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transplant and covid
hi all. My 23 year old son is currently awaiting a kidney transplant. His team as informed him that he has to have the Covid vaccine before his surgery. Has this happened to anyone? He is scared to get the vaccine ! Any input would be amazing!!
hi all. My 23 year old son is currently awaiting a kidney transplant. His team as informed him that he has to have the Covid vaccine before his surgery. Has this happened to anyone? He is scared to get the vaccine ! Any input would be amazing!!
Boymommm
in
Kidney Transplant
2 years ago
Update on progress with MF and the FEDORA clinical trial
So to recap, I was diagnosed with primary MF in October 2022 and asked to join a new clinical trial called FEDORA. After many tests including a BMB, ultrasound on my abdomen, chest X-ray etc. I started on the pre medication of 400mg/day (in one dose) of Fedratinib in capsule form. This was the first
So to recap, I was diagnosed with primary MF in October 2022 and asked to join a new clinical trial called FEDORA. After many tests including a BMB, ultrasound on my abdomen, chest X-ray etc. I started on the pre medication of 400mg/day (in one dose) of Fedratinib in capsule form. This was the first
Flyingsteamer
in
MPN Voice
1 year ago
Transplant Journey outcomes/advice anyone?
Hi, I have had CKD for several years and declined dramatically over the last 6mths -1yr and was actually started urgently on dialysis in July when my GFR dropped to 3 and creatine was 12.43. I had already had a consult and was added to a wait list for kidney transplant in early February of this year.
Hi, I have had CKD for several years and declined dramatically over the last 6mths -1yr and was actually started urgently on dialysis in July when my GFR dropped to 3 and creatine was 12.43. I had already had a consult and was added to a wait list for kidney transplant in early February of this year.
Hawaiilover
in
Kidney Disease
2 years ago
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Post-Transplant Arterial Line Bruise
Has anyone else experienced inside arm bruises after kidney transplant surgery like this? Very painful, Tylenol won't touch it and they don't want to prescribe anything stronger.
Has anyone else experienced inside arm bruises after kidney transplant surgery like this? Very painful, Tylenol won't touch it and they don't want to prescribe anything stronger.
frebusmaxwell
in
Kidney Transplant
2 years ago
Explore NKF’s Kidney Learning Center!
Are you interested in learning more about kidney transplant? Check out our free, self-paced guide to kidney transplant through this new online resource. Take the next step on your journey today! Kidney Learning Center: First Steps to Transplant https://learningcenter.kidney.org/spa/courses/resource
Are you interested in learning more about kidney transplant? Check out our free, self-paced guide to kidney transplant through this new online resource. Take the next step on your journey today! Kidney Learning Center: First Steps to Transplant https://learningcenter.kidney.org/spa/courses/resource
KateyC_NKF
Partner
in
Kidney Transplant
2 years ago
Explore NKF’s Kidney Learning Center!
Are you interested in learning about kidney transplant for your child? Check out our free, self-paced beginner’s guide to kidney transplant and getting on the waitlist. Get started on your transplant journey today! Kidney Learning Center: First Steps to Transplant https://learningcenter.kidney.org
Are you interested in learning about kidney transplant for your child? Check out our free, self-paced beginner’s guide to kidney transplant and getting on the waitlist. Get started on your transplant journey today! Kidney Learning Center: First Steps to Transplant https://learningcenter.kidney.org
KateyC_NKF
Partner
in
Parents of Children with Kidney Disease
2 years ago
Explore NKF’s Kidney Learning Center!
Are you interested on getting on the kidney transplant waitlist? View our free, self-paced beginner’s guide to kidney transplant through our new online resource. Take the first step on your transplant journey today! Kidney Learning Center: First Steps to Transplant https://learningcenter.kidney.org
Are you interested on getting on the kidney transplant waitlist? View our free, self-paced beginner’s guide to kidney transplant through our new online resource. Take the first step on your transplant journey today! Kidney Learning Center: First Steps to Transplant https://learningcenter.kidney.org
KateyC_NKF
Partner
in
Kidney Dialysis
2 years ago
Explore NKF’s Kidney Learning Center!
