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Antihemophilic factor
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Help with symptoms please
Hi - not used to posting yet! My daughter at 25 has been suffering from extreme symptoms and more for over 9 months- pain and pins and needles in legs, hands, headaches everyday, exhaustion and weight gain. Had daily diarrhoea for 9 months or more and pain spleen area. Rheumatoid factor of 40 - should
Hi - not used to posting yet! My daughter at 25 has been suffering from extreme symptoms and more for over 9 months- pain and pins and needles in legs, hands, headaches everyday, exhaustion and weight gain. Had daily diarrhoea for 9 months or more and pain spleen area. Rheumatoid factor of 40 - should
Monika53
in
Thyroid UK
9 years ago
active B12
I would appreciate your help with understanding the results On the 15 April 2015 I have been diagnosed with Pernicious Anaemia. Presence of Intrinsic Factor antibodies. The active B12 level was 146 range 25-165 pmol/L. I was advised to take B complex. At that time I experienced skipped beats and inner
I would appreciate your help with understanding the results On the 15 April 2015 I have been diagnosed with Pernicious Anaemia. Presence of Intrinsic Factor antibodies. The active B12 level was 146 range 25-165 pmol/L. I was advised to take B complex. At that time I experienced skipped beats and inner
007999
in
Thyroid UK
9 years ago
B12 from the liver to the body?
I have PA and was diagnosed in April after MRIs and Nerve conduction tests ruled out other neurological conditions. I have anti-bodies to Intrinsic Factor but NOT to Parietal cells. I understand that i can only get B12 into my system via injections. Here is my question. Once the B12 injections replenish
I have PA and was diagnosed in April after MRIs and Nerve conduction tests ruled out other neurological conditions. I have anti-bodies to Intrinsic Factor but NOT to Parietal cells. I understand that i can only get B12 into my system via injections. Here is my question. Once the B12 injections replenish
zonn44
in
Pernicious Anaemia Society
9 years ago
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AnotherBrick Wall (aka) Endo .. Where next?
Hello All I posted a message on the forum (Dazed and Confused), a few weeks ago, and received so very welcome advice and support. I am now Dazed, Confused and Angry. Sorry for the long post, but as you all know its complicated! My GP tested me for various conditions, TSH and TPO (Labs will not test
Hello All I posted a message on the forum (Dazed and Confused), a few weeks ago, and received so very welcome advice and support. I am now Dazed, Confused and Angry. Sorry for the long post, but as you all know its complicated! My GP tested me for various conditions, TSH and TPO (Labs will not test
Hezziet
in
Thyroid UK
9 years ago
Help please?
Hi all, just back from a rather good GP consultation, quite pleasantly surprised. She listened to everything I said and has agreed to refer me back to see an endocrinologist. So I need to know how to contact Louise Warville for the list of recommended endocrinologists. I live in Essex, but can travel
Hi all, just back from a rather good GP consultation, quite pleasantly surprised. She listened to everything I said and has agreed to refer me back to see an endocrinologist. So I need to know how to contact Louise Warville for the list of recommended endocrinologists. I live in Essex, but can travel
MariLiz
in
Thyroid UK
9 years ago
Help With Blue Horizon Results
I hope someone will comment on my latest results, shown as an attachment. My previous results below lead me to have these further tests on the advice of some members of this forum B12 244 pmol/L range 142-725 Folate 1183 nmol/L range 158-1099 Intrinsic Factor Antibodies Negative Active B12 63 pmol/L
I hope someone will comment on my latest results, shown as an attachment. My previous results below lead me to have these further tests on the advice of some members of this forum B12 244 pmol/L range 142-725 Folate 1183 nmol/L range 158-1099 Intrinsic Factor Antibodies Negative Active B12 63 pmol/L
Tango2
in
Pernicious Anaemia Society
9 years ago
Intrinsic factor abs(levels explained)
Finally a straight answer...? https://www.beckmancoulter.com/wsrportal/bibliography?docname=9075e_IntrinFac_Ab.pdf
Finally a straight answer...? https://www.beckmancoulter.com/wsrportal/bibliography?docname=9075e_IntrinFac_Ab.pdf
patmackfin
in
Pernicious Anaemia Society
9 years ago
What do my test results mean?
