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Xtandi and Orgovyx
Hey all - my full bio is in my profile. My question is pertaining to joint pain. I”m on Orgovyx and Xtandi of which things started to decline once we added Xtandi to the mix. My joints seem very arthritic.. From my feet to my hands. Getting out of bed is tough, but once I get going, the pain seems to
Hey all - my full bio is in my profile. My question is pertaining to joint pain. I”m on Orgovyx and Xtandi of which things started to decline once we added Xtandi to the mix. My joints seem very arthritic.. From my feet to my hands. Getting out of bed is tough, but once I get going, the pain seems to
Vp7174
in
Advanced Prostate Cancer
9 months ago
pBAT update after two cycles.
I started BAT using testosterone propianate which requires injections every other day during high T cycle. The beauty of that is fast clearing and slamming the jail cell shut on the beast with darolutamide. My recent PSA came in as 0,05 which is almost at end on my 2nd darolutamide cycle. My Numbers
I started BAT using testosterone propianate which requires injections every other day during high T cycle. The beauty of that is fast clearing and slamming the jail cell shut on the beast with darolutamide. My recent PSA came in as 0,05 which is almost at end on my 2nd darolutamide cycle. My Numbers
KocoPr
in
Fight Prostate Cancer
9 months ago
R A and PSA medication
Has anyone been prescribed Infliximab ? Has it been beneficial ?
Has anyone been prescribed Infliximab ? Has it been beneficial ?
Fedupofhaliax
in
NRAS
9 months ago
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Hi again, re: Cannabis/THC use for PC
The answers I am getting are more for pain relief. Have there been any studies linking cannabis/THC to curative effects for PC or lowering PSA? Or is it just used for pain relief? Any studies on proven benefits beyond pain relief? Thanks so much. Ran across this study: ncbi.nlm.nih.gov/pmc
The answers I am getting are more for pain relief. Have there been any studies linking cannabis/THC to curative effects for PC or lowering PSA? Or is it just used for pain relief? Any studies on proven benefits beyond pain relief? Thanks so much. Ran across this study: ncbi.nlm.nih.gov/pmc
Cactus297
in
Advanced Prostate Cancer
9 months ago
73, RP 2021, BCR peaked PSA 2.2 2023, scrambling
Hello writing you as you are very active, knowledgeable and experienced. Just respond if you like- PSMA 4/18 showed T10 lesion and right iliac lesion, low volume. MRI 5/28 confirmed, plus showed some probable spots lower left sacrum. Rad oncs I went to deferred to med oncs for systemic treatment
Hello writing you as you are very active, knowledgeable and experienced. Just respond if you like- PSMA 4/18 showed T10 lesion and right iliac lesion, low volume. MRI 5/28 confirmed, plus showed some probable spots lower left sacrum. Rad oncs I went to deferred to med oncs for systemic treatment
jackwfrench
in
Advanced Prostate Cancer
9 months ago
THC/ Cannabis having Curative Effects for PC???
Ran across this study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7503992/ But is there any proof that THC helps to cure PC or lower PSA? I believe it’s used for pain relief, but are its benefits been proven beyond that? Thank you very much.
Ran across this study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7503992/ But is there any proof that THC helps to cure PC or lower PSA? I believe it’s used for pain relief, but are its benefits been proven beyond that? Thank you very much.
Cactus297
in
Advanced Prostate Cancer
9 months ago
ADT for a year?
Had intermediate grade PC no spread, had SBRT. Three months out my Psa is .03. Am on Lupron for the fourth month out of a projected 12 month stint. Do docs ever say, six or nine months is enough? Testosterone at 6 right now.
Had intermediate grade PC no spread, had SBRT. Three months out my Psa is .03. Am on Lupron for the fourth month out of a projected 12 month stint. Do docs ever say, six or nine months is enough? Testosterone at 6 right now.
Photographerhere
in
Prostate Cancer Network
9 months ago
After BCR and PSA Return: An Update on My Treatment Path
Hi Everyone, I realize it's been quite a while since I last shared an update on my journey. I thought it was high time to share how things have been going for me, especially considering the somewhat controversial path I decided to take in early 2022 following Biochemical Recurrence (BCR) and the early
Hi Everyone, I realize it's been quite a while since I last shared an update on my journey. I thought it was high time to share how things have been going for me, especially considering the somewhat controversial path I decided to take in early 2022 following Biochemical Recurrence (BCR) and the early
PGDuan
in
Advanced Prostate Cancer
9 months ago
Ongoing BCR case. Advices are appreciated.
