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Caelyx and hair loss
Hello,This journey against ovarian cancer stage IV with bcra1 mutation started in June 2016, with chemo, debulking hysterectomy surgery and more chemo...stayed in avastin and then olaparib as maintenance until had a reocurrence in February 2022, spread to collarbone lymph nodes and tummy.Lost for the
Hello,This journey against ovarian cancer stage IV with bcra1 mutation started in June 2016, with chemo, debulking hysterectomy surgery and more chemo...stayed in avastin and then olaparib as maintenance until had a reocurrence in February 2022, spread to collarbone lymph nodes and tummy.Lost for the
Pumpkininja
in
My Ovacome
7 months ago
Blood Results - and poor treatment/support from NHS - feel lost and unwell
I have been diagnosed severe Graves with high antibodies for about 8 years and suffered a number of relapses where usually end up in A&E. Due to reading a lot on this forum and other websites I have refused RAI treatment due to the often poor outcomes and don’t really want surgery either as read about
I have been diagnosed severe Graves with high antibodies for about 8 years and suffered a number of relapses where usually end up in A&E. Due to reading a lot on this forum and other websites I have refused RAI treatment due to the often poor outcomes and don’t really want surgery either as read about
LonelyPlace
in
Thyroid UK
7 months ago
What Do I Do Now?
Quick recap...... I have seen several doctors over a period of at least 11 years complaining that I wake early every morning feeling very unwell. I have said that it feels as if I am recovering from something traumatic that happens during the night and have always wondered why no doctor ever suggested
Quick recap...... I have seen several doctors over a period of at least 11 years complaining that I wake early every morning feeling very unwell. I have said that it feels as if I am recovering from something traumatic that happens during the night and have always wondered why no doctor ever suggested
Channeal
in
British Heart Foundation
7 months ago
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high ileostomy output
Hi, I recently had my ileostomy surgery on the 26th October and I’ve been out of hospital for 4 days and I’ve been getting very high out put which I have been managing but I’ve been doing all the things I’m told to slow it down with white stuff even having crackers before bed but I’m still up in the
Hi, I recently had my ileostomy surgery on the 26th October and I’ve been out of hospital for 4 days and I’ve been getting very high out put which I have been managing but I’ve been doing all the things I’m told to slow it down with white stuff even having crackers before bed but I’m still up in the
MyStar86
in
Bowel Disease Support
7 months ago
high ileostomy output
Hi, I recently had my ileostomy surgery on the 26th October and I’ve been out of hospital for 4 days and I’ve been getting very high out put which I have been managing but I’ve been doing all the things I’m told to slow it down with white stuff even having crackers before bed but I’m still up in the
Hi, I recently had my ileostomy surgery on the 26th October and I’ve been out of hospital for 4 days and I’ve been getting very high out put which I have been managing but I’ve been doing all the things I’m told to slow it down with white stuff even having crackers before bed but I’m still up in the
MyStar86
in
Crohn's and Colitis Support
7 months ago
Ongoing saga of getting back my b12 prescription.
Pharmacy telephone appointment on having to change surgeries. B12 reinstated May 2023 The removed in Ausgust Then reinstated The removed. Told I needed s Gps appointment . Reinstated 12/10 Removed 27/ 10 3 letters. No reply. Then 1 ampoule reinstated. The one I geg at the surgery I presume.
Pharmacy telephone appointment on having to change surgeries. B12 reinstated May 2023 The removed in Ausgust Then reinstated The removed. Told I needed s Gps appointment . Reinstated 12/10 Removed 27/ 10 3 letters. No reply. Then 1 ampoule reinstated. The one I geg at the surgery I presume.
