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Doctor makes it seem like I want to have surgery and not like I actually need it
After struggling with severe constant daily pain for a year and a half, a gynaecologist has decided to put me on a waiting list for surgery. I didn't go see him requesting to be put on a list, but he thought it'd be a good idea because hormonal treatment hasn't worked, and painkillers don't help. However
After struggling with severe constant daily pain for a year and a half, a gynaecologist has decided to put me on a waiting list for surgery. I didn't go see him requesting to be put on a list, but he thought it'd be a good idea because hormonal treatment hasn't worked, and painkillers don't help. However
JustPain2
in
Endometriosis UK
1 year ago
Why we add an AART drug to ADT?
In response to a post asking if adding enzalutamide to ADT is beneficial: Xtandi would increase T levels if not simultaneously using an LHRH ADT. It blocks AR in hypothalamus leading to perception of deficit and increased LH and testicular testosterone. So enzalutamide or apalutamide used without ADT
In response to a post asking if adding enzalutamide to ADT is beneficial: Xtandi would increase T levels if not simultaneously using an LHRH ADT. It blocks AR in hypothalamus leading to perception of deficit and increased LH and testicular testosterone. So enzalutamide or apalutamide used without ADT
MateoBeach
in
Fight Prostate Cancer
1 year ago
Post RT decisions on ADT and relative risk benefit
apologies for long ramble again … Next month I discuss how long to stay on HT (zoladex) after RT last December. I can feel like dealing with some multi headed hydra trying to balance risks/benefits especially as I have G9 (albeit maybe locally contained) and my personal comorbidities. As I reflect
apologies for long ramble again … Next month I discuss how long to stay on HT (zoladex) after RT last December. I can feel like dealing with some multi headed hydra trying to balance risks/benefits especially as I have G9 (albeit maybe locally contained) and my personal comorbidities. As I reflect
SimMartin
in
Advanced Prostate Cancer
1 year ago
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Calling all BAT-men ...
(... that's you, Russ!) I am about to begin BAT with a new MO (who works in MA and NH), and am looking for some input from forum members. My MO has an existing contact at Johns Hopkins that he's consulted, but is not (yet) in direct contact with anyone from Denmeade's group so far as I know. A little
(... that's you, Russ!) I am about to begin BAT with a new MO (who works in MA and NH), and am looking for some input from forum members. My MO has an existing contact at Johns Hopkins that he's consulted, but is not (yet) in direct contact with anyone from Denmeade's group so far as I know. A little
noahware
in
Advanced Prostate Cancer
1 year ago
PSA Climbing
my husband’s psa has been climbing for 6 months. He recently left the urologist he was going to and is now going to Roswell Park Comprehensive Cancer Center in Buffalo, NY. They ordered an mri, PSMA pet and biopsy. Nothing shows but his psa keeps rising. They ordered another PSMA pet for 2/16. Advice
my husband’s psa has been climbing for 6 months. He recently left the urologist he was going to and is now going to Roswell Park Comprehensive Cancer Center in Buffalo, NY. They ordered an mri, PSMA pet and biopsy. Nothing shows but his psa keeps rising. They ordered another PSMA pet for 2/16. Advice
Dixiechopper
in
Advanced Prostate Cancer
1 year ago
Vacation Proposal
Post Script: After my long winded post, Dr Borno just phoned. They've decided they would prefer not to rush into a break. Since he's tolerating treatment so well, and his complicated case, they'd rather not rock the boat. So Dr Hala Borno MO and Dr Osama Mohamad RO (UCSF) are collaborating on Jim's
Post Script: After my long winded post, Dr Borno just phoned. They've decided they would prefer not to rush into a break. Since he's tolerating treatment so well, and his complicated case, they'd rather not rock the boat. So Dr Hala Borno MO and Dr Osama Mohamad RO (UCSF) are collaborating on Jim's
JWPMP
in
Advanced Prostate Cancer
1 year ago
Just checking to be sure 6 month break after 5 week radiation treatment is the next best step?
I hope everyone here is finding success and positive moments in this journey as we make our way through this new year ♥️ Hoping to ask for an opinion here just to do my part in making sure my dad gets the best shot at success with this. I will be updating my BIO again this week for anyone with a similar
I hope everyone here is finding success and positive moments in this journey as we make our way through this new year ♥️ Hoping to ask for an opinion here just to do my part in making sure my dad gets the best shot at success with this. I will be updating my BIO again this week for anyone with a similar
FormulaRob
in
Advanced Prostate Cancer
1 year ago
Second Opinion?
