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Cutaneous T cell lymphoma (CTCL)
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just diagnosed from a blood test done in 2009
Hi im 58yrs old I was diagnosed at first with Non Hodgkins Lymphoma after a breast screening 10 days later I saw a Haematologist that said from a bood test in 2009 ( no follow up on by my doctors) and the biopsy I had take from nodes in my arm pits 5 weeks ago I have CLL . I was trying to get my head
Hi im 58yrs old I was diagnosed at first with Non Hodgkins Lymphoma after a breast screening 10 days later I saw a Haematologist that said from a bood test in 2009 ( no follow up on by my doctors) and the biopsy I had take from nodes in my arm pits 5 weeks ago I have CLL . I was trying to get my head
mush56
in
CLL Support
9 years ago
The Emperor of All Maladies - PBS documentary
LLS newsletter I received announced an upcoming documentary based on the renown primer on cancer. ******** Found a blurb and a PBS link with trailer: "Siemens proudly supports "Cancer: The Emperor of All Maladies,” a film based on The Emperor of All Maladies: A Biography of Cancer by Pulitzer Prize-winning
LLS newsletter I received announced an upcoming documentary based on the renown primer on cancer. ******** Found a blurb and a PBS link with trailer: "Siemens proudly supports "Cancer: The Emperor of All Maladies,” a film based on The Emperor of All Maladies: A Biography of Cancer by Pulitzer Prize-winning
gemit2000
in
CLL Support
9 years ago
Interesting research on antibodies
Was very interested by this research into how autoimmune disorders (AD) arise. My mother has rheumatoid arthritis and I have psoriasis and LS. This falls in line with the article I'm pasting from, 'When the immune system goes on the attack'. "Hal Scofield, Professor of Medicine at the University of Oklahoma's
Was very interested by this research into how autoimmune disorders (AD) arise. My mother has rheumatoid arthritis and I have psoriasis and LS. This falls in line with the article I'm pasting from, 'When the immune system goes on the attack'. "Hal Scofield, Professor of Medicine at the University of Oklahoma's
Shezian
in
Vasculitis UK
9 years ago
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‘Biodegradable’ CAR may aid transplant in AML
CAR-T therapy first showed success in CLL and AML leukaemias, but one of the problems with CAR-T is that the T-cells are not selective against cancerous lymphocytes, so they keep killing off both cancerous and non-cancerous lymphocytes long after treatment initiation. For CLL patients, that means long
CAR-T therapy first showed success in CLL and AML leukaemias, but one of the problems with CAR-T is that the T-cells are not selective against cancerous lymphocytes, so they keep killing off both cancerous and non-cancerous lymphocytes long after treatment initiation. For CLL patients, that means long
AussieNeil
Partner
in
CLL Support
9 years ago
Stem cell therapy reverses multiple sclerosis
From yesterday's Telegraph: "A pioneering new stem cell treatment is allowing multiple sclerosis sufferers to walk, run and even dance again, in results branded ‘miraculous’ by doctors. Patients who have been wheelchair-bound for 10 years have regained the use of their legs in the groundbreaking therapy
From yesterday's Telegraph: "A pioneering new stem cell treatment is allowing multiple sclerosis sufferers to walk, run and even dance again, in results branded ‘miraculous’ by doctors. Patients who have been wheelchair-bound for 10 years have regained the use of their legs in the groundbreaking therapy
KeithS
in
AMN EASIER
9 years ago
Original Coping strategies for Living with CLL - Part 1- Making good use of "Watch and Wait". Please read new version!
[i]The updated version to this very popular post can be found here:[/i] https://healthunlocked.com/cllsupport/posts/134219303/coping-strategies-things-we-can-do-to-improve-our-chances-on-the-cll-journey.-part-one-updated[i] - Admin[/i] When people are first diagnosed with CLL, they are usually told
[i]The updated version to this very popular post can be found here:[/i] https://healthunlocked.com/cllsupport/posts/134219303/coping-strategies-things-we-can-do-to-improve-our-chances-on-the-cll-journey.-part-one-updated[i] - Admin[/i] When people are first diagnosed with CLL, they are usually told
PaulaS
Volunteer
in
CLL Support
9 years ago
Can Your Body Be Trained to Cure Its Own Cancer?
