonoscopy last week Wednesday, and had some biopsies taken at the time, my endo pain was improving, it had been terrible for the 3 weeks prior but didn't want to miss this appointment as it had been booked for months so went anyway, since then the pain has been so much worse,
Shellbell2023
in
Endometriosis UK
6 months ago
Scary - 3mm increase in tumour size
HI I would appreciate any help, encouragement😀 or comments . Feeling v panic-ed by this new development . Hoping to get much longer from my first line of treatment as it allows me continue life pretty much as normal I was diagnosed with MBC, Mar 2022 , several tumours in right pleura (first diagnosed
HI I would appreciate any help, encouragement😀 or comments . Feeling v panic-ed by this new development . Hoping to get much longer from my first line of treatment as it allows me continue life pretty much as normal I was diagnosed with MBC, Mar 2022 , several tumours in right pleura (first diagnosed
Kahe
in
SHARE Metastatic Breast Cancer
8 months ago
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