In an earlier post I mentioned a vertebral fracture of my thoracic spine that was discovered only because my General Practitioner ordered X-rays because I'd been complaining of back pain for a very long time. I'd told my Onco-team as well. They shrugged it off every time I mentioned it saying, your
In an earlier post I mentioned a vertebral fracture of my thoracic spine that was discovered only because my General Practitioner ordered X-rays because I'd been complaining of back pain for a very long time. I'd told my Onco-team as well. They shrugged it off every time I mentioned it saying, your
Hidden
in
Advanced Prostate Cancer
1 year ago
Hormone therapy with endometriosis
Hi,I was hoping for some help regarding hrt. My doctors have put me on oestrogen and utrogestan 100mg but the warnings on the side effects states special care if have endometriosis. Obviously endo feds from estrogen and progestogen. I'm a bit stuck on the right thing to do. My doctor does know my history
Hi,I was hoping for some help regarding hrt. My doctors have put me on oestrogen and utrogestan 100mg but the warnings on the side effects states special care if have endometriosis. Obviously endo feds from estrogen and progestogen. I'm a bit stuck on the right thing to do. My doctor does know my history
Bowbenji
in
Endometriosis UK
1 year ago
Looking for suggestion of clinical trials for mCRPC
I have had SBRT (2007), Chemotherapy (2010/2011), ADT using Casodex/Lupron/Zytiga (2012-Current). Interested in joining trials that involve PARP inihibitors, immunotherapy, or other new/novel therapies. Can any of you suggest trials currently accepting candidates. My PSA was undetectable (<0.01) for
I have had SBRT (2007), Chemotherapy (2010/2011), ADT using Casodex/Lupron/Zytiga (2012-Current). Interested in joining trials that involve PARP inihibitors, immunotherapy, or other new/novel therapies. Can any of you suggest trials currently accepting candidates. My PSA was undetectable (<0.01) for
Cmdrdata
in
Advanced Prostate Cancer
1 year ago
8 Month Follow up Report from Lu-J591
Results as reflected in PSA downward trend continues to impress! Current PSA is 0.030 down 80% from pre-treatment level. Reviewing: I am mHSPC, lymph node only to pelvis and abdomen. No bone involvement. Diagnosed in 2007 Gl 4+3. RARP had ECE, SVI and positive margins. Underwent docetaxel and prostate
Results as reflected in PSA downward trend continues to impress! Current PSA is 0.030 down 80% from pre-treatment level. Reviewing: I am mHSPC, lymph node only to pelvis and abdomen. No bone involvement. Diagnosed in 2007 Gl 4+3. RARP had ECE, SVI and positive margins. Underwent docetaxel and prostate
MateoBeach
in
Fight Prostate Cancer
1 year ago
Enzalutamide (Xtandi) or not
2012 Robotic Prostatectomy. Gleason 3+4 2015 Salvage Radiation plus 6 months Zoladex 2019 and 2020 PET/CT scans showed 2 mets to spine and one in Ribs plus several in left back lymph nodes. 2020 Rising PSA to 11.8 with 2 mets to spine and one in Ribs plus several in left back lymph nodes 2021 (March
2012 Robotic Prostatectomy. Gleason 3+4 2015 Salvage Radiation plus 6 months Zoladex 2019 and 2020 PET/CT scans showed 2 mets to spine and one in Ribs plus several in left back lymph nodes. 2020 Rising PSA to 11.8 with 2 mets to spine and one in Ribs plus several in left back lymph nodes 2021 (March
x-rays1
in
Advanced Prostate Cancer
1 year ago
Lupron+docetaxel+Abiraterone
First time posting. I have stage IVB PC, which was discovered via a hernia procedure in November 2022. I completed 1 month of ADT with no side effects and my PSA dropped to 1.0. Met with my Oncologist today and he proposed changing my treatment to mirror the CHAARTED clinical trial (Lupron+Docetaxel
First time posting. I have stage IVB PC, which was discovered via a hernia procedure in November 2022. I completed 1 month of ADT with no side effects and my PSA dropped to 1.0. Met with my Oncologist today and he proposed changing my treatment to mirror the CHAARTED clinical trial (Lupron+Docetaxel
TMcgee
in
Advanced Prostate Cancer
1 year ago
ART Systematic Review of the Decipher® Genomic Classifier in Prostate Cancer