RP 09/17/2015 GS 7(4+3), PNI,SVI, ECE, positive margins (35% right half, 15% left half (PT3b N0M0)) 11/12/2015 PSA 0.06 first postop 01/13/2016 finished adjuvant RT 6600 cGy/33x to prostate bed 02/22/2016 PSA 0.03 first post RT 05/13/2019 PSA 0.11 DETECTABLE 01/29/2020
RP 09/17/2015 GS 7(4+3), PNI,SVI, ECE, positive margins (35% right half, 15% left half (PT3b N0M0)) 11/12/2015 PSA 0.06 first postop 01/13/2016 finished adjuvant RT 6600 cGy/33x to prostate bed 02/22/2016 PSA 0.03 first post RT 05/13/2019 PSA 0.11 DETECTABLE 01/29/2020
MSTI
in
Advanced Prostate Cancer
9 months ago
Preparing for my Urologist Appointment re Increased PSA -- Including possible biopsy questions
I am preparing questions for my upcoming urologist appointment to discuss increased PSA. Any guidance that you veterans of these battles care to give would be appreciated. My total PSA is now 5.2 with 18.5% free. Eight months ago my PSA was 4.4. (21 months before that, 3.9.) An mpMRI six months ago
I am preparing questions for my upcoming urologist appointment to discuss increased PSA. Any guidance that you veterans of these battles care to give would be appreciated. My total PSA is now 5.2 with 18.5% free. Eight months ago my PSA was 4.4. (21 months before that, 3.9.) An mpMRI six months ago
boomerguy
in
Prostate Cancer Network
9 months ago
Switching to Lupron?
I've been on Firmagon for two years. PSA undetectable (<.064), all scans negative. Will switching to a six month Lupron shot cause testosterone flare?
I've been on Firmagon for two years. PSA undetectable (<.064), all scans negative. Will switching to a six month Lupron shot cause testosterone flare?
epfj3333
in
Advanced Prostate Cancer
9 months ago
Can anyone Assist?
A couple of weeks ago, I partially read a lengthy and extremely interesting post explaining many aspects of PCa..., also the link between PSA and PCa and many other facts. I flagged the post to read later but for some reason the post has been deleted. Can anyone point me to this post as from what
A couple of weeks ago, I partially read a lengthy and extremely interesting post explaining many aspects of PCa..., also the link between PSA and PCa and many other facts. I flagged the post to read later but for some reason the post has been deleted. Can anyone point me to this post as from what
StuartS
in
Advanced Prostate Cancer
9 months ago
Need help understanding Enzalutamide
I’m a wife of a PCa fella, 75 yrs old…married 53 yrs. I do all the research, then give info to him. He decides what he (we) will do with treatments. His history…diagnosed with biopsy in 2009…1 of 12 core samples with small amount of cancer. 3+3 with a PSA of 8. He decided to watch and wait. Reality
I’m a wife of a PCa fella, 75 yrs old…married 53 yrs. I do all the research, then give info to him. He decides what he (we) will do with treatments. His history…diagnosed with biopsy in 2009…1 of 12 core samples with small amount of cancer. 3+3 with a PSA of 8. He decided to watch and wait. Reality
Hidden
in
Advanced Prostate Cancer
9 months ago
Firmagon vs. Lupron
PSA undetectable, all scans negative. On Firmagon every 28 days. The last two shots I've had bad reactions. Chills and no sleep the day of the shot and flu like symptons for a week or so. My question is this: Would it be risky to switch to a six month Lupron shot instead of monthly Firmagon shots? The
PSA undetectable, all scans negative. On Firmagon every 28 days. The last two shots I've had bad reactions. Chills and no sleep the day of the shot and flu like symptons for a week or so. My question is this: Would it be risky to switch to a six month Lupron shot instead of monthly Firmagon shots? The
epfj3333
in
Prostate Cancer Network
9 months ago
How high must the PSA levels be before cancer can be seen in a CT scan?