Nackapan
in
Pernicious Anaemia Society
7 months ago
thyroid test results and dealing with surgery
I could do with a bit support, please! I was diagnosed with Hypothyroidism last December with TSH of 67.9 and prescribed initially 25 mcg of levothyroxine gradually increased to 75mcg which was appropriate for my weight of 48 kgs. I was given blood tests every 8 weeks until: August 25 th TSH 0.68
I could do with a bit support, please! I was diagnosed with Hypothyroidism last December with TSH of 67.9 and prescribed initially 25 mcg of levothyroxine gradually increased to 75mcg which was appropriate for my weight of 48 kgs. I was given blood tests every 8 weeks until: August 25 th TSH 0.68
Libuse
in
Thyroid UK
7 months ago
ADT for almost 2 years
Hi everyone, It is the first time I post in this network and I still feel a bit strange and with my heart beating stronger ... sorry for this! Well, I have gone through surgery, radiotherapy, ADT, since my diagnosis in February 2018. It will be 2 years in February next since I started ADT and PSA has
Hi everyone, It is the first time I post in this network and I still feel a bit strange and with my heart beating stronger ... sorry for this! Well, I have gone through surgery, radiotherapy, ADT, since my diagnosis in February 2018. It will be 2 years in February next since I started ADT and PSA has
Paulo1968
in
Advanced Prostate Cancer
7 months ago
high ileostomy output
Hi, I recently had my ileostomy surgery last on the 26th October and I’ve been out of hospital for 4 days and I’ve been getting very high out put which I have been managing but I’ve been doing all the things I’m told to slow it down with white stuff even having crackers before bed but I’m still up in
Hi, I recently had my ileostomy surgery last on the 26th October and I’ve been out of hospital for 4 days and I’ve been getting very high out put which I have been managing but I’ve been doing all the things I’m told to slow it down with white stuff even having crackers before bed but I’m still up in
MyStar86
in
Living with a Stoma
7 months ago
mature eggs vs collected
hi, I had my third egg collection today. I’m not sure what I expected. I’m 37 with AMH of 6.5 and follicle count of 11. The consultant mentioned he hoped for 10 or 11 eggs when discussing as we were considering banking. Anyway a lot of tears later (maybe the anaesthetic) but we were updated 12 hours
hi, I had my third egg collection today. I’m not sure what I expected. I’m 37 with AMH of 6.5 and follicle count of 11. The consultant mentioned he hoped for 10 or 11 eggs when discussing as we were considering banking. Anyway a lot of tears later (maybe the anaesthetic) but we were updated 12 hours
Chowlady14
in
Fertility Network UK
3 months ago
Nerve issues?
Hi everyone, I wanted to ask if anyone has nerve issues -
* warning *
some of this will TMI. I had stage 4 excision in May, I didn't really get any relief from my symptoms but lots of endo was removed. In about August husband and I were "doing things" and after I had an orgasm I had an odd feeling
Hi everyone, I wanted to ask if anyone has nerve issues -
* warning *
some of this will TMI. I had stage 4 excision in May, I didn't really get any relief from my symptoms but lots of endo was removed. In about August husband and I were "doing things" and after I had an orgasm I had an odd feeling
G3miniStar
in
Endometriosis UK
7 months ago
just like that, another BFN 💔
Sad day today ☹️ Very grateful to have some frozen. Those with endo or implantation failure, what tests did you do before your next transfer, if any? I’m thinking pgt-a, NK cells and maybe a biopsy to check my lining? I also in two minds about whether to have excision surgery for my endo before we
Sad day today ☹️ Very grateful to have some frozen. Those with endo or implantation failure, what tests did you do before your next transfer, if any? I’m thinking pgt-a, NK cells and maybe a biopsy to check my lining? I also in two minds about whether to have excision surgery for my endo before we
Hidden
in
Fertility Network UK
7 months ago
Low AMH
How long did you wait between cycles?Did you see a decrease in eggs retrieved the next round? I've had a round in Jan which resulted in fresh transfer, nothing frozen but it didn't work. My AMH is 5pmol. I'm planning to jump straight back in but I'm not sure if the break would do me good, possibly
How long did you wait between cycles?Did you see a decrease in eggs retrieved the next round? I've had a round in Jan which resulted in fresh transfer, nothing frozen but it didn't work. My AMH is 5pmol. I'm planning to jump straight back in but I'm not sure if the break would do me good, possibly
Greenleaves1
in
Fertility Network UK
3 months ago
FYI: from the VA research information on Veterans
➤ Prostate cancer Prostate cancer is the most common malignancy affecting men in the United States. It is also the most commonly diagnosed solid tumor in VA. In 2016, VA and the Prostate Cancer Foundation established a partnership to promote prevention, screening, and research to find new treatments
➤ Prostate cancer Prostate cancer is the most common malignancy affecting men in the United States. It is also the most commonly diagnosed solid tumor in VA. In 2016, VA and the Prostate Cancer Foundation established a partnership to promote prevention, screening, and research to find new treatments
MouseAddams
in
Advanced Prostate Cancer
7 months ago
Gummie relief for degarelix shots?