Another one about immunotherapy: For decades, cancer patients have been limited to a trio of treatment options. While surgery, chemotherapy and radiation have their effectiveness, they also have serious drawbacks that can compromise quality of life. Continued research in the area of immunotherapy is
Another one about immunotherapy: For decades, cancer patients have been limited to a trio of treatment options. While surgery, chemotherapy and radiation have their effectiveness, they also have serious drawbacks that can compromise quality of life. Continued research in the area of immunotherapy is
shazie
in
CLL Support
9 years ago
Stem cell research, asx announcement today from a company I own shares in. Would love to be part of some of their trials ........
ASX ANNOUNCEMENT Cynata Achieves Major Stem Cell Manufacturing Milestone - World first stem cell manufacturing process - U.S. analysis validates Cynata’s novel manufacturing technology - “Critical milestone” now achieved to commercialise Cymerus™ stem cell production technology - Technology enables large
ASX ANNOUNCEMENT Cynata Achieves Major Stem Cell Manufacturing Milestone - World first stem cell manufacturing process - U.S. analysis validates Cynata’s novel manufacturing technology - “Critical milestone” now achieved to commercialise Cymerus™ stem cell production technology - Technology enables large
Kad21
in
Lung Conditions Community Forum
9 years ago
Ibrutinib Treatment Shows Efficacy and Tolerability in Heavily Treated CLL Patients Following Allogeneic Stem Cell Transplant
You have to admire Pharmacyclics advertising capability. Here they are showing how effective Ibrutinib (Imbruvica) is on a tough to treat bunch of CLL patients. [i]"These patients had a median of five prior therapies and 63% were high-risk del 17p CLL patients. The estimated median progression-free
You have to admire Pharmacyclics advertising capability. Here they are showing how effective Ibrutinib (Imbruvica) is on a tough to treat bunch of CLL patients. [i]"These patients had a median of five prior therapies and 63% were high-risk del 17p CLL patients. The estimated median progression-free
AussieNeil
Partner
in
CLL Support
9 years ago
Is It Me Or Today's Society
Hey guys I just wanted to share with you guys that have me appointment for my first Rituximab Infusion next week. And the first thing I randomly thought was dose the Kings College Chemotherapy Day Unit have free Wifi I don’t know if that says something about me or today’s society God forbid I go a
Hey guys I just wanted to share with you guys that have me appointment for my first Rituximab Infusion next week. And the first thing I randomly thought was dose the Kings College Chemotherapy Day Unit have free Wifi I don’t know if that says something about me or today’s society God forbid I go a
wotshernameagain
in
LUPUS UK
9 years ago
Imbruvica is on track to be a top seller for J&J and Pharmacyclics for years to come
Interesting insight into the revenues of the best selling cancer drugs in the USA. Many are familiar to us; Imbruvica of course and Revlimid (Lenalidomide), Rituxan (Rituximab/Mabthera) and perhaps Gleevec (Imatinib), the drug that did for CML what we are still looking for with CLL. http://www.fool.com
Interesting insight into the revenues of the best selling cancer drugs in the USA. Many are familiar to us; Imbruvica of course and Revlimid (Lenalidomide), Rituxan (Rituximab/Mabthera) and perhaps Gleevec (Imatinib), the drug that did for CML what we are still looking for with CLL. http://www.fool.com
AussieNeil
Partner
in
CLL Support
9 years ago
Can anyone confirm if Ibrutinib is now available on prescription in the UK?
