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Journey update: LVV/GCA, tocilizumab and exercise
I have been diagnosed with LVV/GCA beginning of February (though MRI/MRA and PET/CT were not fully conclusive). With the help of Tocilizumab I now arrived at 12.5 mg prednisolone per day. I know that this is a very fast taper but it worked well until now and from now on the steps will become much smaller
I have been diagnosed with LVV/GCA beginning of February (though MRI/MRA and PET/CT were not fully conclusive). With the help of Tocilizumab I now arrived at 12.5 mg prednisolone per day. I know that this is a very fast taper but it worked well until now and from now on the steps will become much smaller
DeepThought2
in
PMRGCAuk
3 years ago
Covid vaccine & PMR
Having had my vaccine today, I asked the nurse if my antibodies would produce equally as well as someone who didn’t have autoimmune issues. She said probably not but the only way to find out that would be to have an antibody test after the 2nd vaccine. I have thyroid issues, hashimotos, and PMR, has
Having had my vaccine today, I asked the nurse if my antibodies would produce equally as well as someone who didn’t have autoimmune issues. She said probably not but the only way to find out that would be to have an antibody test after the 2nd vaccine. I have thyroid issues, hashimotos, and PMR, has
Daisy1624
in
PMRGCAuk
3 years ago
Waiting over 12 months for procedures, how can I escalate this?
Hi everyone. New to these boards although unfortunately not new to endo. After going back and forth to the GP and various consultants for about 4 years I finally got a diagnosis and referred to have a laparoscopy, endoscopy and possible oophorectomy. This was over 12 months ago! I was advised at the
Hi everyone. New to these boards although unfortunately not new to endo. After going back and forth to the GP and various consultants for about 4 years I finally got a diagnosis and referred to have a laparoscopy, endoscopy and possible oophorectomy. This was over 12 months ago! I was advised at the
Vinnie99
in
Endometriosis UK
3 years ago
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ADT and growth of breasts
I was not a victim of breast enlargement during my first injection of Lupron or while on Casodex but I do not know if it is any indication that my breasts won't grow once I start ADT again in a few weeks. Did any of you experience growing breasts while under ADT? If yes, did they go away after treatment
I was not a victim of breast enlargement during my first injection of Lupron or while on Casodex but I do not know if it is any indication that my breasts won't grow once I start ADT again in a few weeks. Did any of you experience growing breasts while under ADT? If yes, did they go away after treatment
Mascouche
in
Advanced Prostate Cancer
3 years ago
Lymph node removal
Hi,does anybody know what determines how many lymph nodes are removed during esophagectomy..I had 76 removed and 7 were cancerous,yet I know people who had 47 removed and 4 were cancerous,and another who had 52,and 5 were..I don’t really understand the connection between the 2 numbers..as the 7s the
Hi,does anybody know what determines how many lymph nodes are removed during esophagectomy..I had 76 removed and 7 were cancerous,yet I know people who had 47 removed and 4 were cancerous,and another who had 52,and 5 were..I don’t really understand the connection between the 2 numbers..as the 7s the
telford-hiker
in
Oesophageal & Gastric Cancer
3 years ago
radiotherapy
I was born in 1967.The PSA in August 2020 is 10.75 I was diagnosed with cancer in September 2020. Prostatectomy and extended lymphadenectomy performed on December 8, 2020. in OLV Aalst Belgium, prof. ALEXANDER MOTTRIER. Gleason score 7 (4 + 3). pT3b pN1 pMX. January 14, 2021 PSA 1.18 January 25, 2021
I was born in 1967.The PSA in August 2020 is 10.75 I was diagnosed with cancer in September 2020. Prostatectomy and extended lymphadenectomy performed on December 8, 2020. in OLV Aalst Belgium, prof. ALEXANDER MOTTRIER. Gleason score 7 (4 + 3). pT3b pN1 pMX. January 14, 2021 PSA 1.18 January 25, 2021
adam1967adam
in
Advanced Prostate Cancer
3 years ago
Inguinal Hernia Surgery after Radiation