Are you interested in learning more about kidney transplant? Check out our free, self-paced beginner’s guide to kidney transplant through this new online resource. Take the next step on your journey today! Kidney Learning Center: First Steps to Transplant https://learningcenter.kidney.org/spa/courses
Are you interested in learning more about kidney transplant? Check out our free, self-paced beginner’s guide to kidney transplant through this new online resource. Take the next step on your journey today! Kidney Learning Center: First Steps to Transplant https://learningcenter.kidney.org/spa/courses
KateyC_NKF
Partner
in
Kidney Disease
2 years ago
Kidney transplant at 60 plus stories please
My kidneys are 33% now. IgA patient. I want to know how long a kidney lasts if received at age of 55 or 60. What is chance of body accepting new kidney at that age? In uk does every recepient of kidney also need to donate a relatives kidney?? I want to hear real stories please. Consultant has no interest
My kidneys are 33% now. IgA patient. I want to know how long a kidney lasts if received at age of 55 or 60. What is chance of body accepting new kidney at that age? In uk does every recepient of kidney also need to donate a relatives kidney?? I want to hear real stories please. Consultant has no interest
Chawal2
in
Kidney Transplant
2 years ago
Hypoxia, transplant dry runs and raising awareness of IPF
To say a lot's happened since my last update is a bit of an understatement! I've been called up twice for a possible lung transplant, suffered a hypoxic episode and shared my experiences of living with lung disease with Asthma and Lung UK to help them raise a bit of awareness of pulmonary fibrosis for
To say a lot's happened since my last update is a bit of an understatement! I've been called up twice for a possible lung transplant, suffered a hypoxic episode and shared my experiences of living with lung disease with Asthma and Lung UK to help them raise a bit of awareness of pulmonary fibrosis for
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
Fibroscan
I got told in May that I would need a Liver Transplant in y2rs time after being hospitalised and nearly dying from a Gastrointestinal bleed. I am not a drinker and have had an unexplained liver condition for 35yrs. However I had a Fibroscan and it came back normal. Also my blood results are on
I got told in May that I would need a Liver Transplant in y2rs time after being hospitalised and nearly dying from a Gastrointestinal bleed. I am not a drinker and have had an unexplained liver condition for 35yrs. However I had a Fibroscan and it came back normal. Also my blood results are on
Chrisjohnsy
in
British Liver Trust
2 years ago
jan16
anyone been diagnosed with lung cancer following liver transplant for pbc
anyone been diagnosed with lung cancer following liver transplant for pbc
jackk9
in
PBC Foundation
2 years ago
I am 1/ 2yrs out from liver transplant with recurrent PBC.
Has anyone had problems with taking course of anti biotics?
Has anyone had problems with taking course of anti biotics?
Denvercarol1
in
PBC Foundation
2 years ago
Kidney Donor who now had CKD stage 3a
Hi, i donated my kidney 2 years ago to my father, who is doing excellent. I was being checked every 6 months for 2 years through the Organ Transplant Institute in Miami. Upon graduating from the donor program, I am now being told that I have Chronic Kidney Disease Stage 3A. I am shock, because i am 48
Hi, i donated my kidney 2 years ago to my father, who is doing excellent. I was being checked every 6 months for 2 years through the Organ Transplant Institute in Miami. Upon graduating from the donor program, I am now being told that I have Chronic Kidney Disease Stage 3A. I am shock, because i am 48
nichama74
in
Kidney Disease
2 years ago
Stem Cell Transplant (stc) after care
Can someone who has been through a sct, or their carer, give me info about the time after hospital discharge please? We live more than 30 minutes from the transplant centre so the hospital is providing us with a flat in Bristol where my husband will be my carer. I know the early days he'll need to
Can someone who has been through a sct, or their carer, give me info about the time after hospital discharge please? We live more than 30 minutes from the transplant centre so the hospital is providing us with a flat in Bristol where my husband will be my carer. I know the early days he'll need to
Scaredy_cat
in
MPN Voice
1 year ago
British Transplant Games - King's families (UK)
Hi all, I hope everyone is doing ok ❤️ My son has had 2 liver transplants at King's College Hospital London, (at 22 months old and 19 years old). We have attended the British Transplant Games 10 times now and find them to be an amazing event for post transplant families to meet up, have fun, and
Hi all, I hope everyone is doing ok ❤️ My son has had 2 liver transplants at King's College Hospital London, (at 22 months old and 19 years old). We have attended the British Transplant Games 10 times now and find them to be an amazing event for post transplant families to meet up, have fun, and
ConsMum
in
Children's Liver Disease Foundation
2 years ago
Queen’s second try
I went to the second kidney transplant center. They were nice I learned a lot. The rooms were so tiny not made for a wheelchair for sure. I still made it. I have one worry. I only have one caregiver. I’m going to have to ask some friends to help me. The second center was nice, professional, and caring
I went to the second kidney transplant center. They were nice I learned a lot. The rooms were so tiny not made for a wheelchair for sure. I still made it. I have one worry. I only have one caregiver. I’m going to have to ask some friends to help me. The second center was nice, professional, and caring
HipHopQueen
in
Kidney Dialysis
2 years ago
Study Finds: Drug typically used in cancer therapy emerges as powerful anti-aging remedy
Stud y Finds: Drug typically used in cancer therapy emerges as powerful anti-aging remedy Rapamycin is a cell growth inhibitor and immunosuppressant that people normally take while undergoing cancer treatment or after receiving an organ transplant. A team from the Max Planck Institute for
Stud y Finds: Drug typically used in cancer therapy emerges as powerful anti-aging remedy Rapamycin is a cell growth inhibitor and immunosuppressant that people normally take while undergoing cancer treatment or after receiving an organ transplant. A team from the Max Planck Institute for
cesces
in
Advanced Prostate Cancer
2 years ago
polyomavirus infection treatments
Hi everyone, My father received kidney transplant last year and 5 months ago he was diagnosed with polyomavirus and his doctor didn't manage to help it so far. if you have experience with this virus andnyou received treatment for it can you please share its name and your experiences? Would be very
Hi everyone, My father received kidney transplant last year and 5 months ago he was diagnosed with polyomavirus and his doctor didn't manage to help it so far. if you have experience with this virus andnyou received treatment for it can you please share its name and your experiences? Would be very
Pjennifer
in
Kidney Transplant
2 years ago
liver transplant
Good day has anyone's child undergone an operation of a liver transplant and how was the child now doing and its been how long
Good day has anyone's child undergone an operation of a liver transplant and how was the child now doing and its been how long
Ririza-31
in
Children's Liver Disease Foundation
2 years ago
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