I just received an email from a friend to suggest it is available. I’m to start 6 months of BR treatment on Monday 12th January, and would be so relieved if I can try a non-chemotherapy drug instead. Dear Healthcare Professional I am pleased to inform you that Janssen UK has been granted European Medicines
I just received an email from a friend to suggest it is available. I’m to start 6 months of BR treatment on Monday 12th January, and would be so relieved if I can try a non-chemotherapy drug instead. Dear Healthcare Professional I am pleased to inform you that Janssen UK has been granted European Medicines
Ruhi9
in
CLL Support
9 years ago
Giant cell arteritis diagnosed 160115
Happy New Year. I've suffered with RA most of my life, and had cutaneous vasculitis. Now progressed to Giant Cell Arteritis in my temple area. Fisrt signs were tender scalp when hair drying and brushing. That night a sudden headache like no other. Nearest equivalent pain was a sudden bone fracture. Immediate
Happy New Year. I've suffered with RA most of my life, and had cutaneous vasculitis. Now progressed to Giant Cell Arteritis in my temple area. Fisrt signs were tender scalp when hair drying and brushing. That night a sudden headache like no other. Nearest equivalent pain was a sudden bone fracture. Immediate
daphne_retired
in
PMRGCAuk
9 years ago
New approach could lead cancer cells down path of destruction
Cancer research has discovered that when double-strand break DNA damage occurs, in which both strands of the DNA double helix are severed, the cell can either attempt to repair the damage, which has a poor chance of success and may create a cancerous cell (or a more aggressive clone of an existing cancerous
Cancer research has discovered that when double-strand break DNA damage occurs, in which both strands of the DNA double helix are severed, the cell can either attempt to repair the damage, which has a poor chance of success and may create a cancerous cell (or a more aggressive clone of an existing cancerous
AussieNeil
Partner
in
CLL Support
9 years ago
Positive parietal cell antibody
After eventually seeing a neurologist with regard to my tingling limbs, I have today received a copy of a letter he sent to my GP. He says that the MRI scan was normal, so pleased about that. However, he then says, quote: "I note she as a positive parietal cell antibody and that some provisional blood
After eventually seeing a neurologist with regard to my tingling limbs, I have today received a copy of a letter he sent to my GP. He says that the MRI scan was normal, so pleased about that. However, he then says, quote: "I note she as a positive parietal cell antibody and that some provisional blood
Twitchen
in
Thyroid UK
9 years ago
Narrowed esophagus
My Rheumy has asked me if I have difficulty swallowing. So I wonder if this is a symptom of GCA. I recently had a colonoscopy and endoscopy with a stretching of the esophagus. The gastro doctor informed me that my esophagus was very narrowed and wondered if it had been bothering me. He wondered if it
My Rheumy has asked me if I have difficulty swallowing. So I wonder if this is a symptom of GCA. I recently had a colonoscopy and endoscopy with a stretching of the esophagus. The gastro doctor informed me that my esophagus was very narrowed and wondered if it had been bothering me. He wondered if it
Asbeck
in
PMRGCAuk
9 years ago
Blood counts very poor, soon to start BR, and unsure whether to have jabs? (See later post)
Hi everyone, Thanks for all your responses to my post 3 weeks ago. The blood test results on 10th December were confusing to say the least - WBC had increased from 81.6 to 123.5 since the previous tests at the end of November, while neutrophils, HB and platelets were all improved. My consultant was
Hi everyone, Thanks for all your responses to my post 3 weeks ago. The blood test results on 10th December were confusing to say the least - WBC had increased from 81.6 to 123.5 since the previous tests at the end of November, while neutrophils, HB and platelets were all improved. My consultant was
Ruhi9
in
CLL Support
9 years ago
Bone marrow Abnormalities and APS
Hi Just wondering if there is a link between bone marrow abnormalities and APS? I had a bone marrow biopsy at my local hospital and it has shown abnormalities in mast cells, chromasomes . . . I have been referred to Kings for another biopsy for specialised testing. Does anyone else have bone marrow abnormalities
Hi Just wondering if there is a link between bone marrow abnormalities and APS? I had a bone marrow biopsy at my local hospital and it has shown abnormalities in mast cells, chromasomes . . . I have been referred to Kings for another biopsy for specialised testing. Does anyone else have bone marrow abnormalities
beckyb
in
Hughes Syndrome APS Forum
9 years ago
Husband suffering from mantle cell lymphoma
I just wanted to find out what should one do to regain strength after the chemotherapy. My husband is completely drained out after his third chemotherapy. How should it be dealt with?
I just wanted to find out what should one do to regain strength after the chemotherapy. My husband is completely drained out after his third chemotherapy. How should it be dealt with?
kk055
in
Cancer Patients Aid Association India
9 years ago
Progress
I joined the PAS and this forum at the beginning of Sept this year having been diagnosed with PA in May 2013. I hadn't received any loading doses and was put immediately onto 3 monthly injections. My readings on each subsequent visit to the Doc were around the 200 mark. Thanks to the forum I realised
I joined the PAS and this forum at the beginning of Sept this year having been diagnosed with PA in May 2013. I hadn't received any loading doses and was put immediately onto 3 monthly injections. My readings on each subsequent visit to the Doc were around the 200 mark. Thanks to the forum I realised
Weewull
in
Pernicious Anaemia Society
9 years ago
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