I posted before about my B12 levels and my genetic profile and I have a few questions which I would be very grateful for your help on. Here goes: My situation: - My B12 level was 284 - all other bloods except iron good - My 'iron levels' were 7 (gone up from 4 after taking spatone) and 112 - not sure
I posted before about my B12 levels and my genetic profile and I have a few questions which I would be very grateful for your help on. Here goes: My situation: - My B12 level was 284 - all other bloods except iron good - My 'iron levels' were 7 (gone up from 4 after taking spatone) and 112 - not sure
Karris
in
Pernicious Anaemia Society
9 years ago
Anyone ever heard of Eligen as a replacement for injections?
I typically ignore advertisements on web pages but this one for Eligen caught my attention. It is for oral B12 that allows absorption without intrinsic factor. Uses something called SNAC to transport the B12, but unfortunately incorporates cyanocobalamin. But maybe someday B12 injections will be a thing
I typically ignore advertisements on web pages but this one for Eligen caught my attention. It is for oral B12 that allows absorption without intrinsic factor. Uses something called SNAC to transport the B12, but unfortunately incorporates cyanocobalamin. But maybe someday B12 injections will be a thing
_tracy_
in
Pernicious Anaemia Society
9 years ago
Active B12 test
Hi I wonder if anyone could help? It has taken years to get my daughter diagnosed as having low B12 and at last have got her on 3 monthly injections. She has been having to take anti depressants as she is so low from feeling so poorly all the time. It has really affected her time at uni. I have also
Hi I wonder if anyone could help? It has taken years to get my daughter diagnosed as having low B12 and at last have got her on 3 monthly injections. She has been having to take anti depressants as she is so low from feeling so poorly all the time. It has really affected her time at uni. I have also
Steph14
in
Pernicious Anaemia Society
9 years ago
Need some help
Can someone tell me why I am feeling so unwell? I was initially low on b12 250 range 196-996. Doc would not give injections so ended up supplementing methl 5000mcg. Felt brilliant for few mths. Slowly started feeling unwell again. Tiredness, tinnitus, tinglin and now numb patches on feet and hands. I
Can someone tell me why I am feeling so unwell? I was initially low on b12 250 range 196-996. Doc would not give injections so ended up supplementing methl 5000mcg. Felt brilliant for few mths. Slowly started feeling unwell again. Tiredness, tinnitus, tinglin and now numb patches on feet and hands. I
annette12
in
Pernicious Anaemia Society
9 years ago
Understanding my blood results
I am currently under going numerous tests to find out why I am suffering with Headaches ( since nov) with eye pain and servere blood shot and some swelling Constant sickness feeling ( worse after eating) Chronic fatigue Abdominal and stomach pains Very loud stomach and abdominal noises ( it terrifies
I am currently under going numerous tests to find out why I am suffering with Headaches ( since nov) with eye pain and servere blood shot and some swelling Constant sickness feeling ( worse after eating) Chronic fatigue Abdominal and stomach pains Very loud stomach and abdominal noises ( it terrifies
Mandiejj
in
Thyroid UK
9 years ago
Doc ignored my levels help pls
Hi, well my last serum b12 was 213. I ordered the active b12, folate and ferritin blood test from blue horizon. My results were.. Active b12 52 Folate 4.8 Ferritin 19 I'm an absolute mess. Been under neurology for a year had ms, als, lupus and so on ruled out. Im feeling very ill. Weak, diarrhoea,
Hi, well my last serum b12 was 213. I ordered the active b12, folate and ferritin blood test from blue horizon. My results were.. Active b12 52 Folate 4.8 Ferritin 19 I'm an absolute mess. Been under neurology for a year had ms, als, lupus and so on ruled out. Im feeling very ill. Weak, diarrhoea,
GEM_lou78
in
Pernicious Anaemia Society
9 years ago
Intrinsic Factor and Parietel cells been refused b12
My results came back negative (although they wouldn't let me have the ref ranges again) and so the GP surgery won't let me have b12 injections despite having two low readings. Is this right? I have an appointment with a consultant Haematologist tomorrow at 1pm and any advice anyone can give me would