Following the end of my treatment (radiation, lupron, Zytiga, prednisone) with curative intent back in May, my PSA has risen from undetectable to 0.09. As discussed on another thread this is not alarming at this stage since I still have a prostate as I never had surgery to remove it. However I am
Following the end of my treatment (radiation, lupron, Zytiga, prednisone) with curative intent back in May, my PSA has risen from undetectable to 0.09. As discussed on another thread this is not alarming at this stage since I still have a prostate as I never had surgery to remove it. However I am
Mascouche
in
Advanced Prostate Cancer
9 months ago
PSA 4.5, 9% free PSA, 65 yo
65 yo, in good health, active. I've had BPH and mild cessation incontinence ~2yrs. Semiannual PSA tests have been 2.2-3.8, very weak upward trend. MRI last April was neg. Latest reading was 4.5 ng/ml, free PSA 9%. First time urologist has mentioned free PSA. He recommends another MRI in April '24. Consensus
65 yo, in good health, active. I've had BPH and mild cessation incontinence ~2yrs. Semiannual PSA tests have been 2.2-3.8, very weak upward trend. MRI last April was neg. Latest reading was 4.5 ng/ml, free PSA 9%. First time urologist has mentioned free PSA. He recommends another MRI in April '24. Consensus
ElLayhiker
in
Prostate Cancer Network
9 months ago
Limbo period after BCR post RP and SRT and prior to PSA enough for PSMA PET?
Quick background: RP 2/02, Meyers' PSA suppression until 2016 when PSA jumped from 17 to 28 in a month, 6 mos. adjuvant ADT3 before, during, after SRT, undetectable PSA until 5/30/23 at .1; .14 6/6; .12 7/11; .17 9/5. I have talked to a uro friend and seen my rad-onc and the plan seems to be to wait
Quick background: RP 2/02, Meyers' PSA suppression until 2016 when PSA jumped from 17 to 28 in a month, 6 mos. adjuvant ADT3 before, during, after SRT, undetectable PSA until 5/30/23 at .1; .14 6/6; .12 7/11; .17 9/5. I have talked to a uro friend and seen my rad-onc and the plan seems to be to wait
bldn10
in
Advanced Prostate Cancer
9 months ago
HIP XRAYS- Will they effect my recovery or effect my Prostate Cancer-I am now 7 months post IMRT Treatment and healing fine.
Docs want me to take hip xrays ... I am healing well 7 months post IMRT 20 TX now . no major Urinary and rectal issues. Worried that hip xrays may effect my recovery. I know it's not much radiation but I am doing so well...dont want to "POKE THE BEAR"... Thanks JWS All thoughts welcome!!! 62 20
Docs want me to take hip xrays ... I am healing well 7 months post IMRT 20 TX now . no major Urinary and rectal issues. Worried that hip xrays may effect my recovery. I know it's not much radiation but I am doing so well...dont want to "POKE THE BEAR"... Thanks JWS All thoughts welcome!!! 62 20
JWS13
in
Prostate Cancer Network
9 months ago
Paying it forward for folks whose partner is undergoing treatment.
Hi all, Almost two years ago my beloved husband and I received an unexpected diagnosis. With a PSA of 73, he was quickly and thoroughly scanned and biopsied to determine he has Stage 4 Metastatic Prostate Cancer. Many of you know that shock and horror. As the months have gone by and we rode this unfortunate
Hi all, Almost two years ago my beloved husband and I received an unexpected diagnosis. With a PSA of 73, he was quickly and thoroughly scanned and biopsied to determine he has Stage 4 Metastatic Prostate Cancer. Many of you know that shock and horror. As the months have gone by and we rode this unfortunate
Happle58
in
Advanced Prostate Cancer
9 months ago
Prostate Cancer (stage IV) identified in January and Small Cell Carcinoma (Neuro endocrine) in liver in August. Any suggestions?
In January, my dad was diagnosed with Prostate Cancer (Acinar Adenocarcinoma Prostate) stage 4, with PSA of 687. PCa had reached bones but not other major organs. He was put on Abiraterone and Degarelix. In August, PSA test showed that PSA had dropped to 2.7 and there was decrease in size and PSMA avidity
In January, my dad was diagnosed with Prostate Cancer (Acinar Adenocarcinoma Prostate) stage 4, with PSA of 687. PCa had reached bones but not other major organs. He was put on Abiraterone and Degarelix. In August, PSA test showed that PSA had dropped to 2.7 and there was decrease in size and PSMA avidity
RindaMan
in
Advanced Prostate Cancer
9 months ago
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