Decipher genomic testing can help determine who will not benefit from ADT treatment thereby sparing them from side effects. When combined with SOC testing it increase predictive accuracy for who will have metastisis (MET) by 85-90%. Both biopsy and clinical specimens can be used. I had my Decipher
Decipher genomic testing can help determine who will not benefit from ADT treatment thereby sparing them from side effects. When combined with SOC testing it increase predictive accuracy for who will have metastisis (MET) by 85-90%. Both biopsy and clinical specimens can be used. I had my Decipher
RMontana
in
Active Surveillance - Prostate Cancer
1 year ago
Only ADT + Apalutamide as treatment
My dad has Gleason 4+5 prostate cancer. He is newly diagnosed and he started ADT one month ago. According to CT it is widely metastatic in lymph nodes. Bone scan is clear. He will start apalutamide but they said that no radiation and no cytostatic treatment. I am horrified because I thought at least
My dad has Gleason 4+5 prostate cancer. He is newly diagnosed and he started ADT one month ago. According to CT it is widely metastatic in lymph nodes. Bone scan is clear. He will start apalutamide but they said that no radiation and no cytostatic treatment. I am horrified because I thought at least
Daughter17
in
Advanced Prostate Cancer
1 year ago
Stage 4
Had 18 Chemo treatments, 20 radiation, on ADT from Start, PSA not readable after 22 months. Dr advises to stop ADT, to improve lifestyle. Not sure if this will increase risk of return sooner?
Had 18 Chemo treatments, 20 radiation, on ADT from Start, PSA not readable after 22 months. Dr advises to stop ADT, to improve lifestyle. Not sure if this will increase risk of return sooner?
Natvega
in
Advanced Prostate Cancer
1 year ago
raising the topic of a hormone holiday after July
visit to London MO today for more hormones ( switched to 3 month Zolodex because last months Degarelix injection is still a nasty swollen red lump on my stomach) I picked up my Apalutamide and had blood tests as ever with a face to face consult. I decided to ‘soft land’ the subject of a hormone holiday
visit to London MO today for more hormones ( switched to 3 month Zolodex because last months Degarelix injection is still a nasty swollen red lump on my stomach) I picked up my Apalutamide and had blood tests as ever with a face to face consult. I decided to ‘soft land’ the subject of a hormone holiday
Brysonal
in
Fight Prostate Cancer
1 year ago
ADT now failing, what is next for us. ?
After 2 years of Trelstar my husbands PSA is now 2. He had RP in 2011, with PSA 32,followed by IRT. No symptoms at all now, no sideeffects from ADT which took PSA to 0. Small rise in blood pressureHas anybody survived for a lenghty time adding a new ADT drug? Should he have chemo? He is 75 years old,
After 2 years of Trelstar my husbands PSA is now 2. He had RP in 2011, with PSA 32,followed by IRT. No symptoms at all now, no sideeffects from ADT which took PSA to 0. Small rise in blood pressureHas anybody survived for a lenghty time adding a new ADT drug? Should he have chemo? He is 75 years old,
tasmanien13
in
Advanced Prostate Cancer
1 year ago
Post chemo resensitivity to hormonal treatment
I have read here that Zytiga or Xtandi may be tried after chemo despite resistance having developed pre-chemo to one of them. Does anyone have a reference to anything in the literature about this? Thank you
I have read here that Zytiga or Xtandi may be tried after chemo despite resistance having developed pre-chemo to one of them. Does anyone have a reference to anything in the literature about this? Thank you
spw1
in
Advanced Prostate Cancer
1 year ago
CVD & GnRH agonists/antagonists
New study below [1]. Men with PCa have a greater risk of death from cardiovascular [CV] events, and androgen deprivation therapy [ADT] further increases that risk. The study looked at ADT drugs that target gonadotropin-releasing hormone (GnRH) receptors in the pituitary gland. The drugs were Degarelix
New study below [1]. Men with PCa have a greater risk of death from cardiovascular [CV] events, and androgen deprivation therapy [ADT] further increases that risk. The study looked at ADT drugs that target gonadotropin-releasing hormone (GnRH) receptors in the pituitary gland. The drugs were Degarelix
pca2004
in
Fight Prostate Cancer
1 year ago
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