My results came back negative (although they wouldn't let me have the ref ranges again) and so the GP surgery won't let me have b12 injections despite having two low readings. Is this right? I have an appointment with a consultant Haematologist tomorrow at 1pm and any advice anyone can give me would
Carlygeorge
in
Pernicious Anaemia Society
9 years ago
Maybe and maybe not Lupus
I am very confused and getting angry. I have so many "abnormal" blood tests I don't know even what community to post in. I have dsdna of 9, ss-a 1, mpo 27.8, p-anca 1:80, ch-50 >60, c-reactive 1.5, thyroid peroxidase >900, histamine release 94, eosonophils 10, rheumatoid factor 17, vitamin d 18. Hashimoto's
I am very confused and getting angry. I have so many "abnormal" blood tests I don't know even what community to post in. I have dsdna of 9, ss-a 1, mpo 27.8, p-anca 1:80, ch-50 >60, c-reactive 1.5, thyroid peroxidase >900, histamine release 94, eosonophils 10, rheumatoid factor 17, vitamin d 18. Hashimoto's
Savonna
in
LUpus Patients Understanding and Support
9 years ago
Confused and upset
Had a hospital visit yesterday with my rheumy nurse, has now been 4 weeks since starting the mtx. I have been struggling again with pain and stiffness in both knees but more so the left one as usual. Have previously had a steroid injection in this one which did help for a few months but has worn off
Had a hospital visit yesterday with my rheumy nurse, has now been 4 weeks since starting the mtx. I have been struggling again with pain and stiffness in both knees but more so the left one as usual. Have previously had a steroid injection in this one which did help for a few months but has worn off
Tinat3
in
NRAS
9 years ago
What to say to Dr??
Hi, I have tested positive for intrinsic factor, have a family history of PA, my mum, sister and daughter all have injections but I am not allowed! My level is 300...it has been 300 for about 20 years, it went down to 90 when I was pregnant 24 yrs ago and I was still refused injections. I was ill after
Hi, I have tested positive for intrinsic factor, have a family history of PA, my mum, sister and daughter all have injections but I am not allowed! My level is 300...it has been 300 for about 20 years, it went down to 90 when I was pregnant 24 yrs ago and I was still refused injections. I was ill after
emmaline66
in
Pernicious Anaemia Society
9 years ago
Blood results
Hello everyone, could you help me interpret my mum's blood results please? TSH 2 (RR 0.27-4.2) Lab didn't test FT4 and FT3 TPO 11 (no red range available) Rheumatoid factor IgM < 10 (RR < 15) Serum sodium 140 (133-146) Serum potassium 4.2 (3.5-5.3) B12 297 (191-663) Folate 9.8 (4.6-18.7) Ferritin 66
Hello everyone, could you help me interpret my mum's blood results please? TSH 2 (RR 0.27-4.2) Lab didn't test FT4 and FT3 TPO 11 (no red range available) Rheumatoid factor IgM < 10 (RR < 15) Serum sodium 140 (133-146) Serum potassium 4.2 (3.5-5.3) B12 297 (191-663) Folate 9.8 (4.6-18.7) Ferritin 66
Spanglysplash
in
Thyroid UK
9 years ago
Breathless + high heart rate.
Been having high heart rate along with breathlessness and tightness in chest. Had docs appt this morn and mentioned my last TSH was 2.79 and that it needs to be 1 or just below. Asked for an increase but refused as he thought it might push me overactive and doesnt think these symptoms are related to
Been having high heart rate along with breathlessness and tightness in chest. Had docs appt this morn and mentioned my last TSH was 2.79 and that it needs to be 1 or just below. Asked for an increase but refused as he thought it might push me overactive and doesnt think these symptoms are related to
annette12
in
Thyroid UK
9 years ago
Advice for next consultant visit
I was referred to an endocrinologist 5 months ago due to a range of issues including extreme tiredness and neurological symptoms. Blood tests hadn't shown anything conclusive other than that my B12 was at 165 and I was also low in vit D, however my GP said these were not low enough to require treatment
I was referred to an endocrinologist 5 months ago due to a range of issues including extreme tiredness and neurological symptoms. Blood tests hadn't shown anything conclusive other than that my B12 was at 165 and I was also low in vit D, however my GP said these were not low enough to require treatment
rosaespanola
in
Pernicious Anaemia Society
9 years ago
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