DH has so much pain with each monthly shot and can't take nsaids. Is there anything that won't make him loopy to use after shots for a few days? He is ready to go back to lupron, it hurts so much. Mail order preferred.Thanks!
DH has so much pain with each monthly shot and can't take nsaids. Is there anything that won't make him loopy to use after shots for a few days? He is ready to go back to lupron, it hurts so much. Mail order preferred.Thanks!
Chipnick
in
Advanced Prostate Cancer
3 months ago
post op gyno appointment
hey guys, I had a laparoscopy about a month ago where they confirmed my endo and found some nodules and cysts hiding in there. How long did you have to wait to hear back of results and to talk to the gynaecologist after your operation? Calling the hospital where my gyno resides is practically impossible
hey guys, I had a laparoscopy about a month ago where they confirmed my endo and found some nodules and cysts hiding in there. How long did you have to wait to hear back of results and to talk to the gynaecologist after your operation? Calling the hospital where my gyno resides is practically impossible
Fred91
in
Endometriosis UK
7 months ago
delayed reconstruction
I had a subdural haemorrhage in may 2023 removing most of the right side of my scull even encroached my forehead that’s some 10 months ago now. I was supposed to receive reconstructive surgery and have titanium implant to protect the sensitive area where my skin is my only protection to my brain. That
I had a subdural haemorrhage in may 2023 removing most of the right side of my scull even encroached my forehead that’s some 10 months ago now. I was supposed to receive reconstructive surgery and have titanium implant to protect the sensitive area where my skin is my only protection to my brain. That
Jodieb73
in
Headway
4 months ago
Post Screen Numbers
Hi All, Ive just had my post screen results and found out I have 6.3 AMH which the nurse said was on the cusp of low at 6 AMH. If I'm honest I was really surprised at this and didn't expect it. I'm 33 and consider myself healthy, I know that has no bearing on egg reserve though. I wonder if anyone could
Hi All, Ive just had my post screen results and found out I have 6.3 AMH which the nurse said was on the cusp of low at 6 AMH. If I'm honest I was really surprised at this and didn't expect it. I'm 33 and consider myself healthy, I know that has no bearing on egg reserve though. I wonder if anyone could
Looom
in
Fertility Network UK
3 months ago
Shingles - to vacc or not to vacc
Morning wonderful hive mind. Wonder if I can pick your brains... I've received my first invite for a shingles vacc and while I'm "delighted' I'm on the map with local medical network I'm daunted and unsure as to whether I book one. Came on here and had a look-see in the posts regarding shingles and
Morning wonderful hive mind. Wonder if I can pick your brains... I've received my first invite for a shingles vacc and while I'm "delighted' I'm on the map with local medical network I'm daunted and unsure as to whether I book one. Came on here and had a look-see in the posts regarding shingles and
Wolfie_at_the_door
in
LUPUS UK
7 months ago
Jude's
hi there was diagnosed 6 years ago have had injections every 12 weeks doesn’t feel like enough but GP just wrote to me saying that according to my blood test taken 6 years ago I no longer need the injections and can now absorb through food originally was told I don’t absorb it and even through lock down
hi there was diagnosed 6 years ago have had injections every 12 weeks doesn’t feel like enough but GP just wrote to me saying that according to my blood test taken 6 years ago I no longer need the injections and can now absorb through food originally was told I don’t absorb it and even through lock down
Judedench
in
Pernicious Anaemia Society
7 months ago
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