Happy Holidays Anyone had Inguinal Hernia Surgery after Full Pelvic Radiation. PSA undetectable for now My Radiation ended 5 months ago. Surgeon has an opening for Hernia Repair tomorrow My opening feels like 2 half dollar size so I wear a truss when I lift or run My question is will waiting longer
Happy Holidays Anyone had Inguinal Hernia Surgery after Full Pelvic Radiation. PSA undetectable for now My Radiation ended 5 months ago. Surgeon has an opening for Hernia Repair tomorrow My opening feels like 2 half dollar size so I wear a truss when I lift or run My question is will waiting longer
sharpcut
in
Advanced Prostate Cancer
3 years ago
Polyp removal
Hi ladies, for anyone who had a polyp removed for ivf purposes how long did you wait for your biopsy results? I had the polyp removed 5 weeks ago. Thanks xx
Hi ladies, for anyone who had a polyp removed for ivf purposes how long did you wait for your biopsy results? I had the polyp removed 5 weeks ago. Thanks xx
slupton
in
Fertility Network UK
3 years ago
Tocilizumab extension
Hi I wrote a couple of weeks ago asking if anyone had been told that their tocilizumab was being extended. I’ve heard nothing from rheumatology or G.P but today I’ve had a txt from the company that deliver the injections to say they are delivering early March. Not sure if it’s the normal 8 weeks supply
Hi I wrote a couple of weeks ago asking if anyone had been told that their tocilizumab was being extended. I’ve heard nothing from rheumatology or G.P but today I’ve had a txt from the company that deliver the injections to say they are delivering early March. Not sure if it’s the normal 8 weeks supply
Devoid
in
PMRGCAuk
3 years ago
HRT Alternative
Hi I am having surgery next week (hopefully will not be cancelled) to remove my ovaries and endometriosis and adhesions, have been advised will go straight into surgical menopause, please can anyone suggest anything I can take to help me through this, any suggestions would be appreciated, I don't want
Hi I am having surgery next week (hopefully will not be cancelled) to remove my ovaries and endometriosis and adhesions, have been advised will go straight into surgical menopause, please can anyone suggest anything I can take to help me through this, any suggestions would be appreciated, I don't want
The_joker75
in
Endometriosis UK
3 years ago
Breast pain
I occasionally have breast pain after a double mastectomy, 8 chemo treatments and 30 radiation treatments. I am now on Ibrance and Femara. I also had 16 lymph nodes removed on the side which had the cancer. Is it common to experience breast pain and what causes it? Just had a PET scan with good results
I occasionally have breast pain after a double mastectomy, 8 chemo treatments and 30 radiation treatments. I am now on Ibrance and Femara. I also had 16 lymph nodes removed on the side which had the cancer. Is it common to experience breast pain and what causes it? Just had a PET scan with good results
JEY1
in
SHARE Metastatic Breast Cancer
3 years ago
Nervous
Sorry I'm going a bit off piste but I feel very scared. My husband has had trouble with his mobility and memory for a couple of years and yesterday got a diagnosis of Normal postural Hydrocephalus. He has been advised to have a lumber puncture to drain some fluid to see if it temporarily improves with
Sorry I'm going a bit off piste but I feel very scared. My husband has had trouble with his mobility and memory for a couple of years and yesterday got a diagnosis of Normal postural Hydrocephalus. He has been advised to have a lumber puncture to drain some fluid to see if it temporarily improves with
Suet3942
in
PMRGCAuk
3 years ago
Surgical menopause & hrt
Hi hope i get some advice. I have been told following hysterectomy (stage 4 endo & adenomyosis) I need hrt to manage surgical menopause. In 2014, I was fast tracked to a breast clinic due to lumps in my breast that were fortunately fine. The breast consultant told me estrogen was the cause & that I
Hi hope i get some advice. I have been told following hysterectomy (stage 4 endo & adenomyosis) I need hrt to manage surgical menopause. In 2014, I was fast tracked to a breast clinic due to lumps in my breast that were fortunately fine. The breast consultant told me estrogen was the cause & that I
I3obstar
in
Endometriosis UK
3 years ago
How long after hysteroscopy did you start treatment?
Morming lovelys for anyone who had a polyp removal before next cycle how long did you wait for your biopsy results? My clinic wont let me start untill i have the results. Also how long after your hysteroscopy did you work out? I'm desperate to go for a run. Thanks guys xxx
Morming lovelys for anyone who had a polyp removal before next cycle how long did you wait for your biopsy results? My clinic wont let me start untill i have the results. Also how long after your hysteroscopy did you work out? I'm desperate to go for a run. Thanks guys xxx
slupton
in
Fertility Network UK
3 years ago
Decreasing AMH levels leaving me very anxious
Hi Guys, So during my last IVF/ICSI cycle I was diagnosed with DOR (diminished ovarian reserve). I did a lot of research and found out people with this don't respond well to high stimulus protocol. I started taking DHEA in September and have just embarked on a new cycle with low level stimulus, so far
Hi Guys, So during my last IVF/ICSI cycle I was diagnosed with DOR (diminished ovarian reserve). I did a lot of research and found out people with this don't respond well to high stimulus protocol. I started taking DHEA in September and have just embarked on a new cycle with low level stimulus, so far
slinky00
in
Fertility Network UK
4 years ago
Gallbladder removal pros and cons
Drs are considering putting me up for gallbladder removal due to sludge and nothing being a direct cirrhosis diagnosis yet. My gallbladder has only ever detected sludge on all testing so in the last 6 months it hasn’t been up for discussion but I have constant dull or sharp upper right quadrant pain
Drs are considering putting me up for gallbladder removal due to sludge and nothing being a direct cirrhosis diagnosis yet. My gallbladder has only ever detected sludge on all testing so in the last 6 months it hasn’t been up for discussion but I have constant dull or sharp upper right quadrant pain
Amethyst91
in
Living with Fatty Liver and NASH
3 years ago
Surgery soon
Hi guys, I've got a hysteroscopy booked for Friday for polyp removal and biopsy. I've just been told its a general anesthetic and im now panicking. Please if any of you have had the same under general please let me know thanks xx
Hi guys, I've got a hysteroscopy booked for Friday for polyp removal and biopsy. I've just been told its a general anesthetic and im now panicking. Please if any of you have had the same under general please let me know thanks xx
slupton
in
Fertility Network UK
3 years ago
Hi lady here's my story please dont hesitate to ask me anything xx
Hi my name is jenna I was diagnosed with endometriosis in 2005 I was a heavy bleeding very young The pain I was in was unbearable I got pregnant at 18 and after my 1st child I struggled with my 2nd it took me 4 years 4 laps and diathermy I eventually fell pregnant endometriosis ruined my life for many
Hi my name is jenna I was diagnosed with endometriosis in 2005 I was a heavy bleeding very young The pain I was in was unbearable I got pregnant at 18 and after my 1st child I struggled with my 2nd it took me 4 years 4 laps and diathermy I eventually fell pregnant endometriosis ruined my life for many
Leighjen36
in
Endometriosis UK
3 years ago
I have paroxysmal AF, take Rivaroxaban, and am about to have an inguinal hernia repair. Anyone had any issues with this procedure?
PAF AND INGUINAL REPAIR OP
PAF AND INGUINAL REPAIR OP
blacknight
in
AF Association
4 years ago
Polyp removal soon
Hi you lovely ladies, so I finally have a date for my polyp removal its in 17 days! I can start my cycle after hopefully. Im really nervous if anyones had a polyp removed please let me know how it went and how soon you could start the treatment? Thank you xx
Hi you lovely ladies, so I finally have a date for my polyp removal its in 17 days! I can start my cycle after hopefully. Im really nervous if anyones had a polyp removed please let me know how it went and how soon you could start the treatment? Thank you xx
slupton
in
Fertility Network UK
4 years ago
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